@article { , title = {Feeling the benefit : fluctuating illness and the world of welfare}, abstract = {This article explores the experiences of people living with fluctuating long-term conditions, with a particular focus on the UK welfare benefits system. Respondents in this study suggested that this system constitutes a critical barrier to maintaining a positive work-based identity, being characterised by assessment and decision-making processes that are inappropriately focused and inflexibly implemented. Here, we report the findings from a cross sectional online study of people aged 18 to 75+, resident in the UK, with a self-reported diagnosis of lupus, arguably, the archetypal fluctuating condition. We explore some of the key themes respondents living with lupus identified in the context of striving to maintain a sense of themselves as productive and functional citizens. We conclude that there is a critical lack of attention afforded to the experience of fluctuating illness within the State benefits system and offer some strategies for better understanding, and addressing, this issue.}, doi = {10.1080/09687599.2019.1680346}, eissn = {1360-0508}, issn = {0968-7599}, issue = {8}, journal = {Disability and Society}, note = {F o r P e e r R e v i e w O n l y Feeling the Benefit? Fluctuating Illness and the World of Welfare Journal: Disability \& Society Manuscript ID CDSO-2019-0032 Manuscript Type: Original Article Disability \& Society}, pages = {1315-1336}, publicationstatus = {Published}, publisher = {Taylor and Francis}, url = {https://hull-repository.worktribe.com/output/2950486}, volume = {35}, keyword = {Health and Health Inequalities, Lupus, Fluctuation, Welfare benefits, Work-based identity}, year = {2020}, author = {Price, Elizabeth and Walker, Liz and Booth, Sara} }