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The CAREGIVERSPRO-MMD platform as an online informational and social support tool for people living with memory problems and their carers; an evaluation of user engagement, usability and usefulness

Howe, David; Thorpe, Jonathan; Dunn, Rosie; White, Caroline; Cunnah, Kate; Platt, Rebecca; Paulson, Kevin; Wolverson, Emma

Authors

David Howe

Jonathan Thorpe

Rosie Dunn

Rebecca Platt

Dr Emma Wolverson E.Wolverson@hull.ac.uk
Clinical Lecturer and Faculty Ethics Committee Member



Contributors

David Howe
Researcher

Jonathan Thorpe
Researcher

Rosie Dunn
Researcher

Rebecca Platt
Researcher

Abstract

People living with dementia/cognitive impairment (PwD) and their carers often have unmet needs for informational and social support post-diagnosis. Web-based platforms have the potential to address these needs, although few have been developed for use by both PwD and carers. The CAREGIVERSPRO-MMD platform was developed to provide both user groups with informational and peer-to-peer social support. Platform logging data were analysed to assess the extent to which PwD (n=37) and carers (n=37) engaged with the platform and its social/informational features in their daily lives. Participants also provided feedback on the usefulness and usability of the platform. The majority of PwD and carers found the platform and its social/informational features useful and usable, and significant subsets of both groups utilised the platform regularly. However, carers engaged with the informational and social features to a greater extent than PwD, and users highlighted that PwD typically required regular support to use the platform.

Journal Article Type Article
Journal Journal of Applied Gerontology
Print ISSN 0733-4648
Electronic ISSN 1552-4523
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
APA6 Citation Howe, D., Thorpe, J., Dunn, R., White, C., Cunnah, K., Platt, R., …Wolverson, E. (in press). The CAREGIVERSPRO-MMD platform as an online informational and social support tool for people living with memory problems and their carers; an evaluation of user engagement, usability and usefulness. Journal of applied gerontology,

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