Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia

Csipke, Emese; Moniz-Cook, Esme; Leung, Phuong; Yates, Lauren; Birt, Linda; Walton, Holly; Hogervorst, Eef; Mountain, Gail; Charlesworth, Georgina; Orrell, Martin

Abstract

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this.
Method: The mixed methods non-randomised, pre-post feasibility study occurred across England. Facilitators were recruited from the voluntary sector and memory services. Participants and their supporters took part in the 3-session intervention. Outcome measures were collected at baseline and follow-up. To evaluate acceptability, focus groups and interviews were conducted with a sub-sample of participants and facilitators.
Results: Contextual challenges to delivery including national research governance changes, affecting recruitment of study sites. Thirty-four dyads consented, with 14 facilitators providing the intervention. Dyads took part in at least two sessions (79%), and 73% in all three. Outcome measures were completed by 79% without difficulty, with minimal missing data. No significant changes were found on pre and post assessments. Post-hoc analysis found moderate effect size improvements for self-management (SMAS instrument) in people with dementia (d=0 .41) and quality of life (EQ5D measure) in carers (d=0.40). Qualitative data indicated that dyads found PRIDE acceptable, as did intervention facilitators.
Conclusions: The 3-session intervention was well accepted by participant-dyads and intervention facilitators. A randomised controlled trial of PRIDE would need to carefully consider recruitment potential across geographically varied settings, and site-stratification according to knowledge of contextual factors, such as the diversity of post-diagnostic services across the country. Letting sites themselves be responsible for identifying suitable intervention facilitators was successful. The self-report measures showed potential to be included in the main trial.

Citation

Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (2020). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, 33(Special Issue 6), 601 - 614. https://doi.org/10.1017/S1041610220001386

• Journal Article Type: Article
• Acceptance Date: Jun 19, 2020
• Online Publication Date: Aug 27, 2020
• Publication Date: 2020
• Deposit Date: Jul 30, 2020
• Publicly Available Date: Feb 28, 2021
• Journal: International Psychogeriatrics
• Print ISSN: 1041-6102
• Electronic ISSN: 1741-203X
• Publisher: Cambridge University Press
• Peer Reviewed: Peer Reviewed
• Volume: 33
• Issue: Special Issue 6
• Pages: 601 - 614
• DOI: https://doi.org/10.1017/S1041610220001386
• Keywords: Cognitive decline; Dementia; Psychosocial intervention; Research design and methodology; Community care
• Public URL: https://hull-repository.worktribe.com/output/3531079