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Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, R., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (2020). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18, https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. (2020)
Journal Article
White, C., Wolverson, E., Dunn, R., & Zafeiridi, E. (in press). The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring,

This paper reports on research into the development of a website (Caregiverspro-MMD) intended for carers and people living with dementia (PLWD). Carers, PLWD and healthcare practitioners were invited to explore a prototype of the website; information... Read More about The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support..

The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data (2020)
Journal Article
Laura, S., Clarke, C., & Wolverson, E. (in press). The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data. Dementia, https://doi.org/10.1177/1471301220929534

Background Everyday technologies, such as laptops and tablets, are often used for enjoyment, pleasure, leisure and social participation. Despite this, whilst considerable research has investigated exploring people’s experiences of using assistive te... Read More about The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data.

Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study (2020)
Journal Article
Conway, L., Wolverson, E. L., & Clarke, C. (2020). Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study. Frontiers in Medicine, 7, https://doi.org/10.3389/fmed.2020.00219

Resilience is a concept which may help explain how older people are able to live well with dementia. Existing resilience research in dementia focuses on the caregiver and relatively little is known about how dyads (person with dementia and care partn... Read More about Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study.

Resilience in older people living with dementia – A narrative analysis (2020)
Journal Article
Buggins, S., Clarke, C., & Wolverson, E. (in press). Resilience in older people living with dementia – A narrative analysis. Dementia, https://doi.org/10.1177/1471301220927614

Dominant discourses surrounding dementia tend to focus on narratives of loss and decline. Simultaneously, individuals living with dementia are vulnerable to being dispossessed of personal narratives supportive of identity and well-being. How older pe... Read More about Resilience in older people living with dementia – A narrative analysis.

The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness (2019)
Journal Article
Howe, D., Thorpe, J., Dunn, R., White, C., Cunnah, K., Platt, R., …Wolverson, E. (2019). The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of applied gerontology, https://doi.org/10.1177/0733464819885326

People living with dementia or cognitive impairment (PwD) and their carers often have unmet needs for informational and social support postdiagnosis. Web-based platforms have the potential to address these needs, although few have been developed for... Read More about The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

Digital technologies and dementia - training guide (2019)
Other
Wolverson, E., Paulson, K., White, C., Dunn, R., & Oxtoby, K. (2019). Digital technologies and dementia - training guide

This practical guide for group facilitators is now available to support training for people living with dementia/cognitive impairment in the use of digital technologies. The guide gives top tips including the importance of simple steps and the need... Read More about Digital technologies and dementia - training guide.

A qualitative study of the shared experience of humour between people living with dementia and their partners (2018)
Journal Article
Hickman, H., Clarke, C., & Wolverson, E. (in press). A qualitative study of the shared experience of humour between people living with dementia and their partners. Dementia, https://doi.org/10.1177/1471301218805895

Humour is a complex social and emotional experience which could constitute a positive resource for people endeavouring to live well with dementia. However, little is currently known about the shared use and value of humour in dyads where one person h... Read More about A qualitative study of the shared experience of humour between people living with dementia and their partners.

Exploring the usability of a web-based platform for supporting people with dementia- related disorders and their caregivers (2018)
Journal Article
Zafeiridi, P., Paulson, K., Dunn, R., Wolverson, E., White, C., Thorpe, J. A., …Tzovaras, D. (2018). Exploring the usability of a web-based platform for supporting people with dementia- related disorders and their caregivers. JMIR Formative Research, 2(1), https://doi.org/10.2196/formative.9083

Background: The increasing number of People with Dementia (PwD) drives research exploring web-based support interventions to provide effective care for larger populations. In this concept, a web-based platform (CAREGIVERSPRO-MMD, 620911) was designed... Read More about Exploring the usability of a web-based platform for supporting people with dementia- related disorders and their caregivers.

The experience of epilepsy in later life : a qualitative exploration of illness representations (2017)
Journal Article
Yennadiou, H., & Wolverson, E. (2017). The experience of epilepsy in later life : a qualitative exploration of illness representations. Epilepsy and Behavior, 70(A), 87-93. https://doi.org/10.1016/j.yebeh.2017.01.033

The objective of this study is to explore how older people living with epilepsy appraise their condition through their lived-experience. The common-sense model of illness representations (CSMIR) provides a framework to explain how individuals make se... Read More about The experience of epilepsy in later life : a qualitative exploration of illness representations.

Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis (2017)
Journal Article
Patterson, K. M., Clarke, C., Wolverson, E. L., Moniz-Cook, E. D., Patterson, K., Clarke, C., …Moniz-Cook, E. (2018). Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis. International Psychogeriatrics, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyd... Read More about Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis.

The meaning and experience of well-being in dementia for psychiatrists involved in diagnostic disclosure: a qualitative study (2016)
Journal Article
Wolverson, E., Clarke, C., & Vince, A. (2017). The meaning and experience of well-being in dementia for psychiatrists involved in diagnostic disclosure: a qualitative study. International Psychogeriatrics, 29(1), 93-104. https://doi.org/10.1017/S1041610216001484

Literature indicates that people's experiences of receiving a diagnosis of dementia can have a lasting impact on well-being. Psychiatrists frequently lead in communicating a diagnosis but little is known about the factors that could contribute to pot... Read More about The meaning and experience of well-being in dementia for psychiatrists involved in diagnostic disclosure: a qualitative study.

Living positively with dementia: a systematic review and synthesis of the qualitative literature (2015)
Journal Article
Wolverson, E., Clarke, C., & Moniz-Cook, E. (2016). Living positively with dementia: a systematic review and synthesis of the qualitative literature. Aging and Mental Health, 20(7), 676-699 . https://doi.org/10.1080/13607863.2015.1052777

Objective: Little is known about how and to what extent people with dementia live positively with their condition. This study aimed to review and carry out a synthesis of qualitative studies where accounts of the subjective experiences of people with... Read More about Living positively with dementia: a systematic review and synthesis of the qualitative literature.

Remaining hopeful in early-stage dementia: a qualitative study (2010)
Journal Article
Wolverson, E., Clarke, C., & Moniz-Cook, E. (2010). Remaining hopeful in early-stage dementia: a qualitative study. Aging and Mental Health, 14(4), (450-460). doi:10.1080/13607860903483110. ISSN 1360-7863

Objectives: Improving the quality of life for people living with dementia is widely accepted as an important outcome in dementia care services. Positive psychology, the systematic study of strengths, capacities, and personal resources, is one framewo... Read More about Remaining hopeful in early-stage dementia: a qualitative study.


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