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An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT (2022)
Journal Article
Mountain, G., Wright, J., Cooper, C. L., Lee, E., Sprange, K., Beresford-Dent, J., Young, T., Walters, S., Berry, K., Dening, T., Loban, A., Turton, E., Thomas, B. D., Young, E. L., Thompson, B. J., Crawford, B., Craig, C., Bowie, P., Moniz-Cook, E., & Foster, A. (2022). An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT. Health Technology Assessment, 26(24), 1-152. https://doi.org/10.3310/KHHA0861

BACKGROUND: There are few effective interventions for dementia. AIM: To determine the clinical effectiveness and cost-effectiveness of an intervention to promote self-management, independence and self-efficacy in people with early-stage dementia. OBJ... Read More about An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT.

The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial (2022)
Journal Article
Mountain, G. A., Cooper, C. L., Wright, J., Walters, S. J., Lee, E., Craig, C., Berry, K., Sprange, K., Young, T., Moniz-Cook, E., Dening, T., Loban, A., Turton, E., Beresford-Dent, J., Thomas, B. D., Thompson, B. J., & Young, E. L. (2022). The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial. The Lancet Healthy Longevity, 3(4), e276-e285. https://doi.org/10.1016/S2666-7568%2822%2900059-9

Background: There is an urgent clinical need for evidence-based psychosocial interventions for people with mild dementia. We aimed to determine the clinical benefits and cost-effectiveness of Journeying through Dementia (JtD), an intervention designe... Read More about The Journeying through Dementia psychosocial intervention versus usual care study: a single-blind, parallel group, phase 3 trial.

Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey (2022)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., & Dunning, R. (2022). Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey. Age and ageing, 51(3), Article afac047. https://doi.org/10.1093/ageing/afac047

OBJECTIVE: following the #BanBPSD campaign there has been critical interest in common terminology used for 'changes in behaviour' associated with dementia. However, commentaries and emerging studies have not fully considered family carer perspectives... Read More about Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey.

Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit (2022)
Journal Article
Coleston-Shields, D. M., Challis, D., Worden, A., Broome, E., Dening, T., Guo, B., Hoe, J., Lloyd-Evans, B., Moniz-Cook, E., Morris, S., Poland, F., Prothero, D., & Orrell, M. (2022). Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit. Trials, 23(1), Article 54. https://doi.org/10.1186/s13063-021-05995-y

Background: Improving care at home for people with dementia is a core policy goal in the dementia strategies of many European countries. A challenge to effective home support is the occurrence of crises in the care of people with dementia which arise... Read More about Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): a study protocol for a randomised controlled trial of a Resource Kit.

Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey (2021)
Journal Article
Gray, K. L., Moniz-Cook, E., Reichelt, K., Duffy, F., & James, I. A. (2021). Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey. British Journal of Clinical Psychology, https://doi.org/10.1111/bjc.12316

Objectives: Behaviours that challenge (BtC) reflect the most costly and burdensome aspects of dementia where non-pharmacological interventions rather than antipsychotic medication have been recommended as first-line approaches for over a decade (NICE... Read More about Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey.

Getting our terminology right: the power of language (2021)
Journal Article
James, I., Reichelt, K., Duffy, F., & Moniz-Cook, E. (2021). Getting our terminology right: the power of language. Journal of Dementia Care, 29(2), 24-27

For over 25 years, the term challenging behaviour (CB) has been used to describe agitation and other “distressed” behaviours associated with dementia (Stokes 2000). But such is the power of language and the importance of getting our terminology right... Read More about Getting our terminology right: the power of language.

Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management (2021)
Journal Article
James, I. A., Gray, K., Moniz-Cook, E., Lee, K., Reichelt, K., & Richardson, J. (2022). Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management. BJPsych Advances, 28(1), 11-20. https://doi.org/10.1192/bja.2021.12

The National Institute for Health and Care Excellence (NICE) informs us that the first-line treatments for behavioural and psychological symptoms of dementia (BPSD) are non-pharmacological. Although psychotropics used to be the main strategy in the m... Read More about Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management.

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, 77(4), 1992-2001. https://doi.org/10.1111/jan.14787

Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a mixed methods convergent paral... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial (2021)
Journal Article
Wenborn, J., O’Keeffe, A. G., Mountain, G., Moniz-Cook, E., King, M., Omar, R. Z., Mundy, J., Burgess, J., Poland, F., Morris, S., Pizzo, E., Vernooij-Dassen, M., Challis, D., Michie, S., Russell, I., Sackley, C., Graff, M., Swinson, T., Crellin, N., Hynes, S., …Orrell, M. (2021). Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial. PLoS Medicine, 18(1), Article e1003433. https://doi.org/10.1371/journal.pmed.1003433

© 2021 Wenborn et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cr... Read More about Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial.

Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study (2021)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D. M., Yates, J., Challis, D., Dening, T., Hoe, J., Lloyd-Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D., & Orrell, M. (2021). Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study. JMIR Research Protocols, 10(1), Article e14781. https://doi.org/10.2196/14781

Background: Teams working in the community to manage crisis in dementia currently exist, but with widely varying models of practice, it is difficult to determine the effectiveness of such teams. Objective: The aim of this study is to develop a “best... Read More about Development of an evidence-based best practice model for teams managing crisis in dementia: Protocol for a qualitative study.

Promoting independence in Dementia (Pride): A feasibility randomized controlled trial (2021)
Journal Article
Csipke, E., Shafayat, A., Sprange, K., Bradshaw, L., Montgomery, A. A., Ogollah, R., Moniz-Cook, E., & Orrell, M. (2021). Promoting independence in Dementia (Pride): A feasibility randomized controlled trial. Clinical Interventions in Aging, 16, 363-378. https://doi.org/10.2147/CIA.S281139

Background: There is a need for interventions to foster and maintain independence for people with dementia to support community living, improve morale, and reduce stigma. We investigated a social intervention to promote living well and enhance indepe... Read More about Promoting independence in Dementia (Pride): A feasibility randomized controlled trial.

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Manthorpe, J., & Moniz-Cook, E. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise.

The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (179-190). Jessica Kingsley Publishers

AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study (2020)
Journal Article
Broome, E. E., Coleston-Shields, D. M., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M., & Orrell, M. (2020). AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10), Article e18971. https://doi.org/10.2196/18971

Background: Specialist community teams often support people with dementia who experience crisis. These teams may vary in composition and models of practice, which presents challenges when evaluating their effectiveness. A best practice model for deme... Read More about AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (2020). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach (2020)
Journal Article
Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D. M., Dening, T., Hoe, J., Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Streater, A., Trigg, E., & Orrell, M. (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), Article 505. https://doi.org/10.1186/s12888-020-02899-0

Background
Teams delivering crisis resolution services for people with dementia and their carers provide short-term interventions to prevent admission to acute care settings. There is great variation in these services across the UK. This article rep... Read More about Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach.

Challenging behaviour in dementia care: A novel framework for translating knowledge to practice (2020)
Journal Article
James, I. A., Reichelt, K., James, I., Reichelt, K., Moniz-Cook, E., & Lee, K. (2020). Challenging behaviour in dementia care: A novel framework for translating knowledge to practice. the Cognitive Behaviour Therapist, 13, Article e43. https://doi.org/10.1017/S1754470X20000434

This article provides guidance on the management of challenging behaviours (CBs) in dementia care, and introduces concepts from positive behavioural support not usually applied to dementia. While the use of formulations has received a lot of attentio... Read More about Challenging behaviour in dementia care: A novel framework for translating knowledge to practice.