All Outputs (99)

Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress (2018)
Journal Article
Manthorpe, J., Hart, C., Watts, S., Goudie, F., Charlesworth, G., Fossey, J., & Moniz-Cook, E. (2018). Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress. International Journal of Care and Caring, 2(1), 109-123. https://doi.org/10.1332/239788218X15187915193354

Distressing symptoms in dementia are hard to manage for many family carers. This article explores practitioners’ perceptions of the barriers to accessing skilled behaviour management support encountered by carers. A survey of cases referred to the En... Read More about Practitioners’ understanding of barriers to accessing specialist support by family carers of people with dementia in distress.

Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial (2018)
Journal Article
Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., Woods, B., Garrod, L., Testad, I., Woodward-Carlton, B., Wenborn, J., Knapp, M., & Fossey, J. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Medicine, 15(2), e1002500. https://doi.org/10.1371/journal.pmed.1002500

© 2018 Ballard et al. Background: Agitation is a common, challenging symptom affecting large numbers of people with dementia and impacting on quality of life (QoL). There is an urgent need for evidence-based, cost-effective psychosocial interventions... Read More about Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial.

Psychosocial interventions for people with dementia: a synthesis of systematic reviews (2018)
Journal Article
McDermott, O., Charlesworth, G., Hogervorst, E., Stoner, C., Moniz-Cook, E., Spector, A., Csipke, E., & Orrell, M. (2019). Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging and Mental Health, 23(4), 393-403. https://doi.org/10.1080/13607863.2017.1423031

Objectives: Over the last 10 years there has been a multitude of studies of psychosocial interventions for people with dementia. However, clinical services face a dilemma about which intervention should be introduced into clinical practice because of... Read More about Psychosocial interventions for people with dementia: a synthesis of systematic reviews.

‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP Bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More about ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings.

Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families (2017)
Journal Article
Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., Edwards, R. T., Hilton, A., Orrell, M., Campion, P., Stokes, G., Jones, R. S., Bird, M., Poland, F., & Manthorpe, J. (2017). Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants for Applied Research, 5(15), 1-290. https://doi.org/10.3310/pgfar05150

Background

Dementia with challenging behaviour (CB) causes significant distress for caregivers and the person with dementia. It is associated with breakdown of care at home and disruption in care homes. Challenge Demcare aimed to assist care home... Read More about Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families.

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Presentation / Conference Contribution
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., Moniz-Cook, E., Woods, B., & Whitaker, R. Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PLoS ONE, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background
There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More about Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.

Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O’Brien, J. T., Mountain, G., Banerjee, S., Woods, B., Perneczky, R., Lafortune, L., Roberts, C., McCleery, J., Pickett, J., Bunn, F., Challis, D., Charlesworth, G., Featherstone, K., Fox, C., Goodman, C., Jones, R., …Livingston, G. (2017). Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations. Health Technology Assessment, 21(26), 1-192. https://doi.org/10.3310/hta21260

Background: There is currently no disease-modifying treatment available to halt or delay the progression of the disease pathology in dementia. An agreed core set of the best-available and most appropriate outcomes for disease modification would facil... Read More about Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations.

Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review (2017)
Journal Article
Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., & Orrell, M. (2017). Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281-1296. https://doi.org/10.1017/S1041610217000655

Background: Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. T... Read More about Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review.

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement) (2017)
Journal Article
Gove, D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., & Øksnebjerg, L. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health, 22(6), 723-729. https://doi.org/10.1080/13607863.2017.1317334

This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper... Read More about Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement).

Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development (2017)
Journal Article
James, I., Watson, R., Whitaker, C., Stokes, G., Hart, C., & Moniz-Cook, E. (2017). Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development. FPOP Bulletin, 19-27

Background/Aims: Competing theories exist regarding the causes and nature of behaviours that challenge (BC). The present study attempted to provide better insight into these behaviours and determine whether there were any underlying relationships for... Read More about Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development.

The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial (2017)
Journal Article
Orrell, M., Yates, L., Leung, P., Kang, S., Hoare, Z., Whitaker, C., Burns, A., Knapp, M., Leroi, I., Moniz-Cook, E., Pearson, S., Simpson, S., Spector, A., Roberts, S., Russell, I., de Waal, H., Woods, R. T., & Orgeta, V. (2017). The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial. PLoS Medicine, 14(3), e1002269. https://doi.org/10.1371/journal.pmed.1002269

Background Cognitive Stimulation Therapy (CST) is a well-established group psychosocial intervention for people with dementia. There is evidence that homebased programmes of cognitive stimulation delivered by family caregivers may benefit both the pe... Read More about The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial.

Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications (2017)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R. T., Murray, J., Whitaker, R., Stafford, J., Knapp, M., Romeo, R., Romeo, R., Woodward-Carlton, B., Khan, Z., Testad, I., & Corbett, A. (2017). Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications. Journal of the American Medical Directors Association, 18(5), 453.e1-453.e6. https://doi.org/10.1016/j.jamda.2017.01.024

Introduction: Knowledge regarding the longitudinal course, impact, or treatment implications of pain in people with dementia living in care homes is very limited. Methods: We investigated the people with dementia living in 67 care homes in London and... Read More about Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications.

Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions (2017)
Journal Article
Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, E., Toot, S., Streater, A., Crellin, N., Whitaker, C., d’Amico, F., & Rehill, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), 1-184. https://doi.org/10.3310/pgfar05050

Background

Dementia is a national priority and this research addresses the Prime Minister’s commitment to dementia research as demonstrated by his 2020 challenge and the new UK Dementia Research Institute. In the UK > 800,000 older people have dem... Read More about Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions.

Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis (2017)
Journal Article
Patterson, K. M., Clarke, C., Wolverson, E. L., Moniz-Cook, E. D., Patterson, K., Clarke, C., Wolverson, E., & Moniz-Cook, E. (2018). Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis. International Psychogeriatrics, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyd... Read More about Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis.

Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice (2016)
Journal Article
Dröes, R. M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., Verbeek, H., Vernooij-Dassen, M., Clare, L., Johannessen, A., Roes, M., Verhey, F., Charras, K., van Audenhove, C., Casey, D., Evans, S., Fabbo, A., Franco, M., Gerritsen, D., Vittoria Gianelli, M., …Zuidema, S. (2017). Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging and Mental Health, 21(1), 4-17. https://doi.org/10.1080/13607863.2016.1254596

© 2017, © 2016 Informa UK Limited, trading as Taylor & Francis Group. Background: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recent... Read More about Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.

Factors of resilience in informal caregivers of people with dementia from integrative international data analysis (2016)
Journal Article
Joling, K. J., Windle, G., Dröes, R.-M., Meiland, F., van Hout, H. P., MacNeil Vroomen, J., van de Ven, P. M., Moniz-Cook, E., & Woods, B. (2016). Factors of resilience in informal caregivers of people with dementia from integrative international data analysis. Dementia and Geriatric Cognitive Disorders, 42(3-4), 198-214. https://doi.org/10.1159/000449131

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under... Read More about Factors of resilience in informal caregivers of people with dementia from integrative international data analysis.

Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial (2016)
Journal Article
Ballard, C., Orrell, M., Sun, Y., Moniz-Cook, E., Stafford, J., Whitaker, R., Woods, B., Corbett, A., Banerjee, S., Testad, I., Garrod, L., Khan, Z., Woodward-Carlton, B., Wenborn, J., & Fossey, J. (2017). Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial. International journal of geriatric psychiatry, 32(10), 1094-1103. https://doi.org/10.1002/gps.4572

Background: Very few interventional studies have directly examined the impact of treatment approaches on Health-Related Quality of Life (HRQL) in people with dementia. This is of particular importance in therapies to address behavioural symptoms, whe... Read More about Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial.

Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial (2016)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Corbett, A., Woods, B., Orrell, M., Prakash, R., Moniz-Cook, E., & Testad, I. (2016). Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial. Journal of the American Medical Directors Association, 17(8), 741-747. https://doi.org/10.1016/j.jamda.2016.04.006

Objectives: Apathy is common, impactful, and difficult to manage in people with dementia. We evaluated the efficacy of non-pharmacological interventions, exercise and social interaction, in combination with antipsychotic review, to reduce apathy in p... Read More about Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial.

A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being (2016)
Journal Article
Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016). A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being. International Psychogeriatrics, 28(11), 1761-1774. https://doi.org/10.1017/S1041610216000922

Background: Behavioural and psychological symptoms in dementia (BPSD) are important predictors of institutionalisation as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the rol... Read More about A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being.