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Getting our terminology right: the power of language (2021)
Journal Article
James, I., Reichelt, K., Duffy, F., & Moniz-Cook, E. (2021). Getting our terminology right: the power of language. Journal of Dementia Care, 29(2), 24-27

For over 25 years, the term challenging behaviour (CB) has been used to describe agitation and other “distressed” behaviours associated with dementia (Stokes 2000). But such is the power of language and the importance of getting our terminology right... Read More about Getting our terminology right: the power of language.

Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management (2021)
Journal Article
Andrew James, I., Gray, K., Moniz-Cook, E., Lee, K., Reichelt, K., & Richardson, J. (in press). Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management. BJPsych Advances, https://doi.org/10.1192/bja.2021.12

NICE dementia guidelines inform us that nonpharmacological treatments are first-line treatments for Behavioural and Psychological Symptoms of Dementia (BPSD). While psychotropics used to be the main treatment strategy in the management of behaviours... Read More about Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management.

Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial (2021)
Journal Article
Csipke, E., Shafayat, A., Sprange, K., Bradshaw, L., Montgomery, A. A., Ogollah, R., …Orrell, M. (2021). Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial. Clinical Interventions in Aging, 16, 363-378. https://doi.org/10.2147/cia.s281139

Background: There is a need for interventions to foster and maintain independence for people with dementia to support community living, improve morale, and reduce stigma. We investigated a social intervention to promote living well and enhance indepe... Read More about Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial.

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, https://doi.org/10.1111/jan.14787

© 2021 John Wiley & Sons Ltd Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia. (2021)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., …Orrell, M. (2021). Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia. JMIR Research Protocols, 10(1), https://doi.org/10.2196/14781

Background: Teams working in the community to manage crisis in dementia are available, but with widely varying models of practice it is difficult to determine the effectiveness of such teams. The aim of this study is to develop a model of best pract... Read More about Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia..

Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial (2021)
Journal Article
Wenborn, J., O’Keeffe, A. G., Mountain, G., Moniz-Cook, E., King, M., Omar, R. Z., …Orrell, M. (2021). Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial. PLoS Medicine, 18(1), https://doi.org/10.1371/journal.pmed.1003433

© 2021 Wenborn et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cr... Read More about Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial.

Supporting the Supporters: Interventions to Reduce Family Distress (2020)
Book Chapter
Ulstein, I., Manthorpe, J., & Moniz-Cook, E. (2020). Supporting the Supporters: Interventions to Reduce Family Distress. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. , (166-178). London: Jessica Kingsley Publishers

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. , (179-190). London: Jessica Kingsley Publishers

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Moniz-Cook, E., & Manthorpe, J. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. London: Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise. The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach (2020)
Journal Article
Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D. M., Dening, T., Hoe, J., …Orrell, M. (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), https://doi.org/10.1186/s12888-020-02899-0

Background Teams delivering crisis resolution services for people with dementia and their carers provide short-term interventions to prevent admission to acute care settings. There is great variation in these services across the UK. This article rep... Read More about Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (in press). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study (2020)
Journal Article
Broome, E. E., Coleston-Shields, D. M., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M., & Orrell, M. (2020). AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10), https://doi.org/10.2196/18971

Background: Specialist community teams often support people with dementia who experience crisis. These teams may vary in composition and models of practice, which presents challenges when evaluating their effectiveness. A best practice model for deme... Read More about AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study.

Challenging behaviour in dementia care: A novel framework for translating knowledge to practice (2020)
Journal Article
James, I. A., Reichelt, K., James, I., Reichelt, K., Moniz-Cook, E., & Lee, K. (2020). Challenging behaviour in dementia care: A novel framework for translating knowledge to practice. the Cognitive Behaviour Therapist, 13, https://doi.org/10.1017/S1754470X20000434

This article provides guidance on the management of challenging behaviours (CBs) in dementia care, and introduces concepts from positive behavioural support not usually applied to dementia. While the use of formulations has received a lot of attentio... Read More about Challenging behaviour in dementia care: A novel framework for translating knowledge to practice.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, https://doi.org/10.1017/S1041610220001386

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this. Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., …Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, B., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (in press). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18(1), https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

INTERDEM network celebrates 20 years (2020)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., & Chattat, R. (2020). INTERDEM network celebrates 20 years. Dementia in Europe, 32, 10-12

Myrra Vernooij-Dassen, INTERDEM Chair, Esme Moniz-Cook, Co-chair and Rabih Chattat, Board member highlight some of the network’s key achievements of the past 20 years.

Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial (2019)
Journal Article
Shafayat, A., Csipke, E., Bradshaw, L., Charlesworth, G., Day, F., Leung, P., …Orrell, M. (2019). Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial. Trials, 20, https://doi.org/10.1186/s13063-019-3838-x

© 2019 The Author(s). Background: Memory services often see people with early stage dementia who are largely independent and able to participate in community activities but who run the risk of reducing activities and social networks. PRIDE is a sel... Read More about Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial.