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Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol (2019)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., …Orrell, M. (in press). Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol. JMIR Research Protocols,

Introduction: Teams working in the community to manage crisis in dementia do currently exist, but with widely varying models of practice it is difficult to determine the effectiveness of such teams. The aim of this study is to develop a ‘Best Practic... Read More about Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol.

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? (2019)
Journal Article
Dunn, R., & Moniz-Cook, E. (2019). Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?. FPOP bulletin, 51-61

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? Rosie Dunn and Esme Moniz-Cook Abstract Written feedback was examined from participants who attend... Read More about Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care (2019)
Journal Article
Wright, J., Foster, A., Cooper, C., Sprange, K., Walters, S., Berry, K., …Mountain, G. (2019). Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care. BMJ open, 9(9), https://doi.org/10.1136/bmjopen-2019-029207

© Author(s) (or their employer(s)) 2019. Introduction Services are being encouraged to provide postdiagnostic treatment to those with dementia but the availability of evidence-based interventions following diagnosis has not kept pace with incre... Read More about Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care.

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia (2019)
Journal Article
Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., …Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615-1630. https://doi.org/10.2147/CIA.S214367

© 2019 Yates et al. Objective: Support after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervent... Read More about The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families (2018)
Digital Artefact
Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N., & Moniz-Cook, E. (2018). Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families

Abstract In understanding the range and depth of people’s experiences it is important to include the wide range of approaches which capture the richness within a given knowledge base. However, systematic reviews using quantitative data alone risk mis... Read More about Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families.

Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes (2018)
Journal Article
Holle, D., Köller, L., Moniz-Cook, E., & Halek, M. (2018). Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. doi:10.1891/1061-3749.26.3.544

Background and purpose: The Challenging Behaviour Scale (CBS) measures the behaviour of individuals with dementia. The study aims to translate the English CBS into German (CBS-G) and test its linguistic validity. Methods: The two-panel approach was u... Read More about Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes.

Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia (2018)
Journal Article
Csipke, E., Yates, L., Cook, E. M., Leung, P., Charlesworth, G., Walton, H., …Orrell, M. (2018). Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia. International Journal of Clinical Trials, 5(4), 177-185. https://doi.org/10.18203/2349-3259.ijct20184399

INTRODUCTION In the UK over 800,000 older people have dementia, which can lead to social exclusion, loss of identity and independence due to deterioration in cognition, activities of daily living, the double stigma of age and dementia, and the reduce... Read More about Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia.

Implementing e-learning and e-tools among for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory (2018)
Journal Article
Keenan, J., Manthorpe, J., Hart, C., & Moniz-Cook, E. (2018). Implementing e-learning and e-tools among for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory. Dementia, https://doi.org/10.1177/1471301218803195

Dementia-related symptoms, sometimes termed challenging or distressing behaviour, can give rise to significant distress in care homes. Individualised formulation-led interventions show promise in reducing these behaviours. ResCare, a cluster randomis... Read More about Implementing e-learning and e-tools among for care home staff supporting residents with dementia and challenging behaviour: A process evaluation of the ResCare study using normalisation process theory.

Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation (2018)
Journal Article
Øksnebjerg, L., Diaz-Ponce, A., Gove, D., Moniz-Cook, E., Mountain, G., Chattat, R., & Woods, B. (2018). Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation. Health Expectations, 21(6), 1056-1065. https://doi.org/10.1111/hex.12799

Background: People with dementia are often marginalized and excluded from influence, also in relation to dementia research. There is, however, a growing requirement for inclusion through Patient and Public Involvement (PPI), but there is still limite... Read More about Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation.

Evidence Briefing: Behaviour that challenges in dementia (2018)
Report
James, I. A., & Moniz-Cook, E. (2018). Evidence Briefing: Behaviour that challenges in dementia. British Psychological Society

Key messages • Behaviour that challenges (BtC) can be a consequence of a person’s unmet health or psychosocial need(s). • ‘Non-pharmacological’ approaches are the first-line treatments, rather than psychotropic medications. • Service pathways for p... Read More about Evidence Briefing: Behaviour that challenges in dementia.

Practitioners' understanding of barriers to accessing specialist support by family carers of people with dementia in distress (2018)
Journal Article
Manthorpe, J., Hart, C., Watts, S., Goudie, F., Charlesworth, G., Fossey, J., & Moniz-Cook, E. (2018). Practitioners' understanding of barriers to accessing specialist support by family carers of people with dementia in distress. International Journal of Care and Caring, 2(1), 109-123. https://doi.org/10.1332/239788218x15187915193354

Distressing symptoms in dementia are hard to manage for many family carers. This article explores practitioners' perceptions of the barriers to accessing skilled behaviour management support encountered by carers. A survey of cases referred to the En... Read More about Practitioners' understanding of barriers to accessing specialist support by family carers of people with dementia in distress.

Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial (2018)
Journal Article
Ballard, C., Corbett, A., Orrell, M., Williams, G., Moniz-Cook, E., Romeo, R., …Fossey, J. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial. PLoS Medicine, 15(2), e1002500. https://doi.org/10.1371/journal.pmed.1002500

© 2018 Ballard et al. Background: Agitation is a common, challenging symptom affecting large numbers of people with dementia and impacting on quality of life (QoL). There is an urgent need for evidence-based, cost-effective psychosocial interventions... Read More about Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: A cluster-randomised controlled trial.

Psychosocial interventions for people with dementia: a synthesis of systematic reviews (2018)
Journal Article
McDermott, O., Charlesworth, G., Hogervorst, E., Stoner, C., Moniz-Cook, E., Spector, A., …Orrell, M. (2019). Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging and Mental Health, 23(4), 393-403. https://doi.org/10.1080/13607863.2017.1423031

Objectives: Over the last 10 years there has been a multitude of studies of psychosocial interventions for people with dementia. However, clinical services face a dilemma about which intervention should be introduced into clinical practice because of... Read More about Psychosocial interventions for people with dementia: a synthesis of systematic reviews.

‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More about ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings.

Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health car (2017)
Journal Article
Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., …Manthorpe, J. (2017). Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants for Applied Research, 5(15), 1-290. doi:10.3310/pgfar05150

Background Dementia with challenging behaviour (CB) causes significant distress for caregivers and the person with dementia. It is associated with breakdown of care at home and disruption in care homes. Challenge Demcare aimed to assist care home... Read More about Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health car.

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Journal Article
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., …Whitaker, R. (2017). Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial. Alzheimer's & dementia, 13(7, supplement), 171. https://doi.org/10.1016/j.jalz.2017.07.011

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PloS one, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More about Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.