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Supporting the Supporters: Interventions to Reduce Family Distress (2020)
Book Chapter
Ulstein, I., Manthorpe, J., & Moniz-Cook, E. (2020). Supporting the Supporters: Interventions to Reduce Family Distress. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. , (166-178). London: Jessica Kingsley Publishers

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. , (179-190). London: Jessica Kingsley Publishers

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Moniz-Cook, E., & Manthorpe, J. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. London: Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise. The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., …Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, R., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (2020). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18, https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics,

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this. Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

INTERDEM network celebrates 20 years (2020)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., & Chattat, R. (2020). INTERDEM network celebrates 20 years. Dementia in Europe, 32, 10-12

Myrra Vernooij-Dassen, INTERDEM Chair, Esme Moniz-Cook, Co-chair and Rabih Chattat, Board member highlight some of the network’s key achievements of the past 20 years.

Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial (2019)
Journal Article
Shafayat, A., Csipke, E., Bradshaw, L., Charlesworth, G., Day, F., Leung, P., …Orrell, M. (2019). Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial. Trials, 20, https://doi.org/10.1186/s13063-019-3838-x

© 2019 The Author(s). Background: Memory services often see people with early stage dementia who are largely independent and able to participate in community activities but who run the risk of reducing activities and social networks. PRIDE is a sel... Read More about Promoting Independence in Dementia (PRIDE): Protocol for a feasibility randomised controlled trial.

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto (2019)
Journal Article
Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., …de Vugt, M. (in press). Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto. Aging and Mental Health, https://doi.org/10.1080/13607863.2019.1693968

Objective: To provide a new perspective on integrated biomedical and psychosocial dementia research. Background: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approac... Read More about Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM Manifesto.

Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol (2019)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., …Orrell, M. (in press). Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol. JMIR Research Protocols,

Introduction: Teams working in the community to manage crisis in dementia do currently exist, but with widely varying models of practice it is difficult to determine the effectiveness of such teams. The aim of this study is to develop a ‘Best Practic... Read More about Development of an evidence-based 'Best Practice Model' for teams managing crisis in dementia: protocol.

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? (2019)
Journal Article
Dunn, R., & Moniz-Cook, E. (2019). Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?. FPOP Bulletin, 148, 51-61

Written feedback was examined from participants who attended the February 2019 consultation. This informed the 35-item online survey that followed (May-June 2019). One item questioned practice on instruments used by specialist BtC practitioners to ev... Read More about Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care (2019)
Journal Article
Wright, J., Foster, A., Cooper, C., Sprange, K., Walters, S., Berry, K., …Mountain, G. (2019). Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care. BMJ open, 9(9), https://doi.org/10.1136/bmjopen-2019-029207

© Author(s) (or their employer(s)) 2019. Introduction Services are being encouraged to provide postdiagnostic treatment to those with dementia but the availability of evidence-based interventions following diagnosis has not kept pace with incre... Read More about Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care.

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia (2019)
Journal Article
Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., …Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615-1630. https://doi.org/10.2147/CIA.S214367

© 2019 Yates et al. Objective: Support after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervent... Read More about The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Psychosocial Approaches to Behaviours that Challenge Care (2019)
Book Chapter
Moniz-Cook, E. (2019). Psychosocial Approaches to Behaviours that Challenge Care. In K. Harrison Dening (Ed.), Evidence-Based Practice in Dementia for Nurses and Nursing Students. London: Jessica Kingsley Publishers

Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes (2018)
Journal Article
Holle, D., Köller, L., Moniz-Cook, E., & Halek, M. (2018). Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. doi:10.1891/1061-3749.26.3.544

Background and purpose: The Challenging Behaviour Scale (CBS) measures the behaviour of individuals with dementia. The study aims to translate the English CBS into German (CBS-G) and test its linguistic validity. Methods: The two-panel approach was u... Read More about Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes.

Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families (2018)
Digital Artefact
Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N., & Moniz-Cook, E. (2018). Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families

Abstract In understanding the range and depth of people’s experiences it is important to include the wide range of approaches which capture the richness within a given knowledge base. However, systematic reviews using quantitative data alone risk mis... Read More about Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families.


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