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Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy (2021)
Journal Article
Khamis, A. M., Bradshaw, A., Santarelli, M., Khamis, A. M., Sartain, K., Johnson, M., …Murtagh, F. E. (2021). Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy. BMJ open, 11(9), https://doi.org/10.1136/bmjopen-2021-051904

Introduction Person-centred outcome measures improve quality of care and patient outcomes but are used inconsistently in palliative care practice. To address this implementation gap, we developed the 'RESOLVE Implementation Strategy'. This protocol d... Read More about Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy.

Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study (2021)
Journal Article
Guo, P., Pinto, C., Edwards, B., Pask, S., Firth, A., O’Brien, S., & Murtagh, F. E. (2021). Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study. Palliative medicine, 026921632110433. https://doi.org/10.1177/02692163211043371

Background: Transitions between care settings (hospice, hospital and community) can be challenging for patients and family caregivers and are often an under-researched area of health care, including palliative care. Aim: To explore the experience of... Read More about Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study.

Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol (2021)
Journal Article
Spichiger, F., Koppitz, A. L., De Wolf-Linder, S., Murtagh, F. E., Volken, T., & Larkin, P. (in press). Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol. Journal of advanced nursing, https://doi.org/10.1111/jan.14953

Aims: We aim to evaluate the effectiveness of the Integrated Palliative Care Outcome Scale for people with dementia-based case studies to improve the caring quality for people with dementia in nursing homes by frontline staff and family members. Back... Read More about Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol.

Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study (2021)
Journal Article
Fairlamb, H. J., & Murtagh, F. E. (2021). Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study. BMC Palliative Care, 20(1), https://doi.org/10.1186/s12904-021-00805-3

Background: End-stage cardiac and respiratory diseases are common in the UK. People with these end-stage conditions experience similar, or even worse, symptomatic suffering to cancer patients but are less likely to receive specialist palliative care... Read More about Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study.

Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis (2021)
Journal Article
Disalvo, D., Agar, M., Caplan, G., Murtagh, F. E., Luckett, T., Heneka, N., …Phillips, J. (in press). Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis. Palliative medicine, https://doi.org/10.1177/02692163211024451

Background: Access to palliative care in the community enables people to live in their preferred place of care, which is often home. Community palliative care services struggle to provide timely 24-h services to patients and family. This has resulted... Read More about Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis.

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services (2021)
Journal Article
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R. L., Hocaoglu, M., …Murtagh, F. (2021). Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services. Palliative medicine, 35(7), 1225-1237. https://doi.org/10.1177/02692163211017387

Background: Specialist palliative care services play an important role in conducting advance care planning during COVID-19. Little is known about the challenges to advance care planning in this context, or the changes services made to adapt. Aim: Des... Read More about Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

Palliative care for children and young people with stage 5 chronic kidney disease (2021)
Journal Article
Craig, F., Henderson, E. M., Patel, B., Murtagh, F. E., & Bluebond-Langner, M. (2021). Palliative care for children and young people with stage 5 chronic kidney disease. Pediatric Nephrology, https://doi.org/10.1007/s00467-021-05056-1

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something that all paediatric renal physicians and most paediatricians will encounter. In this paper, we present the literature on three key areas of palliativ... Read More about Palliative care for children and young people with stage 5 chronic kidney disease.

Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review (2021)
Journal Article
Freemantle, M., & Murtagh, F. (in press). Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2021-002894

Background: Implantable cardioverter defibrillators (ICDs) are used to treat life-threatening cardiac arrhythmias and prevent sudden cardiac arrest. As recipients age they may develop greater risk of dying as a result of progressive multimorbidity ra... Read More about Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021)
Journal Article
Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., …Walshe, C. (2021). ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative medicine, 35(5), 814-829. https://doi.org/10.1186/ISRCTN16561225

Background: Specialist palliative care services have a key role in a whole system response to COVID-19, a disease caused by the SARS-CoV-2 virus. There is a need to understand service response to share good practice and prepare for future care. A... Read More about ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall).

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality (2021)
Journal Article
Harding, R., Bristowe, K., Coombes, L., Murtagh, F. E., Chambers, L., Bluebond-Langner, M., …Ellis-Smith, C. (in press). Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, https://doi.org/10.1007/s11136-021-02814-4

Introduction: Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mod... Read More about Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol (2021)
Journal Article
Hurst, H., Jones, E., Ormandy, P., Brettle, A., Nixon, A. C., Young, H., …Finnigan, R. (2021). Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol. BMJ open, 11(3), https://doi.org/10.1136/bmjopen-2020-040715

Introduction Reported outcomes for older people with advanced chronic kidney disease (CKD) often focus on survival and mortality and little attention is paid to symptom burden and health-related quality of life. Recognising frailty and providing inte... Read More about Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol.

Health of mothers of children with a life-limiting condition: A comparative cohort study (2021)
Journal Article
Fraser, L. K., Murtagh, F. E., Aldridge, J., Sheldon, T., Gilbody, S., & Hewitt, C. (in press). Health of mothers of children with a life-limiting condition: A comparative cohort study. Archives of Disease in Childhood, https://doi.org/10.1136/archdischild-2020-320655

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ. Objective: This study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition... Read More about Health of mothers of children with a life-limiting condition: A comparative cohort study.

The health of mothers of children with a life-limiting condition; a comparative cohort study (2021)
Journal Article
Fraser, L., Murtagh, F., Aldridge, J., Sheldon, T., Gilbody, S., & Hewitt, C. (in press). The health of mothers of children with a life-limiting condition; a comparative cohort study. Archives of Disease in Childhood,

Objectives This study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition. Methods Comparative national longitudinal cohort study using linked primary and seco... Read More about The health of mothers of children with a life-limiting condition; a comparative cohort study.

Palliative medicine in the intensive care unit: needs, delivery, quality (2021)
Journal Article
Hill, S. A., Leahy, H. E., A Hill, S., Dawood, A., Boland, E., Leahy, H. E., & Em Murtagh, F. (in press). Palliative medicine in the intensive care unit: needs, delivery, quality. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2020-002795

Background: 15%-20% of critical care patients die during their hospital admission. This service evaluation assesses quality of palliative care in intensive care units (ICUs) compared with national standards. Methods: Retrospective review of records f... Read More about Palliative medicine in the intensive care unit: needs, delivery, quality.

Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing (2021)
Journal Article
Davies, J. M., Sleeman, K. E., Davies, J. M., Maddocks, M., Chua, K. C., Demakakos, P., …Murtagh, F. E. (2021). Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing. The Lancet. Public Health, 6(3), e155-e163. https://doi.org/10.1016/S2468-2667%2820%2930292-9

© 2021 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY 4.0 license Background: Many patients prefer to avoid hospital-based care towards the end of life, yet hospitalisation is common and more likely for peopl... Read More about Socioeconomic position and use of hospital-based care towards the end of life: a mediation analysis using the English Longitudinal Study of Ageing.

The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall) (2021)
Journal Article
Oluyase, A. O., Hocaoglu, M., Cripps, R. L., Maddocks, M., Walshe, C., Fraser, L. K., …Higginson, I. J. (in press). The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall). Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2021.01.138

Context: Systematic data on the care of people dying with COVID-19 are scarce. Objectives: To understand the response of and challenges faced by palliative care services during the COVID-19 pandemic, and identify associated factors. Methods: We surve... Read More about The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall).

Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context (2020)
Journal Article
Bradshaw, A., Santarelli, M., Mulderrig, M., Khamis, A., Sartain, K., Boland, J. W., …Murtagh, F. E. (in press). Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context. Palliative medicine, https://doi.org/10.1177/0269216320972049

© The Author(s) 2020. Background: Despite evidence demonstrating the utility of using Person-Centred Outcome Measures within palliative care settings, implementing them into routine practice is challenging. Most research has described barriers to, wi... Read More about Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.

Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT) (2020)
Journal Article
O’Halloran, P., Noble, H., Norwood, K., Maxwell, P., Murtagh, F., Shields, J., …Brazil, K. (2020). Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT). BMC Nephrology, 21, https://doi.org/10.1186/s12882-020-02129-5

© 2020, The Author(s). Background: Advance Care Planning is recommended for people with end-stage kidney disease but evidence is limited. Robust clinical trials are needed to investigate the impact of advance care planning in this population. There... Read More about Nurse-led advance care planning with older people who have end-stage kidney disease: feasibility of a deferred entry randomised controlled trial incorporating an economic evaluation and mixed methods process evaluation (ACReDiT).

The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers (2020)
Journal Article
Bajwah, S., Oluyase, A. O., Yi, D., Gao, W., Evans, C. J., Grande, G., …Higginson, I. J. (2020). The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. The Cochrane database of systematic reviews, 2020(9), https://doi.org/10.1002/14651858.CD012780.pub2

Background Serious illness is often characterised by physical/psychological problems, family support needs, and high healthcare resource use. Hospital‐based specialist palliative care (HSPC) has developed to assist in better meeting the needs of pat... Read More about The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers.