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All Outputs (46)

What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. (2019)
Journal Article
Dell Olio, M., Pask, S., Seymour, J., & Reeve, J. (2019). What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. European journal for person centered healthcare, 7(4),

Introduction Growing numbers of people now live with long term conditions. For each person, the challenges are multiple and unique to that individual. In recognition of this, health policy places greater emphasis on the delivery of person-centred ca... Read More about What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review..

The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study. (2019)
Journal Article
Boland, J. W., Allgar, V., Boland, E. G., Bennett, M. I., Kaasa, S., Hjermstad, M. J., & Johnson, M. (2020). The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study. European Journal of Clinical Pharmacology, 76(3), 393-402. https://doi.org/10.1007/s00228-019-02801-2

© 2019, The Author(s). Purpose: Opioids reduce cancer-related pain but an association with shorter survival is variably reported. Aim: To investigate the relationship between pain, analgesics, cancer and survival within the European Palliative Care C... Read More about The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study..

Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study (2019)
Journal Article
Namisango, E., Bristowe, K., Murtagh, F. E. M., Downing, J., Powell, R. A., Abas, M., …Murtagh, F. (in press). Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliative medicine,

Abstract Background: Paediatric life-limiting and life-threatening conditionslife-limiting conditions place significant strain on children, families and health systems. Given high service use among this population, it is essential that care address... Read More about Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.

Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales (2019)
Journal Article
Whiting, D. (2020). Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales. Psychological Injury and Law, 13(1), 11-18. https://doi.org/10.1007/s12207-019-09366-6

It is well documented that people with moderate-to-severe traumatic brain injury (TBI) can undergo personality changes, including becoming more impulsive in terms of how they behave. Legal guidance and academic commentary support the view that impuls... Read More about Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales.

Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial (2019)
Journal Article
White, N., Oostendorp, L. J., Tomlinson, C., Yardley, S., Ricciardi, F., Gökalp, H., …Stone, P. (2020). Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial. Palliative medicine, 34(1), 134-144. https://doi.org/10.1177/0269216319880767

Background: Recognising dying is a key clinical skill for doctors, yet there is little training. Aim: To assess the effectiveness of an online training resource designed to enhance medical students’ ability to recognise dying. Design: Online... Read More about Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial.

Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention. (2019)
Journal Article
Kochovska, S., Huang, C., Johnson, M. J., Agar, M. R., Fallon, M. T., Kaasa, S., …Currow, D. C. (2020). Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention. Journal of pain and symptom management, 59(3), 637-645. https://doi.org/10.1016/j.jpainsymman.2019.10.026

© 2019 American Academy of Hospice and Palliative Medicine Context: Minimizing bias in randomized controlled trials (RCTs) includes intention-to-treat analyses. Hospice/palliative care RCTs are constrained by high attrition unpredictable when consent... Read More about Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention..

Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. (2019)
Journal Article
Kinchin, I., Currow, D. C., Chang, S., Reddel, H. K., Kochovska, S., Ferreira, D., …Ekström, M. (2020). Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. Journal of pain and symptom management, 59(2), 197-205.e2. https://doi.org/10.1016/j.jpainsymman.2019.09.021

© 2019 American Academy of Hospice and Palliative Medicine Context: Breathlessness is associated with depression, but its relationship to anxiety or impaired function is less clear. Objectives: This study evaluated associations between chronic breath... Read More about Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults..

A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol (2019)
Journal Article
Wright, C., Hart, S. P., Allgar, V., English, A., Swan, F., Dyson, J., …Crooks, M. G. (2019). A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol. ERJ Open Research, 5(4), Article 0186. https://doi.org/10.1183/23120541.00186-2019

Introduction: Idiopathic pulmonary fibrosis (IPF) is a chronic and progressive lung disease that causes breathlessness and cough that worsen over time, limiting daily activities and negatively impacting quality of life. Although treatments are now av... Read More about A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol.

What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) (2019)
Journal Article
Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P., & Murtagh, F. E. (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Annals of palliative medicine, 8(5), 775-780. https://doi.org/10.21037/apm.2019.08.10

© Annals of Palliative Medicine. All rights reserved. There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care O... Read More about What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS).

Mental wellbeing in bereaved carers: A Health Survey for England population study (2019)
Journal Article
Hodiamont, F., Allgar, V., Currow, D. C., & Johnson, M. J. (in press). Mental wellbeing in bereaved carers: A Health Survey for England population study. BMJ Supportive & Palliative Care, https://doi.org/10.1136/bmjspcare-2019-001957

Objectives: The experience of caregiving may affect carers' well-being into bereavement. We explored associations between mental well-being and previous experience of bereavement of, and caring for, someone close at the end-of-life. Methods: An end-o... Read More about Mental wellbeing in bereaved carers: A Health Survey for England population study.

Improving the quality of life of people with advanced respiratory disease and severe breathlessness (2019)
Journal Article
Booth, S., & Johnson, M. J. (2019). Improving the quality of life of people with advanced respiratory disease and severe breathlessness. Breathe, 15(3), 198-215. https://doi.org/10.1183/20734735.0200-2019

Advanced respiratory disease imposes a greater symptom burden than many cancers but not does have comparable recognition of the need for supportive and palliative care or the infrastructure for its systematic delivery. Consequently, many people with... Read More about Improving the quality of life of people with advanced respiratory disease and severe breathlessness.

Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study (2019)
Journal Article
Buture, A., Boland, J. W., Ahmed, F., & Dikomitis, L. (2019). Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study. Journal of Multidisciplinary Healthcare, 12, 691-698. https://doi.org/10.2147/JMDH.S207128

Introduction and objective: The diagnosis of primary headaches is based on the International Classification of Headache Disorders (ICHD-3). Cluster headache (CH), a debilitating primary headache, is often misdiagnosed as migraine. In the absence of b... Read More about Images depicting headache pain – a tool to aid the diagnosis of cluster headache: a pilot study.

Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle (2019)
Journal Article
Koffman, J., Yorganci, E., Yi, D., Gao, W., Murtagh, F., Pickles, A., …Evans, C. J. (2019). Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle. Trials, 20(1), Article 506. https://doi.org/10.1186/s13063-019-3612-0

Background The AMBER (Assessment, Management, Best Practice, Engagement, Recovery Uncertain) care bundle is a complex intervention used in UK hospitals to support patients with uncertain recovery. However, it has yet to be evaluated in a randomised... Read More about Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle.

Oral modified release morphine for breathlessness in chronic heart failure: a randomized placebo-controlled trial (2019)
Journal Article
Johnson, M. J., Cockayne, S., Currow, D. C., Bell, K., Hicks, K., Fairhurst, C., …Clark, A. (2019). Oral modified release morphine for breathlessness in chronic heart failure: a randomized placebo-controlled trial. ESC Heart Failure, 6(6), 1149-1160. https://doi.org/10.1002/ehf2.12498

© 2019 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of the European Society of Cardiology. Aims: Morphine is shown to relieve chronic breathlessness in chronic obstructive pulmonary disease. There are no definitive da... Read More about Oral modified release morphine for breathlessness in chronic heart failure: a randomized placebo-controlled trial.

The relationship between anthropometric measures and cardiometabolic health in shift work: findings from the Atlantic PATH Cohort Study (2019)
Journal Article
Sweeney, E., Yu, Z. M., Dummer, T. J. B., Cui, Y., DeClercq, V., Forbes, C., …Adisesh, A. (2020). The relationship between anthropometric measures and cardiometabolic health in shift work: findings from the Atlantic PATH Cohort Study. International Archives of Occupational and Environmental Health, 93(1), 67-76. https://doi.org/10.1007/s00420-019-01459-8

Purpose: To evaluate the relationship between anthropometric measures and cardiometabolic health in shift workers compared to non-shift workers. Methods: A population health study was conducted with 4155 shift workers and 8258 non-shift workers from... Read More about The relationship between anthropometric measures and cardiometabolic health in shift work: findings from the Atlantic PATH Cohort Study.

Optimised clinical study recruitment in palliative care: success strategies and lessons learned (2019)
Journal Article
White, C., Noble, S., Watson, M., Swan, F., Nelson, A., & Johnson, M. J. (2020). Optimised clinical study recruitment in palliative care: success strategies and lessons learned. BMJ supportive & palliative care, 10(2), 216-220. https://doi.org/10.1136/bmjspcare-2019-001820

© Author(s) (or their employer(s)) 2020. Recruitment challenges to clinical research studies in palliative care settings, particularly in hospices, are well documented. However, a recent study (Hospice Inpatient Deep vein thrombosis Detection (HIDDen... Read More about Optimised clinical study recruitment in palliative care: success strategies and lessons learned.

Australia-modified Karnofsky Performance Scale and physical activity in COPD and lung cancer: an exploratory pooled data analysis (2019)
Journal Article
Barbetta, C., Allgar, V., Maddocks, M., Ribeiro, C., Wilcock, A., Currow, D. C., …Johnson, M. J. (in press). Australia-modified Karnofsky Performance Scale and physical activity in COPD and lung cancer: an exploratory pooled data analysis. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2019-001869

Objectives: Patient-relevant measures of functional status are required in chronic obstructive pulmonary disease (COPD) and lung cancer in clinical practice and research. We explored the relationship between the Australia-modified Karnofsky Performan... Read More about Australia-modified Karnofsky Performance Scale and physical activity in COPD and lung cancer: an exploratory pooled data analysis.

Establishing key criteria to define and compare models of specialist palliative care: a mixed-methods study using qualitative interviews and Delphi survey (2019)
Journal Article
Firth, A. M., O’Brien, S. M., Guo, P., Seymour, J., Richardson, H., Bridges, C., …Murtagh, F. E. (2019). Establishing key criteria to define and compare models of specialist palliative care: a mixed-methods study using qualitative interviews and Delphi survey. Palliative medicine, https://doi.org/10.1177/0269216319858237

Background: Specialist palliative care services have various configurations of staff, processes and interventions, which determine how care is delivered. Currently, there is no consistent way to define and distinguish these different models of care.... Read More about Establishing key criteria to define and compare models of specialist palliative care: a mixed-methods study using qualitative interviews and Delphi survey.

Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration (2019)
Journal Article
Janssen, D. J., Rechberger, S., Wouters, E. F., Schols, J. M., Johnson, M. J., Currow, D. C., …Spruit, M. A. (2019). Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration. Journal of Clinical Medicine, 8(7), Article 922. https://doi.org/10.3390/jcm8070922

Background: Insight into health conditions associated with death can inform healthcare policy. We aimed to cluster 27,525,663 deceased people based on the health conditions associated with death to study the associations between the health condition... Read More about Clustering of 27,525,663 death records from the United States based on health conditions associated with death: an example of big health data exploration.

Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique (2019)
Journal Article
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., …Murtagh, F. E. (in press). Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique. Palliative medicine, 026921631985415. https://doi.org/10.1177/0269216319854154

© The Author(s) 2019. Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise coll... Read More about Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique.