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The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis (2019)
Journal Article
Garcia, M., Luckett, T., Johnson, M., Hutchinson, A., Lal, S., & Phillips, J. (in press). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, https://doi.org/10.1111/jan.14039

Aim: To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. Design: A secondary analysis of semi-structured interview data. Methods: Interviews with patients who had a... Read More

Parental life-limiting illness: What do we tell the children? (2019)
Journal Article
Fearnley, R., & Boland, J. W. (2019). Parental life-limiting illness: What do we tell the children?. Healthcare, 7(1), 47. https://doi.org/10.3390/healthcare7010047

Being diagnosed with and having a life-limiting illness is a stressful experience which is compounded when the patient has dependent children. An important aspect of the patient’s psychosocial care should include recognition that their children are a... Read More

Pulmonary rehabilitation, physical activity, respiratory failure, and palliative respiratory care (2019)
Journal Article
Spruit, M. A., Rochester, C. L., Pitta, F., Kenn, K., Schols, A. M., Hart, N., …Franssen, F. M. E. (in press). Pulmonary rehabilitation, physical activity, respiratory failure, and palliative respiratory care. Thorax, https://doi.org/10.1136/thoraxjnl-2018-212044

The CIRO Academy in Horn (the Netherlands) organized a two-day meeting to present and discuss the studies published in 2017 pertaining to key priority areas of respiratory and critical care medicine. This report provides a comprehensive review of the... Read More

Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses (2019)
Journal Article
Swan, F., Newey, A., Bland, M., Allgar, V., Booth, S., Bausewein, C., …Johnson, M. (in press). Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses. Palliative medicine, 026921631983539. https://doi.org/10.1177/0269216319835393

Background: Chronic breathlessness is a neglected symptom of advanced diseases. Aim: To examine the effect of airflow for chronic breathlessness relief. Design: Exploratory systematic review and meta-analysis. Data sources: Medline, CINA... Read More

Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland (2019)
Journal Article
Boland, J. W., Kabir, M., Bush, S. H., Spiller, J. A., Johnson, M. J., Agar, M., & Lawlor, P. (in press). Delirium management by palliative medicine specialists: a survey from the association for palliative medicine of Great Britain and Ireland. BMJ supportive & palliative care, bmjspcare-2018-001586. https://doi.org/10.1136/bmjspcare-2018-001586

Objectives Delirium is common in palliative care settings. Management includes detection, treatment of cause(s), non-pharmacological interventions and family support; strategies which are supported with varying levels of evidence. Emerging evidence s... Read More

Optimising feedback interventions for early career professionals: a scoping review and framework (2019)
Journal Article
Mattick, K., Brennan, N., Briscoe, S., Papoutsi, C., & Pearson, M. (2019). Optimising feedback interventions for early career professionals: a scoping review and framework. Medical Education, 53(4), 355-368. https://doi.org/10.1111/medu.13794

Introduction: Meta-analyses have shown that feedback can be a powerful intervention to increase learning and performance but there is significant variability in impact. New trials are adding little to the question of whether feedback interventions ar... Read More

Patients’ views on care and their association with outcomes in palliative care (2019)
Journal Article
Firth, A. M., Pinto, C., Firth, A. M., Groeneveld, E. I., Guo, P., Sykes, N., & Murtagh, F. E. (2019). Patients’ views on care and their association with outcomes in palliative care. Palliative medicine, https://doi.org/10.1177/0269216319831383

When patients face advanced illness, their experience of care is especially important. In palliative care, we often rely on the accounts of bereaved relatives to report the quality of end-of-life care, and there are no validated patient-reported meas... Read More

The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial (2019)
Journal Article
Swan, F., English, A., Allgar, V., Hart, S. P., & Johnson, M. (2019). The hand-held fan and the Calming Hand for people with chronic breathlessness: a feasibility trial. Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2019.02.017

Introduction The battery operated hand-held fan (“fan”) and the Calming Hand (CH), a cognitive strategy, are interventions used in clinical practice to relieve chronic breathlessness. Objective To test the feasibility of a phase III randomised c... Read More

Haematology nurses' perspectives of their patients' places of care and death: a UK qualitative interview study (2019)
Journal Article
McCaughan, D., Roman, E., Smith, A. G., Garry, A. C., Johnson, M. J., Patmore, R. D., …Howell, D. A. (2019). Haematology nurses' perspectives of their patients' places of care and death: a UK qualitative interview study. European journal of oncology nursing, 39, 70-80. https://doi.org/10.1016/j.ejon.2019.02.003

Purpose Patients with haematological malignancies are more likely to die in hospital, and less likely to access palliative care than people with other cancers, though the reasons for this are not well understood. The purpose of our study was to... Read More

Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study (2019)
Journal Article
White, C., Noble, S. I. R., Watson, M., Swan, F., Allgar, V. L., Napier, E., …Johnson, M. J. (2019). Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study. Lancet Haematology, 6(2), e79-e88. doi:10.1016/s2352-3026(18)30215-1

Summary Background The prevalence of deep venous thrombosis in patients with advanced cancer is unconfirmed and it is unknown whether current international thromboprophylaxis guidance is applicable to this population. We aimed to determine prevalen... Read More

Twelve tips for developing palliative care teaching in an undergraduate curriculum for medical students (2019)
Journal Article
Boland, J. W., Barclay, S., & Gibbins, J. (in press). Twelve tips for developing palliative care teaching in an undergraduate curriculum for medical students. Medical Teacher, 1-7. doi:10.1080/0142159x.2018.1533243

Palliative care is the holistic care of patients with advanced, progressive incurable illness. Palliative care is well recognized as an essential component of medical student curricula. However, teaching is variable within medical schools. Using curr... Read More

Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex (2019)
Journal Article
Benelhaj, N. E., Maraveyas, A., Featherby, S., Collier, M. E., Johnson, M. J., & Ettelaie, C. (2019). Alteration in endothelial permeability occurs in response to the activation of PAR2 by factor Xa but not directly by the TF-factor VIIa complex. Thrombosis Research, 175, 13-20. https://doi.org/10.1016/j.thromres.2019.01.009

Alterations in the endothelial permeability occur in response to the activation of coagulation mechanisms in order to control clot formation. The activation of the protease activated receptors (PAR) can induce signals that regulate such cellular resp... Read More

Agreement between breathlessness severity and unpleasantness in people with chronic breathlessness: A longitudinal clinical study (2019)
Journal Article
Ekström, M., Williams, M., Johnson, M. J., Huang, C., & Currow, D. C. (2019). Agreement between breathlessness severity and unpleasantness in people with chronic breathlessness: A longitudinal clinical study. Journal of pain and symptom management, doi:10.1016/j.jpainsymman.2019.01.001

Context Chronic breathlessness is a cardinal symptom in cardiopulmonary disease where both overall intensity or severity (S) and unpleasantness (U) are commonly quantified. Objective We aimed to evaluate agreement between breathlessness severity... Read More

Identifying potentially inappropriate prescribing in older people with dementia: a systematic review (2019)
Journal Article
Hukins, D., Macleod, U., & Boland, J. W. (in press). Identifying potentially inappropriate prescribing in older people with dementia: a systematic review. European Journal of Clinical Pharmacology, doi:10.1007/s00228-018-02612-x

Purpose Older people with dementia are at risk of adverse events associated with potentially inappropriate prescribing. Aim: to describe (1) how international tools designed to identify potentially inappropriate prescribing have been used in studies... Read More

Invisible and intangible illness: a qualitative interview study of patients’ experiences and understandings of conservatively managed end-stage kidney disease (2019)
Journal Article
Bristowe, K., Selman, L. E., Higginson, I. J., & Murtagh, F. E. M. (2019). Invisible and intangible illness: a qualitative interview study of patients’ experiences and understandings of conservatively managed end-stage kidney disease. Annals of palliative medicine, 8, doi:10.21037/apm.2018.12.06

Background: Increasing numbers of older adults are living with kidney disease. For those with comorbidities, conservative management of end-stage kidney disease is a viable option: dialysis may afford limited or no survival benefit, and perceived bur... Read More

A life or “good death” situation? A worldwide ecological study of the national contexts of countries that have and have not implemented palliative care (2018)
Journal Article
Clark, J., Barnes, A., Campbell, M., & Gardiner, C. (2019). A life or “good death” situation? A worldwide ecological study of the national contexts of countries that have and have not implemented palliative care. Journal of pain and symptom management, 57(4), 793-801. https://doi.org/10.1016/j.jpainsymman.2018.12.007

Context Palliative care advocates argue that service implementation is feasible in all settings. Yet, services have developed patchily in low- and middle-income settings. Beyond Human Development Index indicators, there has been limited engagement w... Read More

Finding a ‘new normal’ following acute illness: A qualitative study of influences on frail older people’s care preferences (2018)
Journal Article
Etkind, S. N., Lovell, N., Nicholson, C. J., Higginson, I. J., & Murtagh, F. E. (2019). Finding a ‘new normal’ following acute illness: A qualitative study of influences on frail older people’s care preferences. Palliative medicine, 33(3), 301-311. doi:10.1177/0269216318817706

Background: The frail older population is growing, and many frail older people have episodes of acute illness. Patient preferences are increasingly considered important in the delivery of person-centred care and may change following acute illness. Ai... Read More

Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study (2018)
Journal Article
Boland, J. W., Allgar, V., Boland, E. G., Kaasa, S., Hjermstad, M. J., & Johnson, M. J. (2019). Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study. Palliative medicine, 33(2), 206-212. doi:10.1177/0269216318811011

Background: Performance status, a predictor of cancer survival, and ability to maintain independent living deteriorate in advanced disease. Understanding predictors of performance status trajectory could help identify those at risk of functional det... Read More