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Do early warning track and trigger tools improve patient outcomes? A systematic synthesis without meta-analysis (2020)
Journal Article
Credland, N., Dyson, J., & Johnson, M. J. (in press). Do early warning track and trigger tools improve patient outcomes? A systematic synthesis without meta-analysis. Journal of advanced nursing, https://doi.org/10.1111/jan.14619

Aim To determine the effect of Early Warning Track and Trigger Tools on patient outcomes. Design A systematic review: synthesis without meta‐analysis. Data sources Electronic databases were searched from 1 January 2013–1 August 2018 and 221... Read More about Do early warning track and trigger tools improve patient outcomes? A systematic synthesis without meta-analysis.

Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a conceptual framework (2020)
Journal Article
Clark, J., Gnanapragasam, S., Greenley, S., Pearce, J., & Johnson, M. (in press). Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a conceptual framework. Palliative medicine, https://doi.org/10.1177/0269216320966505

© The Author(s) 2020. Background: Opioids are essential medicines. Despite international and national laws permitting availability, opioid access remains inadequate, particularly in South, Southeast, East and Central Asia. Aim: To review evidence of... Read More about Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a conceptual framework.

CANcer BEhavioural nutrition and exercise feasibility trial (CanBenefit); phase I qualitative interview findings (2020)
Journal Article
Swan, F., Chen, H., Forbes, C. C., Johnson, M. J., & Lind, M. (in press). CANcer BEhavioural nutrition and exercise feasibility trial (CanBenefit); phase I qualitative interview findings. Journal of Geriatric Oncology, https://doi.org/10.1016/j.jgo.2020.09.026

Background: Older people with lung cancer are often frail and unfit due to their cancer and co-morbidities and may tolerate cancer treatments poorly. Physical activity (PA) and a healthy diet offer quality of life benefit to people with cancer before... Read More about CANcer BEhavioural nutrition and exercise feasibility trial (CanBenefit); phase I qualitative interview findings.

The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers (2020)
Journal Article
Bajwah, S., Oluyase, A. O., Yi, D., Gao, W., Evans, C. J., Grande, G., …Higginson, I. J. (2020). The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers. The Cochrane database of systematic reviews, 2020(9), https://doi.org/10.1002/14651858.CD012780.pub2

Background Serious illness is often characterised by physical/psychological problems, family support needs, and high healthcare resource use. Hospital‐based specialist palliative care (HSPC) has developed to assist in better meeting the needs of pat... Read More about The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers.

Morphine for the symptomatic reduction of chronic breathlessness: the case for controlled release (2020)
Journal Article
Currow, D. C., Kochovska, S., Ferreira, D., & Johnson, M. (2020). Morphine for the symptomatic reduction of chronic breathlessness: the case for controlled release. Current opinion in supportive and palliative care, 14(3), 177-181. https://doi.org/10.1097/SPC.0000000000000520

Purpose of Review: Clinicians who seek to reduce the symptomatic burden of chronic breathlessness by initiating regular low dose morphine have the choice of immediate or sustained release formulations - which will be better for this often frail popu... Read More about Morphine for the symptomatic reduction of chronic breathlessness: the case for controlled release.

The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people (2020)
Journal Article
Etkind, S., Lovell, N., Bone, A., Guo, P., Nicholson, C., Murtagh, F. E., & Higginson, I. J. (2020). The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people. BMC Geriatrics, 20(1), https://doi.org/10.1186/s12877-020-01725-2

Background: Patient preferences are integral to person-centred care, but preference stability is poorly understood in older people, who may experience fluctuant illness trajectories with episodes of acute illness. We aimed to describe, and explore in... Read More about The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people.

‘I don’t talk about my distress to others; I feel that I have to suffer my problems..’ Voices of Indian women with breast cancer: a qualitative interview study (2020)
Journal Article
Daniel, S., Venkateswaran, C., Hutchinson, A., & Johnson, M. J. (2020). ‘I don’t talk about my distress to others; I feel that I have to suffer my problems..’ Voices of Indian women with breast cancer: a qualitative interview study. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, https://doi.org/10.1007/s00520-020-05756-8

Background: Breast cancer is the commonest form of cancer among women globally, including in India. The rising incidence in the developing world is thought to be due to increased life expectancy, urbanization and adoption of western lifestyles. A rec... Read More about ‘I don’t talk about my distress to others; I feel that I have to suffer my problems..’ Voices of Indian women with breast cancer: a qualitative interview study.

The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease (2020)
Journal Article
Murphy, E., Burns, A., Murtagh, F. E. M., Rooshenas, L., & Caskey, F. J. (in press). The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease. Nephrology Dialysis Transplantation, https://doi.org/10.1093/ndt/gfaa209

Shared decision making in advanced chronic kidney disease (CKD) requires unbiased information on survival and person-centred outcomes known to matter to patients: quality of life, symptom burden and support from family and healthcare professionals. T... Read More about The Prepare for Kidney Care Study: prepare for renal dialysis versus responsive management in advanced chronic kidney disease.

International variation in dialysis discontinuation in patients with advanced kidney disease (2020)
Journal Article
O'Hare, A. M., Jassal, S. V., Larkina, M., Jager, K. J., Murtagh, F. E., O’Hare, A. M., …Swartz, R. D. (2020). International variation in dialysis discontinuation in patients with advanced kidney disease. Canadian Medical Association Journal, 192(35), E995-E1002. https://doi.org/10.1503/cmaj.191631

BACKGROUND: Decisions about dialysis for advanced kidney disease are often strongly shaped by sociocultural and system-level factors rather than the priorities and values of individual patients. We examined international variation in the uptake of co... Read More about International variation in dialysis discontinuation in patients with advanced kidney disease.

Activities forgone because of chronic breathlessness: a cross-sectional, population prevalence study (2020)
Journal Article
Kochovska, S., Chang, S., Morgan, D. D., Ferreira, D., Sidhu, M., Saleh Moussa, R., …Currow, D. C. (2020). Activities forgone because of chronic breathlessness: a cross-sectional, population prevalence study. Palliative Medicine Reports, 1(1), 166-170. https://doi.org/10.1089/pmr.2020.0083

Background Chronic breathlessness is a prevalent, disabling syndrome affecting many people for years. Identifying the impact of chronic breathlessness on people’s activities in the general population is pivotal for designing symptom management strat... Read More about Activities forgone because of chronic breathlessness: a cross-sectional, population prevalence study.

A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease (2020)
Journal Article
Luckett, T., San Martin, A., Currow, D. C., Johnson, M. J., Barnes-Harris, M. M. M., & Phillips, J. L. (2020). A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease. Palliative medicine, 34(10), 1291-1304. https://doi.org/10.1177/0269216320940153

Background: Chronic obstructive pulmonary disease and lung cancer are both life-limiting diseases that confer burden in the form of symptoms and affect functioning and quality of life. Comparing burden between these diseases is of interest to determi... Read More about A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease.

COVID-19: guidance on palliative care from a European Respiratory Society international task force (2020)
Journal Article
Janssen, D. J., Maddocks, M., Janssen, D. J. A., Ekström, M., Currow, D. C., Johnson, M. J., …Marsaa, K. (2020). COVID-19: guidance on palliative care from a European Respiratory Society international task force. European respiratory journal, 56(3), 2002583. https://doi.org/10.1183/13993003.02583-2020

Copyright ©ERS 2020. BACKGROUND: Many people are dying from coronavirus disease 2019 (COVID-19), but consensus guidance on palliative care in COVID-19 is lacking. This new life-threatening disease has put healthcare systems under pressure, with the i... Read More about COVID-19: guidance on palliative care from a European Respiratory Society international task force.

Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink (2020)
Journal Article
Fraser, L. K., Murtagh, F. E., Sheldon, T., Gilbody, S., & Hewitt, C. (2020). Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink. BMJ open, 10(7), https://doi.org/10.1136/bmjopen-2019-034024

INTRODUCTION: There are now nearly 50 000 children with a life-limiting or life-threatening condition in the UK. These include conditions where there is no reasonable hope of cure and from which they will die, as well as conditions for which curative... Read More about Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink.

Opioids for breathlessness: a narrative review (2020)
Journal Article
Currow, D. C., Johnson, M. J., Pollack, A., Ferreira, D. H., Kochovska, S., Ekström, M., & Harrison, C. (2020). Opioids for breathlessness: a narrative review. BMJ Supportive & Palliative Care, 10(3), 287-295. https://doi.org/10.1136/bmjspcare-2020-002314

ABSTRACT Chronic breathlessness is a disabling and distressing condition for which there is a growing evidence base for a range of interventions. Non-pharmacological interventions are the mainstay of management and should be optimised prior to use... Read More about Opioids for breathlessness: a narrative review.

Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study (2020)
Journal Article
Currow, D. C., Currow, D. C., Murtagh, F. E., Oliver, A., Baddeley, E., Bravington, A., …Boland, J. (2020). Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study. BMJ open, 10(6), https://doi.org/10.1136/bmjopen-2020-039154

INTRODUCTION: Studies regarding the management of malignant bowel obstruction (MBO) report conflicting findings. This is partly due to different outcome measures being used to evaluate severity of MBO and the response to treatments. Furthermore, curr... Read More about Development of a core outcome set to use in the research and assessment of malignant bowel obstruction: protocol for the RAMBO study.

Patients’ and caregivers’ experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine: A qualitative study (2020)
Journal Article
Ferreira, D. H., Phillips, J. L., Ferreira, D. H., Boland, J. W., Kochovska, S., Honson, A., …Currow, D. C. (2020). Patients’ and caregivers’ experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine: A qualitative study. Palliative medicine, 34(8), 1078-1087. https://doi.org/10.1177/0269216320929549

Background: Chronic breathlessness is a disabling syndrome that profoundly impacts patients’ and caregivers’ lives. Driving is important for most people, including those with advanced disease. Regular, low-dose, sustained-release morphine safely red... Read More about Patients’ and caregivers’ experiences of driving with chronic breathlessness before and after regular low-dose sustained-release morphine: A qualitative study.

Identification of patients with potential palliative care needs: a systematic review of screening tools in primary care (2020)
Journal Article
ElMokhallalati, Y., Bradley, S. H., Chapman, E., Ziegler, L., Murtagh, F. E., Johnson, M. J., & Bennett, M. I. (in press). Identification of patients with potential palliative care needs: a systematic review of screening tools in primary care. Palliative medicine, https://doi.org/10.1177/0269216320929552

Background Despite increasing evidence of the benefits of early access to palliative care, many patients do not receive palliative care in a timely manner. A systematic approach in primary care can facilitate earlier identification of patients with... Read More about Identification of patients with potential palliative care needs: a systematic review of screening tools in primary care.

Does the International Narcotics Control Board (INCB) sufficiently prioritise enablement of access to therapeutic opioids? A systematic critical analysis of six INCB annual reports, 1968-2018 (2020)
Journal Article
Clark, J. D., Johnson, M., Fabowale, B., Farrelly, M., & Currow, D. (in press). Does the International Narcotics Control Board (INCB) sufficiently prioritise enablement of access to therapeutic opioids? A systematic critical analysis of six INCB annual reports, 1968-2018. Journal of Global Health Reports, 4,

Background The International Narcotics Control Board (INCB) has overseen international drug control since 1968 with the dual remit of restricting illicit production and use of controlled substances, whilst enabling access for clinical purposes. Two... Read More about Does the International Narcotics Control Board (INCB) sufficiently prioritise enablement of access to therapeutic opioids? A systematic critical analysis of six INCB annual reports, 1968-2018.

Quality of life changes with duration of chronic breathlessness: a random sample of community-dwelling people. (2020)
Journal Article
Currow, D. C., Chang, S., Grande, E. D., Ferreira, D. H., Kochovska, S., Kinchin PhD, I., …Ekstrom, M. (2020). Quality of life changes with duration of chronic breathlessness: a random sample of community-dwelling people. Journal of pain and symptom management, https://doi.org/10.1016/j.jpainsymman.2020.05.015

Introduction Chronic breathlessness is associated with poorer quality of life. This population study aimed to define dimensions of quality of life (QoL), and duration and dominant causes of breathlessness that most diminished QoL. Methods This... Read More about Quality of life changes with duration of chronic breathlessness: a random sample of community-dwelling people..

Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care (2020)
Journal Article
Morton, R. L., Burns, A., Crail, S. M., McGeechan, K., Shah, K. K., & Murtagh, F. E. (2020). Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care. BMC Nephrology, 21(1), 160. https://doi.org/10.1186/s12882-020-01830-9

BACKGROUND: To measure health-related and care-related quality of life among informal caregivers of older people with end-stage kidney disease (ESKD), and to determine the association between caregiver quality of life and care recipient's treatment t... Read More about Quality of life among caregivers of people with end-stage kidney disease managed with dialysis or comprehensive conservative care.