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Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications (2017)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R. T., …Corbett, A. (2017). Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications. Journal of the American Medical Directors Association, 18(5), 453.e1-453.e6. https://doi.org/10.1016/j.jamda.2017.01.024

Introduction: Knowledge regarding the longitudinal course, impact, or treatment implications of pain in people with dementia living in care homes is very limited. Methods: We investigated the people with dementia living in 67 care homes in London and... Read More about Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications.

Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions (2017)
Journal Article
Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., …Rehill, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), 1-184. https://doi.org/10.3310/pgfar05050

Background Dementia is a national priority and this research addresses the Prime Minister’s commitment to dementia research as demonstrated by his 2020 challenge and the new UK Dementia Research Institute. In the UK > 800,000 older people have dem... Read More about Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions.

Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis (2017)
Journal Article
Patterson, K. M., Clarke, C., Wolverson, E. L., Moniz-Cook, E. D., Patterson, K., Clarke, C., …Moniz-Cook, E. (2018). Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis. International Psychogeriatrics, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyd... Read More about Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis.

Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice (2016)
Journal Article
Dröes, R. M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., …Zuidema, S. (2017). Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging and Mental Health, 21(1), 4-17. https://doi.org/10.1080/13607863.2016.1254596

© 2017, © 2016 Informa UK Limited, trading as Taylor & Francis Group. Background: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recent... Read More about Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.

Factors of resilience in informal caregivers of people with dementia from integrative international data analysis (2016)
Journal Article
Joling, K. J., Windle, G., Dröes, R., Meiland, F., van Hout, H. P., MacNeil Vroomen, J., …Woods, B. (2016). Factors of resilience in informal caregivers of people with dementia from integrative international data analysis. Dementia and Geriatric Cognitive Disorders, 42(3-4), 198-214. https://doi.org/10.1159/000449131

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under... Read More about Factors of resilience in informal caregivers of people with dementia from integrative international data analysis.

Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial (2016)
Journal Article
Ballard, C., Orrell, M., Sun, Y., Moniz-Cook, E., Stafford, J., Whitaker, R., …Fossey, J. (2017). Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial. International journal of geriatric psychiatry, 32(10), 1094-1103. https://doi.org/10.1002/gps.4572

Background: Very few interventional studies have directly examined the impact of treatment approaches on Health-Related Quality of Life (HRQL) in people with dementia. This is of particular importance in therapies to address behavioural symptoms, whe... Read More about Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial.

Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial (2016)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Corbett, A., Woods, B., Orrell, M., …Testad, I. (2016). Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial. Journal of the American Medical Directors Association, 17(8), 741-747. https://doi.org/10.1016/j.jamda.2016.04.006

Objectives: Apathy is common, impactful, and difficult to manage in people with dementia. We evaluated the efficacy of non-pharmacological interventions, exercise and social interaction, in combination with antipsychotic review, to reduce apathy in p... Read More about Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial.

A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being (2016)
Journal Article
Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016). A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being. International Psychogeriatrics, 28(11), 1761-1774. https://doi.org/10.1017/S1041610216000922

Background: Behavioural and psychological symptoms in dementia (BPSD) are important predictors of institutionalisation as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the rol... Read More about A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being.

Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review (2016)
Journal Article
Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. British Journal of Psychiatry, 208(5), 429-434. https://doi.org/10.1192/bjp.bp.114.153684

Background Tailored psychosocial interventions can help families to manage behavioural and psychological symptoms in dementia (BPSD), but carer responses to their relatives’ behaviours contribute to the success of support programmes. Aim To understan... Read More about Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review.

REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis (2016)
Journal Article
Woods, R. T., Orrell, M., Bruce, E., Edwards, R. T., Hoare, Z., Hounsome, B., …Russell, I. (2016). REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis. PLoS ONE, 11(4), e0152843. https://doi.org/10.1371/journal.pone.0152843

Background Joint reminiscence groups, involving people with dementia and family carers together, are popular, but the evidence-base is limited. This study aimed to assess the effectiveness and cost-effectiveness of joint reminiscence groups as compar... Read More about REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis.

The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia (2016)
Journal Article
Feast, A., Orrell, M., Russell, I., Charlesworth, G., & Moniz-Cook, E. (2017). The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International journal of geriatric psychiatry, 32(1), 76-85. https://doi.org/10.1002/gps.4447

Copyright © 2016 John Wiley & Sons, Ltd. Objective: The objective of the study is to examine caregiver factors as predictors of BPSD-related distress and their potential mechanisms. Method: Informal caregivers of people with dementia (n = 157) recr... Read More about The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia.

Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial (2016)
Journal Article
Wenborn, J., Hynes, S., Moniz-Cook, E., Mountain, G., Poland, F., King, M., …Orrell, M. (2016). Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial. Trials, 17(1), Article ARTN 65. https://doi.org/10.1186/s13063-015-1150-y

Background: A community-based occupational therapy intervention for people with mild to moderate dementia and their family carers (Community Occupational Therapy in Dementia (COTiD)) was found clinically and cost effective in the Netherlands but not... Read More about Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial.

Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial (2015)
Journal Article
Orgeta, V., Leung, P., Yates, L., Kang, S., Hoare, Z., Henderson, C., …Orrell, M. (in press). Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial. Health Technology Assessment, 19(64), 1-108. https://doi.org/10.3310/hta19640

Background Group cognitive stimulation therapy programmes can benefit cognition and quality of life for people with dementia. Evidence for home-based, carer-led cognitive stimulation interventions is limited. Objectives To evaluate the clinical effec... Read More about Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial.

Living positively with dementia: a systematic review and synthesis of the qualitative literature (2015)
Journal Article
Wolverson, E., Clarke, C., & Moniz-Cook, E. (2016). Living positively with dementia: a systematic review and synthesis of the qualitative literature. Aging and Mental Health, 20(7), 676-699. https://doi.org/10.1080/13607863.2015.1052777

Objective: Little is known about how and to what extent people with dementia live positively with their condition. This study aimed to review and carry out a synthesis of qualitative studies where accounts of the subjective experiences of people with... Read More about Living positively with dementia: a systematic review and synthesis of the qualitative literature.

Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study (2015)
Journal Article
Hynes, S. M., Field, B., Ledgerd, R., Swinson, T., Wenborn, J., Di Bona, L., …Orrell, M. (2016). Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study. Aging and Mental Health, 20(7), 762-769. https://doi.org/10.1080/13607863.2015.1037243

Objectives: In the Netherlands, Graff et al. found Community Occupational Therapy in Dementia (COTiD) demonstrated benefits to people with dementia and family carers. In this study, focus groups took place with people with dementia and family carers... Read More about Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers : community occupational therapy in dementia (COTiD). A focus group study.

Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial (2014)
Journal Article
Whitaker, R., Fossey, J., Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R. T., …Khan, Z. (2014). Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial. Trials, 15(1), Article ARTN 284. https://doi.org/10.1186/1745-6215-15-284

Background People with dementia living in care homes often have complex mental health problems, disabilities and social needs. Providing more comprehensive training for staff working in care home environments is a high national priority. It is import... Read More about Improving Well-being and Health for People with Dementia (WHELD): study protocol for a randomised controlled trial.

The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study (2012)
Journal Article
Parker, S., Clarke, C., Moniz-Cook, E., & Gardiner, E. (2012). The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study. Aging and Mental Health, 16(7), 836-844. https://doi.org/10.1080/13607863.2012.684668

This study investigated the influence of cognitive busyness (competing cognitive demands) on residential care staff attributions of challenging behaviour (CB) related to dementia. Following the model of attribution formation proposed by Gilbert, Pelh... Read More about The influence of 'cognitive busyness' on causal attributions of challenging behaviour in dementia: a preliminary experimental study.

REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial (2012)
Journal Article
Woods, R. T., Bruce, E., Edwards, R. T., Elvish, R., Hoare, Z., Hounsome, B., …Russell, I. T. (2012). REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial. Health Technology Assessment, 16(48), https://doi.org/10.3310/hta16480

Objectives: The aim of the REMiniscence groups for people with dementia and their family CAREgivers (REMCARE) study was to assess the effectiveness and cost-effectiveness of joint reminiscence groups for people with dementia and their family caregive... Read More about REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial.