Skip to main content

Research Repository

Advanced Search

All Outputs (438)

Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction (2023)
Journal Article
Bravington, A., Obita, G., Baddeley, E., Johnson, M., Murtagh, F., Currow, D., …Boland, J. (2023). Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction. PLoS ONE, 18(8), Article e0289501. https://doi.org/10.1371/journal.pone.0289501

Background: Malignant bowel obstruction is experienced by 15% of people with advanced cancer, preventing them from eating and drinking and causing pain, nausea and vomiting. Surgery is not always appropriate. Management options include tube or stent... Read More about Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction.

Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research (2023)
Journal Article
Harvey, G., Rycroft-Malone, J., Seers, K., Wilson, P., Cassidy, C., Embrett, M., …Graham, I. D. (2023). Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research. Frontiers in Health Services, 3, Article 1162762. https://doi.org/10.3389/frhs.2023.1162762

The saying “horses for courses” refers to the idea that different people and things possess different skills or qualities that are appropriate in different situations. In this paper, we apply the analogy of “horses for courses” to stimulate a debate... Read More about Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research.

Nonpharmacological management of psychological distress in people with COPD (2023)
Journal Article
Volpato, E., Farver-Vestergaard, I., Brighton, L. J., Peters, J., Verkleij, M., Hutchinson, A., …von Leupoldt, A. (2023). Nonpharmacological management of psychological distress in people with COPD. European Respiratory Review, 32(167), Article 220170. https://doi.org/10.1183/16000617.0170-2022

Psychological distress is prevalent in people with COPD and relates to a worse course of disease. It often remains unrecognised and untreated, intensifying the burden on patients, carers and healthcare systems. Nonpharmacological management strategie... Read More about Nonpharmacological management of psychological distress in people with COPD.

Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways (2023)
Journal Article
Doe, G., Williams, M. T., Chantrell, S., Steiner, M. C., Armstrong, N., Hutchinson, A., & Evans, R. A. (2023). Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways. The British journal of general practice : the journal of the Royal College of General Practitioners, 73(731), e468-e477. https://doi.org/10.3399/BJGP.2022.0475

BACKGROUND: Evidence about the delays to diagnosis for patients presenting with breathlessness is lacking. AIM: To explore current care of patients with breathlessness through the experiences of adults presenting with chronic breathlessness who are a... Read More about Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways.

Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved] (2023)
Journal Article
Chambers, R. L., Pask, S., Higginson, I. J., Barclay, S., Murtagh, F. E., & Sleeman, K. E. (2023). Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved]. AMRC Open Research, 4, Article 19. https://doi.org/10.12688/amrcopenres.13079.2

Background: In England, Integrated Care Systems have been established to improve integration of care, as part of the NHS Long Term Plan. For people near the end of life, palliative care can improve integration of care. We aimed to understand whether... Read More about Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved].

Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review (2023)
Journal Article
Szinay, D., Forbes, C. C., Busse, H., DeSmet, A., Smit, E. S., & König, L. M. (in press). Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review. Obesity Reviews, Article e13542. https://doi.org/10.1111/obr.13542

Mobile health interventions are promising behavior change tools. However, there is a concern that they may benefit some populations less than others and thus widen inequalities in health. This systematic review investigated differences in uptake of,... Read More about Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review.

A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty (2023)
Journal Article
Murtagh, F. E., Okoeki, M., Ukoha-kalu, B. O., Khamis, A., Clark, J., Boland, J. W., …Johnson, M. J. (2023). A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty. BMC Geriatrics, 23(1), Article 6. https://doi.org/10.1186/s12877-023-03727-2

Background Integrated care may improve outcomes for older people living with frailty. We aimed to assess the effectiveness of a new, anticipatory, multidisciplinary care service in improving the wellbeing and quality of life (QoL) of older people li... Read More about A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty.

Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree (2022)
Journal Article
Curry, J., Roberts, H., Smith, A., Riley, D., Pearson, M., & Forbes, C. C. (2022). Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree. Research Involvement and Engagement, 8(1), Article 66. https://doi.org/10.1186/s40900-022-00395-1

Background: Lung cancer has one of the highest incidence and mortality rates worldwide. Physical activity can provide those diagnosed with lung cancer with several physical and psychological benefits. However, the examination of digitally delivered p... Read More about Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree.

Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial (2022)
Journal Article
Ekström, M., Ferreira, D., Chang, S., Louw, S., Johnson, M. J., Eckert, D. J., …Currow, D. C. (2022). Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial. Journal of the American Medical Association, 328(20), 2022-2032. https://doi.org/10.1001/jama.2022.20206

Importance: Chronic breathlessness is common in people with chronic obstructive pulmonary disease (COPD). Regular, low-dose, extended-release morphine may relieve breathlessness, but evidence about its efficacy and dosing is needed. Objective: To det... Read More about Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial.

Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients (2022)
Journal Article
Neo, S. H. S., Tan, J. Y. T., Sim, D. K. L., Ng, E. S. L., Loh, J. K. X., Yang, G. M., …Cheung, Y. B. (2022). Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients. Palliative Medicine Reports, 3(1), 287-295. https://doi.org/10.1089/pmr.2022.0029

Background: The Integrated Palliative Care Outcome Scale (IPOS) was developed in the United Kingdom for health assessment in advanced illness. Objectives: To evaluate the validity and reliability of a culturally adapted IPOS (both patient and staff v... Read More about Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients.

Parental death: a systematic review of support experiences and needs of children and parent survivors (2022)
Journal Article
Wray, A., Pickwell-Smith, B., Greenley, S., Pask, S., Bamidele, O., Wright, B., …Boland, J. W. (2022). Parental death: a systematic review of support experiences and needs of children and parent survivors. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003793

Background: Bereaved people need a supportive response from those around them. Knowing children's and surviving parents' needs following parental death is the first step to ensuring a supportive response. However, no systematic review has reported on... Read More about Parental death: a systematic review of support experiences and needs of children and parent survivors.

Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons (2022)
Journal Article
Ito, M., Aoyama, M., Murtagh, F. E., & Miyashita, M. (2022). Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003743

Objectives: We aimed to estimate the potential population that requires palliative care, clarify the relationship between this population and the rate of ageing in Japan, and compare these trends with those of other countries. Design: We used the nat... Read More about Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons.

Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study) (2022)
Journal Article
Benelhaj, N. E., Hutchinson, A., Maraveyas, A., & Johnson, M. (2022). Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study). PLoS ONE, 17(10), Article e0276754. https://doi.org/10.1371/journal.pone.0276754

Background: The diagnosis of symptomatic cancer-associated thrombosis often causes distress and alarm for patients, especially for those unaware of the risk, or the signs and symptoms to look out for. There are few data about cancer patients’ experie... Read More about Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study).

Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial (2022)
Journal Article
Yorke, J., Johnson, M. J., Punnett, G., Smith, J., Blackhall, F., Lloyd Williams, M., …Molassiotis, A. (in press). Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003924

Objectives: In lung cancer, three prominent symptoms, such as breathlessness, cough and fatigue, are closely related with each other forming a 'respiratory distress symptom cluster'. The aim of this study was to determine the clinical and cost-effect... Read More about Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial.

Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial (2022)
Journal Article
Bick, D., Bishop, J., Coleman, T., Dean, S., Edwards, E., Frawley, H., …MacArthur, C. (2022). Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial. Pilot and Feasibility Studies, 8(1), Article 231. https://doi.org/10.1186/s40814-022-01185-y

Background: Antenatal pelvic floor muscle exercises (PFME) in women without prior urinary incontinence (UI) are effective in reducing postnatal UI; however, UK midwives often do not provide advice and information to women on undertaking PFME, with ev... Read More about Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial.

Researching minoritised communities in palliative care: An agenda for change (2022)
Journal Article
Koffman, J., Bajwah, S., Davies, J. M., & Hussain, J. A. (2022). Researching minoritised communities in palliative care: An agenda for change. Palliative medicine, https://doi.org/10.1177/02692163221132091

Background: Palliative care access, experiences and outcomes of care disadvantage those from ethnically diverse, Indigenous, First nation and First people communities. Research into this field of inquiry raises unique theoretical, methodological, and... Read More about Researching minoritised communities in palliative care: An agenda for change.

Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022)
Journal Article
Garner, I. W., Walshe, C., Dunleavey, L., Bradshaw, A., Preston, N., Fraser, L. K., …Higginson, I. J. (2022). Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall). BMC Palliative Care, 21(1), Article 176. https://doi.org/10.1186/s12904-022-01070-8

BACKGROUND: Independent charitably funded hospices have been an important element of the UK healthcare response to the COVID-19 pandemic. Hospices usually have different funding streams, procurement processes, and governance arrangements compared to... Read More about Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall).

Invisibility of breathlessness in clinical consultations: a cross-sectional, national online survey (2022)
Journal Article
Kochovska, S., Chang, S., Ferreira, D., Brunelli, V. N., Luckett, T., Morgan, L., …Currow, D. C. (2022). Invisibility of breathlessness in clinical consultations: a cross-sectional, national online survey. European respiratory journal, 60(5), Article 2201603. https://doi.org/10.1183/13993003.01603-2022

Breathlessness diminishes the physical, mental and social wellbeing of people living long-term with this disabling symptom [1]. Identifying its impacts on patients and their families helps to inform appropriate non-pharmacological and pharmacological... Read More about Invisibility of breathlessness in clinical consultations: a cross-sectional, national online survey.

Development and evaluation of a collaborative care intervention for male prison leavers with mental health problems: the Engager research programme (2022)
Journal Article
Byng, R., Lennox, C., Kirkpatrick, T., Quinn, C., Anderson, R., Brand, S. L., …Shaw, J. (2022). Development and evaluation of a collaborative care intervention for male prison leavers with mental health problems: the Engager research programme. Programme Grants for Applied Research, 10(8), https://doi.org/10.3310/MMWC3761

Background: Many male prison leavers have significant mental health problems. Prison leavers often have a history of trauma, ongoing substance misuse and housing insecurity. Only a minority of prison leavers receive mental health care on release from... Read More about Development and evaluation of a collaborative care intervention for male prison leavers with mental health problems: the Engager research programme.

The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review (2022)
Journal Article
Seddon, K., Bravington, A., Obita, G., Baddeley, E., Johnson, M. J., Murtagh, F. E., …Boland, J. W. (2022). The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review. Palliative medicine, 36(9), 1336-1350. https://doi.org/10.1177/02692163221122352

Background: Malignant bowel obstruction, a complication of certain advanced cancers, causes severe symptoms which profoundly affect quality of life. Clinical management remains complex, and outcome assessment is inconsistent. Aim: To identify outc... Read More about The range and suitability of outcome measures used in the assessment of palliative treatment for inoperable malignant bowel obstruction: A systematic review.