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‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More

Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health car (2017)
Journal Article
Moniz-Cook, E., Hart, C., Woods, B., Whitaker, C., James, I., Russell, I., …Manthorpe, J. (2017). Challenge Demcare: management of challenging behaviour in dementia at home and in care homes – development, evaluation and implementation of an online individualised intervention for care homes; and a cohort study of specialist community mental health care for families. Programme Grants for Applied Research, 5(15), 1-290. doi:10.3310/pgfar05150

Background Dementia with challenging behaviour (CB) causes significant distress for caregivers and the person with dementia. It is associated with breakdown of care at home and disruption in care homes. Challenge Demcare aimed to assist care home... Read More

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Journal Article
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., …Whitaker, R. (2017). Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial. Alzheimer's & dementia, 13(7, supplement), 171. https://doi.org/10.1016/j.jalz.2017.07.011

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PloS one, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More

Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O’Brien, J. T., Mountain, G., …Livingston, G. (2017). Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations. Health Technology Assessment, 21(26), 1-192. https://doi.org/10.3310/hta21260

© Queen’s Printer and Controller of HMSO 2017. Background: There is currently no disease-modifying treatment available to halt or delay the progression of the disease pathology in dementia. An agreed core set of the best-available and most appropriat... Read More

Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review (2017)
Journal Article
Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., & Orrell, M. (2017). Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281-1296. doi:10.1017/S1041610217000655

Background: Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. T... Read More

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement) (2017)
Journal Article
Gove, D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., & Øksnebjerg, L. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health, 22(6), 723-729. https://doi.org/10.1080/13607863.2017.1317334

This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper... Read More

Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development (2017)
Journal Article
James, I., Watson, R., Whitaker, C., Stokes, G., Hart, C., & Moniz-Cook, E. (2017). Nature of behaviours that challenge in residents living in aged care homes: implications for psychosocial interventions and service development. FPOP bulletin, 19-27

Background/Aims: Competing theories exist regarding the causes and nature of behaviours that challenge (BC). The present study attempted to provide better insight into these behaviours and determine whether there were any underlying relationships for... Read More

The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial (2017)
Journal Article
Orrell, M., Yates, L., Leung, P., Kang, S., Hoare, Z., Whitaker, C., …Orgeta, V. (2017). The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial. PLoS Medicine, 14(3), e1002269. https://doi.org/10.1371/journal.pmed.1002269

Background Cognitive Stimulation Therapy (CST) is a well-established group psychosocial intervention for people with dementia. There is evidence that homebased programmes of cognitive stimulation delivered by family caregivers may benefit both the pe... Read More

Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications (2017)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R. T., …Corbett, A. (2017). Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications. Journal of the American Medical Directors Association, 18(5), 453.e1-453.e6. doi:10.1016/j.jamda.2017.01.024

Introduction: Knowledge regarding the longitudinal course, impact, or treatment implications of pain in people with dementia living in care homes is very limited. Methods: We investigated the people with dementia living in 67 care homes in London and... Read More

Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions (2017)
Journal Article
Orrell, M., Hoe, J., Charlesworth, G., Russell, I., Challis, D., Moniz-Cook, E., …Rehill, A. (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), 1-184. doi:10.3310/pgfar05050

Background Dementia is a national priority and this research addresses the Prime Minister’s commitment to dementia research as demonstrated by his 2020 challenge and the new UK Dementia Research Institute. In the UK > 800,000 older people have dem... Read More

Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis (2017)
Journal Article
Patterson, K. M., Clarke, C., Wolverson, E. L., Moniz-Cook, E. D., Patterson, K., Clarke, C., …Moniz-Cook, E. (2018). Through the eyes of others - The social experiences of people with dementia: A systematic literature review and synthesis. International Psychogeriatrics, 30(6), 791-805. https://doi.org/10.1017/S1041610216002374

Psychosocial models suggest that the lived experience of dementia is affected by interpersonal factors such as the ways in which others view, talk about, and behave toward the person with dementia. This review aimed to illuminate how informal, everyd... Read More