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All Outputs (73)

What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. (2019)
Journal Article
Dell Olio, M., Pask, S., Seymour, J., & Reeve, J. (2019). What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. European journal for person centered healthcare, 7(4),

Introduction Growing numbers of people now live with long term conditions. For each person, the challenges are multiple and unique to that individual. In recognition of this, health policy places greater emphasis on the delivery of person-centred ca... Read More about What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review..

The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study. (2019)
Journal Article
Boland, J. W., Allgar, V., Boland, E. G., Bennett, M. I., Kaasa, S., Hjermstad, M. J., & Johnson, M. (2020). The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study. European Journal of Clinical Pharmacology, 76(3), 393-402. https://doi.org/10.1007/s00228-019-02801-2

© 2019, The Author(s). Purpose: Opioids reduce cancer-related pain but an association with shorter survival is variably reported. Aim: To investigate the relationship between pain, analgesics, cancer and survival within the European Palliative Care C... Read More about The relationship between pain, analgesics and survival in patients with advanced cancer: a secondary data analysis of the international European palliative care cancer symptom study..

Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study (2019)
Journal Article
Namisango, E., Bristowe, K., Murtagh, F. E. M., Downing, J., Powell, R. A., Abas, M., …Murtagh, F. (in press). Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliative medicine,

Abstract Background: Paediatric life-limiting and life-threatening conditionslife-limiting conditions place significant strain on children, families and health systems. Given high service use among this population, it is essential that care address... Read More about Towards person-centered quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study.

Implementing pelvic floor muscle training in women's childbearing years: A critical interpretive synthesis of individual, professional, and service issues (2019)
Journal Article
Salmon, V. E., Hay‐Smith, E. J. C., Jarvie, R., Dean, S., Terry, R., Frawley, H., …Pearson, M. (2020). Implementing pelvic floor muscle training in women's childbearing years: A critical interpretive synthesis of individual, professional, and service issues. Neurourology and Urodynamics, 39(2), 863-870. https://doi.org/10.1002/nau.24256

Antenatal pelvic floor muscle training (PFMT) may be effective for the prevention and treatment of urinary and fecal incontinence both in pregnancy and postnatally, but it is not routinely implemented in practice despite guideline recommendations. Th... Read More about Implementing pelvic floor muscle training in women's childbearing years: A critical interpretive synthesis of individual, professional, and service issues.

Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales (2019)
Journal Article
Whiting, D. (2020). Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales. Psychological Injury and Law, 13(1), 11-18. https://doi.org/10.1007/s12207-019-09366-6

It is well documented that people with moderate-to-severe traumatic brain injury (TBI) can undergo personality changes, including becoming more impulsive in terms of how they behave. Legal guidance and academic commentary support the view that impuls... Read More about Traumatic Brain Injury with Personality Change: a Challenge to Mental Capacity Law in England and Wales.

Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review (2019)
Journal Article
Raymond, B., Johnson, M., Luckett, T., Hutchinson, A., Lovell, M., & Phillips, J. (2019). Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review. NPJ Primary Care Respiratory Medicine, 29(1), Article 41. https://doi.org/10.1038/s41533-019-0152-8

Chronic breathlessness is debilitating and frightening, often resulting in emergency department presentations with acute-on-chronic breathlessness. Self-management is complex, involving 14 components as identified by the Practical Systematic Review i... Read More about Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review.

Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial (2019)
Journal Article
White, N., Oostendorp, L. J., Tomlinson, C., Yardley, S., Ricciardi, F., Gökalp, H., …Stone, P. (2020). Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial. Palliative medicine, 34(1), 134-144. https://doi.org/10.1177/0269216319880767

Background: Recognising dying is a key clinical skill for doctors, yet there is little training. Aim: To assess the effectiveness of an online training resource designed to enhance medical students’ ability to recognise dying. Design: Online... Read More about Online training improves medical students’ ability to recognise when a person is dying: The ORaClES randomised controlled trial.

Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention. (2019)
Journal Article
Kochovska, S., Huang, C., Johnson, M. J., Agar, M. R., Fallon, M. T., Kaasa, S., …Currow, D. C. (2020). Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention. Journal of pain and symptom management, 59(3), 637-645. https://doi.org/10.1016/j.jpainsymman.2019.10.026

© 2019 American Academy of Hospice and Palliative Medicine Context: Minimizing bias in randomized controlled trials (RCTs) includes intention-to-treat analyses. Hospice/palliative care RCTs are constrained by high attrition unpredictable when consent... Read More about Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention..

The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review (2019)
Journal Article
Pask, S., Dell’Olio, M., Murtagh, F. E., & Boland, J. W. (2020). The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review. Journal of pain and symptom management, 59(4), 871-893. https://doi.org/10.1016/j.jpainsymman.2019.10.022

Context Opioids are prescribed to manage moderate to severe pain and can be used with older adults; however, they may lead to several adverse effects, including cognitive impairment. Objective To identify, appraise and synthesise evidence on i)... Read More about The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review.

Palliative care in Parkinson's disease: Review of needs assessment tools (2019)
Journal Article
Richfield, E. W., & Johnson, M. J. (2020). Palliative care in Parkinson's disease: Review of needs assessment tools. Annals of palliative medicine, 9, S6-S15. https://doi.org/10.21037/apm.2019.09.18

Palliative care in Parkinson’s disease (PD) has developed significantly in the past five years. The presence of unmet palliative care need, similar to that in malignant conditions, is well established, but may not always be identified by clinicians i... Read More about Palliative care in Parkinson's disease: Review of needs assessment tools.

Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis. (2019)
Journal Article
Elliott-Button, H., Johnson, M. J., Nwulu, U., & Clark, J. (2020). Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis. Journal of pain and symptom management, 59(3), 724-733.e19. https://doi.org/10.1016/j.jpainsymman.2019.10.014

Context: Breathlessness is common in chronic conditions but often goes unidentified by clinicians. It is important to understand how identification and assessment of breathlessness occurs across health care settings, to promote routine outcome assess... Read More about Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis..

Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. (2019)
Journal Article
Kinchin, I., Currow, D. C., Chang, S., Reddel, H. K., Kochovska, S., Ferreira, D., …Ekström, M. (2020). Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. Journal of pain and symptom management, 59(2), 197-205.e2. https://doi.org/10.1016/j.jpainsymman.2019.09.021

© 2019 American Academy of Hospice and Palliative Medicine Context: Breathlessness is associated with depression, but its relationship to anxiety or impaired function is less clear. Objectives: This study evaluated associations between chronic breath... Read More about Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults..

A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol (2019)
Journal Article
Wright, C., Hart, S. P., Allgar, V., English, A., Swan, F., Dyson, J., …Crooks, M. G. (2019). A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol. ERJ Open Research, 5(4), Article 0186. https://doi.org/10.1183/23120541.00186-2019

Introduction: Idiopathic pulmonary fibrosis (IPF) is a chronic and progressive lung disease that causes breathlessness and cough that worsen over time, limiting daily activities and negatively impacting quality of life. Although treatments are now av... Read More about A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol.

What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) (2019)
Journal Article
Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P., & Murtagh, F. E. (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Annals of palliative medicine, 8(5), 775-780. https://doi.org/10.21037/apm.2019.08.10

© Annals of Palliative Medicine. All rights reserved. There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care O... Read More about What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS).

Mental wellbeing in bereaved carers: A Health Survey for England population study (2019)
Journal Article
Hodiamont, F., Allgar, V., Currow, D. C., & Johnson, M. J. (in press). Mental wellbeing in bereaved carers: A Health Survey for England population study. BMJ Supportive & Palliative Care, https://doi.org/10.1136/bmjspcare-2019-001957

Objectives: The experience of caregiving may affect carers' well-being into bereavement. We explored associations between mental well-being and previous experience of bereavement of, and caring for, someone close at the end-of-life. Methods: An end-o... Read More about Mental wellbeing in bereaved carers: A Health Survey for England population study.

Improving the quality of life of people with advanced respiratory disease and severe breathlessness (2019)
Journal Article
Booth, S., & Johnson, M. J. (2019). Improving the quality of life of people with advanced respiratory disease and severe breathlessness. Breathe, 15(3), 198-215. https://doi.org/10.1183/20734735.0200-2019

Advanced respiratory disease imposes a greater symptom burden than many cancers but not does have comparable recognition of the need for supportive and palliative care or the infrastructure for its systematic delivery. Consequently, many people with... Read More about Improving the quality of life of people with advanced respiratory disease and severe breathlessness.