All Outputs (457)

The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience (2021)
Journal Article
Chen, H., Twiddy, M., Jones, L., & Johnson, M. J. (2021). The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience. European Journal of Cancer Care, 30(6), Article e13503. https://doi.org/10.1111/ecc.13503

Objective: The objective of this study is to explore the specific information and communication needs of men affected by prostate cancer to inform the development of educational materials for clinicians. Methods: This is a qualitative descriptive stu... Read More about The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience.

Performance status and trial site-level factors are associated with missing data in palliative care trials: An individual participant-level data analysis of 10 phase 3 trials (2021)
Journal Article
Hussain, J. A., White, I. R., Johnson, M. J., Bland, M., & Currow, D. C. (2021). Performance status and trial site-level factors are associated with missing data in palliative care trials: An individual participant-level data analysis of 10 phase 3 trials. Palliative medicine, https://doi.org/10.1177/02692163211040970

Background: Missing data compromise the internal and external validity of trial findings, however there is limited evidence on how best to reduce missing data in palliative care trials. Aim: To assess the association between participant and site leve... Read More about Performance status and trial site-level factors are associated with missing data in palliative care trials: An individual participant-level data analysis of 10 phase 3 trials.

Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study (2021)
Journal Article
Bajwah, S., Koffman, J., Hussain, J., Bradshaw, A., Hocaoglu, M. B., Fraser, L. K., …Murtagh, F. E. M. (2021). Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study. BMJ Supportive & Palliative Care, bmjspcare-2021-003083. https://doi.org/10.1136/bmjspcare-2021-003083

Objectives: To develop insights into response of palliative care services caring for people from ethnic minority groups during COVID-19. Methods: Cross-sectional online survey of UK palliative care services response to COVID-19. Quantitative data w... Read More about Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study.

Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall) (2021)
Journal Article
Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R. L., …Higginson, I. J. (2022). Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall). International Journal of Health Policy and Management, 11(10), 2146-2154. https://doi.org/10.34172/ijhpm.2021.128

Background: Volunteers are common within palliative care services, and provide support that enhances care quality. The support they provided, and any role changes, during the coronavirus disease 2019 (COVID-19) pandemic are unknown. The aim of this s... Read More about Prohibit, Protect, or Adapt? The Changing Role of Volunteers in Palliative and Hospice Care Services During the COVID-19 Pandemic. A Multinational Survey (Covpall).

Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy (2021)
Journal Article
Bradshaw, A., Santarelli, M., Khamis, A. M., Sartain, K., Johnson, M., Boland, J., …Murtagh, F. E. (2021). Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy. BMJ open, 11(9), Article e051904. https://doi.org/10.1136/bmjopen-2021-051904

Introduction Person-centred outcome measures improve quality of care and patient outcomes but are used inconsistently in palliative care practice. To address this implementation gap, we developed the 'RESOLVE Implementation Strategy'. This protocol d... Read More about Implementing person-centred outcome measures (PCOMs) into routine palliative care: A protocol for a mixed-methods process evaluation of the RESOLVE PCOM Implementation Strategy.

Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study (2021)
Journal Article
Guo, P., Pinto, C., Edwards, B., Pask, S., Firth, A., O’Brien, S., & Murtagh, F. E. (2021). Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study. Palliative medicine, 026921632110433. https://doi.org/10.1177/02692163211043371

Background: Transitions between care settings (hospice, hospital and community) can be challenging for patients and family caregivers and are often an under-researched area of health care, including palliative care. Aim: To explore the experience of... Read More about Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study.

Outcomes and measures of delirium interventional studies in palliative care to inform a core outcome set: A systematic review (2021)
Journal Article
Agar, M. R., Siddiqi, N., Hosie, A., Boland, J. W., Johnson, M. J., Featherstone, I., …Rose, L. (2021). Outcomes and measures of delirium interventional studies in palliative care to inform a core outcome set: A systematic review. Palliative medicine, 35(10), 1761-1775. https://doi.org/10.1177/02692163211040186

Background: Trials of interventions for delirium in various patient populations report disparate outcomes and measures but little is known about those used in palliative care trials. A core outcome set promotes consistency of outcome selection and me... Read More about Outcomes and measures of delirium interventional studies in palliative care to inform a core outcome set: A systematic review.

Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations (2021)
Journal Article
O’Donnell, S. B., Bone, A. E., Finucane, A. M., McAleese, J., Higginson, I. J., Barclay, S., …Murtagh, F. E. (2021). Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations. Palliative medicine, 35(10), 1975-1984. https://doi.org/10.1177/02692163211040981

Background: Understanding patterns of mortality and place of death during the COVID-19 pandemic is important to help provide appropriate services and resources. Aims: To analyse patterns of mortality including place of death in the United Kingdom (UK... Read More about Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations.

Clarifying realist analytic and interdisciplinary consensus processes in a complex health intervention: A worked example of Judgemental Rationality in action (2021)
Journal Article
Rybczynska-Bunt, S., Weston, L., Byng, R., Stirzaker, A., Lennox, C., Pearson, M., …Quinn, C. (2021). Clarifying realist analytic and interdisciplinary consensus processes in a complex health intervention: A worked example of Judgemental Rationality in action. Evaluation, 27(4), 473-491. https://doi.org/10.1177/13563890211037699

Judgemental rationality is infrequently referenced within discussions of Realist Evaluations. Judgemental rationality refers to researchers’ capacity to assess which, potential, meanings provide the most credible explanations. In evaluation work, rat... Read More about Clarifying realist analytic and interdisciplinary consensus processes in a complex health intervention: A worked example of Judgemental Rationality in action.

“So, when a woman becomes ill, the total structure of the family is affected, they can’t do anything…” Voices from the community on women with breast cancer in India: a qualitative focus group study (2021)
Journal Article
Daniel, S., Venkateswaran, C., Singh, C., Hutchinson, A., & Johnson, M. J. (in press). “So, when a woman becomes ill, the total structure of the family is affected, they can’t do anything…” Voices from the community on women with breast cancer in India: a qualitative focus group study. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, https://doi.org/10.1007/s00520-021-06475-4

Background: Psychological symptoms are common in women with breast cancer and profoundly affect their role in the family and wider community, varying across cultural backgrounds. Breast cancer is becoming the most common cancer among women in India.... Read More about “So, when a woman becomes ill, the total structure of the family is affected, they can’t do anything…” Voices from the community on women with breast cancer in India: a qualitative focus group study.

End-stage kidney disease (2021)
Book Chapter
Murtagh, F. (2021). End-stage kidney disease. In N. I. Cherny, M. T. Fallon, S. Kaasa, R. K. Portenoy, & D. C. Currow (Eds.), Oxford Textbook of Palliative Medicine (1010-1019). (6th ed.). Oxford, UK: Oxford University Press. https://doi.org/10.1093/med/9780198821328.003.0095

End-stage kidney disease accounts for 1–2% of all deaths. With ageing of the population, this proportion will grow steadily over the coming years. Symptom burden in end-stage kidney disease exceeds advanced cancer, with added renal-specific symptoms,... Read More about End-stage kidney disease.

VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden (2021)
Journal Article
Olsson, M., Engström, G., Currow, D. C., Johnson, M., Sandberg, J., & Ekström, M. (2021). VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden. BMJ open, 11(7), https://doi.org/10.1136/bmjopen-2020-046473

Purpose Despite data showing breathlessness to be more prevalent in older adults, we have little detail about the severity or multidimensional characteristics of breathlessness and other self-reported measures (such as quality of life and other cardi... Read More about VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden.

Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process (2021)
Journal Article
Reedy, F., Pearson, M., Greenley, S., Clark, J., Currow, D. C., Bajwah, S., …Johnson, M. J. (in press). Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process. Palliative medicine, https://doi.org/10.1177/02692163211032114

Background: In combination with non-pharmacological interventions, opioids may safely reduce chronic breathlessness in patients with severe illness. However, implementation in clinical practice varies. Aim: To synthesise the published literature rega... Read More about Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process.

Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study. (2021)
Dataset
Clark, J. Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study. [Dataset]

Opioids (e.g. morphine) are affordable, effective interventions for cancer-related pain. However, equity of access to this key medication remains a global challenge, particularly in low- and middle-income countries. We aimed to explore views of palli... Read More about Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study..

Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study (2021)
Journal Article
Fairlamb, H. J., & Murtagh, F. E. (2021). Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study. BMC Palliative Care, 20(1), Article 103. https://doi.org/10.1186/s12904-021-00805-3

Background: End-stage cardiac and respiratory diseases are common in the UK. People with these end-stage conditions experience similar, or even worse, symptomatic suffering to cancer patients but are less likely to receive specialist palliative care... Read More about Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study.

Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol (2021)
Journal Article
Spichiger, F., Koppitz, A. L., De Wolf-Linder, S., Murtagh, F. E., Volken, T., & Larkin, P. (in press). Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol. Journal of advanced nursing, https://doi.org/10.1111/jan.14953

Aims: We aim to evaluate the effectiveness of the Integrated Palliative Care Outcome Scale for people with dementia-based case studies to improve the caring quality for people with dementia in nursing homes by frontline staff and family members. Back... Read More about Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol.

Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review (2021)
Journal Article
Prihartadi, A. S., Impelliziere Licastro, G., Pearson, M., Johnson, M. J., Luckett, T., & Swan, F. (in press). Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/bmjspcare-2021-002962

Background: Non-medical devices such as the handheld fan (fan), mobility aids (wheeled walkers with seats) and inspiratory muscle training (IMT) devices offer benefits for patient management of chronic breathlessness. We examined the published eviden... Read More about Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review.

Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis (2021)
Journal Article
Disalvo, D., Agar, M., Caplan, G., Murtagh, F. E., Luckett, T., Heneka, N., …Phillips, J. (in press). Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis. Palliative medicine, https://doi.org/10.1177/02692163211024451

Background: Access to palliative care in the community enables people to live in their preferred place of care, which is often home. Community palliative care services struggle to provide timely 24-h services to patients and family. This has resulted... Read More about Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis.

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services (2021)
Journal Article
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R. L., Hocaoglu, M., …Murtagh, F. (2021). Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services. Palliative medicine, 35(7), 1225-1237. https://doi.org/10.1177/02692163211017387

Background: Specialist palliative care services play an important role in conducting advance care planning during COVID-19. Little is known about the challenges to advance care planning in this context, or the changes services made to adapt. Aim: Des... Read More about Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review (2021)
Journal Article
Curry, J., Patterson, M., Greenley, S., Pearson, M., & Forbes, C. (in press). Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, https://doi.org/10.1007/s00520-021-06274-x

Purpose: To examine the evidence of the feasibility, acceptability, and potential efficacy of online supportive care interventions for people living with and beyond lung cancer (LWBLC). Methods: Studies were identified through searches of Medline, EM... Read More about Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review.