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“So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians (2020)
Journal Article
Hutchinson, A., Galvin, K., & Johnson, M. (in press). “So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians. Journal of pain and symptom management,

Context: People with acute-on-chronic breathlessness due to cardiorespiratory conditions frequently present to the emergency department (ED) causing burden for the person concerned, their carers and emergency services. Objective: To understand the... Read More about “So, I try not to go…” Acute-on-chronic breathlessness and presentation to the emergency department: in-depth interviews with patients, carers and clinicians.

Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review (2019)
Journal Article
Raymond, B., Johnson, M., Luckett, T., Hutchinson, A., Lovell, M., & Phillips, J. (2019). Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review. NPJ Primary Care Respiratory Medicine, 29, https://doi.org/10.1038/s41533-019-0152-8

Chronic breathlessness is debilitating and frightening, often resulting in emergency department presentations with acute-on-chronic breathlessness. Self-management is complex, involving 14 components as identified by the Practical Systematic Review i... Read More about Low-intensity educational interventions supporting self-management to improve outcomes related to chronic breathlessness: a systematic review.

The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis (2019)
Journal Article
Garcia, M., Luckett, T., Johnson, M., Hutchinson, A., Lal, S., & Phillips, J. (2019). The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis. Journal of advanced nursing, 75(9), 1953-1965. https://doi.org/10.1111/jan.14039

Aim: To explore the role of coping moderators in self-management of breathlessness crises by people with advanced respiratory disease. Design: A secondary analysis of semi-structured interview data. Methods: Interviews with patients who had a... Read More about The roles of dispositional coping style and social support in helping people with respiratory disease cope with a breathlessness crisis.

Living well with breathlessness: how clinicians can help (2018)
Journal Article
Hutchinson, A., Barclay, N., Galvin, K., & Johnson, M. (2019). Living well with breathlessness: how clinicians can help. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(678), 26-27. doi:10.3399/bjgp19X700505

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Oral anticoagulation is preferable to injected, but only if it is safe and effective: An interview study of patient and carer experience of oral and injected anticoagulant therapy for cancer-associated thrombosis in the select-d trial (2018)
Journal Article
Hutchinson, A., Rees, S., Young, A., Maraveyas, A., Date, K., & Johnson, M. (2019). Oral anticoagulation is preferable to injected, but only if it is safe and effective: An interview study of patient and carer experience of oral and injected anticoagulant therapy for cancer-associated thrombosis in the select-d trial. Palliative medicine, 33(5), 510-517. https://doi.org/10.1177/0269216318815377

Background Cancer patients have a 4 to 5 fold greater risk of thrombosis than the general population. Recommended treatment for cancer-associated thrombosis is 3 to 6 months of low-molecular-weight heparin. The ‘select-d’ trial is an open-label rand... Read More about Oral anticoagulation is preferable to injected, but only if it is safe and effective: An interview study of patient and carer experience of oral and injected anticoagulant therapy for cancer-associated thrombosis in the select-d trial.

Breathlessness in the emergency care setting (2018)
Journal Article
Johnson, M. J., & Hutchinson, A. (2018). Breathlessness in the emergency care setting. Current opinion in supportive and palliative care, 12(3), 232-236. https://doi.org/10.1097/SPC.0000000000000374

Abstract Purpose of review Breathlessness is one of the most common reasons for presentation at the emergency department (ED). The present review summarizes work published from 2017, which focuses on the symptom of breathlessness in its own right rat... Read More about Breathlessness in the emergency care setting.

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis (2018)
Journal Article
Cooper, E., Hutchinson, A., Sheikh, Z., Taylor, P., Townend, W., & Johnson, M. J. (2018). Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Palliative medicine, 32(9), 1443-1454. https://doi.org/10.1177/0269216318783920

Background: Despite a fast-paced environment, the emergency clinician has a duty to meet the palliative patient's needs. Despite suggested models and interventions, this remains challenging in practice. Aim: To increase understanding of these challen... Read More about Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis.

Cancer patients’ experiences of living with venous thromboembolism: A systematic review and qualitative thematic synthesis (2018)
Journal Article
Benelhaj, N. B., Hutchinson, A., Maraveyas, A. M., Seymour, J. D., Ilyas, M. W., & Johnson, M. J. (2018). Cancer patients’ experiences of living with venous thromboembolism: A systematic review and qualitative thematic synthesis. Palliative medicine, 32(5), 1010-1020. https://doi.org/10.1177/0269216318757133

Background: Cancer-Associated thrombosis is common. Recommended treatment is daily injected low-molecular-weight heparin for 6months. Most studies focus on prophylaxis and treatment; few have explored patients’ experience. Aims To identify and sy... Read More about Cancer patients’ experiences of living with venous thromboembolism: A systematic review and qualitative thematic synthesis.

Living with breathlessness: a systematic literature review and qualitative synthesis (2018)
Journal Article
Hutchinson, A., Barclay-Klingle, N., Galvin, K., & Johnson, M. J. (2018). Living with breathlessness: a systematic literature review and qualitative synthesis. The European respiratory journal, 51(2), 1701477. https://doi.org/10.1183/13993003.01477-2017

Question: What is the experience of people living with breathlessness due to medical conditions, those caring for and those treating them, with regard to quality of life and the nature of clinical interactions? Methods: Electronic databases (Ovid MED... Read More about Living with breathlessness: a systematic literature review and qualitative synthesis.

Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: A strengths-based qualitative study (2017)
Journal Article
Luckett, T., Phillips, J., Johnson, M., Garcia, M., Bhattarai, P., Carrieri-Kohlman, V., …Davidson, P. M. (2017). Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: A strengths-based qualitative study. BMJ open, 7(12), e017536 . https://doi.org/10.1136/bmjopen-2017-017536

Objectives Breathlessness ‘crises’ in people with chronic respiratory conditions are a common precipitant for emergency department (ED) presentations, many of which might be avoided through improved self-management and support. This study sought insi... Read More about Insights from Australians with respiratory disease living in the community with experience of self-managing through an emergency department 'near miss' for breathlessness: A strengths-based qualitative study.

Cognitive-emotional interventions for breathlessness in adults with advanced diseases (2017)
Journal Article
Bolzani, A., Rolser, S. M., Kalies, H., Maddocks, M., Rehfuess, E., Hutchinson, A., …Bausewein, C. (2017). Cognitive-emotional interventions for breathlessness in adults with advanced diseases. The Cochrane database of systematic reviews, 2017(6), https://doi.org/10.1002/14651858.CD012682

© 2017 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd. This is a protocol for a Cochrane Review (Intervention). The objectives are as follows: To assess the effects and safety of interventions targeting cognition, emotion or both a... Read More about Cognitive-emotional interventions for breathlessness in adults with advanced diseases.

What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study (2017)
Thesis
Hutchinson, A. (2017). What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study. (Thesis). University of Hull. Retrieved from https://hull-repository...tribe.com/output/497045

Background: Chronic breathlessness is a common and distressing symptom of many long-term cardiorespiratory conditions and cancers which are highly prevalent in both the UK and worldwide. It is associated with presentation to the emergency department... Read More about What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study.

Breathlessness and presentation to the emergency department: a survey and clinical record review (2017)
Journal Article
Hutchinson, A., Pickering, A., Williams, P., Bland, J. M., & Johnson, M. J. (2017). Breathlessness and presentation to the emergency department: a survey and clinical record review. BMC Pulmonary Medicine, 17(1), https://doi.org/10.1186/s12890-017-0396-4

Background Breathlessness is a frequently occurring symptom of cardiorespiratory conditions and is a common cause of emergency department presentation. The aim of this study was to estimate the prevalence of acute-on-chronic breathlessness as a cause... Read More about Breathlessness and presentation to the emergency department: a survey and clinical record review.

Patient and carer experience of breathlessness (2016)
Book Chapter
Hutchinson, A. (2016). Patient and carer experience of breathlessness. In Palliative Care in Respiratory Disease, 102-110. European Respiratory Society. doi:10.1183/2312508x.10011615

Chronic breathlessness has wide-ranging, inter-related physical, psychological, social and existential consequences for those living with it, and the family and friends who care for them. Despite this, the symptom often remains invisible to others.... Read More about Patient and carer experience of breathlessness.