All Outputs (98)

Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial (2024)
Journal Article
Panca, M., Howard, R., Cort, E., Rawlinson, C., Gould, R. L., Wiegand, M., Downey, A. M., Banerjee, S., Fox, C., Harwood, R., Livingston, G., Moniz-Cook, E., Russell, G., Thomas, A., Wilkinson, P., Freemantle, N., & Hunter, R. M. (2024). Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial. BJPsych Open, 10(6), Article e189. https://doi.org/10.1192/bjo.2024.775

Background Depression is common in people with dementia, and negatively affects quality of life. Aims This paper aims to evaluate the cost-effectiveness of an intervention for depression in mild and moderate dementia caused by Alzheimer's disease ove... Read More about Cost-utility analysis of adapted problem adaptation therapy for depression in mild-to-moderate dementia caused by Alzheimer's disease: PATHFINDER randomised controlled trial.

Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework (2024)
Journal Article
Bartels, S., Stephens, N., D'Andrea, F., Handley, M., Markaryan, M., Nakakawa Bernal, A., Van den Block, L., de Bruin, S., Windle, K., Roes, M., Janssen, N., Christie, H., Garcia, L., Teesing, G., Moniz-Cook, E., & Graff, M. (2024). Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework. Frontiers in Dementia, 3, Article 1458023. https://doi.org/10.3389/frdem.2024.1458023

Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review (2024)
Journal Article
Marshall, J., Papavasiliou, E., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., Pick, A., Polley, M. J., Reeve, J., Robinson, L., Rook, G., Sadler, E., Wolverson, E., Walker, S., & Cross, J. L. (2024). Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review. BMJ open, 14(4), Article e080551. https://doi.org/10.1136/bmjopen-2023-080551

Introduction
Dementia is a complex medical condition that poses significant challenges to healthcare systems and support services. People living with dementia (PLWD) and their carers experience complex needs often exacerbated by social isolation an... Read More about Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review.

Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial (2024)
Journal Article
Howard, R., Cort, E., Rawlinson, C., Wiegand, M., Downey, A., Lawrence, V., Banerjee, S., Bentham, P., Fox, C., Harwood, R., Hunter, R., Livingston, G., Moniz-Cook, E., Panca, M., Raczek, M., Ivenso, C., Russell, G., Thomas, A., Wilkinson, P., Freemantle, N., & Gould, R. (2024). Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13766

INTRODUCTION: Trials of effectiveness of treatment options for depression in dementia are an important priority. METHODS: Randomized controlled trial to assess adapted Problem Adaptation Therapy (PATH) for depression in mild/moderate dementia caused... Read More about Adapted problem adaptation therapy for depression in mild to moderate Alzheimer's disease dementia: A randomized controlled trial.

Operationalising the Recovery College model with people living with dementia: a realist review (2024)
Journal Article
Handley, M., Wheeler, C., Duddy, C., Wong, G., Birt, L., Fox, C., Moniz-Cook, E., Hackmann, C., Teague, B., & West, J. (2024). Operationalising the Recovery College model with people living with dementia: a realist review. Aging and Mental Health, 28(8), 1078-1089. https://doi.org/10.1080/13607863.2024.2356878

Objectives: Post-diagnostic support is a significant factor in facilitating personal recovery following a diagnosis of dementia, but access is often inconsistent and insufficient. Recovery Colleges offer peer-led, co-produced courses that can support... Read More about Operationalising the Recovery College model with people living with dementia: a realist review.

Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial (2023)
Journal Article
Mcdermid, J., Henley, W., Corbett, A., Williams, G., Fossey, J., Clare, L., Fox, C., Aarsland, D., Khan, Z., Soto, M., Woodward-Carlton, B., Cook, E. M., Cummings, J., Sweetnam, A., Chan, X., Lawrence, M., & Ballard, C. (in press). Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial. Alzheimer's & dementia, https://doi.org/10.1002/alz.13582

Introduction: iWHELD is a digital person-centered care program for people with dementia in nursing homes adapted for remote delivery during the COVID-19 pandemic. Methods: A 16-week two-arm cluster-randomized controlled trial in 149 UK nursing homes... Read More about Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: A randomized controlled trial.

Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography (2023)
Journal Article
Birt, L., West, J., Poland, F., Wong, G., Handley, M., Litherland, R., Hackmann, C., Moniz-Cook, E., Wolverson, E., Teague, B., Mills, R., Sams, K., Duddy, C., & Fox, C. (2023). Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography. BMJ open, 13(12), Article e078248. https://doi.org/10.1136/bmjopen-2023-078248

Introduction Support following a dementia diagnosis in the UK is variable. Attending a Recovery College course with and for people with dementia, their supporters and healthcare professionals (staff), may enable people to explore and enact ways to li... Read More about Protocol for a realist evaluation of Recovery College dementia courses: understanding coproduction through ethnography.

Data resource profile: the virtual international care homes trials archive (VICHTA) (2023)
Journal Article
Irvine, L., Burton, J., Ali, M., Booth, J., Desborough, J., Logan, P., Moniz-Cook, E., Surr, C., Wright, D., & Goodman, C. (2023). Data resource profile: the virtual international care homes trials archive (VICHTA). International Journal of Population Data Science, 8(6), https://doi.org/10.23889/ijpds.v8i6.2161

Introduction Randomised controlled trials (RCTs) conducted in care home settings address a range of health conditions impacting older people, but often include a common core of data about residents and the care home environment. These data can be use... Read More about Data resource profile: the virtual international care homes trials archive (VICHTA).

Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. (2023)
Journal Article
Wolverson, E., Hague, L., West, J., Teague, B., Fox, C., Birt, L., Mills, R., Rhodes, T., Sams, K., & Moniz-Cook, E. (in press). Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff. Working with Older People, https://doi.org/10.1108/WWOP-02-2023-0003

Purpose
Recovery Colleges were developed to support the recovery of people with mental health difficulties through courses co-produced by professionals and people with lived experience. This study aims to examine the use of Recovery Colleges to supp... Read More about Building an initial understanding of UK Recovery College dementia courses: A national survey of Recovery College and memory services staff..

Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT (2023)
Journal Article
Wenborn, J., Mountain, G., Moniz-Cook, E., Poland, F., King, M., Omar, R., O'keeffe, A., Morris, S., Pizzo, E., Michie, S., Vernooij-Dassen, M., Graff, M., Hill, J., Challis, D., Russell, I., Sackley, C., Hynes, S., Crellin, N., Mundy, J., Burgess, J., …Orrell, M. (2023). Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT. Programme Grants for Applied Research, 11(5), vii-76. https://doi.org/10.3310/RGTJ7429

Background: People with dementia find it increasingly difficult to carry out daily activities (activities of daily living), and may require increasing support from family carers. Researchers in the Netherlands developed the Community Occupational The... Read More about Community Occupational Therapy in Dementia intervention for people with mild to moderate dementia and their family carers in the UK: the VALID research programme including RCT.

The memory clinic and psychosocial intervention: Translating past promise into current practices (2023)
Journal Article
Moniz-Cook, E., & Mountain, G. (2023). The memory clinic and psychosocial intervention: Translating past promise into current practices. Frontiers in Rehabilitation Sciences, 4, Article 1052244. https://doi.org/10.3389/fresc.2023.1052244

Disproportionate negative effects since the pandemic have amplified the already limited post-diagnostic support for older people with dementia. This paper summarizes an exploratory randomized controlled study of a proactive family-based intervention... Read More about The memory clinic and psychosocial intervention: Translating past promise into current practices.

The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities (2023)
Journal Article
Moniz-Cook, E., Birt, L., Charlesworth, G., Leung, P., Higgs, P., Orrell, M., & Poland, F. (2023). The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities. Gerontologist, 63(8), 1320-1329. https://doi.org/10.1093/geront/gnad022

Background : A dementia diagnosis can impact on social interactions. This study aims to understand how people living with dementia act as social beings within everyday interactions in their local communities.
Research design and methods : Focused et... Read More about The dynamic nature of being a person’: an ethnographic study of people living with dementia in their communities.

A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study (2023)
Journal Article
Lee, A. R., Csipke, E., Yates, L., Moniz-Cook, E., McDermott, O., Taylor, S., Stephens, M., Kelleher, D., & Orrell, M. (2023). A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study. JMIR Human Factors, 10, Article e40785. https://doi.org/10.2196/40785

Background: Self-management, autonomy, and quality of life are key constructs in enabling people to live well with dementia. This population often becomes isolated following diagnosis, but it is important for them to feel encouraged to maintain their... Read More about A Web-Based Self-management App for Living Well With Dementia: User-Centered Development Study.

Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies (2023)
Journal Article
James, I. A., Reichelt, K., Shirley, L., & Moniz-Cook, E. (2023). Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies. Clinical Interventions in Aging, 18, 219-230. https://doi.org/10.2147/CIA.S399697

Objective: NICE guidelines recommend non-pharmacological interventions as the first-line approach for the management of behaviours that challenge. Recent work, however, highlights dissatisfaction with the lack of detailed guidance in the national gui... Read More about Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies.

Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings (2023)
Journal Article
McDermid, J., Ballard, C., Khan, Z., Aarsland, D., Fox, C., Fossey, J., Clare, L., Moniz-Cook, E., Soto-Martin, M., Sweetnam, A., Mills, K., Cummings, J., & Corbett, A. (2023). Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings. International journal of geriatric psychiatry, 38(1), Article e5878. https://doi.org/10.1002/gps.5878

Objectives: This study aimed to determine the impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic use in people with dementia living in nursing homes. Methods: This was a comparative analysis of baseline data from two large... Read More about Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings.

Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff (2023)
Journal Article
Wolverson, E., Hague, L., West, J., Teague, B., Fox, C., Birt, L., Mills, R., Rhodes, T., Sams, K., & Moniz-Cook, E. (2023). Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff. Working with Older People, https://doi.org/10.1108/WWOP-02-2023-0003

Purpose: Recovery Colleges were developed to support the recovery of people with mental health difficulties through courses co-produced by professionals and people with lived experience. This study aims to examine the use of Recovery Colleges to supp... Read More about Building an initial understanding of UK Recovery College dementia courses: a national survey of Recovery College and memory services staff.

Recognition of social health: A conceptual framework in the context of dementia research (2022)
Journal Article
Vernooij-Dassen, M., Verspoor, E., Samtani, S., Sachdev, P. S., Ikram, M. A., Vernooij, M. W., Hubers, C., Chattat, R., Lenart-Bugla, M., Rymaszewska, J., Szczesniak, D., Brodaty, H., Welmer, A. K., Maddock, J., van der Velpen, I. F., Wiegelmann, H., Marseglia, A., Richards, M., Melis, R., de Vugt, M., …Wolf-Ostermann, K. (2022). Recognition of social health: A conceptual framework in the context of dementia research. Frontiers in Psychiatry, 13, Article 1052009. https://doi.org/10.3389/fpsyt.2022.1052009

Objective: The recognition of dementia as a multifactorial disorder encourages the exploration of new pathways to understand its origins. Social health might play a role in cognitive decline and dementia, but conceptual clarity is lacking and this hi... Read More about Recognition of social health: A conceptual framework in the context of dementia research.

Stigma among UK family carers of people living with dementia (2022)
Journal Article
Bhatt, J., Scior, K., Stoner, C. R., Moniz-Cook, E., & Charlesworth, G. (2022). Stigma among UK family carers of people living with dementia. BJPsych Open, 8(6), Article E179. https://doi.org/10.1192/bjo.2022.585

Background Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia. Aims To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent... Read More about Stigma among UK family carers of people living with dementia.

Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures (2022)
Journal Article
Mast, B. T., Ertle, E. M., Kolanowski, A., Mountain, G., Moniz-Cook, E., & Halek, M. (2022). Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8(1), Article e12316. https://doi.org/10.1002/trc2.12316

Introduction: The review described in this paper builds upon the Dementia Care Practice Recommendations (DCPR) published by the Alzheimer's Association in 2018 and addresses behavior change and the need for targeted outcome measures that evolve from... Read More about Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures.

An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT (2022)
Journal Article
Mountain, G., Wright, J., Cooper, C. L., Lee, E., Sprange, K., Beresford-Dent, J., Young, T., Walters, S., Berry, K., Dening, T., Loban, A., Turton, E., Thomas, B. D., Young, E. L., Thompson, B. J., Crawford, B., Craig, C., Bowie, P., Moniz-Cook, E., & Foster, A. (2022). An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT. Health Technology Assessment, 26(24), 1-152. https://doi.org/10.3310/KHHA0861

BACKGROUND: There are few effective interventions for dementia. AIM: To determine the clinical effectiveness and cost-effectiveness of an intervention to promote self-management, independence and self-efficacy in people with early-stage dementia. OBJ... Read More about An intervention to promote self-management, independence and self-efficacy in people with early-stage dementia: the Journeying through Dementia RCT.