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All Outputs (82)

Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse (2020)
Journal Article
Sweeney, L., Wolverson, E., & Clarke, C. (2021). Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia, 20(5), 1791–1813. https://doi.org/10.1177/1471301220970403

Introduction Life story books in dementia are used as a part of person-centred care. Whilst the current literature demonstrates associations between completing life story books and increased well-being, little is known about the process and how it i... Read More about Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse.

The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support (2020)
Journal Article
White, C., Wolverson, E., Dunn, R., & Zafeiridi, E. (2020). The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring, 4(4), 549-571. https://doi.org/10.1332/239788220X15934528490504

© Policy Press 2020. This article reports on research into the development of a website (Caregiverspro-MMD) intended for carers and people living with dementia. Carers, people living with dementia and healthcare practitioners were invited to explore... Read More about The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, B., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (in press). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18(1), Article 249. https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

Shame, self-discrepancies, and adjustment after acquired brain injury (2020)
Journal Article
Hughes, R., Fleming, P., & Henshall, L. (in press). Shame, self-discrepancies, and adjustment after acquired brain injury. Brain Injury, 1-7. https://doi.org/10.1080/02699052.2020.1776395

ABSTRACT Objectives: To explore the relationship between shame and self-discrepancies and the extent that these factors predict adjustment after an acquired brain injury (ABI). Method: 62 participants with an ABI completed the following self-repor... Read More about Shame, self-discrepancies, and adjustment after acquired brain injury.

The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data (2020)
Journal Article
Laura, S., Clarke, C., & Wolverson, E. (in press). The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data. Dementia, 20(4), 1470–1495. https://doi.org/10.1177/1471301220929534

Background Everyday technologies, such as laptops and tablets, are often used for enjoyment, pleasure, leisure and social participation. Despite this, whilst considerable research has investigated exploring people’s experiences of using assistive te... Read More about The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data.

Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study (2020)
Journal Article
Conway, L., Wolverson, E. L., & Clarke, C. (2020). Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study. Frontiers in Medicine, 7, Article 219. https://doi.org/10.3389/fmed.2020.00219

Resilience is a concept which may help explain how older people are able to live well with dementia. Existing resilience research in dementia focuses on the caregiver and relatively little is known about how dyads (person with dementia and care partn... Read More about Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study.

The influence of self-compassion on perceived responsibility and shame following acquired brain injury (2020)
Journal Article
Ambridge, J., Fleming, P., & Henshall, L. (2020). The influence of self-compassion on perceived responsibility and shame following acquired brain injury. Brain Injury, 34(7), 945-957. https://doi.org/10.1080/02699052.2020.1763466

Primary objective: The purpose of this study was to investigate the influence of perceived personal responsibility for an acquired ABI (ABI) on shame, and whether self-compassion moderates this relationship. We hypothesized that people who perceived... Read More about The influence of self-compassion on perceived responsibility and shame following acquired brain injury.

Resilience in older people living with dementia – A narrative analysis (2020)
Journal Article
Buggins, S., Clarke, C., & Wolverson, E. (2021). Resilience in older people living with dementia – A narrative analysis. Dementia, 20(4), 1234-1249. https://doi.org/10.1177/1471301220927614

Dominant discourses surrounding dementia tend to focus on narratives of loss and decline. Simultaneously, individuals living with dementia are vulnerable to being dispossessed of personal narratives supportive of identity and well-being. How older pe... Read More about Resilience in older people living with dementia – A narrative analysis.

Peer support groups after acquired brain injury: a systematic review (2020)
Journal Article
Hughes, R., Fleming, P., & Henshall, L. (2020). Peer support groups after acquired brain injury: a systematic review. Brain Injury, https://doi.org/10.1080/02699052.2020.1762002

Background: Peer support groups can be a way to obtain support, problem solve, and widen social networks. However, there has been no systematic literature review examining the evidence for the use of peer support groups after an acquired brain injur... Read More about Peer support groups after acquired brain injury: a systematic review.

Conceptualising women's perinatal well-being: a systematic review of theoretical discussions (2019)
Journal Article
Wadephul, F., Glover, L., & Jomeen, J. (2020). Conceptualising women's perinatal well-being: a systematic review of theoretical discussions. Midwifery, 81, Article 102598. https://doi.org/10.1016/j.midw.2019.102598

Background: Perinatal well-being has increasingly become the focus of research, clinical practice and policy. However, attention has mostly been on a reductionist understanding of well-being based on a mind-body duality. Conceptual clarity around wha... Read More about Conceptualising women's perinatal well-being: a systematic review of theoretical discussions.

The experience of talking about hearing voices with family, friends, and others (2019)
Journal Article
Watkins, S., Gupta, A., & Sanderson, C. (in press). The experience of talking about hearing voices with family, friends, and others. Psychosis, 1-10. https://doi.org/10.1080/17522439.2019.1690561

Objective: There is evidence to suggest that close social networks and wider social influences have a significant impact on people who hear voices. The aim of this research was to explore people’s experiences of talking about voice hearing with famil... Read More about The experience of talking about hearing voices with family, friends, and others.

Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice) (2019)
Journal Article
Cunnah, K., Howe, D., Thorpe, J., Dunn, R., Platt, R., White, C., …Wolverson, E. (2021). Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice). Dementia, 20(2), 796–806. https://doi.org/10.1177/1471301219887592

Little is known about the training and support people with dementia and their carers need to use digital solutions. This paper shares learning from a bespoke programme that successfully trained people with dementia or mild cognitive impairment and th... Read More about Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice).

The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness (2019)
Journal Article
Howe, D., Thorpe, J., Dunn, R., White, C., Cunnah, K., Platt, R., …Wolverson, E. (2019). The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of applied gerontology, 39(12), 1303-1312. https://doi.org/10.1177/0733464819885326

People living with dementia or cognitive impairment (PwD) and their carers often have unmet needs for informational and social support postdiagnosis. Web-based platforms have the potential to address these needs, although few have been developed for... Read More about The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.

Digital technologies and dementia - training guide (2019)
Other
Wolverson, E., Paulson, K., White, C., Dunn, R., & Oxtoby, K. (2019). Digital technologies and dementia - training guide

This practical guide for group facilitators is now available to support training for people living with dementia/cognitive impairment in the use of digital technologies. The guide gives top tips including the importance of simple steps and the need... Read More about Digital technologies and dementia - training guide.

Technology for Families of People with Dementia (2019)
Book Chapter
Wolverson, E., Dunn, R., & White, C. (2019). Technology for Families of People with Dementia. In A. Astell, S. Smith, & P. Joddrell (Eds.), Using technology in dementia care : a guide to technology solutions for everyday living (139-158). London: Jessica Kingsley Publishers

Changes in understandings and perceptions of individuals, significant others and community supporters involved in a theatre company for adults with intellectual disabilities (2019)
Journal Article
Dickinson, D., & Hutchinson, N. (2019). Changes in understandings and perceptions of individuals, significant others and community supporters involved in a theatre company for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(3), 691-705. https://doi.org/10.1111/jar.12564

Background: Theatre companies to show positive capabilities and identities of people with intellectual disabilities have been established. Existing research focuses upon sole theatre performances, and rarely includes the impacts on those in the immed... Read More about Changes in understandings and perceptions of individuals, significant others and community supporters involved in a theatre company for adults with intellectual disabilities.

Improving Digital Inclusion Through Training (2018)
Other
Cunnah, K., Dunn, R., Howe, D., Platt, R., Thorpe, J., Paulson, K., & Wolverson, E. (2018). Improving Digital Inclusion Through Training

This guide is for anyone who is seeking information on the introduction of technical devices to people with dementia or cognitive impairment (referred to collectively in this report as PwD) and their carers. This might include social care professiona... Read More about Improving Digital Inclusion Through Training.