Skip to main content

Research Repository

Advanced Search

Outputs (87)

A qualitative exploration of women's perspectives and acceptability of including new cancer awareness information in all‐clear breast or cervical screening results (2022)
Journal Article
Bamidele, O. O., Green, T., Tookey, S., Walabyeki, J., & Macleod, U. (2022). A qualitative exploration of women's perspectives and acceptability of including new cancer awareness information in all‐clear breast or cervical screening results. European Journal of Cancer Care, https://doi.org/10.1111/ecc.13574

Objective: This study explored women's perspectives on the acceptability of including new cancer information with an all-clear breast or cervical screening result letter (using ovarian cancer as a case study). Methods: In 2016, six focus group discus... Read More about A qualitative exploration of women's perspectives and acceptability of including new cancer awareness information in all‐clear breast or cervical screening results.

Geographical distance and reduced access to palliative radiotherapy: Systematic review and meta-analysis (2022)
Journal Article
Chand, C. P., Greenley, S., Macleod, U., Lind, M., Barton, R., & Kelly, C. (2022). Geographical distance and reduced access to palliative radiotherapy: Systematic review and meta-analysis. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2021-003356

Background: Palliative radiotherapy (PRT) is an effective way of reducing symptoms caused by advanced incurable cancer. Several studies have investigated factors that contribute to inequalities in access to PRT; distance to a radiotherapy centre has... Read More about Geographical distance and reduced access to palliative radiotherapy: Systematic review and meta-analysis.

Making sense of ‘best start’ : exploring the early experiences of mothers in low-socioeconomic areas (2022)
Thesis
Miles, H. B. (2022). Making sense of ‘best start’ : exploring the early experiences of mothers in low-socioeconomic areas. (Thesis). Hull York Medical School, the University of Hull and the University of York. Retrieved from https://hull-repository.worktribe.com/output/4224605

The central concern of this thesis is to better understand how mothers in low- socioeconomic areas, in a city in the north of England experience early mothering. It is particularly interested in broadening understandings of how these lived experience... Read More about Making sense of ‘best start’ : exploring the early experiences of mothers in low-socioeconomic areas.

The PEOPLE-HULL Study: improving help-seeking for lung symptoms in Hull. Trial registration. (2021)
Dataset
Mitchell, L., Macleod, U., & Walabyeki, J. (2021). The PEOPLE-HULL Study: improving help-seeking for lung symptoms in Hull. Trial registration. [Dataset]. https://doi.org/10.1186/ISRCTN28517662

Background and study aims: More people are diagnosed with and die from lung cancer in Hull than any other place in Yorkshire. The main reason for this is related to lung cancers being diagnosed at a time when they are too advanced to be eligible for... Read More about The PEOPLE-HULL Study: improving help-seeking for lung symptoms in Hull. Trial registration..

A cluster randomised trial of a Needs Assessment Tool for adult Cancer patients and their carers (NAT-C) in primary care: A feasibility study (2021)
Journal Article
Clark, J., Amoakwa, E., Wright-Hughes, A., Blenkinsopp, J., Currow, D. C., Meads, D., …Johnson, M. (2021). A cluster randomised trial of a Needs Assessment Tool for adult Cancer patients and their carers (NAT-C) in primary care: A feasibility study. PLoS ONE, 16(1), Article e0245647. https://doi.org/10.1371/journal.pone.0245647

Background People with cancer often have unidentified symptoms and social care needs. The Needs Assessment Tool-Cancer (NAT-C) is a validated, structured method of assessing patient/ carer concerns and prompting action, to address unmet need. Aims As... Read More about A cluster randomised trial of a Needs Assessment Tool for adult Cancer patients and their carers (NAT-C) in primary care: A feasibility study.

Yorkshire Lung Screening Trial (YLST): protocol for a randomised controlled trial to evaluate invitation to community-based low-dose CT screening for lung cancer versus usual care in a targeted population at risk (2020)
Journal Article
Crosbie, P. A., Gabe, R., Simmonds, I., Kennedy, M., Rogerson, S., Ahmed, N., …Callister, M. E. (2020). Yorkshire Lung Screening Trial (YLST): protocol for a randomised controlled trial to evaluate invitation to community-based low-dose CT screening for lung cancer versus usual care in a targeted population at risk. BMJ open, 10(9), Article e037075. https://doi.org/10.1136/bmjopen-2020-037075

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ. INTRODUCTION: Lung cancer is the world's leading cause of cancer death. Low-dose computed tomography (LDCT) screening reduced lung cancer mortality by 20% in the... Read More about Yorkshire Lung Screening Trial (YLST): protocol for a randomised controlled trial to evaluate invitation to community-based low-dose CT screening for lung cancer versus usual care in a targeted population at risk.

REDUCE (Reviewing long-term antidepressant use by careful monitoring in everyday practice) internet and telephone support to people coming off long-term antidepressants: Protocol for a randomised controlled trial (2020)
Journal Article
Kendrick, T., Geraghty, A. W., Bowers, H., Stuart, B., Leydon, G., May, C., …Dowrick, C. (2020). REDUCE (Reviewing long-term antidepressant use by careful monitoring in everyday practice) internet and telephone support to people coming off long-term antidepressants: Protocol for a randomised controlled trial. Trials, 21(1), Article 419. https://doi.org/10.1186/s13063-020-04338-7

© 2020 The Author(s). Background: Around one in ten adults take antidepressants for depression in England, and their long-term use is increasing. Some need them to prevent relapse, but 30-50% could possibly stop them without relapsing and avoid adver... Read More about REDUCE (Reviewing long-term antidepressant use by careful monitoring in everyday practice) internet and telephone support to people coming off long-term antidepressants: Protocol for a randomised controlled trial.

'Unpacking' pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives (2020)
Journal Article
Howell, D., Hart, R., Smith, A., MacLeod, U., Patmore, R., & Roman, E. (2020). 'Unpacking' pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives. BMJ open, 10(2), Article e034244. https://doi.org/10.1136/bmjopen-2019-034244

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ. Objectives To explore alignment of experiences before lymphoma and myeloma diagnosis with the appraisal, help seeking and diagnostic intervals in the Model of Pa... Read More about 'Unpacking' pathways to lymphoma and myeloma diagnosis: Do experiences align with the Model of Pathways to Treatment? Findings from a UK qualitative study with patients and relatives.

Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014) (2020)
Journal Article
Gadoud, A., Kane, E., Oliver, S. E., Johnson, M. J., MacLeod, U., & Allgar, V. (2020). Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014). BMJ supportive & palliative care, Article 001833. https://doi.org/10.1136/bmjspcare-2019-001833

Objectives While guidelines recommend palliative care in non-cancer conditions, this has not been widely implemented. We examined whether the recording of a palliative care approach and the numbers of hospital deaths for deceased patients with heart... Read More about Palliative care for non-cancer conditions in primary care: a time trend analysis in the UK (2009–2014).

Non-attendance at urgent referral appointments for suspected cancer: A qualitative study to gain understanding from patients and GPS (2019)
Journal Article
Jefferson, L., Atkin, K., Sheridan, R., Oliver, S., Macleod, U., Hall, G., …Knapp, P. (2019). Non-attendance at urgent referral appointments for suspected cancer: A qualitative study to gain understanding from patients and GPS. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(689), E850-E859. https://doi.org/10.3399/bjgp19X706625

© British Journal of General Practice Background: The 2-week-wait urgent referral policy in the UK has sought to improve cancer outcomes by accelerating diagnosis and treatment. However, around 5-7% of symptomatic referred patients cancel or do not... Read More about Non-attendance at urgent referral appointments for suspected cancer: A qualitative study to gain understanding from patients and GPS.

Perceived colorectal cancer candidacy and the role of candidacy in colorectal cancer screening (2019)
Journal Article
Bikker, A. P., Macdonald, S., Robb, K. A., Conway, E., Browne, S., Campbell, C., …Macleod, U. (2019). Perceived colorectal cancer candidacy and the role of candidacy in colorectal cancer screening. Health, Risk and Society, 21(7-8), 352-372. https://doi.org/10.1080/13698575.2019.1680816

© 2019 Informa UK Limited, trading as Taylor & Francis Group. Screening is a well-established tool to advance earlier cancer diagnosis. We used Davison’s concept of ‘candidacy’ to explore how individuals draw on collectively constructed images of ‘... Read More about Perceived colorectal cancer candidacy and the role of candidacy in colorectal cancer screening.

Patient non-attendance at urgent referral appointments for suspected cancer and its links to cancer diagnosis and one year mortality: A cohort study of patients referred on the Two Week Wait pathway (2019)
Journal Article
Sheridan, R., Oliver, S. E., Hall, G., Allgar, V., Melling, P., Bolton, E., …Knapp, P. (2019). Patient non-attendance at urgent referral appointments for suspected cancer and its links to cancer diagnosis and one year mortality: A cohort study of patients referred on the Two Week Wait pathway. Cancer epidemiology, 63, Article 101588. https://doi.org/10.1016/j.canep.2019.101588

© 2019 The Authors Background: The ‘Two Week Wait’ policy aims to ensure patients with suspected cancer are seen within two weeks of referral. However, patient non-attendance can result in this target being missed. This study aimed to identify predic... Read More about Patient non-attendance at urgent referral appointments for suspected cancer and its links to cancer diagnosis and one year mortality: A cohort study of patients referred on the Two Week Wait pathway.

An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views (2019)
Journal Article
Chen, H., Walabyeki, J., Johnson, M., Boland, E., Seymour, J., & Macleod, U. (2019). An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views. PLoS ONE, 14(5), Article e0216430. https://doi.org/10.1371/journal.pone.0216430

The number of cancer-related emergency presentations and admissions has been steadily increasing in the UK. Drivers of this phenomenon are complex, multifactorial and interlinked. The main objective of this study was to understand the complexity of e... Read More about An integrated understanding of the complex drivers of emergency presentations and admissions in cancer patients: qualitative modelling of secondary-care health professionals’ experiences and views.

Facilitated group work for people with long-term conditions: a systematic review of benefits from studies of group-work interventions (2019)
Journal Article
Jackson, M., Jones, D., Dyson, J., & Macleod, U. (2019). Facilitated group work for people with long-term conditions: a systematic review of benefits from studies of group-work interventions. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(682), E363-E372. https://doi.org/10.3399/bjgp19X702233

Background: About 15.4 million people in the UK live with a long-term condition. Of the health and social care spend, 70% is invested in caring for this population. Evidence suggests that group-work interventions offer patient support, improved outco... Read More about Facilitated group work for people with long-term conditions: a systematic review of benefits from studies of group-work interventions.

Using significant event analysis and individual audit and feedback to develop strategies to improve recognition and referral of lung and colorectal cancer at an individual general practice level (2019)
Thesis
Jones, D. J. (2019). Using significant event analysis and individual audit and feedback to develop strategies to improve recognition and referral of lung and colorectal cancer at an individual general practice level. (Thesis). Hull York Medical School, the University of Hull and the University of York. Retrieved from https://hull-repository.worktribe.com/output/4221510

Introduction: The lifetime risk of developing cancer is 50%. Whilst cancer survival rates are increasing, data suggests UK survival is lower than comparable countries. There is a growing evidence base to suggest cancer survival is linked at least in... Read More about Using significant event analysis and individual audit and feedback to develop strategies to improve recognition and referral of lung and colorectal cancer at an individual general practice level.

Disease-related factors affecting timely lymphoma diagnosis: A qualitative study exploring patient experiences (2019)
Journal Article
Howell, D. A., Hart, R. I., Smith, A. G., Roman, E., Macleod, U., & Patmore, R. (2019). Disease-related factors affecting timely lymphoma diagnosis: A qualitative study exploring patient experiences. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(679), E134-E145. https://doi.org/10.3399/bjgp19X701009

© British Journal of General Practice. Background Expediting cancer diagnosis is widely perceived as one way to improve patient outcomes. Evidence indicates that lymphoma diagnosis is often delayed, yet understanding of issues influencing this is inc... Read More about Disease-related factors affecting timely lymphoma diagnosis: A qualitative study exploring patient experiences.

Lung cancer symptom appraisal among people with chronic obstructive pulmonary disease: A qualitative interview study (2019)
Journal Article
Cunningham, Y., Wyke, S., Blyth, K. G., Rigg, D., Macdonald, S., Macleod, U., …Whitaker, K. L. (2019). Lung cancer symptom appraisal among people with chronic obstructive pulmonary disease: A qualitative interview study. Psycho-oncology, 28(4), 718-725. https://doi.org/10.1002/pon.5005

© 2019 The Authors. Psycho-Oncology Published by John Wiley & Sons Ltd. Objective: The incidence of lung cancer is four times higher in people with chronic obstructive pulmonary disease (COPD) compared with the general population. Promotion of a sh... Read More about Lung cancer symptom appraisal among people with chronic obstructive pulmonary disease: A qualitative interview study.

Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK (2019)
Journal Article
Allgar, V. L., Oliver, S. E., Chen, H., Oviasu, O., Johnson, M. J., & Macleod, U. (2019). Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK. Cancer epidemiology, 59, 37-45. https://doi.org/10.1016/j.canep.2019.01.008

© 2019 Elsevier Ltd Background: England has significantly higher mortality risks due to Head and Neck Cancer (HNC) compared with other European countries. Early diagnosis is important as it is likely to increase early-stage diagnosis and improve surv... Read More about Time intervals from first symptom to diagnosis for head and neck cancers: An analysis of linked patient reports and medical records from the UK.

Making sense of bodily sensations: Do shared cancer narratives influence symptom appraisal? (2019)
Journal Article
Macdonald, S., Conway, E., Bikker, A., Browne, S., Robb, K., Campbell, C., …Macleod, U. (2019). Making sense of bodily sensations: Do shared cancer narratives influence symptom appraisal?. Social science & medicine, 223, 31-39. https://doi.org/10.1016/j.socscimed.2018.12.034

© 2019 Elsevier Ltd Though new or altered bodily sensations are a common occurrence they rarely transition to biomedically defined symptoms. When they do, sensations are subject to an appraisal process that can culminate in help-seeking. The transiti... Read More about Making sense of bodily sensations: Do shared cancer narratives influence symptom appraisal?.

Identifying potentially inappropriate prescribing in older people with dementia: a systematic review (2019)
Journal Article
Hukins, D., Macleod, U., & Boland, J. W. (2019). Identifying potentially inappropriate prescribing in older people with dementia: a systematic review. European Journal of Clinical Pharmacology, 75(4), 467-481. https://doi.org/10.1007/s00228-018-02612-x

Purpose: Older people with dementia are at risk of adverse events associated with potentially inappropriate prescribing. Aim: to describe (1) how international tools designed to identify potentially inappropriate prescribing have been used in studies... Read More about Identifying potentially inappropriate prescribing in older people with dementia: a systematic review.

Safety netting for primary care: Evidence from a literature review (2019)
Journal Article
Jones, D., Dunn, L., Watt, I., & Macleod, U. (2019). Safety netting for primary care: Evidence from a literature review. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(678), E70-E79. https://doi.org/10.3399/bjgp18X700193

© British Journal of General Practice. Background: Ensuring patient safety is vital in primary care. One mechanism to increase patient safety is through a practice known as safety netting. Safety netting is widely recommended in national guidelines;... Read More about Safety netting for primary care: Evidence from a literature review.

Rapid review of factors associated with flexible sigmoidoscopy screening use (2018)
Journal Article
Kerrison, R. S., von Wagner, C., Green, T., Gibbins, M., Macleod, U., Hughes, M., …McGregor, L. M. (2019). Rapid review of factors associated with flexible sigmoidoscopy screening use. Preventive Medicine, 120, 8-18. https://doi.org/10.1016/j.ypmed.2018.12.018

© 2019 The Authors Flexible sigmoidoscopy (FS) screening has been shown to reduce colorectal cancer (CRC) incidence and mortality among screened adults. The aim of this review was to identify patient-related factors associated with the screening test... Read More about Rapid review of factors associated with flexible sigmoidoscopy screening use.

Combining mirtazapine with SSRIs or SNRIs for treatment-resistant depression: The MIR RCT (2018)
Journal Article
Kessler, D., Burns, A., Tallon, D., Lewis, G., Macneill, S., Round, J., …Wiles, N. (2018). Combining mirtazapine with SSRIs or SNRIs for treatment-resistant depression: The MIR RCT. Health Technology Assessment, 22(63), 1-136. https://doi.org/10.3310/hta22630

Background: Depression is usually managed in primary care and antidepressants are often the first-line treatment, but only half of those treated respond to a single antidepressant. Objectives: To investigate whether or not combining mirtazapine wit... Read More about Combining mirtazapine with SSRIs or SNRIs for treatment-resistant depression: The MIR RCT.

Mirtazapine added to SSRIs or SNRIs for treatment resistant depression in primary care: Phase III randomised placebo controlled trial (MIR) (2018)
Journal Article
Kessler, D. S., MacNeill, S. J., Tallon, D., Lewis, G., Peters, T. J., Hollingworth, W., …Wiles, N. J. (2018). Mirtazapine added to SSRIs or SNRIs for treatment resistant depression in primary care: Phase III randomised placebo controlled trial (MIR). BMJ, 363, Article k4218. https://doi.org/10.1136/bmj.k4218

Objective: To investigate the effectiveness of combining mirtazapine with Serotonin-Noradrenaline Reuptake Inhibitor (SNRI) or Selective Serotonin Reuptake Inhibitor (SSRI) antidepressants for patients in primary care who had not responded to an anti... Read More about Mirtazapine added to SSRIs or SNRIs for treatment resistant depression in primary care: Phase III randomised placebo controlled trial (MIR).

Pathways to colorectal cancer screening in Hull : a complexity informed configurational approach (2018)
Thesis
Morasae, E. K. (2018). Pathways to colorectal cancer screening in Hull : a complexity informed configurational approach. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4222143

In terms of its colorectal cancer profile, Hull is among the worst cities in the UK. A considerable number of colorectal cancer cases in Hull are diagnosed in emergency departments and in their late stages. Several modalities of screening tests (e.g.... Read More about Pathways to colorectal cancer screening in Hull : a complexity informed configurational approach.

Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care (2018)
Journal Article
Allgar, V. L., Chen, H., Richfield, E., Currow, D., Macleod, U., & Johnson, M. J. (2018). Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care. Journal of pain and symptom management, 56(4), 602-612. https://doi.org/10.1016/j.jpainsymman.2018.07.002

Background. The assessment of patients' needs for care is a critical step in achieving patient-centered cancer care. Tools can be used to assess needs and inform care planning. The Needs Assessment Tool:Progressive DiseaseeCancer (NAT:PD-C) is an Aus... Read More about Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care.

Using primary care-based paper and telephone interventions to increase uptake of bowel scope screening in Yorkshire: A protocol of a randomised controlled trial (2018)
Journal Article
McGregor, L. M., Kerrison, R. S., Green, T., MacLeod, U., Hughes, M., Gibbins, M., …Von Wagner, C. (2018). Using primary care-based paper and telephone interventions to increase uptake of bowel scope screening in Yorkshire: A protocol of a randomised controlled trial. BMJ open, 8(7), Article e024616. https://doi.org/10.1136/bmjopen-2018-024616

© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Introduction Evidence suggests bowel scope screening (BSS) can significantly reduce an individual's risk of... Read More about Using primary care-based paper and telephone interventions to increase uptake of bowel scope screening in Yorkshire: A protocol of a randomised controlled trial.

Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views (2018)
Journal Article
Chen, H., Johnson, M., Boland, E., Seymour, J., & Macleod, U. (2019). Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 27(2), 451–460. https://doi.org/10.1007/s00520-018-4328-5

Purpose Avoiding unnecessary emergency admissions and managing those that are admitted more effectively is a major concern for both patients and health services. To generate evidence useful for improving services for direct patient benefit, this stu... Read More about Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views.

The diagnostic test accuracy of rectal examination for prostate cancer diagnosis in symptomatic patients: A systematic review (2018)
Journal Article
Jones, D., Friend, C., Dreher, A., Allgar, V., & Macleod, U. (2018). The diagnostic test accuracy of rectal examination for prostate cancer diagnosis in symptomatic patients: A systematic review. BMC family practice, 19(1), Article 79. https://doi.org/10.1186/s12875-018-0765-y

© 2018 The Author(s). Background: Prostate cancer is the most common cancer in men in the UK. NICE guidelines on recognition and referral of suspected cancer, recommend performing digital rectal examination (DRE) on patients with urinary symptoms and... Read More about The diagnostic test accuracy of rectal examination for prostate cancer diagnosis in symptomatic patients: A systematic review.

Use of a GP-endorsed 12 months' reminder letter to promote uptake of bowel scope screening: Protocol for a randomised controlled trial in a hard-to-reach population (2018)
Journal Article
Von Wagner, C., Hirst, Y., Tookey, S., Kerrison, R. S., Marshall, S., Prentice, A., …Duffy, S. (2018). Use of a GP-endorsed 12 months' reminder letter to promote uptake of bowel scope screening: Protocol for a randomised controlled trial in a hard-to-reach population. BMJ open, 8(5), Article e022263. https://doi.org/10.1136/bmjopen-2018-022263

Introduction: Flexible sigmoidoscopy (FS) screening is associated with reduced colorectal cancer incidence and mortality when offered as a one-off test to men and women aged 55-64. The test, also referred to as the 'bowel scope screening' (BSS) test,... Read More about Use of a GP-endorsed 12 months' reminder letter to promote uptake of bowel scope screening: Protocol for a randomised controlled trial in a hard-to-reach population.

Mass media and risk factors for cancer: the under-representation of age (2018)
Journal Article
Macdonald, S., Cunningham, Y., Patterson, C., Robb, K., Macleod, U., Anker, T., & Hilton, S. (2018). Mass media and risk factors for cancer: the under-representation of age. BMC public health, 18(1), Article 490. https://doi.org/10.1186/s12889-018-5341-9

BACKGROUND: Increasing age is a risk factor for developing cancer. Yet, older people commonly underestimate this risk, are less likely to be aware of the early symptoms, and are more likely to be diagnosed with advanced stage cancer. Mass media are a... Read More about Mass media and risk factors for cancer: the under-representation of age.

Myeloma: Patient accounts of their pathways to diagnosis (2018)
Journal Article
Howell, D. A., Hart, R. I., Smith, A. G., Macleod, U., Patmore, R., Cook, G., & Roman, E. (2018). Myeloma: Patient accounts of their pathways to diagnosis. PLoS ONE, 13(4), Article e0194788. https://doi.org/10.1371/journal.pone.0194788

© 2018 Howell et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cre... Read More about Myeloma: Patient accounts of their pathways to diagnosis.

Self-reported skin concerns: An epidemiological study of community-dwelling older people (2018)
Journal Article
Cowdell, F., Dyson, J., Long, J., & Macleod, U. (2018). Self-reported skin concerns: An epidemiological study of community-dwelling older people. International journal of older people nursing, 13(3), e12195. https://doi.org/10.1111/opn.12195

Background Globally the population is getting older and it is essential to develop effective interventions to promote healthy ageing. Skin change with age is inevitable and renders this often neglected organ more vulnerable to damage and breakdown;... Read More about Self-reported skin concerns: An epidemiological study of community-dwelling older people.

Setting "survivorship" in context : the role of everyday resources in adjusting to life after cancer treatment with curative intent (2018)
Thesis
Bravington, A. (2018). Setting "survivorship" in context : the role of everyday resources in adjusting to life after cancer treatment with curative intent. (Thesis). Hull York Medical School, the University of Hull and the University of York. Retrieved from https://hull-repository.worktribe.com/output/4221138

Background: The number of people living beyond cancer in the UK is rapidly increasing, and their supportive care needs are a pressing issue. Patients treated with curative intent move on to a self management pathway, which uses checklists to measure... Read More about Setting "survivorship" in context : the role of everyday resources in adjusting to life after cancer treatment with curative intent.

Interventions to improve the uptake of cervical cancer screening among lower socioeconomic groups: A systematic review (2017)
Journal Article
Rees, I., Jones, D., Chen, H., & Macleod, U. (2018). Interventions to improve the uptake of cervical cancer screening among lower socioeconomic groups: A systematic review. Preventive Medicine, 111, 323-335. https://doi.org/10.1016/j.ypmed.2017.11.019

© 2017 Elsevier Inc. Cervical cancer is the fourth most common cancer in women worldwide. Screening can reduce both the incidence and mortality of the disease but is often not utilized by lower socioeconomic groups. A systematic review, including stu... Read More about Interventions to improve the uptake of cervical cancer screening among lower socioeconomic groups: A systematic review.

Experience of, awareness of and help-seeking for potential cancer symptoms in smokers and non-smokers: a cross-sectional study (2017)
Journal Article
Walabyeki, J., Adamson, J., Buckley, H. L., Sinclair, H., Atkin, K., Graham, H., …Macleod, U. (2017). Experience of, awareness of and help-seeking for potential cancer symptoms in smokers and non-smokers: a cross-sectional study. PLoS ONE, 12(8), e0183647. https://doi.org/10.1371/journal.pone.0183647

Background Presenting to primary care with potential cancer symptoms is contingent on one’s ability to recognize potentially serious symptoms. We investigated differences between smokers and non-smokers in symptoms experienced, awareness and consulti... Read More about Experience of, awareness of and help-seeking for potential cancer symptoms in smokers and non-smokers: a cross-sectional study.

The complex relationship between household income of family caregivers, access to palliative care services and place of death: A national household population survey (2017)
Journal Article
Chen, H., Currow, D. C., Dunn, L., Johnson, M. J., Macleod, U., & Allgar, V. (2018). The complex relationship between household income of family caregivers, access to palliative care services and place of death: A national household population survey. Palliative medicine, 32(2), 357-365. https://doi.org/10.1177/0269216317711825

Background: Previous work shows that more affluent patients with cancer are more likely to die at home, whereas those dying from non-cancer conditions are more likely to die in hospital. Family caregivers are an important factor in determining place... Read More about The complex relationship between household income of family caregivers, access to palliative care services and place of death: A national household population survey.

Attitudes of newly qualified doctors towards a career in general practice: A qualitative focus group study (2017)
Journal Article
Merrett, A., Jones, D., Sein, K., Green, T., & Macleod, U. (2017). Attitudes of newly qualified doctors towards a career in general practice: A qualitative focus group study. The British journal of general practice : the journal of the Royal College of General Practitioners, 67(657), e253-e259. https://doi.org/10.3399/bjgp17X690221

© British Journal of General Practice 2017. Background A key element of the NHS is universal access to a GP. Recently, UK general practice has been described as being in crisis, with training places unfilled and multiple practices reporting vacancies... Read More about Attitudes of newly qualified doctors towards a career in general practice: A qualitative focus group study.

A systematic review examining reducing unplanned hospital admissions in adults with cancer (2017)
Working Paper
Walabyeki, J., Macleod, U., Johnson, M., Dyson, J., Oliver, S., Allgar, V., …Hammond, T. A systematic review examining reducing unplanned hospital admissions in adults with cancer

Review question: 1. What interventions have been tested and have successfully reduced unplanned hospital admissions in adults with cancer? 2. What are the factors associated with unplanned hospital admissions in adults with cancer?

Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study (2017)
Journal Article
Howell, D., Smith, A., Appleton, S., Bagguley, T., Macleod, U., Cook, G., …Roman, E. (2017). Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study. British journal of haematology, 177(1), 67-71. https://doi.org/10.1111/bjh.14513

Prompt cancer diagnosis may align UK survival with European averages. We examined the impact of route to diagnosis on survival for multiple myeloma patients diagnosed 2012–2013 using data from our population-based patient cohort that links to nationa... Read More about Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study.

Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease (2016)
Journal Article
Macleod, U., Blane, D., Browne, S., Conway, E., Macdonald, S., Mair, F., & May, C. (2016). Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease. Social science & medicine, 168, 101-110. https://doi.org/10.1016/j.socscimed.2016.08.022

How and when we use health services or healthcare provision has dominated exploration of and debates around healthcare access. Levels of utilisation are assumed as a proxy for access. Yet, focusing on utilisation conceals an important aspect of the a... Read More about Illness identity as an important component of candidacy: Contrasting experiences of help-seeking and access to care in cancer and heart disease.

Do colorectal cancer patients diagnosed as an emergency differ from non-emergency patients in their consultation patterns and symptoms? A longitudinal data-linkage study in England (2016)
Journal Article
Renzi, C., Lyratzopoulos, G., Card, T., Chu, T., Macleod, U., & Rachet, B. (2016). Do colorectal cancer patients diagnosed as an emergency differ from non-emergency patients in their consultation patterns and symptoms? A longitudinal data-linkage study in England. The British Journal of Cancer, 115(7), 866-875. https://doi.org/10.1038/bjc.2016.250

Background: More than 20% of colorectal cancers are diagnosed following an emergency presentation. We aimed to examine pre-diagnostic primary-care consultations and related symptoms comparing patients diagnosed as emergencies with those diagnosed thr... Read More about Do colorectal cancer patients diagnosed as an emergency differ from non-emergency patients in their consultation patterns and symptoms? A longitudinal data-linkage study in England.

Mirtazapine added to selective serotonin reuptake inhibitors for treatment-resistant depression in primary care (MIR trial): Study protocol for a randomised controlled trial (2016)
Journal Article
Tallon, D., Wiles, N., Campbell, J., Chew-Graham, C., Dickens, C., Macleod, U., …Kessler, D. (2016). Mirtazapine added to selective serotonin reuptake inhibitors for treatment-resistant depression in primary care (MIR trial): Study protocol for a randomised controlled trial. Trials, 17(1), Article 66. https://doi.org/10.1186/s13063-016-1199-2

© 2016 Tallon et al. Background: People with depression are usually managed in primary care and antidepressants are often the first-line treatment, but only one third of patients respond fully to a single antidepressant. This paper describes the prot... Read More about Mirtazapine added to selective serotonin reuptake inhibitors for treatment-resistant depression in primary care (MIR trial): Study protocol for a randomised controlled trial.

The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease (2016)
Journal Article
Boland, J. W., Reigada, C., Yorke, J., Hart, S. P., Bajwah, S., Ross, J., …Johnson, M. J. (2016). The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease. Journal of palliative medicine, 19(5), 549-555. https://doi.org/10.1089/jpm.2015.0355

Background: Irrreversible interstitial lung disease (ILD) is associated with high morbidity and mortality. Palliative care needs of patients and caregivers are not routinely assessed; there is no tool to identify needs and triage support in clinical... Read More about The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease.

Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey (2016)
Journal Article
Johnson, M. J., Allgar, V., Macleod, U., Jones, A., Oliver, S., & Currow, D. (2016). Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey. PLoS ONE, 11(1), e0146960. https://doi.org/10.1371/journal.pone.0146960

Background Family caregivers provide significant care at the end of life. We aimed to describe caregiver characteristics, and of those unwilling to repeat this role under the same circumstances. Methods Observational study of adults in private househ... Read More about Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey.

Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review (2015)
Journal Article
Chen, H., Nicolson, D. J., MacLeod, U., Allgar, V., Dalgliesh, C., & Johnson, M. (2016). Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review. Palliative medicine, 30(5), 434-445. https://doi.org/10.1177/0269216315602590

© SAGE Publications. Background: Cancer patients in lower socioeconomic groups are significantly less likely to die at home and experience more barriers to access to palliative care. It is unclear whether receiving palliative care may mediate the eff... Read More about Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review.

The expanding role of primary care in cancer control (2015)
Journal Article
Rubin, G., Berendsen, A., Crawford, S. M., Dommett, R., Earle, C., Emery, J., …Zimmermann, C. (2015). The expanding role of primary care in cancer control. The lancet oncology, 16(12), 1231-1272. https://doi.org/10.1016/S1470-2045%2815%2900205-3

© 2015 Elsevier Ltd. The nature of cancer control is changing, with an increasing emphasis, fuelled by public and political demand, on prevention, early diagnosis, and patient experience during and after treatment. At the same time, primary care is i... Read More about The expanding role of primary care in cancer control.

Low cancer suspicion following experience of a cancer 'warning sign' (2015)
Journal Article
Whitaker, K. L., Winstanley, K., Macleod, U., Scott, S. E., & Wardle, J. (2015). Low cancer suspicion following experience of a cancer 'warning sign'. European Journal of Cancer, 51(16), 2473-2479. https://doi.org/10.1016/j.ejca.2015.07.014

© 2015 The Authors. Published by Elsevier Ltd. Aim Lower socioeconomic status (SES) is associated with a higher risk of late-stage cancer diagnosis. A number of explanations have been advanced for this, but one which has attracted recent attention is... Read More about Low cancer suspicion following experience of a cancer 'warning sign'.

Risk factors for emergency presentation with lung and colorectal cancers: A systematic review (2015)
Journal Article
Mitchell, E. D., Pickwell-Smith, B., & Macleod, U. (2015). Risk factors for emergency presentation with lung and colorectal cancers: A systematic review. BMJ open, 5(4), Article e006965. https://doi.org/10.1136/bmjopen-2014-006965

© 2015, BMJ. All rights reserved. Objective: To identify patient and practitioner factors that influence cancer diagnosis via emergency presentation (EP). Design: Systematic review. Data sources: MEDLINE, EMBASE, CINAHL, EBM Reviews, Science and Soci... Read More about Risk factors for emergency presentation with lung and colorectal cancers: A systematic review.

Core intended learning outcomes for tackling health inequalities in undergraduate medicine Curriculum development (2015)
Journal Article
Williamson, A. E., Ayres, R., Allen, J., & Macleod, U. (2015). Core intended learning outcomes for tackling health inequalities in undergraduate medicine Curriculum development. BMC Medical Education, 15(1), Article 66. https://doi.org/10.1186/s12909-015-0342-1

© 2015 Williamson et al.; licensee BioMed Central. Background: Despite there being a concerted effort in recent years to influence what doctors can do to tackle health inequalities in the UK, there has been limited policy focus on what undergraduate... Read More about Core intended learning outcomes for tackling health inequalities in undergraduate medicine Curriculum development.

GPs' perceptions and experiences of public awareness campaigns for cancer: A qualitative enquiry (2015)
Journal Article
Green, T., Atkin, K., & Macleod, U. (2016). GPs' perceptions and experiences of public awareness campaigns for cancer: A qualitative enquiry. Health Expectations, 19(2), 377-387. https://doi.org/10.1111/hex.12362

© 2016 John Wiley & Sons Ltd. Background: Public awareness campaigns for cancer are used to alert the UK population to symptoms which, if experienced, should be discussed with their general practitioner (GP). More timely diagnosis of cancer is assu... Read More about GPs' perceptions and experiences of public awareness campaigns for cancer: A qualitative enquiry.

Correction: Attributions of cancer 'alarm' symptoms in a community sample (2015)
Journal Article
Whitaker, K. L., Scott, S. E., Winstanley, K., Macleod, U., & Wardle, J. (2015). Correction: Attributions of cancer 'alarm' symptoms in a community sample. PLoS ONE, 10(3), Article e0118418. https://doi.org/10.1371/journal.pone.0118418

In Table 1, the (N) value in the “*Cough or hoarseness” column in the last row is incorrectly recorded as 1469. The (N) value should be 149. Please see the corrected Table 1 here.

Cancer detection in primary care: Insights from general practitioners (2015)
Journal Article
Green, T., Atkin, K., & Macleod, U. (2015). Cancer detection in primary care: Insights from general practitioners. The British Journal of Cancer, 112, S41-S49. https://doi.org/10.1038/bjc.2015.41

© 2015 Cancer Research UK. Background: General practitioners (GPs) have a key role in cancer detection as the usual first point of contact for patients with potential cancer symptoms. Nevertheless, there is limited work that investigates their percep... Read More about Cancer detection in primary care: Insights from general practitioners.

Is increased time to diagnosis and treatment in symptomatic cancer associated with poorer outcomes? Systematic review (2015)
Journal Article
Neal, R. D., Tharmanathan, P., France, B., Din, N. U., Cotton, S., Fallon-Ferguson, J., …Emery, J. (2015). Is increased time to diagnosis and treatment in symptomatic cancer associated with poorer outcomes? Systematic review. The British Journal of Cancer, 112, S92-S107. https://doi.org/10.1038/bjc.2015.48

© 2015 Cancer Research UK. Background: It is unclear whether more timely cancer diagnosis brings favourable outcomes, with much of the previous evidence, in some cancers, being equivocal. We set out to determine whether there is an association betwee... Read More about Is increased time to diagnosis and treatment in symptomatic cancer associated with poorer outcomes? Systematic review.

Embedding electronic decision-support tools for suspected cancer in primary care: a qualitative study of GPs' experiences (2015)
Journal Article
Dikomitis, L., Green, T., & Macleod, U. (2015). Embedding electronic decision-support tools for suspected cancer in primary care: a qualitative study of GPs' experiences. Primary health care research & development, 16(6), 548-555. https://doi.org/10.1017/S1463423615000109

Aim: The purpose of this evaluation was to obtain views from general practitioners (GPs) who piloted the electronic risk assessment tools (eRATs) for suspected lung or colorectal cancer. We wanted to find out whether GPs were able to integrate these... Read More about Embedding electronic decision-support tools for suspected cancer in primary care: a qualitative study of GPs' experiences.

The role of primary care in cancer diagnosis via emergency presentation: qualitative synthesis of significant event reports (2015)
Journal Article
Mitchell, E. D., Rubin, G., Merriman, L., & Macleod, U. (2015). The role of primary care in cancer diagnosis via emergency presentation: qualitative synthesis of significant event reports. The British Journal of Cancer, 112(S1), S50-S56. https://doi.org/10.1038/bjc.2015.42

Background: Patients diagnosed with cancer in the context of an emergency presentation (EP) have poorer outcomes. It is often assumed that such patients present to the emergency department without consulting their general practitioner (GP). Little w... Read More about The role of primary care in cancer diagnosis via emergency presentation: qualitative synthesis of significant event reports.

Help seeking for cancer 'alarm' symptoms: A qualitative interview study of primary care patients in the UK (2015)
Journal Article
Whitaker, K. L., Macleod, U., Winstanley, K., Scott, S. E., & Wardle, J. (2015). Help seeking for cancer 'alarm' symptoms: A qualitative interview study of primary care patients in the UK. The British journal of general practice : the journal of the Royal College of General Practitioners, 65(631), e96-e105. https://doi.org/10.3399/bjgp15X683533

©British Journal of General Practice Background: Delay in help seeking for cancer 'alarm' symptoms has been identified as a contributor to delayed diagnosis. Aim: To understand people's help-seeking decision making for cancer alarm symptoms, without... Read More about Help seeking for cancer 'alarm' symptoms: A qualitative interview study of primary care patients in the UK.

Attributions of cancer 'alarm' symptoms in a community sample (2014)
Journal Article
Whitaker, K. L., Scott, S. E., Winstanley, K., Macleod, U., & Wardle, J. (2014). Attributions of cancer 'alarm' symptoms in a community sample. PLoS ONE, 9(12), Article e114028. https://doi.org/10.1371/journal.pone.0114028

© 2014 Whitaker et al. Background: Attribution of early cancer symptoms to a non-serious cause may lead to longer diagnostic intervals. We investigated attributions of potential cancer 'alarm' and non-alarm symptoms experienced in everyday life in a... Read More about Attributions of cancer 'alarm' symptoms in a community sample.

Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care (2014)
Journal Article
Green, T., Martins, T., Hamilton, W., Rubin, G., Elliott, K., & Macleod, U. (2015). Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care. Family practice, 32(1), 101-105. https://doi.org/10.1093/fampra/cmu081

© The Author 2014. Background. The UK has an estimated 5-10 000 extra cancer deaths each year when compared to other European countries and diagnostic delays are thought to make a significant contribution to this. One of the initiatives in England in... Read More about Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care.

Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data (2014)
Journal Article
Gadoud, A., Kane, E., Macleod, U., Ansell, P., Oliver, S., & Johnson, M. (2014). Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data. PLoS ONE, 9(11), Article e113188. https://doi.org/10.1371/journal.pone.0113188

© 2014 Gadoud et al. Introduction: Patients with heart failure have a significant symptom burden and other palliative care needs often over a longer period than patients with cancer. It is acknowledged that this need may be unmet but by how much has... Read More about Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data.

Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure (2014)
Journal Article
Browne, S., Macdonald, S., May, C. R., Macleod, U., & Mair, F. S. (2014). Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure. PLoS ONE, 9(3), Article e93288. https://doi.org/10.1371/journal.pone.0093288

Background: Those with advanced heart failure (HF) experience high levels of morbidity and mortality, similar to common cancers. However, there remains evidence of inequity of access to palliative care services compared to people with cancer. This st... Read More about Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure.

Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network (2013)
Journal Article
Howell, D. A., Smith, A. G., Jack, A., Patmore, R., Macleod, U., Mironska, E., & Roman, E. (2013). Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network. BMC Hematology, 13(1), Article 9. https://doi.org/10.1186/2052-1839-13-9

© 2013 Howell et al. Background: Prior to diagnosis, patients with haematological cancers often have multiple primary care consultations, resulting in diagnostic delay. They are less likely to be referred urgently to hospital and often present as eme... Read More about Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network.

Predictors of anxiety and depression in people with colorectal cancer (2013)
Journal Article
Gray, N. M., Hall, S. J., Browne, S., Johnston, M., Lee, A. J., Macleod, U., …Campbell, N. C. (2014). Predictors of anxiety and depression in people with colorectal cancer. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 22(2), 307-314. https://doi.org/10.1007/s00520-013-1963-8

Background: People living with colorectal cancer are at risk of anxiety and depression. We investigated what factors were most highly associated with these. Methods: Four hundred and ninety-six people with colorectal cancer completed the Hospital Anx... Read More about Predictors of anxiety and depression in people with colorectal cancer.

A palliative care approach for people with advanced heart failure : recognition of need, transitions in care and impact on patients, family carers and clinicians (2013)
Thesis
Gadoud, A. C. (2013). A palliative care approach for people with advanced heart failure : recognition of need, transitions in care and impact on patients, family carers and clinicians. (Thesis). Hull York Medical School, the University of Hull and the University of York. Retrieved from https://hull-repository.worktribe.com/output/4216022

Background: Despite international and national consensus guidelines, patients with advanced heart failure (HF) have significant unmet palliative care needs. UK policy recommends identification of those requiring palliative care based on prognosis (la... Read More about A palliative care approach for people with advanced heart failure : recognition of need, transitions in care and impact on patients, family carers and clinicians.

Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports (2013)
Journal Article
Mitchell, E. D., Rubin, G., & Macleod, U. (2013). Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), e37-e46. https://doi.org/10.3399/bjgp13X660760

Background Most lung cancers present symptomatically, but the pathway to diagnosis in primary care can be complex and is poorly understood. Significant event audit (SEA) is a quality improvement technique widely used in UK general practice. Aim To ga... Read More about Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports.

Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study (2013)
Journal Article
Gray, N. M., Allan, J. L., Murchie, P., Browne, S., Hall, S., Hubbard, G., …Campbell, N. C. (2013). Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study. BMJ open, 3(4), Article e002596. https://doi.org/10.1136/bmjopen-2013-002596

Objectives: To develop and pilot a theory and evidence-based intervention to improve quality of life (QoL) in people with colorectal cancer. Design: A complex intervention development study. Setting: North East Scotland and Glasgow. Participants: Sem... Read More about Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study.

Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis (2013)
Journal Article
Downing, A., Aravani, A., MacLeod, U., Oliver, S., Finan, P. J., Thomas, J. D., …Morris, E. J. (2013). Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis. The British Journal of Cancer, 108(3), 681-685. https://doi.org/10.1038/bjc.2012.585

Background: The United Kingdom performs poorly in international comparisons of colorectal cancer survival with much of the deficit owing to high numbers of deaths close to the time of diagnosis. This retrospective cohort study investigates the patien... Read More about Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis.

Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care (2013)
Journal Article
Smith, S., Fielding, S., Murchie, P., Johnston, M., Wyke, S., Powell, R., …Macleod, U. (2013). Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), 47-54. https://doi.org/10.3399/bjgp13x660779

Background Most individuals with lung cancer have symptoms for several months before presenting to their GP. Earlier consulting may improve survival. Aim To evaluate whether a theory-based primary care intervention increased timely consulting of indi... Read More about Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care.

Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study (2013)
Journal Article
Hamilton, W., Green, T., Martins, T., Elliott, K., Rubin, G., & Macleod, U. (2013). Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), 30-36. https://doi.org/10.3399/bjgp13X660751

Background: Diagnostic delay is deemed to account for an estimated 5000 to 10 000 extra cancer deaths each year in the UK. Many cancer patients do not have symptoms meeting national referral criteria for rapid investigation. Risk assessment tools (RA... Read More about Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study.

In search of the cancer candidate: Can lay epidemiology help? (2012)
Journal Article
Macdonald, S., Watt, G., & Macleod, U. (2013). In search of the cancer candidate: Can lay epidemiology help?. Sociology of Health and Illness, 35(4), 575-591. https://doi.org/10.1111/j.1467-9566.2012.01513.x

First published in 1991, the ideas embedded in 'Lay epidemiology and the prevention paradox' offered a novel and rational explanation for the lay public's failure to fully engage with the lifestyle messages offered by health educators. During the cou... Read More about In search of the cancer candidate: Can lay epidemiology help?.

Developing a complex intervention to reduce time to presentation with symptoms of lung cancer (2012)
Journal Article
Smith, S. M., Murchie, P., Devereux, G., Johnston, M., Lee, A. J., Macleod, U., …Campbell, N. C. (2012). Developing a complex intervention to reduce time to presentation with symptoms of lung cancer. The British journal of general practice : the journal of the Royal College of General Practitioners, 62(602), e605-e615. https://doi.org/10.3399/bjgp12X654579

Background: Lung cancer is the commonest cause of cancer in Scotland and is usually advanced at diagnosis. Median time between symptom onset and consultation is 14 weeks, so an intervention to prompt earlier presentation could support earlier diagnos... Read More about Developing a complex intervention to reduce time to presentation with symptoms of lung cancer.

ICDs in end-stage heart failure (2012)
Journal Article
Pettit, S. J., Browne, S., Hogg, K. J., Connelly, D. T., Gardner, R. S., May, C. R., …Mair, F. S. (2012). ICDs in end-stage heart failure. BMJ Supportive & Palliative Care, 2(2), 94-97. https://doi.org/10.1136/bmjspcare-2011-000176

Implantable cardioverter defibrillators (ICDs) reduce mortality in selected patients with chronic heart failure but prognostic benefit is likely to attenuate with progression to end-stage heart failure. The incidence of multiple futile ICD shocks bef... Read More about ICDs in end-stage heart failure.

Patients' needs following colorectal cancer diagnosis: where does primary care fit in? (2011)
Journal Article
Browne, S., Dowie, A., Mitchell, E. D., Wyke, S., Ziebland, S., Campbell, N., & Macleod, U. (2011). Patients' needs following colorectal cancer diagnosis: where does primary care fit in?. The British journal of general practice : the journal of the Royal College of General Practitioners, 61(592), e692 - e699. https://doi.org/10.3399/bjgp11x606582

Background Colorectal cancer is the third most common cancer in the UK. Patients with colorectal cancer spend most of their time in the community, but the role of primary care in their management and follow-up is unclear. Aim To explore colorectal ca... Read More about Patients' needs following colorectal cancer diagnosis: where does primary care fit in?.

Modifiable and fixed factors predicting quality of life in people with colorectal cancer (2011)
Journal Article
Gray, N. M., Hall, S. J., Browne, S., Macleod, U., Mitchell, E., Lee, A. J., …Campbell, N. C. (2011). Modifiable and fixed factors predicting quality of life in people with colorectal cancer. The British Journal of Cancer, 104(11), 1697-1703. https://doi.org/10.1038/bjc.2011.155

BACKGROUND: People with colorectal cancer have impaired quality of life (QoL). We investigated what factors were most highly associated with it. METHODS: Four hundred and ninety-six people with colorectal cancer completed questionnaires about QoL, fu... Read More about Modifiable and fixed factors predicting quality of life in people with colorectal cancer.

How frequently do young people with potential cancer symptoms present in primary care? (2011)
Journal Article
Fern, L. A., Campbell, C., Eden, T. O., Grant, R., Lewis, I., Macleod, U., …Whelan, J. (2011). How frequently do young people with potential cancer symptoms present in primary care?. The British journal of general practice : the journal of the Royal College of General Practitioners, 61(586), e223-e230. https://doi.org/10.3399/bjgp11X572418

Background: Although uncommon in teenagers and young adults, cancer is the leading cause of non-accidental death in those aged 15-24 years. A prolonged period to cancer diagnosis in this cohort is reported and thought to be a consequence of the rarit... Read More about How frequently do young people with potential cancer symptoms present in primary care?.

Place of death: Is home always best? (2011)
Journal Article
Macleod, U. (2011). Place of death: Is home always best?. British journal of hospital medicine, 72(8), 441-443. https://doi.org/10.12968/hmed.2011.72.8.441

Place of death is now a quality marker of end of life care. Decisions around place of death are complex. This article considers the extent to which place of death is an appropriate way to determine good end of life care.

Ethnic disparities in knowledge of Cancer Screening Programmes in the UK (2010)
Journal Article
Robb, K., Wardle, J., Stubbings, S., Ramirez, A., Austoker, J., MacLeod, U., …Waller, J. (2010). Ethnic disparities in knowledge of Cancer Screening Programmes in the UK. Journal of Medical Screening, 17(3), 125-131. https://doi.org/10.1258/jms.2010.009112

Objective: The aim of the study was to examine awareness of the three National Cancer Screening Programmes (breast, cervical, bowel) among white and ethnic minority groups in the UK. Setting Data were from two surveys in which the screening questions... Read More about Ethnic disparities in knowledge of Cancer Screening Programmes in the UK.

Risk factors for delayed presentation and referral of symptomatic cancer: Evidence for common cancers (2009)
Journal Article
Macleod, U., Burgess, C., Macdonald, S., Mitchell, E. D., & Ramirez, A. J. (2009). Risk factors for delayed presentation and referral of symptomatic cancer: Evidence for common cancers. The British Journal of Cancer, 101(S2), S92-S101. https://doi.org/10.1038/sj.bjc.6605398

Background:It has been suggested that the known poorer survival from cancer in the United Kingdom, compared with other European countries, can be attributed to more advanced cancer stage at presentation. There is, therefore, a need to understand the... Read More about Risk factors for delayed presentation and referral of symptomatic cancer: Evidence for common cancers.

Awareness of cancer symptoms and anticipated help seeking among ethnic minority groups in England (2009)
Journal Article
Waller, J., Robb, K., Stubbings, S., Ramirez, A., Macleod, U., Austoker, J., …Wardle, J. (2009). Awareness of cancer symptoms and anticipated help seeking among ethnic minority groups in England. The British Journal of Cancer, 101, S24-S30. https://doi.org/10.1038/sj.bjc.6605387

Objective:Little is known about ethnic differences in awareness of cancer-warning signs or help-seeking behaviour in Britain. As part of the National Awareness and Early Diagnosis Initiative (NAEDI), this study aimed to explore these factors as possi... Read More about Awareness of cancer symptoms and anticipated help seeking among ethnic minority groups in England.

Development of a measurement tool to assess public awareness of cancer (2009)
Journal Article
Stubbings, S., Robb, K., Waller, J., Ramirez, A., Austoker, J., Macleod, U., …Wardle, J. (2009). Development of a measurement tool to assess public awareness of cancer. The British Journal of Cancer, 101, S13-S17. https://doi.org/10.1038/sj.bjc.6605385

Objective:We aimed to develop and validate a measurement tool to assess cancer awareness in the general population: the cancer awareness measure (CAM).Methods:Items assessing awareness of cancer warning signs, risk factors, incidence, screening progr... Read More about Development of a measurement tool to assess public awareness of cancer.

Public awareness of cancer in Britain: a population-based survey of adults (2009)
Journal Article
Robb, K., Stubbings, S., Ramirez, A., Macleod, U., Austoker, J., Waller, J., …Wardle, J. (2009). Public awareness of cancer in Britain: a population-based survey of adults. The British Journal of Cancer, 101(S2), S18-S23. https://doi.org/10.1038/sj.bjc.6605386

Objective:To assess public awareness of cancer warning signs, anticipated delay and perceived barriers to seeking medical advice in the British population. Methods:We carried out a population-based survey using face-to-face, computer-assisted intervi... Read More about Public awareness of cancer in Britain: a population-based survey of adults.

‘Getting through' not ‘going under': a qualitative study of gender and spousal support after diagnosis with colorectal cancer (2009)
Journal Article
Emslie, C., Browne, S., MacLeod, U., Rozmovits, L., Mitchell, E., & Ziebland, S. (2009). ‘Getting through' not ‘going under': a qualitative study of gender and spousal support after diagnosis with colorectal cancer. Social science & medicine, 68(6), 1169-1175. https://doi.org/10.1016/j.socscimed.2009.01.004

Many studies have found that people with cancer value family support. Feminist work suggests that women carry most responsibility for practical and emotional support in families, but few qualitative cancer studies explicitly incorporate a gender pers... Read More about ‘Getting through' not ‘going under': a qualitative study of gender and spousal support after diagnosis with colorectal cancer.

Factors contributing to the time taken to consult with symptoms of lung cancer: A cross-sectional study (2008)
Journal Article
Smith, S. M., Campbell, N. C., MacLeod, U., Lee, A. J., Raja, A., Wyke, S., …Nicolson, M. C. (2009). Factors contributing to the time taken to consult with symptoms of lung cancer: A cross-sectional study. Thorax, 64(6), 523-531. https://doi.org/10.1136/thx.2008.096560

Objectives: To determine what factors are associated with the time people take to consult with symptoms of lung cancer, with a focus on those from rural and socially deprived areas. Methods: A cross-sectional quantitative interview survey was perform... Read More about Factors contributing to the time taken to consult with symptoms of lung cancer: A cross-sectional study.

The impact of consent on observational research: A comparison of outcomes from consenters and non consenters to an observational study (2008)
Journal Article
Macleod, U., & Watt, G. C. (2008). The impact of consent on observational research: A comparison of outcomes from consenters and non consenters to an observational study. BMC Medical Research Methodology, 8, Article 15. https://doi.org/10.1186/1471-2288-8-15

Background. Public health benefits from research often rely on the use of data from personal medical records. When neither patient consent nor anonymisation is possible, the case for accessing such records for research purposes depends on an assessme... Read More about The impact of consent on observational research: A comparison of outcomes from consenters and non consenters to an observational study.

Influences on pre-hospital delay in the diagnosis of colorectal cancer: a systemic review (2007)
Journal Article
Mitchell, E., Weller, D., Campbell, N. C., Macdonald, S., & Macleod, U. (2008). Influences on pre-hospital delay in the diagnosis of colorectal cancer: a systemic review. The British Journal of Cancer, 98(1), 60-70. https://doi.org/10.1038/sj.bjc.6604096

Colorectal cancer is a major global health problem, with survival varying according to stage at diagnosis. Delayed diagnosis can result from patient, practitioner or hospital delay. This paper reports the results of a review of the factors influencin... Read More about Influences on pre-hospital delay in the diagnosis of colorectal cancer: a systemic review.

Predicting colorectal cancer risk in patients with rectal bleeding (2006)
Journal Article
Robertson, R., Campbell, C., Weller, D. P., Elton, R., Mant, D., Primrose, J., …Sharma, R. (2006). Predicting colorectal cancer risk in patients with rectal bleeding. The British journal of general practice : the journal of the Royal College of General Practitioners, 56(531), 763-767

Background: Rectal bleeding is an important symptom of colorectal cancer but has low predictive value in primary care. Aim: To determine which characteristics of rectal bleeding, along with other factors, are predictive of colorectal cancer. Design o... Read More about Predicting colorectal cancer risk in patients with rectal bleeding.

Systematic review of factors influencing patient and practitioner delay in diagnosis of upper gastrointestinal cancer (2006)
Journal Article
Macdonald, S., Macleod, U., Campbell, N. C., Weller, D., & Mitchell, E. (2006). Systematic review of factors influencing patient and practitioner delay in diagnosis of upper gastrointestinal cancer. The British Journal of Cancer, 94(9), 1272-1280. https://doi.org/10.1038/sj.bjc.6603089

As knowledge on the causation of cancers advances and new treatments are developed, early recognition and accurate diagnosis becomes increasingly important. This review focused on identifying factors influencing patient and primary care practitioner... Read More about Systematic review of factors influencing patient and practitioner delay in diagnosis of upper gastrointestinal cancer.