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Getting our terminology right: the power of language (2021)
Journal Article
James, I., Reichelt, K., Duffy, F., & Moniz-Cook, E. (2021). Getting our terminology right: the power of language. Journal of Dementia Care, 29(2), 24-27

For over 25 years, the term challenging behaviour (CB) has been used to describe agitation and other “distressed” behaviours associated with dementia (Stokes 2000). But such is the power of language and the importance of getting our terminology right... Read More about Getting our terminology right: the power of language.

Supporting the Supporters: Interventions to Reduce Family Distress (2020)
Book Chapter
Ulstein, I., Manthorpe, J., & Moniz-Cook, E. (2020). Supporting the Supporters: Interventions to Reduce Family Distress. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (166-178). London: Jessica Kingsley Publishers

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (179-190). London: Jessica Kingsley Publishers

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Moniz-Cook, E., & Manthorpe, J. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. London: Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise. The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse (2020)
Journal Article
Sweeney, L., Wolverson, E., & Clarke, C. (in press). Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia, https://doi.org/10.1177/1471301220970403

Introduction Life story books in dementia are used as a part of person-centred care. Whilst the current literature demonstrates associations between completing life story books and increased well-being, little is known about the process and how it i... Read More about Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse.

Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach (2020)
Journal Article
Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D. M., Dening, T., Hoe, J., …Orrell, M. (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), https://doi.org/10.1186/s12888-020-02899-0

Background Teams delivering crisis resolution services for people with dementia and their carers provide short-term interventions to prevent admission to acute care settings. There is great variation in these services across the UK. This article rep... Read More about Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (in press). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study (2020)
Journal Article
Broome, E. E., Coleston-Shields, D. M., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M., & Orrell, M. (2020). AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10), https://doi.org/10.2196/18971

Background: Specialist community teams often support people with dementia who experience crisis. These teams may vary in composition and models of practice, which presents challenges when evaluating their effectiveness. A best practice model for deme... Read More about AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study.

Challenging behaviour in dementia care: A novel framework for translating knowledge to practice (2020)
Journal Article
James, I. A., Reichelt, K., James, I., Reichelt, K., Moniz-Cook, E., & Lee, K. (2020). Challenging behaviour in dementia care: A novel framework for translating knowledge to practice. the Cognitive Behaviour Therapist, 13, https://doi.org/10.1017/S1754470X20000434

This article provides guidance on the management of challenging behaviours (CBs) in dementia care, and introduces concepts from positive behavioural support not usually applied to dementia. While the use of formulations has received a lot of attentio... Read More about Challenging behaviour in dementia care: A novel framework for translating knowledge to practice.

The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia (2020)
Journal Article
Medea, B., Roberts, M., Dunn, R., & Andrew James, I. (2020). The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia. Open Access Journal of Gerontology & Geriatric Medicine, 5(5),

The British Psychological Society’s Briefing Paper for Behaviors that Challenge (BtC) in dementia states that psychological formulation helps in the development of effective and well targeted treatments [1]. While not explicitly using the term psycho... Read More about The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia.

Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design (2020)
Journal Article
Palese, A., Achbani, B., Hayter, M., & Watson, R. (in press). Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design. Journal of clinical nursing, https://doi.org/10.1111/jocn.15507

Aims and objectives To increase the knowledge on fidelity challenges in intervention studies promoting eating independence in residents with cognitive decline living in nursing homes (NHs). Background A few studies have documented to date factor... Read More about Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design.

Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia Contact details First published This version (2020)
Journal Article
Watson, R. (in press). Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia Contact details First published This version. 00 Journal not listed, 19, 257-263. https://doi.org/10.1111/j.1365-

T he 'EdFED' is the Edinburgh Feeding Evaluation in Dementia (EdFED) scale. 'Ed' points to where the scale was developed-Edinburgh University-and 'FED' is shorthand for 'feeding'. Finding a meaningful acronym is always challenging, but this one seems... Read More about Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia Contact details First published This version.

Dignity, well-being and identity: A qualitative study of older people's interpretations of how healthcare workers speak to them (2020)
Journal Article
Draper, P., & Hilton, A. (2021). Dignity, well-being and identity: A qualitative study of older people's interpretations of how healthcare workers speak to them. Nursing older people, 33(1), https://doi.org/10.7748/NOP.2020.E1261

© RCN Publishing Company Limited 2021. Background The initial interaction between an older person and a nurse, and how the older person interprets this interaction, is important and sometimes overlooked. Evidence suggests that the way healthcare work... Read More about Dignity, well-being and identity: A qualitative study of older people's interpretations of how healthcare workers speak to them.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics, https://doi.org/10.1017/S1041610220001386

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this. Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support (2020)
Journal Article
White, C., Wolverson, E., Dunn, R., & Zafeiridi, E. (2020). The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring, 4(4), 549-571. https://doi.org/10.1332/239788220X15934528490504

© Policy Press 2020. This article reports on research into the development of a website (Caregiverspro-MMD) intended for carers and people living with dementia. Carers, people living with dementia and healthcare practitioners were invited to explore... Read More about The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support.

Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., …Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, B., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (in press). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18(1), https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study (2020)
Journal Article
Conway, L., Wolverson, E. L., & Clarke, C. (2020). Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study. Frontiers in Medicine, 7, https://doi.org/10.3389/fmed.2020.00219

Resilience is a concept which may help explain how older people are able to live well with dementia. Existing resilience research in dementia focuses on the caregiver and relatively little is known about how dyads (person with dementia and care partn... Read More about Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study.

Resilience in older people living with dementia – A narrative analysis (2020)
Journal Article
Buggins, S., Clarke, C., & Wolverson, E. (2020). Resilience in older people living with dementia – A narrative analysis. Dementia, https://doi.org/10.1177/1471301220927614

Dominant discourses surrounding dementia tend to focus on narratives of loss and decline. Simultaneously, individuals living with dementia are vulnerable to being dispossessed of personal narratives supportive of identity and well-being. How older pe... Read More about Resilience in older people living with dementia – A narrative analysis.