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The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs (2021)
Journal Article
Wolverson, E., White, C., Dunn, R., Cunnah, K., Howe, D., Paulson, K., …Thorpe, J. (2022). The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs. Dementia, 21(1), 94-113. https://doi.org/10.1177/14713012211028495

Background: Current policy emphasises the role of digital technologies in facilitating the management of long-term conditions. While digital resources have been developed for carers, there has been little attention to their development for people wit... Read More about The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs.

Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey (2021)
Journal Article
Gray, K. L., Moniz-Cook, E., Reichelt, K., Duffy, F., & James, I. A. (2021). Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey. British Journal of Clinical Psychology, https://doi.org/10.1111/bjc.12316

Objectives: Behaviours that challenge (BtC) reflect the most costly and burdensome aspects of dementia where non-pharmacological interventions rather than antipsychotic medication have been recommended as first-line approaches for over a decade (NICE... Read More about Professional perspectives on applying the NICE and British Psychological Society Guidelines for the management of Behaviours that Challenge in dementia care: an e-survey.

Getting our terminology right: the power of language (2021)
Journal Article
James, I., Reichelt, K., Duffy, F., & Moniz-Cook, E. (2021). Getting our terminology right: the power of language. Journal of Dementia Care, 29(2), 24-27

For over 25 years, the term challenging behaviour (CB) has been used to describe agitation and other “distressed” behaviours associated with dementia (Stokes 2000). But such is the power of language and the importance of getting our terminology right... Read More about Getting our terminology right: the power of language.

Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management (2021)
Journal Article
James, I. A., Gray, K., Moniz-Cook, E., Lee, K., Reichelt, K., & Richardson, J. (2022). Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management. BJPsych Advances, 28(1), 11-20. https://doi.org/10.1192/bja.2021.12

The National Institute for Health and Care Excellence (NICE) informs us that the first-line treatments for behavioural and psychological symptoms of dementia (BPSD) are non-pharmacological. Although psychotropics used to be the main strategy in the m... Read More about Behavioural and psychological symptoms of dementia : a new framework for holistic understanding and non-pharmacological management.

Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial (2021)
Journal Article
Csipke, E., Shafayat, A., Sprange, K., Bradshaw, L., Montgomery, A. A., Ogollah, R., …Orrell, M. (2021). Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial. Clinical Interventions in Aging, 16, 363-378. https://doi.org/10.2147/cia.s281139

Background: There is a need for interventions to foster and maintain independence for people with dementia to support community living, improve morale, and reduce stigma. We investigated a social intervention to promote living well and enhance indepe... Read More about Promoting Independence in Dementia (PRIDE): A Feasibility Randomized Controlled Trial.

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, 77(4), 1992-2001. https://doi.org/10.1111/jan.14787

Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a mixed methods convergent paral... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia. (2021)
Journal Article
Stanyon, M., Streater, A., Coleston-Shields, D., Yates, J., Challis, D., Dening, T., …Orrell, M. (2021). Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia. JMIR Research Protocols, 10(1), https://doi.org/10.2196/14781

Background: Teams working in the community to manage crisis in dementia are available, but with widely varying models of practice it is difficult to determine the effectiveness of such teams. The aim of this study is to develop a model of best pract... Read More about Protocol for the Development of an Evidence-Based ‘Best Practice Model’ for Teams Managing Crisis in Dementia..

Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial (2021)
Journal Article
Wenborn, J., O’Keeffe, A. G., Mountain, G., Moniz-Cook, E., King, M., Omar, R. Z., …Orrell, M. (2021). Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial. PLoS Medicine, 18(1), https://doi.org/10.1371/journal.pmed.1003433

© 2021 Wenborn et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are cr... Read More about Community Occupational Therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID]) study: A single-blind, randomised controlled trial.

Supporting the Supporters: Interventions to Reduce Family Distress (2020)
Book Chapter
Ulstein, I., Manthorpe, J., & Moniz-Cook, E. (2020). Supporting the Supporters: Interventions to Reduce Family Distress. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (166-178). London: Jessica Kingsley Publishers

Supporting People with Dementia through Music (2020)
Book Chapter
Raglio, A., Gianelli, M., Moniz-Cook, E., & Manthorpe, J. (2020). Supporting People with Dementia through Music. In Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (179-190). London: Jessica Kingsley Publishers

Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
Book
Manthorpe, J., & Moniz-Cook, E. (Eds.). (2020). Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice. London: Jessica Kingsley Publishers

This new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise. The book addresses how practitioners and carers can apply psych... Read More about Timely Psychosocial Interventions in Dementia Care: Evidence-Based Practice.

Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse (2020)
Journal Article
Sweeney, L., Wolverson, E., & Clarke, C. (2021). Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia, 20(5), 1791–1813. https://doi.org/10.1177/1471301220970403

Introduction Life story books in dementia are used as a part of person-centred care. Whilst the current literature demonstrates associations between completing life story books and increased well-being, little is known about the process and how it i... Read More about Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse.

Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach (2020)
Journal Article
Yates, J., Stanyon, M., Challis, D., Coleston-Shields, D. M., Dening, T., Hoe, J., …Orrell, M. (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), https://doi.org/10.1186/s12888-020-02899-0

Background Teams delivering crisis resolution services for people with dementia and their carers provide short-term interventions to prevent admission to acute care settings. There is great variation in these services across the UK. This article rep... Read More about Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach.

UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey (2020)
Journal Article
James, I. A., James, I., Mahesh, M., Duffy, F., Reichelt, K., & Moniz-Cook, E. (2020). UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey. Aging and Mental Health, 1-8. https://doi.org/10.1080/13607863.2020.1830944

© 2020 Informa UK Limited, trading as Taylor & Francis Group. Background and objectives: The process of formulating in the area of dementia care is at an early stage of development. A review published in 2016, identified 14 different types of formu... Read More about UK clinicians’ views on the use of formulations for the management of BPSD: a multidisciplinary survey.

AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study (2020)
Journal Article
Broome, E. E., Coleston-Shields, D. M., Dening, T., Moniz-Cook, E., Poland, F., Stanyon, M., & Orrell, M. (2020). AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study. JMIR Research Protocols, 9(10), https://doi.org/10.2196/18971

Background: Specialist community teams often support people with dementia who experience crisis. These teams may vary in composition and models of practice, which presents challenges when evaluating their effectiveness. A best practice model for deme... Read More about AQUEDUCT intervention for crisis team quality and effectiveness in dementia: Protocol for a feasibility study.

Challenging behaviour in dementia care: A novel framework for translating knowledge to practice (2020)
Journal Article
James, I. A., Reichelt, K., James, I., Reichelt, K., Moniz-Cook, E., & Lee, K. (2020). Challenging behaviour in dementia care: A novel framework for translating knowledge to practice. the Cognitive Behaviour Therapist, 13, https://doi.org/10.1017/S1754470X20000434

This article provides guidance on the management of challenging behaviours (CBs) in dementia care, and introduces concepts from positive behavioural support not usually applied to dementia. While the use of formulations has received a lot of attentio... Read More about Challenging behaviour in dementia care: A novel framework for translating knowledge to practice.

The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia (2020)
Journal Article
Medea, B., Roberts, M., Dunn, R., & Andrew James, I. (2020). The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia. Open Access Journal of Gerontology & Geriatric Medicine, 5(5), https://doi.org/10.19080/OAJGGM.2020.05.555671

The British Psychological Society’s Briefing Paper for Behaviors that Challenge (BtC) in dementia states that psychological formulation helps in the development of effective and well targeted treatments [1]. While not explicitly using the term psycho... Read More about The Role of Models and Formulations in the Management of Behaviors that Challenge in Dementia.

Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia (2020)
Journal Article
Watson, R. (2020). Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia. Nursing standard : official newspaper of the Royal College of Nursing, 35(10), 52-55. https://doi.org/10.1111/j.1365-

The 'EdFED' is the Edinburgh Feeding Evaluation in Dementia (EdFED) scale. 'Ed' points to where the scale was developed-Edinburgh University-and 'FED' is shorthand for 'feeding'. Finding a meaningful acronym is always challenging, but this one seems... Read More about Twenty-five years of the EdFED scale: a useful scale for measuring mealtime difficulty in older people with dementia.

Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design (2020)
Journal Article
Palese, A., Achbani, B., Hayter, M., & Watson, R. (in press). Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design. Journal of clinical nursing, https://doi.org/10.1111/jocn.15507

Aims and objectives To increase the knowledge on fidelity challenges in intervention studies promoting eating independence in residents with cognitive decline living in nursing homes (NHs). Background A few studies have documented to date factor... Read More about Fidelity challenges while implementing an intervention aimed at increasing eating performance among nursing home residents with cognitive decline: A multicentre, qualitative descriptive study design.