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Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes (2018)
Journal Article
Köller, L., Holle, D., Köller, L., Moniz-Cook, E., & Halek, M. (2018). Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes. Journal of Nursing Measurement, 26(3), 544-565. https://doi.org/10.1891/1061-3749.26.3.544

© 2018 Springer Publishing Company. Background and Purpose: The Challenging Behavior Scale (CBS) measures the behavior of individuals with dementia. The study aims to translate the English CBS into German (CBS-G) and test its linguistic validity. Met... Read More about Translation and linguistic validation of the German Challenging Behaviour Scale for formal caregivers of people with dementia in nursing homes.

Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families (2018)
Digital Artefact
Feast, A., Orrell, M., Charlesworth, G., Poland, F., Featherstone, K., Melunsky, N., & Moniz-Cook, E. (2018). Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families. [HTML]

Abstract In understanding the range and depth of people’s experiences it is important to include the wide range of approaches which capture the richness within a given knowledge base. However, systematic reviews using quantitative data alone risk mis... Read More about Using meta-ethnography to synthesise relevant studies : Capturing the bigger picture in dementia with challenging behaviour within families.

‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings (2017)
Journal Article
Moniz-Cook, E., & James, I. (2017). ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings. FPOP Bulletin, 140, 43-49

Over and above the personal and financial costs associated with dementia, those for ‘behaviour that challenges’ (BtC) are significant (Lowry & Warner, 2009; Hermann et al., 2006). This briefing paper outlines the importance of having a psychological... Read More about ‘Behaviour that challenges’ in dementia care: an update of psychological approaches for home and care home settings.

Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial (2017)
Journal Article
Crawford, F., Ballard, C., Fossey, J., Corbett, A., Orrell, M., Romeo, R., …Whitaker, R. (2017). Impact of WHELD intervention on neuropsychiatric symptoms, antipsychotic use and quality of life in people with dementia living in nursing homes: a cluster- randomized trial. Alzheimer's & dementia, 13(7, supplement), 171. https://doi.org/10.1016/j.jalz.2017.07.011

Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O'Brien, J. T., Mountain, G., …Livingston, G. (2017). Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations. PLoS ONE, 12(6), e0179521. https://doi.org/10.1371/journal.pone.0179521

Background There are no disease-modifying treatments for dementia. There is also no consensus on disease modifying outcomes. We aimed to produce the first evidence-based consensus on core outcome measures for trials of disease modification in mild-to... Read More about Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations.

Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review (2017)
Journal Article
Stansfeld, J., Stoner, C. R., Wenborn, J., Vernooij-Dassen, M., Moniz-Cook, E., & Orrell, M. (2017). Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review. International Psychogeriatrics, 29(8), 1281-1296. https://doi.org/10.1017/S1041610217000655

Background: Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. T... Read More about Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review.

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement) (2017)
Journal Article
Gove, D., Diaz-Ponce, A., Georges, J., Moniz-Cook, E., Mountain, G., Chattat, R., & Øksnebjerg, L. (2018). Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging and Mental Health, 22(6), 723-729. https://doi.org/10.1080/13607863.2017.1317334

This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper... Read More about Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement).

The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial (2017)
Journal Article
Orrell, M., Yates, L., Leung, P., Kang, S., Hoare, Z., Whitaker, C., …Orgeta, V. (2017). The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial. PLoS Medicine, 14(3), e1002269. https://doi.org/10.1371/journal.pmed.1002269

Background Cognitive Stimulation Therapy (CST) is a well-established group psychosocial intervention for people with dementia. There is evidence that homebased programmes of cognitive stimulation delivered by family caregivers may benefit both the pe... Read More about The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia : a randomized controlled trial.

Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications (2017)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Orrell, M., Moniz-Cook, E., Woods, R. T., …Corbett, A. (2017). Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications. Journal of the American Medical Directors Association, 18(5), 453.e1-453.e6. https://doi.org/10.1016/j.jamda.2017.01.024

Introduction: Knowledge regarding the longitudinal course, impact, or treatment implications of pain in people with dementia living in care homes is very limited. Methods: We investigated the people with dementia living in 67 care homes in London and... Read More about Epidemiology of pain in people with dementia living in care homes: longitudinal course, prevalence, and treatment implications.

Factors of resilience in informal caregivers of people with dementia from integrative international data analysis (2016)
Journal Article
Joling, K. J., Windle, G., Dröes, R., Meiland, F., van Hout, H. P., MacNeil Vroomen, J., …Woods, B. (2016). Factors of resilience in informal caregivers of people with dementia from integrative international data analysis. Dementia and Geriatric Cognitive Disorders, 42(3-4), 198-214. https://doi.org/10.1159/000449131

Background/Aims: Although caring for a person with dementia can be stressful, some caregivers appear to experience few negative consequences to their well-being. This study aimed to examine what proportion of caregivers demonstrates resilience under... Read More about Factors of resilience in informal caregivers of people with dementia from integrative international data analysis.

Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial (2016)
Journal Article
Ballard, C., Orrell, M., Sun, Y., Moniz-Cook, E., Stafford, J., Whitaker, R., …Fossey, J. (2017). Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial. International journal of geriatric psychiatry, 32(10), 1094-1103. https://doi.org/10.1002/gps.4572

Background: Very few interventional studies have directly examined the impact of treatment approaches on Health-Related Quality of Life (HRQL) in people with dementia. This is of particular importance in therapies to address behavioural symptoms, whe... Read More about Impact of antipsychotic review and non‐pharmacological intervention on health‐related quality of life in people with dementia living in care homes: WHELD—a factorial cluster randomised controlled trial.

Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial (2016)
Journal Article
Rajkumar, A. P., Ballard, C., Fossey, J., Corbett, A., Woods, B., Orrell, M., …Testad, I. (2016). Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial. Journal of the American Medical Directors Association, 17(8), 741-747. https://doi.org/10.1016/j.jamda.2016.04.006

Objectives: Apathy is common, impactful, and difficult to manage in people with dementia. We evaluated the efficacy of non-pharmacological interventions, exercise and social interaction, in combination with antipsychotic review, to reduce apathy in p... Read More about Apathy and its response to antipsychotic review and non-pharmacological interventions in people with dementia living in nursing homes : WHELD, A factorial cluster randomised controlled trial.

A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being (2016)
Journal Article
Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016). A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being. International Psychogeriatrics, 28(11), 1761-1774. https://doi.org/10.1017/S1041610216000922

Background: Behavioural and psychological symptoms in dementia (BPSD) are important predictors of institutionalisation as well as caregiver burden and depression. Previous reviews have tended to group BPSD as one category with little focus on the rol... Read More about A systematic review of the relationship between behavioral and psychological symptoms (BPSD) and caregiver well-being.

Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review (2016)
Journal Article
Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. British Journal of Psychiatry, 208(5), 429-434. https://doi.org/10.1192/bjp.bp.114.153684

Background Tailored psychosocial interventions can help families to manage behavioural and psychological symptoms in dementia (BPSD), but carer responses to their relatives’ behaviours contribute to the success of support programmes. Aim To understan... Read More about Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review.

REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis (2016)
Journal Article
Woods, R. T., Orrell, M., Bruce, E., Edwards, R. T., Hoare, Z., Hounsome, B., …Russell, I. (2016). REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis. PLoS ONE, 11(4), e0152843. https://doi.org/10.1371/journal.pone.0152843

Background Joint reminiscence groups, involving people with dementia and family carers together, are popular, but the evidence-base is limited. This study aimed to assess the effectiveness and cost-effectiveness of joint reminiscence groups as compar... Read More about REMCARE : pragmatic multi-centre randomised trial of reminiscence groups for people with dementia and their family carers : effectiveness and economic analysis.

The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia (2016)
Journal Article
Feast, A., Orrell, M., Russell, I., Charlesworth, G., & Moniz-Cook, E. (2017). The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International journal of geriatric psychiatry, 32(1), 76-85. https://doi.org/10.1002/gps.4447

Copyright © 2016 John Wiley & Sons, Ltd. Objective: The objective of the study is to examine caregiver factors as predictors of BPSD-related distress and their potential mechanisms. Method: Informal caregivers of people with dementia (n = 157) recr... Read More about The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia.

Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial (2016)
Journal Article
Wenborn, J., Hynes, S., Moniz-Cook, E., Mountain, G., Poland, F., King, M., …Orrell, M. (2016). Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial. Trials, 17(1), Article ARTN 65. https://doi.org/10.1186/s13063-015-1150-y

Background: A community-based occupational therapy intervention for people with mild to moderate dementia and their family carers (Community Occupational Therapy in Dementia (COTiD)) was found clinically and cost effective in the Netherlands but not... Read More about Community occupational therapy for people with dementia and family carers (COTiD-UK) versus treatment as usual (Valuing Active Life in Dementia [VALID] programme): study protocol for a randomised controlled trial.

Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial (2015)
Journal Article
Orgeta, V., Leung, P., Yates, L., Kang, S., Hoare, Z., Henderson, C., …Orrell, M. (in press). Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial. Health Technology Assessment, 19(64), 1-108. https://doi.org/10.3310/hta19640

Background Group cognitive stimulation therapy programmes can benefit cognition and quality of life for people with dementia. Evidence for home-based, carer-led cognitive stimulation interventions is limited. Objectives To evaluate the clinical effec... Read More about Individual cognitive stimulation therapy for dementia : a clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial.