All Outputs (16)

Better End of Life 2024. Time to care: Findings from a nationally representative survey of experiences at the end of life in England and Wales (2024)
Report
Johansson, T., Pask, S., Goodrich, J., Budd, L., Okamoto, I., Kumar, R., Laidlaw, L., Ghiglieri, C., Woodhead, A., Chambers, R. L., Davies, J., Bone, A. E., Higginson, I. J., Barclay, S., Murtagh, F. E. M., & Sleeman, K. E. (2024). Better End of Life 2024. Time to care: Findings from a nationally representative survey of experiences at the end of life in England and Wales. Marie Curie

Foreword
This is a critical time for action to improve palliative and end of life care.

The findings from this nationally representative survey in England and Wales demonstrate the extent to which people are dying without access to the services... Read More about Better End of Life 2024. Time to care: Findings from a nationally representative survey of experiences at the end of life in England and Wales.

Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model: A systematic review with meta-analysis and meta-regression (2024)
Journal Article
Johnson, M. J., Rutterford, L., Sunny, A., Pask, S., de Wolf-Linder, S., Murtagh, F. E., & Ramsenthaler, C. (2024). Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model: A systematic review with meta-analysis and meta-regression. PLoS Medicine, 21(8), Article e1004436. https://doi.org/10.1371/journal.pmed.1004436

Background AU Specialist: Pleaseconfirmthatallheadinglevelsarerepresentedcorrectly palliative care (SPC) services address the needs :of people with advanced illness. Meta-analyses to date have been challenged by heterogeneity in SPC service models an... Read More about Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model: A systematic review with meta-analysis and meta-regression.

Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework (2024)
Journal Article
Pask, S., Omoruyi, A., Mohamed, A., Chambers, R. L., McFarlane, P. G., Johansson, T., …Murtagh, F. E. (2024). Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework. Palliative medicine, https://doi.org/10.1177/02692163241242329

Background: Telephone advice lines have been recommended internationally to support around-the-clock care for people living at home with advanced illness. While they undoubtedly support care, there is little evidence about what elements are needed fo... Read More about Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework.

A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme (2023)
Journal Article
Murtagh, F. E., Guo, P., Firth, A., Yip, K. M., Ramsenthaler, C., Douiri, A., …Higginson, I. J. (2023). A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme. Programme Grants for Applied Research, 11(7), https://doi.org/10.3310/plrp4875

Abstract
Background
The hospice movement has provided an excellent model of specialist palliative care for those with advanced illness approaching the end of life. However, there are marked inequities in provision of this care, and major geographic... Read More about A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme.

Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved] (2023)
Journal Article
Chambers, R. L., Pask, S., Higginson, I. J., Barclay, S., Murtagh, F. E., & Sleeman, K. E. (2023). Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved]. AMRC Open Research, 4, Article 19. https://doi.org/10.12688/amrcopenres.13079.2

Background: In England, Integrated Care Systems have been established to improve integration of care, as part of the NHS Long Term Plan. For people near the end of life, palliative care can improve integration of care. We aimed to understand whether... Read More about Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved].

A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty (2023)
Journal Article
Murtagh, F. E., Okoeki, M., Ukoha-kalu, B. O., Khamis, A., Clark, J., Boland, J. W., …Johnson, M. J. (2023). A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty. BMC Geriatrics, 23(1), Article 6. https://doi.org/10.1186/s12877-023-03727-2

Background
Integrated care may improve outcomes for older people living with frailty. We aimed to assess the effectiveness of a new, anticipatory, multidisciplinary care service in improving the wellbeing and quality of life (QoL) of older people li... Read More about A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty.

Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study (2023)
Journal Article
Wilson, I., Ukoha-kalu, B. O., Okoeki, M., Clark, J., Boland, J. W., Pask, S., …Murtagh, F. E. (2023). Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study. Journal of Patient Experience, 10, https://doi.org/10.1177/23743735231199827

The UK has a significant and growing population of older adults with frailty and complex healthcare needs, necessitating innovative care solutions. This study aimed to explore patients’ and carers’ experiences of a novel integrated service that was s... Read More about Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study.

Parental death: a systematic review of support experiences and needs of children and parent survivors (2022)
Journal Article
Wray, A., Pickwell-Smith, B., Greenley, S., Pask, S., Bamidele, O., Wright, B., …Boland, J. W. (2022). Parental death: a systematic review of support experiences and needs of children and parent survivors. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003793

Background: Bereaved people need a supportive response from those around them. Knowing children's and surviving parents' needs following parental death is the first step to ensuring a supportive response. However, no systematic review has reported on... Read More about Parental death: a systematic review of support experiences and needs of children and parent survivors.

Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study (2022)
Thesis
Pask, S. Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4424999

Background: Pain is prevalent in older adults (≥65). Opioids are used to manage moderate to severe pain, but older populations may be more at risk of adverse effects. Opioid-induced cognitive impairment can be distressing but evidence to inform our u... Read More about Understanding opioid analgesic prescribing and cognitive adverse effects in older adults: a mixed methods study.

Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study (2021)
Journal Article
Guo, P., Pinto, C., Edwards, B., Pask, S., Firth, A., O’Brien, S., & Murtagh, F. E. (2021). Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study. Palliative medicine, 026921632110433. https://doi.org/10.1177/02692163211043371

Background: Transitions between care settings (hospice, hospital and community) can be challenging for patients and family caregivers and are often an under-researched area of health care, including palliative care. Aim: To explore the experience of... Read More about Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study.

What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. (2019)
Journal Article
Dell Olio, M., Pask, S., Seymour, J., & Reeve, J. (2019). What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review. European journal for person centered healthcare, 7(4),

Introduction
Growing numbers of people now live with long term conditions. For each person, the challenges are multiple and unique to that individual. In recognition of this, health policy places greater emphasis on the delivery of person-centred ca... Read More about What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review..

The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review (2019)
Journal Article
Pask, S., Dell’Olio, M., Murtagh, F. E., & Boland, J. W. (2020). The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review. Journal of pain and symptom management, 59(4), 871-893. https://doi.org/10.1016/j.jpainsymman.2019.10.022

Context
Opioids are prescribed to manage moderate to severe pain and can be used with older adults; however, they may lead to several adverse effects, including cognitive impairment.

Objective
To identify, appraise and synthesise evidence on i)... Read More about The effects of opioids on cognition in older adults with cancer and chronic non-cancer pain: A systematic review.

Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique (2019)
Journal Article
de Wolf-Linder, S., Dawkins, M., Wicks, F., Pask, S., Eagar, K., Evans, C. J., Higginson, I. J., & Murtagh, F. E. (in press). Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique. Palliative medicine, 026921631985415. https://doi.org/10.1177/0269216319854154

© The Author(s) 2019. Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise coll... Read More about Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique.

Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research (2018)
Journal Article
Brighton, L. J., Pask, S., Benalia, H., Bailey, S., Sumerfield, M., Witt, J., de Wolf-Linder, S., Etkind, S. N., Murtagh, F. E., Koffman, J., & Evans, C. J. (2018). Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research. Research Involvement and Engagement, 4(1), Article 14. https://doi.org/10.1186/s40900-018-0097-z

Background
Patient and public involvement (PPI) in research is increasingly recognised as important. Most PPI activities take place face-to-face, yet this can be difficult for people with ill health or caring responsibilities, and may exclude people... Read More about Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research.

Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol (2018)
Journal Article
Guo, P., Dzingina, M., Firth, A. M., Davies, J. M., Douiri, A., O'Brien, S. M., Pinto, C., Pask, S., Higginson, I. J., Eagar, K., & Murtagh, F. E. (2018). Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol. BMJ open, 8(3), e020071. https://doi.org/10.1136/bmjopen-2017-020071

Introduction Provision of palliative care is inequitable with wide variations across conditions and settings in the UK. Lack of a standard way to classify by case complexity is one of the principle obstacles to addressing this. We aim to develop and... Read More about Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol.

A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals (2018)
Journal Article
Pask, S., Pinto, C., Bristowe, K., van Vliet, L., Nicholson, C., Evans, C. J., George, R., Bailey, K., Davies, J. M., Guo, P., Daveson, B. A., Higginson, I. J., & Murtagh, F. E. (2018). A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals. Palliative medicine, 32(6), 1078-1090. https://doi.org/10.1177/0269216318757622

Background:
Palliative care patients are often described as complex but evidence on complexity is limited. We need to understand complexity, including at individual patient-level, to define specialist palliative care, characterise palliative care pop... Read More about A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals.