Skip to main content

Research Repository

Advanced Search

All Outputs (160)

Rethinking how we understand individual healthcare needs for people living with long-term conditions: a qualitative study (2014)
Journal Article
Reeve, J., & Cooper, L. (2016). Rethinking how we understand individual healthcare needs for people living with long-term conditions: a qualitative study. Health and Social Care in the Community, 24(1), 27-38. https://doi.org/10.1111/hsc.12175

It has been suggested that we need to ‘Think Differently’ about how we organise care for people with long‐term conditions. Current approaches prioritise reducing population disease burden, meaning health need is defined predominantly in terms of dise... Read More about Rethinking how we understand individual healthcare needs for people living with long-term conditions: a qualitative study.

Attributions of cancer 'alarm' symptoms in a community sample (2014)
Journal Article
Whitaker, K. L., Scott, S. E., Winstanley, K., Macleod, U., & Wardle, J. (2014). Attributions of cancer 'alarm' symptoms in a community sample. PLoS ONE, 9(12), Article e114028. https://doi.org/10.1371/journal.pone.0114028

© 2014 Whitaker et al. Background: Attribution of early cancer symptoms to a non-serious cause may lead to longer diagnostic intervals. We investigated attributions of potential cancer 'alarm' and non-alarm symptoms experienced in everyday life in a... Read More about Attributions of cancer 'alarm' symptoms in a community sample.

Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care (2014)
Journal Article
Green, T., Martins, T., Hamilton, W., Rubin, G., Elliott, K., & Macleod, U. (2015). Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care. Family practice, 32(1), 101-105. https://doi.org/10.1093/fampra/cmu081

© The Author 2014. Background. The UK has an estimated 5-10 000 extra cancer deaths each year when compared to other European countries and diagnostic delays are thought to make a significant contribution to this. One of the initiatives in England in... Read More about Exploring GPs' experiences of using diagnostic tools for cancer: A qualitative study in primary care.

Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data (2014)
Journal Article
Gadoud, A., Kane, E., Macleod, U., Ansell, P., Oliver, S., & Johnson, M. (2014). Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data. PLoS ONE, 9(11), Article e113188. https://doi.org/10.1371/journal.pone.0113188

© 2014 Gadoud et al. Introduction: Patients with heart failure have a significant symptom burden and other palliative care needs often over a longer period than patients with cancer. It is acknowledged that this need may be unmet but by how much has... Read More about Palliative care among heart failure patients in primary care: A comparison to cancer patients using english family practice data.

The construction of anosognosia: History and implications (2014)
Journal Article
Marková, I. S., & Berrios, G. E. (2014). The construction of anosognosia: History and implications. Cortex; a journal devoted to the study of the nervous system and behavior, 61, 9-17. https://doi.org/10.1016/j.cortex.2014.09.011

The construction of anosognosia as a clinical ‘disorder’ resulted from the convergence (in the work of various writers and culminating in Babinski) of a name, a concept, and a clinical phenomenon. During the early stages of this convergence, unawaren... Read More about The construction of anosognosia: History and implications.

Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure (2014)
Journal Article
Browne, S., Macdonald, S., May, C. R., Macleod, U., & Mair, F. S. (2014). Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure. PLoS ONE, 9(3), Article e93288. https://doi.org/10.1371/journal.pone.0093288

Background: Those with advanced heart failure (HF) experience high levels of morbidity and mortality, similar to common cancers. However, there remains evidence of inequity of access to palliative care services compared to people with cancer. This st... Read More about Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure.

Phenomena of awareness in dementia: Heterogeneity and its implications (2014)
Journal Article
Marková, I. S., Clare, L., Whitaker, C. J., Roth, I., Nelis, S. M., Martyr, A., Roberts, J. L., Woods, R. T., & Morris, R. (2014). Phenomena of awareness in dementia: Heterogeneity and its implications. Consciousness and cognition, 25(1), 17-26. https://doi.org/10.1016/j.concog.2014.01.008

Despite much research on the relationship between awareness and dementia little can be concluded concerning their relationship and the role of other factors. It is likely that studies capture different phenomena of awareness. This study aimed at iden... Read More about Phenomena of awareness in dementia: Heterogeneity and its implications.

Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network (2013)
Journal Article
Howell, D. A., Smith, A. G., Jack, A., Patmore, R., Macleod, U., Mironska, E., & Roman, E. (2013). Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network. BMC Hematology, 13(1), Article 9. https://doi.org/10.1186/2052-1839-13-9

© 2013 Howell et al. Background: Prior to diagnosis, patients with haematological cancers often have multiple primary care consultations, resulting in diagnostic delay. They are less likely to be referred urgently to hospital and often present as eme... Read More about Time-to-diagnosis and symptoms of myeloma, lymphomas and leukaemias: A report from the Haematological malignancy Research Network.

Predictors of anxiety and depression in people with colorectal cancer (2013)
Journal Article
Gray, N. M., Hall, S. J., Browne, S., Johnston, M., Lee, A. J., Macleod, U., Mitchell, E. D., Samuel, L., & Campbell, N. C. (2014). Predictors of anxiety and depression in people with colorectal cancer. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 22(2), 307-314. https://doi.org/10.1007/s00520-013-1963-8

Background: People living with colorectal cancer are at risk of anxiety and depression. We investigated what factors were most highly associated with these. Methods: Four hundred and ninety-six people with colorectal cancer completed the Hospital Anx... Read More about Predictors of anxiety and depression in people with colorectal cancer.

Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports (2013)
Journal Article
Mitchell, E. D., Rubin, G., & Macleod, U. (2013). Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), e37-e46. https://doi.org/10.3399/bjgp13X660760

Background Most lung cancers present symptomatically, but the pathway to diagnosis in primary care can be complex and is poorly understood. Significant event audit (SEA) is a quality improvement technique widely used in UK general practice. Aim To ga... Read More about Understanding diagnosis of lung cancer in primary care: qualitative synthesis of significant event audit reports.

Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study (2013)
Journal Article
Gray, N. M., Allan, J. L., Murchie, P., Browne, S., Hall, S., Hubbard, G., Johnston, M., Lee, A. J., McKinley, A., Macleod, U., Presseau, J., Samuel, L., Wyke, S., & Campbell, N. C. (2013). Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study. BMJ open, 3(4), Article e002596. https://doi.org/10.1136/bmjopen-2013-002596

Objectives: To develop and pilot a theory and evidence-based intervention to improve quality of life (QoL) in people with colorectal cancer. Design: A complex intervention development study. Setting: North East Scotland and Glasgow. Participants: Sem... Read More about Developing a community-based intervention to improve quality of life in people with colorectal cancer: A complex intervention development study.

Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis (2013)
Journal Article
Downing, A., Aravani, A., MacLeod, U., Oliver, S., Finan, P. J., Thomas, J. D., Quirke, P., Wilkinson, J. R., & Morris, E. J. (2013). Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis. The British Journal of Cancer, 108(3), 681-685. https://doi.org/10.1038/bjc.2012.585

Background: The United Kingdom performs poorly in international comparisons of colorectal cancer survival with much of the deficit owing to high numbers of deaths close to the time of diagnosis. This retrospective cohort study investigates the patien... Read More about Early mortality from colorectal cancer in England: A retrospective observational study of the factors associated with death in the first year after diagnosis.

Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care (2013)
Journal Article
Smith, S., Fielding, S., Murchie, P., Johnston, M., Wyke, S., Powell, R., Devereux, G., Nicolson, M., Wilson, P., Ritchie, L., Lee, A. J., Campbell, N. C., & Macleod, U. (2013). Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), 47-54. https://doi.org/10.3399/bjgp13x660779

Background Most individuals with lung cancer have symptoms for several months before presenting to their GP. Earlier consulting may improve survival. Aim To evaluate whether a theory-based primary care intervention increased timely consulting of indi... Read More about Reducing the time before consulting with symptoms of Lung cancer: a randomised controlled trial in primary care.

Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study (2013)
Journal Article
Hamilton, W., Green, T., Martins, T., Elliott, K., Rubin, G., & Macleod, U. (2013). Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study. The British journal of general practice : the journal of the Royal College of General Practitioners, 63(606), 30-36. https://doi.org/10.3399/bjgp13X660751

Background: Diagnostic delay is deemed to account for an estimated 5000 to 10 000 extra cancer deaths each year in the UK. Many cancer patients do not have symptoms meeting national referral criteria for rapid investigation. Risk assessment tools (RA... Read More about Evaluation of risk assessment tools for suspected cancer in general practice: a cohort study.

A pilot randomised controlled trial to reduce suffering and emotional distress in patients with advanced cancer (2012)
Journal Article
Lloyd-Williams, M., Cobb, M., O'Connor, T., Dunn, L., & Shiels, C. (2013). A pilot randomised controlled trial to reduce suffering and emotional distress in patients with advanced cancer. Journal of affective disorders, 148(1), 141 - 145. https://doi.org/10.1016/j.jad.2012.11.013

Introduction: A pilot trial was carried out to determine if a focussed narrative interview could alleviate the components of suffering and anxiety and depression in advanced cancer patients. InterventionPatients recruited were invited to participate... Read More about A pilot randomised controlled trial to reduce suffering and emotional distress in patients with advanced cancer.

In search of the cancer candidate: Can lay epidemiology help? (2012)
Journal Article
Macdonald, S., Watt, G., & Macleod, U. (2013). In search of the cancer candidate: Can lay epidemiology help?. Sociology of Health and Illness, 35(4), 575-591. https://doi.org/10.1111/j.1467-9566.2012.01513.x

First published in 1991, the ideas embedded in 'Lay epidemiology and the prevention paradox' offered a novel and rational explanation for the lay public's failure to fully engage with the lifestyle messages offered by health educators. During the cou... Read More about In search of the cancer candidate: Can lay epidemiology help?.

Developing a complex intervention to reduce time to presentation with symptoms of lung cancer (2012)
Journal Article
Smith, S. M., Murchie, P., Devereux, G., Johnston, M., Lee, A. J., Macleod, U., Nicolson, M. C., Powell, R., Ritchie, L. D., Wyke, S., & Campbell, N. C. (2012). Developing a complex intervention to reduce time to presentation with symptoms of lung cancer. The British journal of general practice : the journal of the Royal College of General Practitioners, 62(602), e605-e615. https://doi.org/10.3399/bjgp12X654579

Background: Lung cancer is the commonest cause of cancer in Scotland and is usually advanced at diagnosis. Median time between symptom onset and consultation is 14 weeks, so an intervention to prompt earlier presentation could support earlier diagnos... Read More about Developing a complex intervention to reduce time to presentation with symptoms of lung cancer.

Longitudinal trajectories of awareness in early-stage dementia (2012)
Journal Article
Clare, L., Nelis, S. M., Martyr, A., Whitaker, C. J., Marková, I. S., Roth, I., Woods, R. T., & Morris, R. G. (2012). Longitudinal trajectories of awareness in early-stage dementia. Alzheimer Disease and Associated Disorders, 26(2), 140-147. https://doi.org/10.1097/WAD.0b013e31822c55c4

Although it is often assumed that awareness decreases as dementia severity increases, there is limited evidence regarding changes in awareness over time. We examined awareness in 101 individuals with early-stage dementia (PwD) and their carers; 66 we... Read More about Longitudinal trajectories of awareness in early-stage dementia.

Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses (2012)
Journal Article
Martyr, A., Clare, L., Nelis, S. M., Markova, I. S., Roth, I., Woods, R. T., Whitaker, C. J., & Morris, R. G. (2012). Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses. Alzheimer Disease and Associated Disorders, 26(2), 148-158. https://doi.org/10.1097/WAD.0b013e318221ba23

Spouse caregivers of people with dementia (PwD) report relatively poor marital relationship quality (RQ), but few studies have obtained the perspective of the PwD, examined discrepancies between spouses, or considered changes in RQ over time. This st... Read More about Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses.

Verbal fluency and awareness of functional deficits in early-stage dementia (2012)
Journal Article
Marková, I. S., Woods, R. T., Whitaker, C. J., Markova, I., Clare, L., Martyr, A., Morris, R. G., Nelis, S. M., Roth, I., Whitaker, C., & Woods, R. (2012). Verbal fluency and awareness of functional deficits in early-stage dementia. Clinical Neuropsychologist, 26(3), 501-519. https://doi.org/10.1080/13854046.2012.665482

Assessment of activities of daily living is an important element in the diagnosis of dementia, with research suggesting a link between functional ability and cognition. We investigated the relationship between self- and informant ratings of instrumen... Read More about Verbal fluency and awareness of functional deficits in early-stage dementia.