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Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs (2020)
Journal Article
Ballard, C., Orrell, M., Moniz-Cook, E., Woods, R., Whitaker, R., Corbett, A., …Fossey, J. (2020). Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs. Programme Grants for Applied Research, 8(6), 1-98. https://doi.org/10.3310/pgfar08060

Background The effective management of agitation and other neuropsychiatric and behavioural symptoms in people with dementia is a major challenge, particularly in care home settings, where dementia severity is higher and there is limited training an... Read More about Improving mental health and reducing antipsychotic use in people with dementia in care homes: the WHELD research programme including two RCTs.

Measuring the well-being of people with dementia : a conceptual scoping review (2020)
Journal Article
Clarke, C., Woods, R., Moniz-Cook, E., Mountain, G., Øksnebjerg, L., Chattat, R., …Wolverson, E. (2020). Measuring the well-being of people with dementia : a conceptual scoping review. Health and quality of life outcomes, 18, https://doi.org/10.1186/s12955-020-01440-x

Background: Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from... Read More about Measuring the well-being of people with dementia : a conceptual scoping review.

'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison (2020)
Journal Article
Wilson, M., Johnston, H., & Walker, L. (in press). 'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison. Criminology & criminal Justice, https://doi.org/10.1177/1748895820930755

Using the concept of institutional thoughtlessness, this article examines a range of issues embedded within daily prison life which have a detrimental effect upon the lives of those bereaved during a prison sentence. Drawing on in-depth qualitative r... Read More about 'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison.

Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia (2020)
Journal Article
Csipke, E., Moniz-Cook, E., Leung, P., Yates, L., Birt, L., Walton, H., …Orrell, M. (in press). Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia. International Psychogeriatrics,

Objectives: Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The PRIDE intervention was developed to address this. Method: The mixed methods non-randomised, pre-pos... Read More about Feasibility and acceptability evaluation of the PRIDE (Promoting Independence in Dementia) intervention for living well with dementia.

The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data (2020)
Journal Article
Laura, S., Clarke, C., & Wolverson, E. (in press). The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data. Dementia, https://doi.org/10.1177/1471301220929534

Background Everyday technologies, such as laptops and tablets, are often used for enjoyment, pleasure, leisure and social participation. Despite this, whilst considerable research has investigated exploring people’s experiences of using assistive te... Read More about The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data.

The influence of self-compassion on perceived responsibility and shame following acquired brain injury (2020)
Journal Article
Ambridge, J., Fleming, P., & Henshall, L. (in press). The influence of self-compassion on perceived responsibility and shame following acquired brain injury. Brain Injury, 34(7), 945-957. https://doi.org/10.1080/02699052.2020.1763466

Primary objective: The purpose of this study was to investigate the influence of perceived personal responsibility for an acquired ABI (ABI) on shame, and whether self-compassion moderates this relationship. We hypothesized that people who perceived... Read More about The influence of self-compassion on perceived responsibility and shame following acquired brain injury.

The experience of talking about hearing voices with family, friends, and others (2019)
Journal Article
Watkins, S., Gupta, A., & Sanderson, C. (in press). The experience of talking about hearing voices with family, friends, and others. Psychosis, 1-10. https://doi.org/10.1080/17522439.2019.1690561

Objective: There is evidence to suggest that close social networks and wider social influences have a significant impact on people who hear voices. The aim of this research was to explore people’s experiences of talking about voice hearing with famil... Read More about The experience of talking about hearing voices with family, friends, and others.

Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use? (2019)
Journal Article
Dunn, R., & Moniz-Cook, E. (2019). Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?. FPOP Bulletin, 148, 51-61

Written feedback was examined from participants who attended the February 2019 consultation. This informed the 35-item online survey that followed (May-June 2019). One item questioned practice on instruments used by specialist BtC practitioners to ev... Read More about Evaluating interventions for Behaviours that Challenge (BtC) in dementia care - what instruments do specialist practitioners working in the UK use?.

Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care (2019)
Journal Article
Wright, J., Foster, A., Cooper, C., Sprange, K., Walters, S., Berry, K., …Mountain, G. (2019). Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care. BMJ open, 9(9), https://doi.org/10.1136/bmjopen-2019-029207

© Author(s) (or their employer(s)) 2019. Introduction Services are being encouraged to provide postdiagnostic treatment to those with dementia but the availability of evidence-based interventions following diagnosis has not kept pace with incre... Read More about Study protocol for a randomised controlled trial assessing the clinical and cost-effectiveness of the Journeying through Dementia (JtD) intervention compared to usual care.

The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia (2019)
Journal Article
Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., …Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia. Clinical Interventions in Aging, 14, 1615-1630. https://doi.org/10.2147/CIA.S214367

© 2019 Yates et al. Objective: Support after a diagnosis of dementia may facilitate better adjustment and ongoing management of symptoms. The aim of the Promoting Independence in Dementia (PRIDE) study was to develop a postdiagnostic social intervent... Read More about The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.

Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia (2018)
Journal Article
Csipke, E., Yates, L., Cook, E. M., Leung, P., Charlesworth, G., Walton, H., …Orrell, M. (2018). Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia. International Journal of Clinical Trials, 5(4), 177-185. https://doi.org/10.18203/2349-3259.ijct20184399

INTRODUCTION In the UK over 800,000 older people have dementia, which can lead to social exclusion, loss of identity and independence due to deterioration in cognition, activities of daily living, the double stigma of age and dementia, and the reduce... Read More about Promoting independence in dementia: protocol for a feasibility trial of the PRIDE intervention for living well with dementia.


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