Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial

Bick, D.; Bishop, J.; Coleman, T.; Dean, S.; Edwards, E.; Frawley, H.; Gkini, E.; Hay-Smith, J.; Hemming, K.; Jones, E.; Oborn, E.; Pearson, M.; Salmon, V.; Webb, S.; MacArthur, C.

doi:10.1186/s40814-022-01185-y

The cost of providing care by family and friends (informal care) in the last year of life: A population observational study (2024)
Journal Article
Johnson, M. J., Currow, D. C., Chynoweth, J., Weatherly, H., Keser, G., Hutchinson, A., …Allgar, V. (2024). The cost of providing care by family and friends (informal care) in the last year of life: A population observational study. Palliative medicine, https://doi.org/10.1177/02692163241259649

Introduction: Little is known about replacement costs of care provided by informal carers during the last year of life for people dying of cancer and non-cancer diseases. Aim: To estimate informal caregiving costs and explore the relationship with ca... Read More about The cost of providing care by family and friends (informal care) in the last year of life: A population observational study.

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders (2024)
Journal Article
May Scott, H. M., Coombes, L., Braybrook, D., Harðardóttir, D., Roach, A., Bristowe, K., …On Behalf Of C-POS. (2024). What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders. Palliative medicine, 38(4), 471-484. https://doi.org/10.1177/02692163241234797

Background: There is a growing evidence-base underpinning implementation of person-centred outcome measures into adult palliative care. However evidence on how best to achieve this with children facing life-threatening and life-limiting conditions is... Read More about What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.

Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research (2024)
Journal Article
Kochovska, S., Murtagh, F. E., Agar, M., Phillips, J. L., Dudgeon, D., Lujic, S., …Currow, D. C. (2024). Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research. Palliative medicine, https://doi.org/10.1177/02692163241234227

Background: Palliative care is characterised by heterogeneous patient and caregiver populations who are provided care in different health systems and a research base including a large proportion of observational, mostly retrospective studies. The inh... Read More about Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research.

Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study (2023)
Journal Article
Clark, J., Salins, N., Daniel, S., Currow, D. C., Jones, L., Pearson, M., …Johnson, M. J. (2023). Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study. PLOS Global Public Health, 3(9), Article e0002401. https://doi.org/10.1371/journal.pgph.0002401

Opioids (e.g. morphine) are affordable, effective interventions for cancer-related pain. However, equity of access to this key medication remains a global challenge, particularly in low- and middle-income countries. We aimed to explore views of palli... Read More about Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: A qualitative interview study.

Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction (2023)
Journal Article
Bravington, A., Obita, G., Baddeley, E., Johnson, M., Murtagh, F., Currow, D., …Boland, J. (2023). Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction. PLoS ONE, 18(8), Article e0289501. https://doi.org/10.1371/journal.pone.0289501

Background: Malignant bowel obstruction is experienced by 15% of people with advanced cancer, preventing them from eating and drinking and causing pain, nausea and vomiting. Surgery is not always appropriate. Management options include tube or stent... Read More about Development of a Core Outcome Set for the research and assessment of malignant bowel obstruction.

Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research (2023)
Journal Article
Harvey, G., Rycroft-Malone, J., Seers, K., Wilson, P., Cassidy, C., Embrett, M., …Graham, I. D. (2023). Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research. Frontiers in Health Services, 3, Article 1162762. https://doi.org/10.3389/frhs.2023.1162762

The saying “horses for courses” refers to the idea that different people and things possess different skills or qualities that are appropriate in different situations. In this paper, we apply the analogy of “horses for courses” to stimulate a debate... Read More about Connecting the science and practice of implementation – applying the lens of context to inform study design in implementation research.

The roles and experiences of informal carers providing care to people with advanced cancer in Africa—A systematic review and critical interpretive analysis (2023)
Journal Article
Gambe, R. G., Clark, J., Meddick-Dyson, S. A., Ukoha-Kalu, B. O., Nyaaba, G. N., & Murtagh, F. E. (2023). The roles and experiences of informal carers providing care to people with advanced cancer in Africa—A systematic review and critical interpretive analysis. PLOS Global Public Health, 3(4), Article e0001785. https://doi.org/10.1371/journal.pgph.0001785

There is an increasing prevalence of cancer in Africa with approximately 80% of cancers diagnosed at an advanced stage. High out-of-pocket healthcare costs and overstretched health systems lead to heavy reliance on informal carers for cancer care. Th... Read More about The roles and experiences of informal carers providing care to people with advanced cancer in Africa—A systematic review and critical interpretive analysis.

Nonpharmacological management of psychological distress in people with COPD (2023)
Journal Article
Volpato, E., Farver-Vestergaard, I., Brighton, L. J., Peters, J., Verkleij, M., Hutchinson, A., …von Leupoldt, A. (2023). Nonpharmacological management of psychological distress in people with COPD. European Respiratory Review, 32(167), Article 220170. https://doi.org/10.1183/16000617.0170-2022

Psychological distress is prevalent in people with COPD and relates to a worse course of disease. It often remains unrecognised and untreated, intensifying the burden on patients, carers and healthcare systems. Nonpharmacological management strategie... Read More about Nonpharmacological management of psychological distress in people with COPD.

Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways (2023)
Journal Article
Doe, G., Williams, M. T., Chantrell, S., Steiner, M. C., Armstrong, N., Hutchinson, A., & Evans, R. A. (2023). Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways. The British journal of general practice : the journal of the Royal College of General Practitioners, 73(731), e468-e477. https://doi.org/10.3399/BJGP.2022.0475

BACKGROUND: Evidence about the delays to diagnosis for patients presenting with breathlessness is lacking. AIM: To explore current care of patients with breathlessness through the experiences of adults presenting with chronic breathlessness who are a... Read More about Diagnostic delays for breathlessness in primary care: a qualitative study to investigate current care and inform future pathways.

Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved] (2023)
Journal Article
Chambers, R. L., Pask, S., Higginson, I. J., Barclay, S., Murtagh, F. E., & Sleeman, K. E. (2023). Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved]. AMRC Open Research, 4, Article 19. https://doi.org/10.12688/amrcopenres.13079.2

Background: In England, Integrated Care Systems have been established to improve integration of care, as part of the NHS Long Term Plan. For people near the end of life, palliative care can improve integration of care. We aimed to understand whether... Read More about Inclusion of palliative and end of life care in health strategies aimed at integrated care: a documentary analysis [version 2; peer review: 2 approved].

Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review (2023)
Journal Article
Szinay, D., Forbes, C. C., Busse, H., DeSmet, A., Smit, E. S., & König, L. M. (in press). Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review. Obesity Reviews, Article e13542. https://doi.org/10.1111/obr.13542

Mobile health interventions are promising behavior change tools. However, there is a concern that they may benefit some populations less than others and thus widen inequalities in health. This systematic review investigated differences in uptake of,... Read More about Is the uptake, engagement, and effectiveness of exclusively mobile interventions for the promotion of weight-related behaviors equal for all? A systematic review.

A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty (2023)
Journal Article
Murtagh, F. E., Okoeki, M., Ukoha-kalu, B. O., Khamis, A., Clark, J., Boland, J. W., …Johnson, M. J. (2023). A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty. BMC Geriatrics, 23(1), Article 6. https://doi.org/10.1186/s12877-023-03727-2

Background Integrated care may improve outcomes for older people living with frailty. We aimed to assess the effectiveness of a new, anticipatory, multidisciplinary care service in improving the wellbeing and quality of life (QoL) of older people li... Read More about A non-randomised controlled study to assess the effectiveness of a new proactive multidisciplinary care intervention for older people living with frailty.

Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree (2022)
Journal Article
Curry, J., Roberts, H., Smith, A., Riley, D., Pearson, M., & Forbes, C. C. (2022). Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree. Research Involvement and Engagement, 8(1), Article 66. https://doi.org/10.1186/s40900-022-00395-1

Background: Lung cancer has one of the highest incidence and mortality rates worldwide. Physical activity can provide those diagnosed with lung cancer with several physical and psychological benefits. However, the examination of digitally delivered p... Read More about Developing and testing the ExerciseGuide UK website for people with lung cancer: reflections on the added value of patient and public involvement within a doctoral degree.

Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial (2022)
Journal Article
Ekström, M., Ferreira, D., Chang, S., Louw, S., Johnson, M. J., Eckert, D. J., …Currow, D. C. (2022). Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial. Journal of the American Medical Association, 328(20), 2022-2032. https://doi.org/10.1001/jama.2022.20206

Importance: Chronic breathlessness is common in people with chronic obstructive pulmonary disease (COPD). Regular, low-dose, extended-release morphine may relieve breathlessness, but evidence about its efficacy and dosing is needed. Objective: To det... Read More about Effect of regular low-dose extended-release morphine on chronic breathlessness in chronic obstructive pulmonary disease: the BEAMS randomized clinical trial.

Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients (2022)
Journal Article
Neo, S. H. S., Tan, J. Y. T., Sim, D. K. L., Ng, E. S. L., Loh, J. K. X., Yang, G. M., …Cheung, Y. B. (2022). Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients. Palliative Medicine Reports, 3(1), 287-295. https://doi.org/10.1089/pmr.2022.0029

Background: The Integrated Palliative Care Outcome Scale (IPOS) was developed in the United Kingdom for health assessment in advanced illness. Objectives: To evaluate the validity and reliability of a culturally adapted IPOS (both patient and staff v... Read More about Validity and Reliability of the Integrated Palliative Care Outcome Scale in Asian Heart Failure Patients.

Parental death: a systematic review of support experiences and needs of children and parent survivors (2022)
Journal Article
Wray, A., Pickwell-Smith, B., Greenley, S., Pask, S., Bamidele, O., Wright, B., …Boland, J. W. (2022). Parental death: a systematic review of support experiences and needs of children and parent survivors. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003793

Background: Bereaved people need a supportive response from those around them. Knowing children's and surviving parents' needs following parental death is the first step to ensuring a supportive response. However, no systematic review has reported on... Read More about Parental death: a systematic review of support experiences and needs of children and parent survivors.

Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons (2022)
Journal Article
Ito, M., Aoyama, M., Murtagh, F. E., & Miyashita, M. (2022). Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003743

Objectives: We aimed to estimate the potential population that requires palliative care, clarify the relationship between this population and the rate of ageing in Japan, and compare these trends with those of other countries. Design: We used the nat... Read More about Primary palliative care in Japan: needs estimation and projections - national database study with international comparisons.

Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial (2022)
Journal Article
Yorke, J., Johnson, M. J., Punnett, G., Smith, J., Blackhall, F., Lloyd Williams, M., …Molassiotis, A. (in press). Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2022-003924

Objectives: In lung cancer, three prominent symptoms, such as breathlessness, cough and fatigue, are closely related with each other forming a 'respiratory distress symptom cluster'. The aim of this study was to determine the clinical and cost-effect... Read More about Respiratory distress symptom intervention for non-pharmacological management of the lung cancer breathlessness-cough-fatigue symptom cluster: randomised controlled trial.

Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study) (2022)
Journal Article
Benelhaj, N. E., Hutchinson, A., Maraveyas, A., & Johnson, M. (2022). Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study). PLoS ONE, 17(10), Article e0276754. https://doi.org/10.1371/journal.pone.0276754

Background: The diagnosis of symptomatic cancer-associated thrombosis often causes distress and alarm for patients, especially for those unaware of the risk, or the signs and symptoms to look out for. There are few data about cancer patients’ experie... Read More about Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study).

Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial (2022)
Journal Article
Bick, D., Bishop, J., Coleman, T., Dean, S., Edwards, E., Frawley, H., …MacArthur, C. (2022). Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial. Pilot and Feasibility Studies, 8(1), Article 231. https://doi.org/10.1186/s40814-022-01185-y

Background: Antenatal pelvic floor muscle exercises (PFME) in women without prior urinary incontinence (UI) are effective in reducing postnatal UI; however, UK midwives often do not provide advice and information to women on undertaking PFME, with ev... Read More about Antenatal preventative pelvic floor muscle exercise intervention led by midwives to reduce postnatal urinary incontinence (APPEAL): protocol for a feasibility and pilot cluster randomised controlled trial.

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