Skip to main content

Research Repository

Advanced Search

Outputs (454)

The cost of providing care by family and friends (informal care) in the last year of life: A population observational study (2024)
Journal Article
Johnson, M. J., Currow, D. C., Chynoweth, J., Weatherly, H., Keser, G., Hutchinson, A., …Allgar, V. (2024). The cost of providing care by family and friends (informal care) in the last year of life: A population observational study. Palliative medicine, https://doi.org/10.1177/02692163241259649

Introduction: Little is known about replacement costs of care provided by informal carers during the last year of life for people dying of cancer and non-cancer diseases. Aim: To estimate informal caregiving costs and explore the relationship with ca... Read More about The cost of providing care by family and friends (informal care) in the last year of life: A population observational study.

Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study (2024)
Journal Article
Birtwistle, J., Allsop, M. J., Bradshaw, A., Millares Martin, P., Sleeman, K. E., Twiddy, M., & Evans, C. J. (online). Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study. Palliative medicine, https://doi.org/10.1177/02692163241255511

Background: Digital approaches are being explored internationally to support the elicitation, documentation and sharing of advance care planning information. However, views and experiences of patients and carers are little understood, impeding develo... Read More about Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study.

Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction (2024)
Thesis
Patterson, M. J. (2024). Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction. (Thesis). Hull York Medical School. https://hull-repository.worktribe.com/output/4711450

Background: Malignant bowel obstruction (MBO) is a distressing complication of gastrointestinal, gynaecological and other cancers causing severe pain, intractable nausea and vomiting, anorexia, and death. There are no agreed best approaches for sympt... Read More about Parenteral nutrition and venting gastrostomy in the management of malignant bowel obstruction.

Developing a typology of interventions to support doctors’ mental health and wellbeing (2024)
Journal Article
Pearson, A., Carrieri, D., Melvin, A., Bramwell, C., Scott, J., Hancock, J., Papoutsi, C., Pearson, M., Wong, G., & Mattick, K. (2024). Developing a typology of interventions to support doctors’ mental health and wellbeing. BMC health services research, 24(1), Article 573. https://doi.org/10.1186/s12913-024-10884-6

Background: The problem of mental ill-health in doctors is complex, accentuated by the COVID-19 pandemic, and impacts on healthcare provision and broader organisational performance. There are many interventions to address the problem but currently no... Read More about Developing a typology of interventions to support doctors’ mental health and wellbeing.

Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families. (2024)
Journal Article
Ashall, V., Hamilton, L., Johnson, M., & Latimer, J. (2024). Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families. Symbolic Interaction, https://doi.org/10.1002/symb.689

Through an innovative interspecies analysis, this article explores narratives surrounding the medical treatment of humans and pet animals at the end of life among UK veterinary surgeons, medical practitioners and members of the public. Contrasting th... Read More about Kinship Health Relationships: Reconfiguring the ‘good death’ in mixed species families..

Homecare workers needs and experiences in end of life care: rapid review (2024)
Journal Article
Forward, C., Bayley, Z., Walker, L., Krygier, J., White, C., Mwaba, K., Elliott-Button, H., Taylor, P., & Johnson, M. J. (in press). Homecare workers needs and experiences in end of life care: rapid review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/spcare-2023-004737

Background Social homecare workers provide essential care to those living at home at the end of life. In the context of a service experiencing difficulties in attracting and retaining staff, we have limited knowledge about the training, support needs... Read More about Homecare workers needs and experiences in end of life care: rapid review.

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders (2024)
Journal Article
May Scott, H. M., Coombes, L., Braybrook, D., Harðardóttir, D., Roach, A., Bristowe, K., …On Behalf Of C-POS. (2024). What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders. Palliative medicine, 38(4), 471-484. https://doi.org/10.1177/02692163241234797

Background: There is a growing evidence-base underpinning implementation of person-centred outcome measures into adult palliative care. However evidence on how best to achieve this with children facing life-threatening and life-limiting conditions is... Read More about What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.

Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research (2024)
Journal Article
Kochovska, S., Murtagh, F. E., Agar, M., Phillips, J. L., Dudgeon, D., Lujic, S., Johnson, M., & Currow, D. C. (2024). Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research. Palliative medicine, https://doi.org/10.1177/02692163241234227

Background: Palliative care is characterised by heterogeneous patient and caregiver populations who are provided care in different health systems and a research base including a large proportion of observational, mostly retrospective studies. The inh... Read More about Creating more comparable cohorts in observational palliative care studies: A proposed framework to improve applicability and replicability of research.

Hospital admissions in the last year of life of patients with heart failure (2024)
Journal Article
AI Abel, A., Samuel, N. A., Cuthbert, J. J., Brown, O. I., Pellicori, P., Kazmi, S., GF Cleland, J., Johnson, M., & Clark, A. L. (2024). Hospital admissions in the last year of life of patients with heart failure. European Heart Journal - Quality of Care and Clinical Outcomes, 10(2), 168-175. https://doi.org/10.1093/ehjqcco/qcad047

Aim To explore the frequency, causes, and pattern of hospitalisation for patients with chronic heart failure (HF) in the 12 months preceding death. We also investigated cause of death. Methods Patients referred to a secondary care HF clinic were rout... Read More about Hospital admissions in the last year of life of patients with heart failure.