Outputs (22)

Optimising Digital Advance Care Planning Implementation in Palliative and End-of-life Care: A multi-phase mixed-methods national research programme and recommendations (2025)
Journal Article
Allsop, M. J., Birtwistle, J., Bennett, M. I., Bradshaw, A., Carder, P., Evans, C. J., Foy, R., Heavin, C., Hibbert, B., Martin, P. M., Relton, S. D., Richards, S. H., Twiddy, M., & Sleeman, K. E. (2025). Optimising Digital Advance Care Planning Implementation in Palliative and End-of-life Care: A multi-phase mixed-methods national research programme and recommendations. BMC medicine, 23, Article 291. https://doi.org/10.1186/s12916-025-04114-x

Background: Digital advance care planning (DACP) is increasingly used globally for patients with life-limiting conditions to support real-time documentation and the sharing of preferences for care. There has been low engagement with DACP systems, wit... Read More about Optimising Digital Advance Care Planning Implementation in Palliative and End-of-life Care: A multi-phase mixed-methods national research programme and recommendations.

Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study (2024)
Journal Article
Bradshaw, A., Birtwistle, J., Evans, C. J., Sleeman, K. E., Richards, S., Foy, R., Martin, P. M., Carder, P., Allsop, M. J., & Twiddy, M. (2024). Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study. Journal of medical Internet research, 26, Article e50217. https://doi.org/10.2196/50217

BACKGROUND: Palliative care aims to improve the quality of life for people with life-limiting illnesses. Advance care planning conversations that establish a patient's wishes and preferences for care are part of a person-centered approach. Internatio... Read More about Factors Influencing the Implementation of Digital Advance Care Planning: Qualitative Interview Study.

Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study (2024)
Journal Article
Birtwistle, J., Allsop, M. J., Bradshaw, A., Millares Martin, P., Sleeman, K. E., Twiddy, M., & Evans, C. J. (2024). Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study. Palliative medicine, 38(7), 711-724. https://doi.org/10.1177/02692163241255511

Background: Digital approaches are being explored internationally to support the elicitation, documentation and sharing of advance care planning information. However, the views and experiences of patients and carers are little understood, impeding th... Read More about Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: a qualitative study.

Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation (2024)
Journal Article
Bradshaw, A., Allsop, M. J., Birtwistle, J., Evans, C. J., Relton, S. D., Richards, S. H., Twiddy, M., Foy, R., Millares Martin, P., Yardley, S., Sleeman, K. E., & On Behalf of the OPTIMAL CARE Project. (2024). Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation. Palliative medicine, https://doi.org/10.1177/02692163241280134

Background: Digital advance care planning systems are used internationally to document and share patients’ wishes and preferences to inform care delivery. However, their use is impeded by a limited understanding of factors influencing implementation... Read More about Exploring the contextual assumptions, interventions and outcomes of digital advance care planning systems: A theory of change approach to understand implementation and evaluation.

Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall) (2022)
Journal Article
Garner, I. W., Walshe, C., Dunleavey, L., Bradshaw, A., Preston, N., Fraser, L. K., Murtagh, F. E., Oluyase, A. O., Sleeman, K. E., Hocaoglu, M., Bajwah, S., Chambers, R. L., Maddocks, M., & Higginson, I. J. (2022). Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall). BMC Palliative Care, 21(1), Article 176. https://doi.org/10.1186/s12904-022-01070-8

BACKGROUND: Independent charitably funded hospices have been an important element of the UK healthcare response to the COVID-19 pandemic. Hospices usually have different funding streams, procurement processes, and governance arrangements compared to... Read More about Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall).

Symptom management in people dying with COVID-19: multinational observational study (2022)
Journal Article
Oluyase, A. O., Bajwah, S., Sleeman, K. E., Walshe, C., Preston, N., Hocaoglu, M., Bradshaw, A., Chambers, R. L., Murtagh, F. E., Dunleavy, L., Maddocks, M., Fraser, L. K., & Higginson, I. J. (2022). Symptom management in people dying with COVID-19: multinational observational study. BMJ Supportive & Palliative Care, 12(4), 439-447. https://doi.org/10.1136/spcare-2022-003799

OBJECTIVES: To describe multinational prescribing practices by palliative care services for symptom management in patients dying with COVID-19 and the perceived effectiveness of medicines. METHODS: We surveyed specialist palliative care services, con... Read More about Symptom management in people dying with COVID-19: multinational observational study.

Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom) (2022)
Journal Article
Higginson, I. J., Hocaoglu, M., Fraser, L. K., Maddocks, M., Sleeman, K. E., Oluyase, A. O., Chambers, R. L., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. E., Walshe, C., & On behalf of theCovPall study team. (2022). Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom). Journal of pain and symptom management, 64(4), 377-390. https://doi.org/10.1016/j.jpainsymman.2022.06.009

Context: Evidence of symptom control outcomes in severe COVID is scant. Objectives: To determine changes in symptoms among people severely ill or dying with COVID supported by palliative care, and associations with treatments and survival. Methods: M... Read More about Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom).

Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study (2022)
Journal Article
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E., Oluyase, A. O., Sleeman, K. E., Higginson, I. J., Walshe, C., & CovPall study team. (in press). Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study. Journal of the Royal Society of Medicine, https://doi.org/10.1177/01410768221077366

Objective: To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic. Design: Qualitative multiple case study using semi-structured interviews between November 2020 and April 2021 as part of the CovPa... Read More about Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study.

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data (2021)
Journal Article
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R. L., Preston, N., Fraser, L. K., Murtagh, F. E., Higginson, I. J., & Maddocks, M. (in press). Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data. Palliative medicine, https://doi.org/10.1177/02692163211063397

Background: Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’ symptom self-management, independence and social participation throughout advanced illness. Rehabilitation services were highl... Read More about Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data.

Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall) (2021)
Journal Article
Sleeman, K. E., Cripps, R. L., Murtagh, F. E., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J., Fraser, L. K., & on behalf of the CovPall Study Team. (2022). Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall). Journal of palliative medicine, 25(3), 465-471. https://doi.org/10.1089/jpm.2021.0315

Objectives: To identify factors associated with palliative care services being busier during Covid-19. Methods: Cross-sectional online survey of UK palliative care services (April to July 2020) (CovPall). Ethical approval was received from King's Col... Read More about Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall).