Outputs (56)

End-stage kidney disease (2021)
Book Chapter
Murtagh, F. (2021). End-stage kidney disease. In N. I. Cherny, M. T. Fallon, S. Kaasa, R. K. Portenoy, & D. C. Currow (Eds.), Oxford Textbook of Palliative Medicine (1010-1019). (6th ed.). Oxford University Press. https://doi.org/10.1093/med/9780198821328.003.0095

End-stage kidney disease accounts for 1–2% of all deaths. With ageing of the population, this proportion will grow steadily over the coming years. Symptom burden in end-stage kidney disease exceeds advanced cancer, with added renal-specific symptoms,... Read More about End-stage kidney disease.

VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden (2021)
Journal Article
Olsson, M., Engström, G., Currow, D. C., Johnson, M., Sandberg, J., & Ekström, M. (2021). VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden. BMJ open, 11(7), https://doi.org/10.1136/bmjopen-2020-046473

Purpose Despite data showing breathlessness to be more prevalent in older adults, we have little detail about the severity or multidimensional characteristics of breathlessness and other self-reported measures (such as quality of life and other cardi... Read More about VAScular and Chronic Obstructive Lung disease (VASCOL): A longitudinal study on morbidity, symptoms and quality of life among older men in Blekinge county, Sweden.

Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process (2021)
Journal Article
Reedy, F., Pearson, M., Greenley, S., Clark, J., Currow, D. C., Bajwah, S., Fallon, M., & Johnson, M. J. (in press). Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process. Palliative medicine, https://doi.org/10.1177/02692163211032114

Background: In combination with non-pharmacological interventions, opioids may safely reduce chronic breathlessness in patients with severe illness. However, implementation in clinical practice varies. Aim: To synthesise the published literature rega... Read More about Professionals’, patients’ and families’ views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process.

Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study. (2021)
Data
Clark, J. Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study. [Data]

Opioids (e.g. morphine) are affordable, effective interventions for cancer-related pain. However, equity of access to this key medication remains a global challenge, particularly in low- and middle-income countries. We aimed to explore views of palli... Read More about Views and experiences of opioid access amongst palliative care providers and public representatives in a low-resource setting: a qualitative interview study..

Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol (2021)
Journal Article
Spichiger, F., Koppitz, A. L., De Wolf-Linder, S., Murtagh, F. E., Volken, T., & Larkin, P. (in press). Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol. Journal of advanced nursing, https://doi.org/10.1111/jan.14953

Aims: We aim to evaluate the effectiveness of the Integrated Palliative Care Outcome Scale for people with dementia-based case studies to improve the caring quality for people with dementia in nursing homes by frontline staff and family members. Back... Read More about Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol.

Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study (2021)
Journal Article
Fairlamb, H. J., & Murtagh, F. E. (2021). Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study. BMC Palliative Care, 20(1), Article 103. https://doi.org/10.1186/s12904-021-00805-3

Background: End-stage cardiac and respiratory diseases are common in the UK. People with these end-stage conditions experience similar, or even worse, symptomatic suffering to cancer patients but are less likely to receive specialist palliative care... Read More about Health professionals’ perceptions of palliative care for end-stage cardiac and respiratory conditions: a qualitative interview study.

Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review (2021)
Journal Article
Prihartadi, A. S., Impelliziere Licastro, G., Pearson, M., Johnson, M. J., Luckett, T., & Swan, F. (in press). Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/bmjspcare-2021-002962

Background: Non-medical devices such as the handheld fan (fan), mobility aids (wheeled walkers with seats) and inspiratory muscle training (IMT) devices offer benefits for patient management of chronic breathlessness. We examined the published eviden... Read More about Non-medical devices for chronic breathlessness: use, barriers and facilitators for patients, carers and clinicians - a scoping review.

St Gemma's Delirium Guideline Project interview dataset (2021)
Data
St Gemma's Delirium Guideline Project interview dataset. [Data]

Anonymised interview transcripts from 8 stakeholders in a quality improvement project at St Gemma's Hospice, Leeds.

Project conducted by Dr Catriona Jackson as part of her MSc project supervised by Prof Miriam Johnson

The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs (2021)
Journal Article
Wolverson, E., White, C., Dunn, R., Cunnah, K., Howe, D., Paulson, K., Platt, R., & Thorpe, J. (2022). The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs. Dementia, 21(1), 94-113. https://doi.org/10.1177/14713012211028495

Background: Current policy emphasises the role of digital technologies in facilitating the management of long-term conditions. While digital resources have been developed for carers, there has been little attention to their development for people wit... Read More about The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs.

Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis (2021)
Journal Article
Disalvo, D., Agar, M., Caplan, G., Murtagh, F. E., Luckett, T., Heneka, N., Hickman, L., Kinchin, I., Trethewie, S., Sheehan, C., Urban, K., Cohen, J., Harlum, J., Long, B., Parker, T., Schaefer, I., & Phillips, J. (in press). Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis. Palliative medicine, https://doi.org/10.1177/02692163211024451

Background: Access to palliative care in the community enables people to live in their preferred place of care, which is often home. Community palliative care services struggle to provide timely 24-h services to patients and family. This has resulted... Read More about Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis.