Outputs (56)

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services (2021)
Journal Article
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R. L., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A. O., Sleeman, K., Higginson, I. J., Fraser, L., & Murtagh, F. (2021). Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services. Palliative medicine, 35(7), 1225-1237. https://doi.org/10.1177/02692163211017387

Background: Specialist palliative care services play an important role in conducting advance care planning during COVID-19. Little is known about the challenges to advance care planning in this context, or the changes services made to adapt. Aim: Des... Read More about Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review (2021)
Journal Article
Curry, J., Patterson, M., Greenley, S., Pearson, M., & Forbes, C. (in press). Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, https://doi.org/10.1007/s00520-021-06274-x

Purpose: To examine the evidence of the feasibility, acceptability, and potential efficacy of online supportive care interventions for people living with and beyond lung cancer (LWBLC). Methods: Studies were identified through searches of Medline, EM... Read More about Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review.

Palliative care for children and young people with stage 5 chronic kidney disease (2021)
Journal Article
Craig, F., Henderson, E. M., Patel, B., Murtagh, F. E., & Bluebond-Langner, M. (2021). Palliative care for children and young people with stage 5 chronic kidney disease. Pediatric Nephrology, https://doi.org/10.1007/s00467-021-05056-1

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something that all paediatric renal physicians and most paediatricians will encounter. In this paper, we present the literature on three key areas of palliativ... Read More about Palliative care for children and young people with stage 5 chronic kidney disease.

Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review (2021)
Journal Article
Freemantle, M., & Murtagh, F. (in press). Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review. BMJ supportive & palliative care, Article 2021-002894. https://doi.org/10.1136/bmjspcare-2021-002894

Background: Implantable cardioverter defibrillators (ICDs) are used to treat life-threatening cardiac arrhythmias and prevent sudden cardiac arrest. As recipients age they may develop greater risk of dying as a result of progressive multimorbidity ra... Read More about Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review.

Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck (2021)
Journal Article
Doe, G., Chantrell, S., Williams, M., Steiner, M. C., Armstrong, N., Hutchinson, A., & Evans, R. A. (2021). Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck. NPJ Primary Care Respiratory Medicine, 31(1), Article 21. https://doi.org/10.1038/s41533-021-00232-0

During the COVID-19 pandemic, semi-structured interviews were undertaken with 20 adults awaiting a diagnosis for their chronic breathlessness. Three key themes were identified using thematic analysis: (1) de-prioritisation of diagnosis, (2) following... Read More about Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck.

Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study (2021)
Journal Article
Seddon, K., Elliott, J., Johnson, M., White, C., Watson, M., Nelson, A., & Noble, S. (2021). Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study. Research Involvement and Engagement, 7(1), Article 22. https://doi.org/10.1186/s40900-021-00264-3

Background: The publication of the United Kingdom (UK) Standards for Public Involvement (PI) (UK Standards) in research drew a clear line in the sand regarding the importance of utilising the unique experience, skills and expertise that lay people ma... Read More about Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study.

Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review (2021)
Journal Article
Akbar, U., McQueen, R. B., Bemski, J., Carter, J., Goy, E. R., Kutner, J., Johnson, M. J., Miyasaki, J. M., & Kluger, B. (2021). Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review. Journal of Neurology, Neurosurgery and Psychiatry, 92(6), 629-636. https://doi.org/10.1136/jnnp-2020-323939

Parkinson's disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other n... Read More about Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review.

The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis (2021)
Journal Article
Featherstone, I., Hosie, A., Siddiqi, N., Grassau, P., Bush, S. H., Taylor, J., Sheldon, T., & Johnson, M. J. (2021). The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis. Palliative medicine, 35(6), 988-1004. https://doi.org/10.1177/02692163211006313

Background: Delirium is common in palliative care settings and is distressing for patients, their families and clinicians. To develop effective interventions, we need first to understand current delirium care in this setting. Aim: To understand patie... Read More about The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis.

Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases (2021)
Journal Article
Habberstad, R., Frøseth, T. C. S., Aass, N., Bjerkeset, E., Abramova, T., Garcia-Alonso, E., Caputo, M., Rossi, R., Boland, J. W., Brunelli, C., Lund, J. Å., Kaasa, S., & Klepstad, P. (2021). Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases. Journal of pain and symptom management, 62(4), 681-690. https://doi.org/10.1016/j.jpainsymman.2021.03.022

Background: Radiotherapy (RT) reduces pain in about 60% of patients with painful bone metastases, leaving many patients without clinical benefit. This study assesses predictors for RT effectiveness in patients with painful bone metastases. Materials... Read More about Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021)
Journal Article
Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E., Oluyase, A. O., Sleeman, K. E., Higginson, I. J., & Walshe, C. (2021). ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative medicine, 35(5), 814-829. https://doi.org/10.1177/02692163211000660

Background: Specialist palliative care services have a key role in a whole system response to COVID-19, a disease caused by the SARS-CoV-2 virus. There is a need to understand service response to share good practice and prepare for future care. Aim:... Read More about ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall).