Outputs (54)

Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review (2021)
Journal Article
Freemantle, M., & Murtagh, F. (in press). Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review. BMJ supportive & palliative care, Article 2021-002894. https://doi.org/10.1136/bmjspcare-2021-002894

Background: Implantable cardioverter defibrillators (ICDs) are used to treat life-threatening cardiac arrhythmias and prevent sudden cardiac arrest. As recipients age they may develop greater risk of dying as a result of progressive multimorbidity ra... Read More about Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a systematic literature review.

Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck (2021)
Journal Article
Doe, G., Chantrell, S., Williams, M., Steiner, M. C., Armstrong, N., Hutchinson, A., & Evans, R. A. (2021). Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck. NPJ Primary Care Respiratory Medicine, 31(1), Article 21. https://doi.org/10.1038/s41533-021-00232-0

During the COVID-19 pandemic, semi-structured interviews were undertaken with 20 adults awaiting a diagnosis for their chronic breathlessness. Three key themes were identified using thematic analysis: (1) de-prioritisation of diagnosis, (2) following... Read More about Breathless and awaiting diagnosis in UK lockdown for COVID-19…We’re stuck.

Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study (2021)
Journal Article
Seddon, K., Elliott, J., Johnson, M., White, C., Watson, M., Nelson, A., & Noble, S. (2021). Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study. Research Involvement and Engagement, 7(1), Article 22. https://doi.org/10.1186/s40900-021-00264-3

Background: The publication of the United Kingdom (UK) Standards for Public Involvement (PI) (UK Standards) in research drew a clear line in the sand regarding the importance of utilising the unique experience, skills and expertise that lay people ma... Read More about Using the United Kingdom standards for public involvement to evaluate the impact of public involvement in a multinational clinical study.

Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review (2021)
Journal Article
Akbar, U., McQueen, R. B., Bemski, J., Carter, J., Goy, E. R., Kutner, J., …Kluger, B. (2021). Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review. Journal of Neurology, Neurosurgery and Psychiatry, 92(6), 629-636. https://doi.org/10.1136/jnnp-2020-323939

Parkinson's disease and related disorders (PDRD) are the second most common neurodegenerative disease and a leading cause of death. However, patients with PDRD receive less end-of-life palliative care (hospice) than other illnesses, including other n... Read More about Prognostic predictors relevant to end-of-life palliative care in Parkinson's disease and related disorders: A systematic review.

The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis (2021)
Journal Article
Featherstone, I., Hosie, A., Siddiqi, N., Grassau, P., Bush, S. H., Taylor, J., …Johnson, M. J. (2021). The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis. Palliative medicine, 35(6), 988-1004. https://doi.org/10.1177/02692163211006313

Background: Delirium is common in palliative care settings and is distressing for patients, their families and clinicians. To develop effective interventions, we need first to understand current delirium care in this setting. Aim: To understand patie... Read More about The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis.

Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases (2021)
Journal Article
Habberstad, R., Frøseth, T. C. S., Aass, N., Bjerkeset, E., Abramova, T., Garcia-Alonso, E., …Klepstad, P. (2021). Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases. Journal of pain and symptom management, 62(4), 681-690. https://doi.org/10.1016/j.jpainsymman.2021.03.022

Background: Radiotherapy (RT) reduces pain in about 60% of patients with painful bone metastases, leaving many patients without clinical benefit. This study assesses predictors for RT effectiveness in patients with painful bone metastases. Materials... Read More about Clinical Predictors for Analgesic Response to Radiotherapy in Patients with Painful Bone Metastases.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) (2021)
Journal Article
Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., …Walshe, C. (2021). ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative medicine, 35(5), 814-829. https://doi.org/10.1186/ISRCTN16561225

Background: Specialist palliative care services have a key role in a whole system response to COVID-19, a disease caused by the SARS-CoV-2 virus. There is a need to understand service response to share good practice and prepare for future care. A... Read More about ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall).

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality (2021)
Journal Article
Harding, R., Bristowe, K., Coombes, L., Murtagh, F. E., Chambers, L., Bluebond-Langner, M., …Ellis-Smith, C. (in press). Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, https://doi.org/10.1007/s11136-021-02814-4

Introduction: Self-report is the gold standard for measuring children’s health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mod... Read More about Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.

Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol (2021)
Journal Article
Hurst, H., Jones, E., Ormandy, P., Brettle, A., Nixon, A. C., Young, H., …Finnigan, R. (2021). Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol. BMJ open, 11(3), Article e040715. https://doi.org/10.1136/bmjopen-2020-040715

Introduction Reported outcomes for older people with advanced chronic kidney disease (CKD) often focus on survival and mortality and little attention is paid to symptom burden and health-related quality of life. Recognising frailty and providing inte... Read More about Outcomes and care priorities for older people living with frailty and advanced chronic kidney disease: A multiprofessional scoping review protocol.

Health of mothers of children with a life-limiting condition: A comparative cohort study (2021)
Journal Article
Fraser, L. K., Murtagh, F. E., Aldridge, J., Sheldon, T., Gilbody, S., & Hewitt, C. (in press). Health of mothers of children with a life-limiting condition: A comparative cohort study. Archives of Disease in Childhood, https://doi.org/10.1136/archdischild-2020-320655

© Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ. Objective: This study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition... Read More about Health of mothers of children with a life-limiting condition: A comparative cohort study.