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Outputs (461)

Palliative care in Parkinson's disease: Review of needs assessment tools (2019)
Journal Article
Richfield, E. W., & Johnson, M. J. (2020). Palliative care in Parkinson's disease: Review of needs assessment tools. Annals of palliative medicine, 9, S6-S15. https://doi.org/10.21037/apm.2019.09.18

Palliative care in Parkinson’s disease (PD) has developed significantly in the past five years. The presence of unmet palliative care need, similar to that in malignant conditions, is well established, but may not always be identified by clinicians i... Read More about Palliative care in Parkinson's disease: Review of needs assessment tools.

Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis. (2019)
Journal Article
Elliott-Button, H., Johnson, M. J., Nwulu, U., & Clark, J. (2020). Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis. Journal of pain and symptom management, 59(3), 724-733.e19. https://doi.org/10.1016/j.jpainsymman.2019.10.014

Context: Breathlessness is common in chronic conditions but often goes unidentified by clinicians. It is important to understand how identification and assessment of breathlessness occurs across health care settings, to promote routine outcome assess... Read More about Identification and assessment of breathlessness in clinical practice: a systematic review and narrative synthesis..

Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. (2019)
Journal Article
Kinchin, I., Currow, D. C., Chang, S., Reddel, H. K., Kochovska, S., Ferreira, D., Johnson, M., & Ekström, M. (2020). Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults. Journal of pain and symptom management, 59(2), 197-205.e2. https://doi.org/10.1016/j.jpainsymman.2019.09.021

© 2019 American Academy of Hospice and Palliative Medicine Context: Breathlessness is associated with depression, but its relationship to anxiety or impaired function is less clear. Objectives: This study evaluated associations between chronic breath... Read More about Breathlessness, anxiety, depression and function - the BAD-F study: a cross-sectional, population prevalence study in adults..

A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol (2019)
Journal Article
Wright, C., Hart, S. P., Allgar, V., English, A., Swan, F., Dyson, J., Richardson, G., Twiddy, M., Cohen, J., Hussain, J., Johnson, M., Hargreaves, I., & Crooks, M. G. (2019). A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol. ERJ Open Research, 5(4), Article 0186. https://doi.org/10.1183/23120541.00186-2019

Introduction: Idiopathic pulmonary fibrosis (IPF) is a chronic and progressive lung disease that causes breathlessness and cough that worsen over time, limiting daily activities and negatively impacting quality of life. Although treatments are now av... Read More about A feasibility, randomised controlled trial of a complex breathlessness intervention in idiopathic pulmonary fibrosis (BREEZE-IPF): study protocol.

What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) (2019)
Journal Article
Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P., & Murtagh, F. E. (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Annals of palliative medicine, 8(5), 775-780. https://doi.org/10.21037/apm.2019.08.10

© Annals of Palliative Medicine. All rights reserved. There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care O... Read More about What are the main symptoms and concerns reported by patients with advanced chronic heart failure?—a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS).

Mental wellbeing in bereaved carers: A Health Survey for England population study (2019)
Journal Article
Hodiamont, F., Allgar, V., Currow, D. C., & Johnson, M. J. (in press). Mental wellbeing in bereaved carers: A Health Survey for England population study. BMJ Supportive & Palliative Care, https://doi.org/10.1136/bmjspcare-2019-001957

Objectives: The experience of caregiving may affect carers' well-being into bereavement. We explored associations between mental well-being and previous experience of bereavement of, and caring for, someone close at the end-of-life. Methods: An end-o... Read More about Mental wellbeing in bereaved carers: A Health Survey for England population study.

Improving the quality of life of people with advanced respiratory disease and severe breathlessness (2019)
Journal Article
Booth, S., & Johnson, M. J. (2019). Improving the quality of life of people with advanced respiratory disease and severe breathlessness. Breathe, 15(3), 198-215. https://doi.org/10.1183/20734735.0200-2019

Advanced respiratory disease imposes a greater symptom burden than many cancers but not does have comparable recognition of the need for supportive and palliative care or the infrastructure for its systematic delivery. Consequently, many people with... Read More about Improving the quality of life of people with advanced respiratory disease and severe breathlessness.

The experiences of feminist academic activists attempting to challenge the rules of the game in UK academia (2019)
Thesis
Reedy, F. The experiences of feminist academic activists attempting to challenge the rules of the game in UK academia. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/4222893

This PhD examines the experiences of feminist academic activists attempting to challenge the rules of the game in UK academia. It addresses the questions: 1. Are the rules of the game in UK academia gendered? 2. Who are feminist academic activists? 3... Read More about The experiences of feminist academic activists attempting to challenge the rules of the game in UK academia.

Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement (2019)
Journal Article
Sobanski, P. Z., Alt-Epping, B., Currow, D. C., Goodlin, S. J., Grodzicki, T., Hogg, K., Janssen, D. J. A., Johnson, M. J., Krajnik, M., Leget, C., Martínez-Sellés, M., Moroni, M., Mueller, P. S., Ryder, M., Simon, S. T., Stowe, E., & Larkin, P. J. (2020). Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement. Cardiovascular research, 116(1), 12-27. https://doi.org/10.1093/cvr/cvz200

© 2019 Published on behalf of the European Society of Cardiology. All rights reserved. Contrary to common perception, modern palliative care (PC) is applicable to all people with an incurable disease, not only cancer. PC is appropriate at every stage... Read More about Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement.