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The illness experiences of women with fibroids: An exploratory qualitative study

Nicholls, C; Glover, L; Pistrang, N

Authors

C Nicholls

N Pistrang



Abstract

Previous research suggests that women attending gynaecology clinics experience high rates of psychological distress and psychiatric morbidity. Although the reasons for this are poorly understood, certain conditions appear to cause women particularly high levels of anxiety and depression. This paper reports a qualitative study, using Interpretative Phenomenological Analysis (IPA), to examine the illness experiences of women with the common gynaecological condition of fibroids. The study employs semi-structured interviews, guided by Leventhal's self-regulation model, to explore 18 women's understanding and experiences of having fibroids. Qualitative analysis revealed eight themes drawn into two higher-order themes - 'Managing uncertainty' and 'Struggling between defeat and optimism'. These higher-order themes illustrate the multiplicity of experiences and meanings used by women attempting to understand their condition, treatment options and future health outcomes. The differences in women's illness representations may account for differences in their relative distress levels. The findings indicate the importance of considering an individual's illness representations in order to facilitate the provision of appropriate medical and psychological care to women with fibroids.

Journal Article Type Article
Publication Date 2004
Journal JOURNAL OF PSYCHOSOMATIC OBSTETRICS AND GYNECOLOGY
Print ISSN 0167-482X
Electronic ISSN 1743-8942
Publisher Taylor & Francis
Peer Reviewed Peer Reviewed
Volume 25
Issue 3-4
Pages 295-304
APA6 Citation Nicholls, C., Glover, L., & Pistrang, N. (2003). The illness experiences of women with fibroids: An exploratory qualitative study. Journal of Psychosomatic Obstetrics and Gynecology, 25(3-4), 295-304. doi:10.1080/01674820400024430
DOI https://doi.org/10.1080/01674820400024430
Keywords Fibroids; Gynaecology outpatients; Distress; Anxiety; Depression; Illness experiences; Interpretative phenomenological analysis; Self-regulation model
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