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Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers

Antunes, Bárbara; Barclay, Stephen; Kuhn, Isla; Eagar, Kathy; Bausewein, Claudia; Murtagh, Fliss; Etkind, Simon; Bowers, Ben; Dixon, Sarah; Lovick, Roberta; Harding, Richard; Higginson, Irene; Shokraneh, Farhad

Authors

Bárbara Antunes

Stephen Barclay

Isla Kuhn

Kathy Eagar

Claudia Bausewein

Simon Etkind

Ben Bowers

Sarah Dixon

Roberta Lovick

Richard Harding

Irene Higginson

Farhad Shokraneh



Abstract

Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study. Protocol registration: CRD42023398653 (13/02/2023)

Citation

Antunes, B., Barclay, S., Kuhn, I., Eagar, K., Bausewein, C., Murtagh, F., Etkind, S., Bowers, B., Dixon, S., Lovick, R., Harding, R., Higginson, I., & Shokraneh, F. (2023). Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers. F1000Research, 12, Article 224. https://doi.org/10.12688/f1000research.131479.2

Journal Article Type Review
Acceptance Date Oct 30, 2023
Online Publication Date Oct 30, 2023
Publication Date Oct 30, 2023
Deposit Date Apr 28, 2023
Publicly Available Date Nov 21, 2023
Journal F1000Research
Electronic ISSN 2046-1402
Publisher F1000Research
Peer Reviewed Peer Reviewed
Volume 12
Article Number 224
DOI https://doi.org/10.12688/f1000research.131479.2
Keywords Patient-centred outcome measurement; Patient-reported outcome measurement; Palliative care; Systematic reviews; Implementation; Barriers; Facilitators
Public URL https://hull-repository.worktribe.com/output/4271151

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
Copyright: © 2023 Antunes B et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.




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