The prenatal narratives and lived experience of individuals with Down’s syndrome

Bell, Charlotte Bryony

Abstract

This portfolio has three parts: a systematic literature review, an empirical paper and appendices. This thesis aims to explore the opinions and experiences of prenatal testing from the perspective of parents of children with Down’s Syndrome and the lived experiences of personal growth in individuals with Down’s Syndrome.
Part one: Systematic Literature Review
This review aims to draw together the experiences and opinions of parents of individual living with Down’s Syndrome on prenatal testing. Twelve studies were identified for inclusion in this review. Five superordinate themes were identified through thematic synthesis; decision-making and reason for not testing, professionals, post-test emotions, societal opinions, opinions on the logistics of testing. Conclusions and implications are discussed.
Part two: Empirical Paper
Part two contains a qualitative empirical study, exploring the opportunities and experiences of personal growth of individuals with Down’s Syndrome.
Six individuals with Down’s Syndrome were interviewed using semi-structured interviews. These were analysed using interpretive phenomenological analysis. Four superordinate themes were identified. This research highlighted the opportunities and ability for individuals living with Down’s Syndrome to experience personal growth, a marker of quality of life. The need to further acceptance and provision of opportunities is also discussed.

Citation

Bell, C. B. The prenatal narratives and lived experience of individuals with Down’s syndrome. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/4320708

• Thesis Type: Thesis
• Deposit Date: Jun 30, 2023
• Publicly Available Date: Jun 30, 2023
• Keywords: Clinical psychology
• Public URL: https://hull-repository.worktribe.com/output/4320708
• Award Date: Mar 1, 2023