S. F. Adenwalla
Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations
Adenwalla, S. F.; O’Halloran, P.; Faull, C.; Murtagh, F. E.M.; Graham-Brown, M. P.M.
Authors
P. O’Halloran
C. Faull
Professor Fliss Murtagh F.Murtagh@hull.ac.uk
Professor of Palliative Care
M. P.M. Graham-Brown
Abstract
Patients with end-stage kidney disease (ESKD) have a high symptom-burden and high rates of morbidity and mortality. Despite this, evidence has shown that this patient group does not have timely discussions to plan for deterioration and death, and at the end of life there are unmet palliative care needs. Advance care planning is a process that can help patients share their personal values and preferences for their future care and prepare for declining health. Earlier, more integrated and holistic advance care planning has the potential to improve access to care services, communication, and preparedness for future decision-making and changing circumstances. However, there are many barriers to successful implementation of advance care planning in this population. In this narrative review we discuss the current evidence for advance care planning in patients on dialysis, the data around the barriers to advance care planning implementation, and interventions that have been trialled. The review explores whether the concepts and approaches to advance care planning in this population need to be updated to encompass current and future care. It suggests that a shift from a problem-orientated approach to a goal-orientated approach may lead to better engagement, with more patient-centred and satisfying outcomes.
Citation
Adenwalla, S. F., O’Halloran, P., Faull, C., Murtagh, F. E., & Graham-Brown, M. P. (2024). Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations. Journal of Nephrology, 37(3), 547-560. https://doi.org/10.1007/s40620-023-01841-3
| Journal Article Type | Review |
|---|---|
| Acceptance Date | Nov 18, 2023 |
| Online Publication Date | Jan 18, 2024 |
| Publication Date | Apr 1, 2024 |
| Deposit Date | Jan 21, 2024 |
| Publicly Available Date | Jan 23, 2024 |
| Journal | Journal of Nephrology |
| Print ISSN | 1121-8428 |
| Electronic ISSN | 1724-6059 |
| Publisher | Springer Verlag |
| Peer Reviewed | Peer Reviewed |
| Volume | 37 |
| Issue | 3 |
| Pages | 547-560 |
| DOI | https://doi.org/10.1007/s40620-023-01841-3 |
| Keywords | Advance care planning; Dialysis; End-stage kidney disease; End of life; Palliative |
| Public URL | https://hull-repository.worktribe.com/output/4522230 |
| Additional Information | Received: 15 August 2023; Accepted: 18 November 2023; First Online: 18 January 2024; : ; : On behalf of all authors, the submitting author states that there is no conflict of interest.; : This article does not contain any studies with human participants or animals performed by any of the authors.; : For this type of study, formal consent is not required. |
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© The Author(s) 2024.
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