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A service evaluation of the Eczema Education Programme: an analysis of child, parent and service impact outcomes

Ersser, S.J.; Farasat, H.; Jackson, K.; Dennis, H.; Sheppard, Z.A.; More, A.

Authors

S.J. Ersser

H. Farasat

K. Jackson

H. Dennis

Z.A. Sheppard

A. More



Abstract

Background The systematic support of parents of children with eczema is essential in effective disease management. The few existing support models have a limited evidence base. This paper reports the outcome-orientated service evaluation of an original, extensive, social learning-theory based, nurse-led Eczema Education Programme (EEP). Objectives To evaluate the EEP using specified child and parental outcomes and service impact data. Methods From a sample of 257 parent-child dyads attending the EEP, a pretest-post-test design evaluated its child impact using health-related quality of life measures (Infants' Dermatitis Quality of Life index, which includes a small dermatitis severity element, and Children's Dermatology Life Quality Index), severity measures (Patient Orientated Eczema Measure), a new parental measure (Parental Self-Efficacy in Eczema Care Index) and service impact data based on general practitioner (GP) attendance patterns pre- and postintervention. Results Statistically significant impacts were observed on infant quality of life (P < 0·001), child quality of life (P = 0·027), disease severity (P < 0·001) and parental self-efficacy (P < 0·001). Improvements in child quality of life, parental efficacy and service impact were also evident from qualitative data. The cumulative total of all GP visits for selected participants post-EEP reduced by 62%. Conclusions The EEP appears to be an effective model of delivering structured education to parents of children with eczema, and one generalizable to other multiethnic metropolitan populations. As a noncontrolled study, this rigorous service evaluation highlights the model's significance and the case for an evaluative multicentre randomized controlled trial of this educational intervention to inform a nurse-led programme of care. What's already known about this topic? Effective eczema management depends on support for effective parental engagement. Systematic educational support, whether group multidisciplinary or one-to-one nurse-led intervention, can have a favourable impact on the health-related quality of life and disease severity of children with eczema. What does this study add? This is the first evaluation of an original self-efficacy-based Eczema Education Programme, generating robust noncontrolled evidence that systematic nurse-led group eczema education can favourably impact on the health-related quality of life and disease severity of children with eczema Parental self-efficacy is an important factor that may lead to improved quality of life and should be measured in intervention studies. © 2013 British Association of Dermatologists.

Citation

Ersser, S., Farasat, H., Jackson, K., Dennis, H., Sheppard, Z., & More, A. (2013). A service evaluation of the Eczema Education Programme: an analysis of child, parent and service impact outcomes. British journal of dermatology, 169(3), 629-636 . https://doi.org/10.1111/bjd.12414

Acceptance Date Apr 25, 2013
Online Publication Date Aug 30, 2013
Publication Date 2013-09
Deposit Date Nov 13, 2014
Publicly Available Date Nov 13, 2014
Journal British journal of dermatology
Print ISSN 0007-0963
Electronic ISSN 1365-2133
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 169
Issue 3
Pages 629-636
DOI https://doi.org/10.1111/bjd.12414
Keywords Dermatology
Public URL https://hull-repository.worktribe.com/output/469144
Publisher URL http://onlinelibrary.wiley.com/doi/10.1111/bjd.12414/abstract;jsessionid=594F2B047D58E2D89A692B56F12C556A.f04t04?systemMessage=Wiley+Online+Library+will+be+unavailable+on+Saturday+3rd+September+2016+at+08.30+BST%2F+03%3A30+EDT%2F+15%3A30+SGT+for+5+hours+a
Additional Information Authors' accepted manuscript of article published in: British journal of dermatology, 2013, v.169, issue 3

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