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Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review

Altona, Janissa; Wiegelmann, Henrik; Lenart-Bulga, Marta; Vernooij-Dassen, Myrra; Verspoor, Eline; Seifert, Imke; Misonow, Julia; Szcześniak, Dorota; Rymaszewska, Joanna; Chattat, Rabih; Jeon, Yun Hee; Moniz-Cook, Esme; Roes, Martina; Perry, Marieke; Wolf-Ostermann, Karin

Authors

Janissa Altona

Henrik Wiegelmann

Marta Lenart-Bulga

Myrra Vernooij-Dassen

Eline Verspoor

Imke Seifert

Julia Misonow

Dorota Szcześniak

Joanna Rymaszewska

Rabih Chattat

Yun Hee Jeon

Profile image of Esme Moniz-Cook

Professor Esme Moniz-Cook E.D.Moniz-Cook@hull.ac.uk
Emeritus Professor of Clinical Psychology of Ageing and Dementia Care Research / Dementia Research Work Group Lead

Martina Roes

Marieke Perry

Karin Wolf-Ostermann



Abstract

The concept of social health has recently received increasing attention in dementia research. Various notions of what social health is and how it can be measured are circulating. They may pose challenges for comparing results and interpreting them for the development of interventions. This systematic review aims to classify existing instruments that measure various domains of social health. To achieve this, we applied a new multidimensional framework consisting of six key domains of social health. A systematic review was conducted following the PRISMA 2020 guidelines. PubMed/MEDLINE, PsychINFO, and CINAHL were searched for studies published between January 2000 and July 2023. A total of 227 studies (longitudinal, case–control, and cross-sectional cohort studies) with 102 single instruments were included. The search terms were as follows: (1) dementia (i.e., Alzheimer’s, cognitive impairment); (2) social health markers (i.e., decision-making, social participation, loneliness); and (3) instruments (i.e., tools, measures). The instruments are mainly self-reported, and the number of items ranges from 3 to 126. Despite the wide array of instruments available, most focus on individual domains of social health. We recommend the development of more conceptually robust instruments that can comprehensively evaluate psychosocial interventions and adequately capture all domains of social health.

Citation

Altona, J., Wiegelmann, H., Lenart-Bulga, M., Vernooij-Dassen, M., Verspoor, E., Seifert, I., Misonow, J., Szcześniak, D., Rymaszewska, J., Chattat, R., Jeon, Y. H., Moniz-Cook, E., Roes, M., Perry, M., & Wolf-Ostermann, K. (2024). Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review. Frontiers in Psychiatry, 15, Article 1387192. https://doi.org/10.3389/fpsyt.2024.1387192

Journal Article Type Review
Acceptance Date Oct 16, 2024
Online Publication Date Nov 13, 2024
Publication Date Nov 13, 2024
Deposit Date Dec 27, 2024
Publicly Available Date Jan 3, 2025
Journal Frontiers in Psychiatry
Electronic ISSN 1664-0640
Publisher Frontiers Media
Peer Reviewed Peer Reviewed
Volume 15
Article Number 1387192
DOI https://doi.org/10.3389/fpsyt.2024.1387192
Keywords Social health; Social factors; Dementia; Cognitive decline; Measures
Public URL https://hull-repository.worktribe.com/output/4966635

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0

Copyright Statement
Copyright © 2024 Altona, Wiegelmann, Lenart-Bulga, Vernooij-Dassen, Verspoor, Seifert, Misonow, Szcześniak, Rymaszewska, Chattat, Jeon, Moniz-Cook, Roes, Perry and Wolf-Ostermann. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.




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