Organ Donation Conversations on X and Development of the OrgReach Social Media Marketing Strategy: Social Network Analysis

Ahmed, Wasim; Hardey, Mariann; Vidal-Alaball, Josep

Abstract

Background: The digital landscape has become a vital platform for public health discourse, particularly concerning important topics like organ donation. With a global rise in organ transplant needs, fostering public understanding and positive attitudes toward organ donation is critical. Social media platforms, such as X, contain conversations from the public, and key stakeholders maintain an active presence on the platform.
Objective: The goal is to develop insights into organ donation discussions on a popular social media platform (X) and understand the context in which users discussed organ donation advocacy. We investigate the influence of prominent profiles on X and meta-level accounts, including those seeking health information. We use credibility theory to explore the construction and impact of credibility within social media contexts in organ donation discussions.
Methods: Data were retrieved from X between October 2023 and May 2024, covering a 7-month period. The study was able to retrieve a dataset with 20,124 unique users and 33,830 posts. The posts were analyzed using social network analysis and qualitative thematic analysis. NodeXL Pro was used to retrieve and analyze the data, and a network visualization was created by drawing upon the Clauset-Newman-Moore cluster algorithm and the Harel-Koren Fast Multiscale layout algorithm.
Results: This analysis reveals an “elite tier” shaping the conversation, with themes reflecting existing societal sensitivities around organ donation. We demonstrate how prominent social media profiles act as information intermediaries, navigating the tension between open dialogue and negative perceptions. We use our findings, social credibility theory, and review of existing literature to develop the OrgReach Social Media Marketing Strategy for Organ Donation Awareness. The OrgReach strategy developed is based on 5 C’s (Create, Connect, Collaborate, Correct, and Curate), 2 A’s (Access and Analyse), and 3 R’s (Recognize, Respond, and Reevaluate).
Conclusions: The study highlights the crucial role of analyzing social media data by drawing upon social networks and topic analysis to understand influence and network communication patterns. By doing so, the study proposes the OrgReach strategy that can feed into the marketing strategies for organ donation outreach and awareness.

Citation

Ahmed, W., Hardey, M., & Vidal-Alaball, J. (2025). Organ Donation Conversations on X and Development of the OrgReach Social Media Marketing Strategy: Social Network Analysis. Journal of medical Internet research, 27, Article e59872. https://doi.org/10.2196/59872

• Journal Article Type: Article
• Acceptance Date: Jan 9, 2025
• Online Publication Date: Feb 6, 2025
• Publication Date: Feb 6, 2025
• Deposit Date: Apr 17, 2025
• Publicly Available Date: Apr 17, 2025
• Journal: Journal of Medical Internet Research
• Electronic ISSN: 1438-8871
• Publisher: Journal of Medical Internet Research
• Peer Reviewed: Peer Reviewed
• Volume: 27
• Article Number: e59872
• DOI: https://doi.org/10.2196/59872
• Public URL: https://hull-repository.worktribe.com/output/5131174