All Outputs (23)

Consultant-led UK paediatric palliative care services: Professional configuration, services, funding (2023)
Journal Article
Bedendo, A., Hinde, S., Beresford, B., Papworth, A., Phillips, B., Vasudevan, C., …Fraser, L. (2023). Consultant-led UK paediatric palliative care services: Professional configuration, services, funding. BMJ supportive & palliative care, https://doi.org/10.1136/spcare-2023-004172

Objectives: To systematically gather information on the professional team members, services provided, funding sources and population served for all consultant-led specialised paediatric palliative care (SPPC) teams in the UK. Methods: Two-part online... Read More about Consultant-led UK paediatric palliative care services: Professional configuration, services, funding.

Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study (2023)
Journal Article
Wilson, I., Ukoha-kalu, B. O., Okoeki, M., Clark, J., Boland, J. W., Pask, S., …Murtagh, F. E. (2023). Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study. Journal of Patient Experience, 10, https://doi.org/10.1177/23743735231199827

The UK has a significant and growing population of older adults with frailty and complex healthcare needs, necessitating innovative care solutions. This study aimed to explore patients’ and carers’ experiences of a novel integrated service that was s... Read More about Experiences of a Novel Integrated Service for Older Adults at Risk of Frailty: A Qualitative Study.

Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation (2023)
Journal Article
Coombes, L., Harðardóttir, D., Braybrook, D., Scott, H. M., Bristowe, K., Ellis-Smith, C., …Harding, R. (2023). Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation. Palliative medicine, https://doi.org/10.1177/02692163231205126

Background: There is no validated outcome measure for use in children’s palliative care outside sub-Saharan Africa. Stakeholders must be involved in the development of such measures to ensure face and content validity. Aim: To gain expert stakeholder... Read More about Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation.