Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review

Etkind, Simon Noah; Daveson, Barbara A.; Kwok, Wingfai; Witt, Jana; Bausewein, Claudia; Higginson, Irene J.; Murtagh, Fliss E.M.

doi:10.1016/j.jpainsymman.2014.07.010

All Outputs (147)

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia (2016)
Journal Article
Ellis-Smith, C., Evans, C. J., Murtagh, F. E., Henson, L. A., Firth, A. M., Higginson, I. J., Daveson, B. A., & BuildCARE, O. B. O. (2017). Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliative medicine, 31(7), 651-660. https://doi.org/10.1177/0269216316675096

Background:
Symptom burden is common for long-term care residents with dementia which if untreated compromises quality of life. Measurement tools can support assessment of symptoms and problems but are not widely used in long-term care settings. We d... Read More about Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.

Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36 (2016)
Journal Article
Erez, G., Selman, L., & Murtagh, F. E. (2016). Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(11), 2799-2809. https://doi.org/10.1007/s11136-016-1313-7

© 2016, The Author(s). Purpose: Chronic kidney disease (CKD) negatively affects health-related quality of life (HRQoL), which is often measured using the Medical Outcomes Study Short Form 36 (SF-36) questionnaire. However, the adequacy of SF-36 in th... Read More about Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36.

Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland (2015)
Journal Article
Lowney, A. C., Myles, H. T., Bristowe, K., Lowney, E. L., Shepherd, K., Murphy, M., O'Brien, T., Casserly, L., McQuillan, R., Plant, W. D., Conlon, P. J., Vinen, C., Eustace, J. A., & Murtagh, F. E. (2015). Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland. Journal of pain and symptom management, 50(6), 778-785. https://doi.org/10.1016/j.jpainsymman.2015.07.010

Context: The international cohort of hemodialysis patients is aging and increasing in number. Nephrologists have a therapeutic relationship with their patients that may span decades. Often overlooked components of chronic disease management include s... Read More about Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland.

Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research (2015)
Journal Article
Hussain, J. A., Flemming, K., Murtagh, F. E., & Johnson, M. J. (2015). Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research. Clinical journal of the American Society of Nephrology, 10(7), 1201-1215. https://doi.org/10.2215/cjn.11091114

Background and objectives. To ensure decisions to start and stop dialysis in end stage kidney disease are shared, the factors that affect patients and healthcare professionals in making such decisions need to be understood. This systematic review aim... Read More about Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research.

The population: Who are the subjects in palliative medicine research? (2015)
Book Chapter
Bausewein, C., & Murtagh, F. E. (2015). The population: Who are the subjects in palliative medicine research?. In E. Bruera, I. Higginson, C. F. von Gunten, & T. Morita (Eds.), Textbook of Palliative Medicine and Supportive Care (187-192). London: CRC Press. https://doi.org/10.1201/b17901

Ethics in palliative care research (2015)
Book Chapter
Koffman, J., Stone, K., & Murtagh, F. E. (2015). Ethics in palliative care research. In E. Bruera, I. Higginson, C. F. von Gunten, & T. Morita (Eds.), Textbook of palliative medicine (211-220). (2nd ed.). Boca Raton, Fla.: CRC Press

Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review (2014)
Journal Article
Etkind, S. N., Daveson, B. A., Kwok, W., Witt, J., Bausewein, C., Higginson, I. J., & Murtagh, F. E. (2015). Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review. Journal of pain and symptom management, 49(3), 611-624. https://doi.org/10.1016/j.jpainsymman.2014.07.010

© 2015 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved. Context Patient-centered outcome measures (PCOMs) are an important way of promoting patient-professional communication. However, evidence rega... Read More about Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: Does it make a difference? A systematic review.