Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations

Adenwalla, S. F.; O’Halloran, P.; Faull, C.; Murtagh, F. E. M.; Graham-Brown, M. P. M.

doi:10.1007/s40620-023-01841-3

All Outputs (5)

Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework (2024)
Journal Article
Pask, S., Omoruyi, A., Mohamed, A., Chambers, R. L., McFarlane, P. G., Johansson, T., …Murtagh, F. E. (2024). Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework. Palliative medicine, https://doi.org/10.1177/02692163241242329

Background Telephone advice lines have been recommended internationally to support around-the-clock care for people living at home with advanced illness. While they undoubtedly support care, there is little evidence about what elements are needed fo... Read More about Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework.

What are the anticipated benefits, risks, barriers, and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders (2024)
Journal Article
May Scott, H., Coombes, L., Braybrook, D., Harðardóttir, D., Roach, A., Bristowe, K., …On Behalf Of C-POS. (in press). What are the anticipated benefits, risks, barriers, and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders. Palliative medicine, https://doi.org/10.1177/02692163241234797

Background: There is a growing evidence-base underpinning implementation of person-centred outcome measures into adult palliative care. However evidence on how best to achieve this with children facing life-threatening and life-limiting conditions i... Read More about What are the anticipated benefits, risks, barriers, and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.

Creating more comparable cohorts in observational palliative care studies: a proposed framework to improve applicability and replicability of research (2024)
Journal Article
Kochovska, S., Murtagh, F. E., Agar, M., Phillips, J. L., Dudgeon, D., Lujic, S., …Currow, D. C. (in press). Creating more comparable cohorts in observational palliative care studies: a proposed framework to improve applicability and replicability of research. Palliative medicine, https://doi.org/10.1177/02692163241234227

Background Palliative care is characterised by heterogeneous patient and caregiver populations who are provided care in different health systems and a research base including a large proportion of observational, mostly retrospective studies. The inh... Read More about Creating more comparable cohorts in observational palliative care studies: a proposed framework to improve applicability and replicability of research.

‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition (2024)
Journal Article
Bristowe, K., Braybrook, D., Scott, H. M., Coombes, L., Harðardóttir, D., Roach, A., …Harding, R. (2024). ‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition. Palliative medicine, https://doi.org/10.1177/02692163241233977

Background: Children and young people with life-limiting and life-threatening conditions have multidimensional needs and heterogenous cognitive and communicative abilities. There is limited evidence to support clinicians to tailor their communication... Read More about ‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.

Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations (2024)
Journal Article
Adenwalla, S. F., O’Halloran, P., Faull, C., Murtagh, F. E. M., & Graham-Brown, M. P. M. (2024). Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations. Journal of Nephrology, https://doi.org/10.1007/s40620-023-01841-3

Patients with end-stage kidney disease (ESKD) have a high symptom-burden and high rates of morbidity and mortality. Despite this, evidence has shown that this patient group does not have timely discussions to plan for deterioration and death, and at... Read More about Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations.