All Outputs (39)

Homecare workers needs and experiences in end of life care: rapid review (2024)
Journal Article
Forward, C., Bayley, Z., Walker, L., Krygier, J., White, C., Mwaba, K., Elliott-Button, H., Taylor, P., & Johnson, M. J. (in press). Homecare workers needs and experiences in end of life care: rapid review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/spcare-2023-004737

Background Social homecare workers provide essential care to those living at home at the end of life. In the context of a service experiencing difficulties in attracting and retaining staff, we have limited knowledge about the training, support needs... Read More about Homecare workers needs and experiences in end of life care: rapid review.

Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)) (2024)
Journal Article
Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., Pearson, M., Roberts, H., Taylor, P., Walker, L., White, C., Wray, J., & Johnson, M. J. (2024). Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)). PLoS ONE, 19(2), Article e0298925. https://doi.org/10.1371/journal.pone.0298925

[This corrects the article DOI: 10.1371/journal.pone.0291525.].

Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis (2024)
Journal Article
Kearsley, S. L., Walker, L., Johnson, M. J., & Bravington, A. (2024). Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis. BMJ Supportive & Palliative Care, Article spcare-2024-004855. https://doi.org/10.1136/spcare-2024-004855

Background: COVID-19 overwhelmed healthcare systems worldwide. Its impact on clinical staff is well documented, but little is known about the effects on ancillary staff (cleaners, porters and caterers). Aim: To identify the evidence of the impact of... Read More about Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis.

Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4 (2023)
Journal Article
Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., …Johnson, M. J. (2023). Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4. PLoS ONE, 18(12), Article e0291525. https://doi.org/10.1371/journal.pone.0291525

BACKGROUND: Homecare workers provide essential care at home for people at end-of-life but are often poorly trained and supported. AIM: To explore the experiences and needs of homecare workers and the views of homecare clients and carers, and other co... Read More about Supported: supporting, enabling, and sustaining homecare workers to deliver end-of-life care: a qualitative study 2 protocol 3 4.

Clinician and patient experiences of managing and living with oral and dental manifestations of scleroderma: A scoping review (2023)
Journal Article
Mills, T. J., Price, E., Aggarwal, V. R., Del Galdo, F., & Walker, L. (2023). Clinician and patient experiences of managing and living with oral and dental manifestations of scleroderma: A scoping review. Journal of Scleroderma and Related Disorders, https://doi.org/10.1177/23971983231193515

Oral and dental manifestations of scleroderma are extremely common, yet they are often overlooked within rheumatology and poorly understood within dentistry. Previous research has indicated the need to understand the oral and dental experiences of pe... Read More about Clinician and patient experiences of managing and living with oral and dental manifestations of scleroderma: A scoping review.

Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi (2023)
Journal Article
Lazaro, M. C., Walker, L., & Robson, E. (in press). Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi. African Studies, https://doi.org/10.1080/00020184.2023.2212616

Millions of orphans, created by parental deaths due to the HIV/AIDS pandemic in sub-Saharan Africa, live with, and are cared for, by grandparents. Little research has considered how grandparents and, in particular, grandfathers, are caring for orphan... Read More about Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi.

Expanding the scope of ethical research with and for children and young people–six viewpoints on crisis, cross-cultural working and reciprocity (2023)
Journal Article
Hadfield-Hill, S., Finn, M., Dudman, J., Ergler, C., Freeman, C., Hayes, T. A., …Walker, L. (2023). Expanding the scope of ethical research with and for children and young people–six viewpoints on crisis, cross-cultural working and reciprocity. Children's Geographies, https://doi.org/10.1080/14733285.2023.2259331

“Just because people are old, just because they're ill…” dignity matters in district nursing (2021)
Journal Article
Stevens, E., Price, L., & Walker, L. (2022). “Just because people are old, just because they're ill…” dignity matters in district nursing. The journal of adult protection, 24(1), 3-14. https://doi.org/10.1108/JAP-07-2021-0024

Purpose: This paper aims to explore the concept and practice, of dignity as understood and experienced by older adults and district nursing staff. The paper adds a new, nuanced, understanding of safeguarding possibilities in the context of district n... Read More about “Just because people are old, just because they're ill…” dignity matters in district nursing.

Dressings and dignity in community nursing (2021)
Journal Article
Stevens, E., Price, E., & Walker, L. (2021). Dressings and dignity in community nursing. British Journal of Community Nursing, 26(11), 526-531. https://doi.org/10.12968/bjcn.2021.26.11.526

Although dignity has been widely explored in the context of healthcare, it has rarely been the subject of empirical exploration when care is delivered by community district nursing teams. This paper demonstrates how a commonplace community nursing ta... Read More about Dressings and dignity in community nursing.

Making the mundane remarkable: an ethnography of the ‘dignity encounter’ in community district nursing (2021)
Journal Article
Stevens, E., Price, E., & Walker, E. (in press). Making the mundane remarkable: an ethnography of the ‘dignity encounter’ in community district nursing. Ageing and Society, https://doi.org/10.1017/s0144686x21000738

The concept of dignity is core to community district nursing practice, yet it is profoundly complex with multiple meanings and interpretations. Dignity does not exist absolutely, but, rather, becomes socially (de)constructed through and within social... Read More about Making the mundane remarkable: an ethnography of the ‘dignity encounter’ in community district nursing.

Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study (2021)
Journal Article
Bradshaw, A., Walker, L., Borgstrom, E., & Burke, S. M. (2022). Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study. Qualitative research in sport, exercise and health, 14(1), 84-100. https://doi.org/10.1080/2159676X.2021.1879918

Advanced, incurable disease is a highly stressful and traumatic life event that can lead to losses of social identity, social connectedness, and losses associated with bodily disintegration. The combination of these losses makes it difficult to remai... Read More about Group-based Tai Chi as therapy for alleviating experiences of social death in people with advanced, incurable disease: an ethnographic study.

‘When I asked for help and support it was not there’: current NHS employment practice and its impact on people with systemic lupus erythematosus (2021)
Journal Article
Booth, S., Price, E., & Walker, E. (2021). ‘When I asked for help and support it was not there’: current NHS employment practice and its impact on people with systemic lupus erythematosus. Rheumatology Advances in Practice, 5(1), Article rkab019. https://doi.org/10.1093/rap/rkab019

Objectives
The aim was to investigate whether National Health Service (NHS) employees with SLE, for whom work disability and early retirement are high, are supported effectively in at work.
Methods
An online survey of 393 people with lupus was com... Read More about ‘When I asked for help and support it was not there’: current NHS employment practice and its impact on people with systemic lupus erythematosus.

Is polygyny a risk factor in the transmission of HIV in sub-Saharan Africa? A systematic review (2020)
Journal Article
Gazimbi, M. M., Magadi, M. A., Onyango-Ouma, W., Walker, E., Cresswell, R. B., Kaseje, M., & Wafula, C. O. (2020). Is polygyny a risk factor in the transmission of HIV in sub-Saharan Africa? A systematic review. African journal of reproductive health, 24(4), 198-212. https://doi.org/10.29063/ajrh2020/v24i4.20

Using a systematic literature review approach, this paper focused on the role of polygyny in the spread of HIV/AIDS in sub-Saharan Africa (SSA) countries. The widespread practice of polygyny is one feature of many SSA contexts that may be relevant to... Read More about Is polygyny a risk factor in the transmission of HIV in sub-Saharan Africa? A systematic review.

'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison (2020)
Journal Article
Wilson, M., Johnston, H., & Walker, L. (in press). 'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison. Criminology & criminal Justice, https://doi.org/10.1177/1748895820930755

Using the concept of institutional thoughtlessness, this article examines a range of issues embedded within daily prison life which have a detrimental effect upon the lives of those bereaved during a prison sentence. Drawing on in-depth qualitative r... Read More about 'It was like an animal in pain': Institutional thoughtlessness and bereavement in prison.

Living precarity, enduring bias : exploring the gendered experiences of UK early career academics (2019)
Thesis
Shand, L. E. (2019). Living precarity, enduring bias : exploring the gendered experiences of UK early career academics. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4222554

This research explores the gendered lives of Early Career Academics (ECAs) within the gender regime of the neoliberal university and examines the commonalities and differences of their lived experience. Overall, participants lives were characterised... Read More about Living precarity, enduring bias : exploring the gendered experiences of UK early career academics.

Feeling the benefit : fluctuating illness and the world of welfare (2019)
Journal Article
Price, E., Walker, L., & Booth, S. (2020). Feeling the benefit : fluctuating illness and the world of welfare. Disability and society, 35(8), 1315-1336. https://doi.org/10.1080/09687599.2019.1680346

This article explores the experiences of people living with fluctuating long-term conditions, with a particular focus on the UK welfare benefits system. Respondents in this study suggested that this system constitutes a critical barrier to maintainin... Read More about Feeling the benefit : fluctuating illness and the world of welfare.

Caregiving children in Malawi : children's work within families affected by illness and disability (2019)
Thesis
Kaparounaki, K. (2019). Caregiving children in Malawi : children's work within families affected by illness and disability. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4221903

Chronic illness and disability can result in children caring for sick parents, younger siblings or grandparents. This PhD thesis examines children’s caring responsibilities in rural and urban areas in Malawi. It analyses the emotional aspects of care... Read More about Caregiving children in Malawi : children's work within families affected by illness and disability.

Society, Health and Disease in South Africa (2019)
Book
Gilbert, L., Walker, L., Cooper, S., Lewins, K., Matshedisho, R., Nunez-Carrasco, L., & Selikow, T.-A. (2019). Society, Health and Disease in South Africa. (4th). Wits University Press

The onset of the quadruple burden of disease in South Africa, the challenges faced by the medical establishment to curtail the rapid growth of multiple epidemics, the inadequate response by the state to various inequities in the health system, and th... Read More about Society, Health and Disease in South Africa.

Fluctuation, invisibility, fatigue – the barriers to maintaining employment with systemic lupus erythematosus: results of an online survey (2018)
Journal Article
Walker, E., Price, E., & Booth, S. (2018). Fluctuation, invisibility, fatigue – the barriers to maintaining employment with systemic lupus erythematosus: results of an online survey. Lupus, 27(14), 2284-2291. https://doi.org/10.1177/0961203318808593

© The Author(s) 2018. Objectives: Systemic lupus erythematosus (SLE) is associated with high levels of workplace disability and unemployment. The objective of this study was to understand the reasons for this and to describe the barriers and facilita... Read More about Fluctuation, invisibility, fatigue – the barriers to maintaining employment with systemic lupus erythematosus: results of an online survey.

Grandfathers caring for orphaned grandchildren in rural Southern Malawi : invisible in plain sight? (2018)
Thesis
Lazaro, M. C. (2018). Grandfathers caring for orphaned grandchildren in rural Southern Malawi : invisible in plain sight?. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/4220827

This thesis explores grandfathers’ caregiving for orphaned grandchildren in rural Southern Malawi. Using an ethnographic approach informed by intersectionality and situated within interpretivist framework, children, young people, and adults from rura... Read More about Grandfathers caring for orphaned grandchildren in rural Southern Malawi : invisible in plain sight?.