Feeling the benefit : fluctuating illness and the world of welfare
Price, Elizabeth; Price, Elizabeth; Walker, Liz; Booth, Sara
Dr Liz Price E.Price@hull.ac.uk
Professor Liz Walker E.Walker@hull.ac.uk
Professor of Health and Social Work Research
This article explores the experiences of people living with fluctuating long-term conditions, with a particular focus on the UK welfare benefits system. Respondents in this study suggested that this system constitutes a critical barrier to maintaining a positive work-based identity, being characterised by assessment and decision making processes that are inappropriately focused and inflexibly implemented. Here we report the findings from a cross sectional online study of people aged 18 to 75+, resident in the UK, with a self-reported diagnosis of lupus, arguably, the archetypal fluctuating condition. We explore some of the key themes respondents living with lupus identified in the context of striving to maintain a sense of themselves as productive and functional citizens. We conclude that there is a critical lack of attention afforded to the experience of fluctuating illness within the State benefits system and offer some strategies for better understanding, and addressing, this issue.
|Journal Article Type||Article|
|Journal||Disability & Society|
|Publisher||Taylor & Francis|
|Peer Reviewed||Peer Reviewed|
|APA6 Citation||Price, E., Walker, L., & Booth, S. (2019). Feeling the benefit : fluctuating illness and the world of welfare. Disability and society, 1-22. https://doi.org/10.1080/09687599.2019.1680346|
|Keywords||Lupus; Fluctuation; Welfare benefits; Work-based identity|
|Additional Information||Received: 2019-01-25; Revised: 2019-08-06; Accepted: 2019-09-23; Published: 2019-10-31|
This file is under embargo due to copyright reasons.
Contact E.Price@hull.ac.uk to request a copy for personal use.
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