All Outputs (152)

End-of-life Care and the Human Researcher: The Emotional Impact of Sensitive Research on Researchers (2025)
Book Chapter
Bayley, Z. (2025). End-of-life Care and the Human Researcher: The Emotional Impact of Sensitive Research on Researchers. In P. Liamputtong (Ed.), Handbook of Sensitive Research in the Social Sciences. Edward Elgar Publishing

From Preface:
Conducting sensitive research in the social sciences requires meticulous attention to ethical considerations, methodological rigour, and emotional intelligence. In this comprehensive Handbook, Pranee Liamputtong brings together a diver... Read More about End-of-life Care and the Human Researcher: The Emotional Impact of Sensitive Research on Researchers.

Public and mental health professionals’ perspectives on social media and suicide exposure (2025)
Journal Article
Bell, J., & Westoby, C. (2025). Public and mental health professionals’ perspectives on social media and suicide exposure. BMC public health, 25(1), Article 1380. https://doi.org/10.1186/s12889-025-22587-6

Background
The rapid evolution of social media in recent years has increased public exposure to suicide. While research has highlighted concerns about the role of social media in facilitating harmful discourse and imitative suicidal behaviour, there... Read More about Public and mental health professionals’ perspectives on social media and suicide exposure.

Ebb and Flow: living a life with illness in a remote seaside town. (2024)
Thesis
Hart, E. (2024). Ebb and Flow: living a life with illness in a remote seaside town. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/5086159

This study is an ethnography of a small, remote northern seaside town and its working-age residents with multiple health conditions. The site of the ethnography is Skelsend, a once-popular destination for holidaymakers across the region and beyond. H... Read More about Ebb and Flow: living a life with illness in a remote seaside town..

Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access (2024)
Journal Article
Bayley, Z., & Crowther, L. (2024). Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access. Health and Place, 90, Article 103381. https://doi.org/10.1016/j.healthplace.2024.103381

The examination of hospice settings from the position of space and place is an emerging area of academic interest. Engaging with this perspective, this paper explores how topophilia and topophobia of the physical hospice setting coincides with and in... Read More about Hospice topophilia and topophobia as experienced by a local population: Implications for equity of access.

Understanding impact and factors that improve postvention service delivery: findings from a study of a community-based suicide bereavement support service in England (2024)
Journal Article
Bell, J., Cunnah, K., & Earle, F. (online). Understanding impact and factors that improve postvention service delivery: findings from a study of a community-based suicide bereavement support service in England. Mortality, https://doi.org/10.1080/13576275.2024.2417299

This article reports on a two-year study of a community-based suicide postvention support service in the UK. Attention centres on the implementation of four integrated elements within the service model: multi-agency working with real-time suicide sur... Read More about Understanding impact and factors that improve postvention service delivery: findings from a study of a community-based suicide bereavement support service in England.

Oral health and dental care challenges in scleroderma - perspectives of dentists, rheumatologists and patients (2024)
Journal Article
Mills, T. J., Price, E., Aggarwal, V. R., Del Galdo, F., & Walker, L. (2024). Oral health and dental care challenges in scleroderma - perspectives of dentists, rheumatologists and patients. Rheumatology Advances in Practice, 8(4), Article rkae121. https://doi.org/10.1093/rap/rkae121

Objectives: The oral healthcare challenges of people living with scleroderma are poorly understood, yet frequently reported. This mixed methods study aimed to investigate oral health and dental care challenges associated with scleroderma from the per... Read More about Oral health and dental care challenges in scleroderma - perspectives of dentists, rheumatologists and patients.

“Starting to think that way from the start”: approaching deprescribing decision-making for people accessing palliative care - a qualitative exploration of healthcare professionals views (2024)
Journal Article
Robinson-Barella, A., Richardson, C. L., Bayley, Z., Husband, A., Bojke, A., Bojke, R., Exley, C., Hanratty, B., Elverson, J., Jansen, J., & Todd, A. (in press). “Starting to think that way from the start”: approaching deprescribing decision-making for people accessing palliative care - a qualitative exploration of healthcare professionals views. BMC Palliative Care, 23(1), Article 221. https://doi.org/10.1186/s12904-024-01523-2

Background
Deprescribing has been defined as the planned process of reducing or stopping medications that may no longer be beneficial or are causing harm, with the goal of reducing medication burden while improving patient quality of life. At presen... Read More about “Starting to think that way from the start”: approaching deprescribing decision-making for people accessing palliative care - a qualitative exploration of healthcare professionals views.

Biomarker Driven Antifungal Stewardship (BioDriveAFS) in acute leukaemia—a multi-centre randomised controlled trial to assess clinical and cost effectiveness: a study protocol for a randomised controlled trial (2024)
Journal Article
Flett, L., Abdelatif, R., Akhtar Baz, S., Brady, S., Corbacho, B., Common, K., Cowling, A., Fairhurst, C., Fitzmaurice, E., Gandhi, S., Hilton, A., Hope, W., Howard, A., Laycock, J., Lillie, P., Mitchell, G., Parker, A., Peel, M., Sheard, L., Sneddon, J., …Barlow, G. (2024). Biomarker Driven Antifungal Stewardship (BioDriveAFS) in acute leukaemia—a multi-centre randomised controlled trial to assess clinical and cost effectiveness: a study protocol for a randomised controlled trial. Trials, 25(1), Article 427. https://doi.org/10.1186/s13063-024-08272-w

BACKGROUND: Acute leukaemias (AL) are life-threatening blood cancers that can be potentially cured with treatment involving myelosuppressive, multiagent, intensive chemotherapy (IC). However, such treatment is associated with a risk of serious infect... Read More about Biomarker Driven Antifungal Stewardship (BioDriveAFS) in acute leukaemia—a multi-centre randomised controlled trial to assess clinical and cost effectiveness: a study protocol for a randomised controlled trial.

The HU9 Pilot: Trauma-Informed Education Interventions Report (2024)
Report
Burton, V., Gibson, H., & Donkin, S. (2024). The HU9 Pilot: Trauma-Informed Education Interventions Report. Humberside Office for the Police & Crime Commissioner

Homecare workers needs and experiences in end of life care: rapid review (2024)
Journal Article
Forward, C., Bayley, Z., Walker, L., Krygier, J., White, C., Mwaba, K., Elliott-Button, H., Taylor, P., & Johnson, M. J. (in press). Homecare workers needs and experiences in end of life care: rapid review. BMJ Supportive & Palliative Care, https://doi.org/10.1136/spcare-2023-004737

Background Social homecare workers provide essential care to those living at home at the end of life. In the context of a service experiencing difficulties in attracting and retaining staff, we have limited knowledge about the training, support needs... Read More about Homecare workers needs and experiences in end of life care: rapid review.

The Photobook Project: Empowerment through creativity (2024)
Journal Article
Robinson-Carter, E. (2024). The Photobook Project: Empowerment through creativity. Journal of Dementia Care, 32(1), 23-25

The Photobook Project empowers people living with dementia through creative practice and research www.the-photobook-project.com. The project uses single-use cameras to invite people with dementia and their carers to document their current experience... Read More about The Photobook Project: Empowerment through creativity.

Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)) (2024)
Journal Article
Bayley, Z., Bothma, J., Bravington, A., Forward, C., Hussain, J., Manthorpe, J., Pearson, M., Roberts, H., Taylor, P., Walker, L., White, C., Wray, J., & Johnson, M. J. (2024). Erratum: Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol (PloS one (2023) 18 12 (e0291525)). PLoS ONE, 19(2), Article e0298925. https://doi.org/10.1371/journal.pone.0298925

[This corrects the article DOI: 10.1371/journal.pone.0291525.].

Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis (2024)
Journal Article
Kearsley, S. L., Walker, L., Johnson, M. J., & Bravington, A. (2024). Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis. BMJ Supportive & Palliative Care, Article spcare-2024-004855. https://doi.org/10.1136/spcare-2024-004855

Background: COVID-19 overwhelmed healthcare systems worldwide. Its impact on clinical staff is well documented, but little is known about the effects on ancillary staff (cleaners, porters and caterers). Aim: To identify the evidence of the impact of... Read More about Ancillary hospital workers experience during COVID-19: systematic review and narrative synthesis.

What is the effect of intergenerational activities on the wellbeing and mental health of older people?: A systematic review (2023)
Journal Article
Whear, R., Campbell, F., Rogers, M., Sutton, A., Robinson-Carter, E., Sharpe, R., Cohen, S., Fergy, R., Garside, R., Kneale, D., Melendez-Torres, G. J., & Thompson-Coon, J. (2023). What is the effect of intergenerational activities on the wellbeing and mental health of older people?: A systematic review. Campbell Systematic Reviews, 19(4), Article e1355. https://doi.org/10.1002/cl2.1355

Background: Opportunities for social connection between generations have diminished over the last few decades around the world as a result of changes in the way that we live and work. The COVID-19 pandemic has exacerbated loneliness for many with you... Read More about What is the effect of intergenerational activities on the wellbeing and mental health of older people?: A systematic review.

Understanding the Communicative Ecology and Impact of Social Media following a Suspected Suicide (2023)
Presentation / Conference Contribution
Bell, J., & Westoby, C. (2023, September). Understanding the Communicative Ecology and Impact of Social Media following a Suspected Suicide. Presented at International Association for Suicide Prevention 32nd World Congress, Piran, Slovenia

Background: The proliferation of social media platforms in recent years has expanded and complicated the communicative ecology of suicide-related internet use. There is a wide gap in the literature when it comes to a deeper understanding of the issue... Read More about Understanding the Communicative Ecology and Impact of Social Media following a Suspected Suicide.

Identifying Good Practice in a Community-based Postvention Support Service: Findings from a Mixed Methods Evaluation study in the UK (2023)
Presentation / Conference Contribution
Bell, J., & Kent, J. (2023, September). Identifying Good Practice in a Community-based Postvention Support Service: Findings from a Mixed Methods Evaluation study in the UK. Presented at IASP 32nd World Congress, Piran, Slovenia

Background: This paper reports on a two-year evaluation of a community-based postvention support service in the UK.

Aims: To identify factors that help to improve service delivery (1); to understand the needs of those affected following a suicide... Read More about Identifying Good Practice in a Community-based Postvention Support Service: Findings from a Mixed Methods Evaluation study in the UK.

Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi (2023)
Journal Article
Lazaro, M. C., Walker, L., & Robson, E. (in press). Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi. African Studies, https://doi.org/10.1080/00020184.2023.2212616

Millions of orphans, created by parental deaths due to the HIV/AIDS pandemic in sub-Saharan Africa, live with, and are cared for, by grandparents. Little research has considered how grandparents and, in particular, grandfathers, are caring for orphan... Read More about Invisible in Plain Sight? Grandfathers Caring for Orphaned Grandchildren in Rural Malawi.

Non-familial intergenerational interventions and their impact on social and mental wellbeing of both younger and older people—A mapping review and evidence and gap map (2023)
Journal Article
Campbell, F., Whear, R., Rogers, M., Sutton, A., Robinson-Carter, E., Barlow, J., Sharpe, R., Cohen, S., Wolstenholme, L., & Thompson-Coon, J. (2023). Non-familial intergenerational interventions and their impact on social and mental wellbeing of both younger and older people—A mapping review and evidence and gap map. Campbell Systematic Reviews, 19(1), Article e1306. https://doi.org/10.1002/cl2.1306

Background: Opportunities for social connection between generations in the UK have diminished over the last few decades because of changes in the way that we live and work. The decline in communal spaces such as libraries, youth clubs and community c... Read More about Non-familial intergenerational interventions and their impact on social and mental wellbeing of both younger and older people—A mapping review and evidence and gap map.

A case study of lived experience of the implementation of Child Rights Act 2003 In Nigeria (2023)
Thesis
Ikeh, N. C. A case study of lived experience of the implementation of Child Rights Act 2003 In Nigeria. (Thesis). University of Hull. https://hull-repository.worktribe.com/output/4260904

Child rights abuses continue to occur in Nigeria despite the domestication of the global child rights treaty. Some state governments have refused to adopt the Child Rights Act (CRA 2003), which is a requirement for it to become operational. Fur... Read More about A case study of lived experience of the implementation of Child Rights Act 2003 In Nigeria.

Expanding the scope of ethical research with and for children and young people–six viewpoints on crisis, cross-cultural working and reciprocity (2023)
Journal Article
Hadfield-Hill, S., Finn, M., Dudman, J., Ergler, C., Freeman, C., Hayes, T. A., Jarman, P., Leon, L., Lazaro, M. C., Latai-Niusulu, A., Oza, E., Robson, E., Rosen, R., Schaaf, M., Taua’a, S., Tanielu, H., & Walker, L. (2023). Expanding the scope of ethical research with and for children and young people–six viewpoints on crisis, cross-cultural working and reciprocity. Children's Geographies, https://doi.org/10.1080/14733285.2023.2259331