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Living well with breathlessness: how clinicians can help (2018)
Journal Article
Hutchinson, A., Galvin, K., & Johnson, M. (2019). Living well with breathlessness: how clinicians can help. The British journal of general practice : the journal of the Royal College of General Practitioners, 69(678), 26-27. doi:10.3399/bjgp19X700505

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Breathlessness in the emergency care setting (2018)
Journal Article
Johnson, M. J., & Hutchinson, A. (2018). Breathlessness in the emergency care setting. Current opinion in supportive and palliative care, 12(3), 232-236. doi:10.1097/SPC.0000000000000374

Abstract Purpose of review Breathlessness is one of the most common reasons for presentation at the emergency department (ED). The present review summarizes work published from 2017, which focuses on the symptom of breathlessness in its own right rat... Read More

Primary care redesign for person-centred care: Delivering an international generalist revolution (2018)
Journal Article
Reeve, J. (2018). Primary care redesign for person-centred care: Delivering an international generalist revolution. Australian journal of primary health, 24(4), 330-336. doi:10.1071/py18019

© La Trobe University. Person-centred primary care is a priority for patients, healthcare practitioners and health policy. Despite this, data suggest person-centred care is still not consistently achieved-and indeed, that in some areas, care may be w... Read More

Does early intervention improve outcomes in the physiotherapy management of lumbar radicular syndrome? Results of the POLAR pilot randomised controlled trial (2018)
Journal Article
Reddington, M., Walters, S. J., Cohen, J., Baxter, S. K., & Cole, A. (2018). Does early intervention improve outcomes in the physiotherapy management of lumbar radicular syndrome? Results of the POLAR pilot randomised controlled trial. BMJ open, 8(7), doi:10.1136/bmjopen-2018-021631

© Author(s) (or their employer(s)) 2018. Re-use permitted under CC BY. Published by BMJ. Objective To investigate the feasibility of undertaking a definitive randomised controlled trial (RCT). Setting This was a pilot, pragmatic superiority RCT with... Read More

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis (2018)
Journal Article
Cooper, E., Hutchinson, A., Sheikh, Z., Taylor, P., Townend, W., & Johnson, M. J. (2018). Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Palliative medicine, 32(9), 1443-1454. doi:10.1177/0269216318783920

Background: Despite a fast-paced environment, the emergency clinician has a duty to meet the palliative patient's needs. Despite suggested models and interventions, this remains challenging in practice. Aim: To increase understanding of these challen... Read More

Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis (2018)
Journal Article
Wakefield, D., Bayly, J., Selman, L. E., Firth, A. M., Higginson, I. J., & Murtagh, F. E. (2018). Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis. Palliative medicine, 32(8), 1288-1304. doi:10.1177/0269216318783919

© The Author(s) 2018. Background: Patient empowerment, defined as ‘a process through which people gain greater control over decisions and actions affecting their health’ (World Health Organization) is a key theme within global health and social care... Read More

Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing (2018)
Journal Article
Ekström, M., Johnson, M. J., Taylor, B., Luszcz, M., Wohland, P., Ferreira, D. H., & Currow, D. C. (2018). Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing. NPJ Primary Care Respiratory Medicine, 28(1), doi:10.1038/s41533-018-0090-x

© 2018 The Author(s). Sexual activity is important to older adults (65 +). Breathlessness affects about 25% of older adults but impact on sexual activity is unknown. We evaluated the relationships between breathlessness and sexual inactivity and self... Read More

Symptom prevalence of patients with fibrotic interstitial lung disease: A systematic literature review (2018)
Journal Article
Carvajalino, S., Reigada, C., Johnson, M. J., Dzingina, M., & Bajwah, S. (2018). Symptom prevalence of patients with fibrotic interstitial lung disease: A systematic literature review. BMC Pulmonary Medicine, 18(1), doi:10.1186/s12890-018-0651-3

© 2018 The Author(s). Background: Those affected by advanced fibrotic interstitial lung diseases have limited treatment options and in the terminal stages, the focus of care is on symptom management. However, quantitatively, little is known about sym... Read More

Influences on care preferences of older people with advanced illness: a systematic review and thematic synthesis (2018)
Journal Article
Etkind, S. N., Bone, A. E., Lovell, N., Higginson, I. J., & Murtagh, F. E. (2018). Influences on care preferences of older people with advanced illness: a systematic review and thematic synthesis. Journal of the American Geriatrics Society, 66(5), 1031-1039. doi:10.1111/jgs.15272

Objectives To determine and explore the influences on care preferences of older people with advanced illness and integrate our results into a model to guide practice and research. Design Systematic review using Medline, Embase, PsychINFO, Web of S... Read More

Social and clinical determinants of preferences and their achievement at the end of life: Prospective cohort study of older adults receiving palliative care in three countries (2017)
Journal Article
Higginson, I. J., Bennett, E., Daveson, B. A., Cooper, F., Morrison, R. S., Daveson, B., …Y, D. (2017). Social and clinical determinants of preferences and their achievement at the end of life: Prospective cohort study of older adults receiving palliative care in three countries. BMC Geriatrics, 17(1), doi:10.1186/s12877-017-0648-4

© 2017 The Author(s). Background: Achieving choice is proposed as a quality marker. But little is known about what influences preferences especially among older adults. We aimed to determine and compare, across three countries, factors associated wit... Read More

A pragmatic, phase III, multisite, double-blind, placebo-controlled, parallel-arm, dose increment randomised trial of regular, low-dose extended-release morphine for chronic breathlessness: Breathlessness, Exertion And Morphine Sulfate (BEAMS) study proto (2017)
Journal Article
Currow, D., Watts, G. J., Johnson, M., McDonald, C. F., Miners, J. O., Somogyi, A. A., …Ekström, M. (2017). A pragmatic, phase III, multisite, double-blind, placebo-controlled, parallel-arm, dose increment randomised trial of regular, low-dose extended-release morphine for chronic breathlessness: Breathlessness, Exertion And Morphine Sulfate (BEAMS) study protocol. BMJ open, 7(7), 1-18. doi:10.1136/bmjopen-2017-018100

© Article author(s). Introduction Chronic breathlessness is highly prevalent and distressing to patients and families. No medication is registered for its symptomatic reduction. The strongest evidence is for regular, low-dose, extended-release (ER) o... Read More

What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study (2017)
Thesis
Hutchinson, A. (2016). What influences the presentation of patients with chronic breathlessness to the Emergency Department? A mixed methods study. (Thesis). University of Hull. Retrieved from https://hull-repository.worktribe.com/output/497045

Background: Chronic breathlessness is a common and distressing symptom of many long-term cardiorespiratory conditions and cancers which are highly prevalent in both the UK and worldwide. It is associated with presentation to the emergency department... Read More

A systematic review of the effectiveness of palliative interventions to treat rectal tenesmus in cancer (2017)
Journal Article
Ní Laoire, Á., Fettes, L., & Murtagh, F. E. (2017). A systematic review of the effectiveness of palliative interventions to treat rectal tenesmus in cancer. Palliative medicine, 31(10), 975-981. doi:10.1177/0269216317697897

Background: Rectal tenesmus is a distressing symptom in patients with advanced cancer and challenging to treat. There is lack of consensus on the appropriate management of tenesmus in this patient population. Aim: To identify and examine the effecti... Read More

Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study (2017)
Journal Article
Howell, D., Smith, A., Appleton, S., Bagguley, T., Macleod, U., Cook, G., …Roman, E. (2017). Multiple myeloma: routes to diagnosis, clinical characteristics and survival - findings from a UK population-based study. British journal of haematology, 177(1), 67-71. doi:10.1111/bjh.14513

Prompt cancer diagnosis may align UK survival with European averages. We examined the impact of route to diagnosis on survival for multiple myeloma patients diagnosed 2012–2013 using data from our population-based patient cohort that links to nationa... Read More

Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review (2015)
Journal Article
Chen, H., Nicolson, D. J., MacLeod, U., Allgar, V., Dalgliesh, C., & Johnson, M. (2016). Does the use of specialist palliative care services modify the effect of socioeconomic status on place of death? A systematic review. Palliative medicine, 30(5), 434-445. doi:10.1177/0269216315602590

© SAGE Publications. Background: Cancer patients in lower socioeconomic groups are significantly less likely to die at home and experience more barriers to access to palliative care. It is unclear whether receiving palliative care may mediate the eff... Read More

The expanding role of primary care in cancer control (2015)
Journal Article
Rubin, G., Berendsen, A., Crawford, S. M., Dommett, R., Earle, C., Emery, J., …Zimmermann, C. (2015). The expanding role of primary care in cancer control. The lancet oncology, 16(12), 1231-1272. doi:10.1016/S1470-2045(15)00205-3

© 2015 Elsevier Ltd. The nature of cancer control is changing, with an increasing emphasis, fuelled by public and political demand, on prevention, early diagnosis, and patient experience during and after treatment. At the same time, primary care is i... Read More

More than putting on a performance in commercial homes: merging family practices and critical hospitality studies (2015)
Journal Article
Seymour, J. (2015). More than putting on a performance in commercial homes: merging family practices and critical hospitality studies. Annals of leisure research, 18(3), 414-430. doi:10.1080/11745398.2015.1078247

Critical hospitality studies and family studies have shown a developing theoretical convergence predicated by the ‘social turn’ in the study of hospitality. Recent hospitality research on ‘Commercial Homes’ has drawn strongly on Goffman's concept of... Read More

Chronic kidney disease in Nigeria: an evaluation of the spatial accessibility to healthcare for diagnosed cases in Edo State (2015)
Journal Article
Oviasu, O., Rigby, J. E., & Ballas, D. (2015). Chronic kidney disease in Nigeria: an evaluation of the spatial accessibility to healthcare for diagnosed cases in Edo State. Journal of Public Health in Africa, 6(1), 40-44. https://doi.org/10.4081/jphia.2015.394

Chronic kidney disease (CKD) is a growing problem in Nigeria, presenting challenges to the nation’s health and economy. This study evaluates the accessibility to healthcare in Edo State of CKD patients diagnosed between 2006 and 2009. Using cost anal... Read More

Palliative care for people with non-malignant lung disease: summary of current evidence and future direction (2013)
Journal Article
Boland, J., Martin, J., & Wells, A. U. (2013). Palliative care for people with non-malignant lung disease: summary of current evidence and future direction. Palliative medicine, 27(9), 811-816. doi:10.1177/0269216313493467

Background: The physical and psychosocial needs of patients with chronic non-malignant lung disease are comparable to those with lung cancer. This article will focus on chronic obstructive pulmonary disease, interstitial lung disease and cystic fibro... Read More

Developing a service for patients with very severe chronic obstructive pulmonary disease (COPD) within resources (2013)
Journal Article
Boland, J., Owen, J., Ainscough, R., & Mahdi, H. (2014). Developing a service for patients with very severe chronic obstructive pulmonary disease (COPD) within resources. BMJ supportive & palliative care, 4(2), 196-201. doi:10.1136/bmjspcare-2012-000393

Chronic obstructive pulmonary disease (COPD) is a common life-limiting illness with significant burden for patient and carer. Despite this, access to supportive and specialist palliative care is inconsistent and implementation of published good pract... Read More