All Outputs (27)

Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review (2024)
Journal Article
Marshall, J., Papavasiliou, E., Fox, C., Hawkes, M., Irvine, A., Moniz-Cook, E., …Cross, J. L. (2024). Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review. BMJ open, 14(4), Article e080551. https://doi.org/10.1136/bmjopen-2023-080551

Introduction Dementia is a complex medical condition that poses significant challenges to healthcare systems and support services. People living with dementia (PLWD) and their carers experience complex needs often exacerbated by social isolation an... Read More about Social prescribing for people living with dementia (PLWD) and their carers: what works, for whom, under what circumstances and why – protocol for a complex intervention systematic review.

Caring from a distance – carers’ experiences of keeping in touch with care home residents during COVID-19 closures. (2022)
Journal Article
White, C., Wray, J., Whitfield, C., & Wolverson, E. (2022). Caring from a distance – carers’ experiences of keeping in touch with care home residents during COVID-19 closures. International Journal of Care and Caring, https://doi.org/10.1332/239788221X16666566787347

In response to COVID-19 many care homes (CHs) closed to visitors, and new ways for carers and residents to stay in touch were tried. This UK study employed an online survey to explore carer experiences of staying in touch from a distance. The researc... Read More about Caring from a distance – carers’ experiences of keeping in touch with care home residents during COVID-19 closures..

Extending understanding of ‘care’ as an embodied phenomenon: Alexander Technique teacher perspectives on restoring carers to themselves (2022)
Journal Article
Woods, C., Wolverson, E., & Glover, L. (2023). Extending understanding of ‘care’ as an embodied phenomenon: Alexander Technique teacher perspectives on restoring carers to themselves. International Journal of Care and Caring, 7(3), 527-543. https://doi.org/10.1332/239788221X16643644394404

Data from an international survey of teachers of the Alexander Technique – an embodied form of self-care – illustrate their perspectives on how the Alexander Technique supports caring by combatting carer self-loss. Understanding of care as an embodie... Read More about Extending understanding of ‘care’ as an embodied phenomenon: Alexander Technique teacher perspectives on restoring carers to themselves.

’I am teaching them and they are teaching me’: Experiences of teaching Alexander Technique to people with dementia (2022)
Journal Article
Wolverson, E., Glover, L., & Woods, C. (2022). ’I am teaching them and they are teaching me’: Experiences of teaching Alexander Technique to people with dementia. European Journal of Integrative Medicine, 56, Article 102200. https://doi.org/10.1016/j.eujim.2022.102200

Introduction: To enable people with dementia to live well we must support the person as a whole. The Alexander Technique (AT) offers an approach which addresses both physical and psychological issues which may be suitable to help people with dementia... Read More about ’I am teaching them and they are teaching me’: Experiences of teaching Alexander Technique to people with dementia.

Conceptualising comorbidity and multimorbidity in dementia: A scoping review and syndemic framework (2022)
Journal Article
Dunn, R., Clayton, E., Wolverson, E., & Hilton, A. (2022). Conceptualising comorbidity and multimorbidity in dementia: A scoping review and syndemic framework. Journal of Multimorbidity and Comorbidity, 12, https://doi.org/10.1177/26335565221128432

Background Older people and people with dementia experience a high prevalence of multiple health conditions. The terms ‘comorbidity’ and ‘multimorbidity’ are often used interchangeably to describe this, however there are key conceptual differences b... Read More about Conceptualising comorbidity and multimorbidity in dementia: A scoping review and syndemic framework.

What is intended by the term participation and what does it mean to people living with dementia? A conceptual overview and directions for future research (2022)
Journal Article
Wolverson, E., Smith, S. K., & Mountain, G. (2022). What is intended by the term participation and what does it mean to people living with dementia? A conceptual overview and directions for future research. Frontiers in Rehabilitation Sciences, 3, Article 952722. https://doi.org/10.3389/fresc.2022.952722

Policy continues to emphasise the importance of wellbeing in dementia. However, there is a vital need for psychosocial interventions that can promote positive outcomes to enhance “living well with dementia”. Our developing understanding of what peopl... Read More about What is intended by the term participation and what does it mean to people living with dementia? A conceptual overview and directions for future research.

Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review (2022)
Journal Article
Bennett, J., Wolverson, E., & Price, L. (2022). Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review. Dementia, https://doi.org/10.1177/14713012221117896

Objective: Depsite the growing awareness of the importance of engagement with the natural world for people living with dementia, little is known about the impact specifically for people living independently in their own home. This review identifies,... Read More about Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review.

Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey (2022)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., & Dunning, R. (2022). Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey. Age and ageing, 51(3), Article afac047. https://doi.org/10.1093/ageing/afac047

OBJECTIVE: following the #BanBPSD campaign there has been critical interest in common terminology used for 'changes in behaviour' associated with dementia. However, commentaries and emerging studies have not fully considered family carer perspectives... Read More about Family carer perspectives on the language of behaviour change in dementia: an online mixed methods survey.

Self-Care for Family Carers: Can the Alexander Technique Help? (2022)
Journal Article
Wolverson, E., Glover, L., & Clappison, D. J. (2022). Self-Care for Family Carers: Can the Alexander Technique Help?. Complementary Therapies in Clinical Practice, 46, Article 101546. https://doi.org/10.1016/j.ctcp.2022.101546

Background and purpose: Caring for a family member who is living with dementia can be incredibly challenging. Interventions to support family carers are vital and so carers should be supported to care for themselves and to maintain their own sense of... Read More about Self-Care for Family Carers: Can the Alexander Technique Help?.

The Meaning and Experience of Gratitude for People Living with Dementia (2021)
Journal Article
Pearson, M., Clarke, C., & Wolverson, E. (2022). The Meaning and Experience of Gratitude for People Living with Dementia. Dementia, 21(1), 335-352. https://doi.org/10.1177/14713012211040675

Rationale Supporting people to live well with dementia is an international government priority. People living with dementia experience a range of positive emotions despite the challenges associated with dementia. Further research is needed to explor... Read More about The Meaning and Experience of Gratitude for People Living with Dementia.

The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs (2021)
Journal Article
Wolverson, E., White, C., Dunn, R., Cunnah, K., Howe, D., Paulson, K., …Thorpe, J. (2022). The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs. Dementia, 21(1), 94-113. https://doi.org/10.1177/14713012211028495

Background: Current policy emphasises the role of digital technologies in facilitating the management of long-term conditions. While digital resources have been developed for carers, there has been little attention to their development for people wit... Read More about The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs.

The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia (2021)
Journal Article
Wolverson, E., Moniz-Cook, E., Dunn, R., Gove, D., & Diaz-Ponce, A. (2021). The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia. Journal of advanced nursing, 77(4), 1992-2001. https://doi.org/10.1111/jan.14787

Aims: The aim of this study was to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia. Design: This study adopted a human rights approach in a mixed methods convergent paral... Read More about The language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia.

Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse (2020)
Journal Article
Sweeney, L., Wolverson, E., & Clarke, C. (2021). Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse. Dementia, 20(5), 1791–1813. https://doi.org/10.1177/1471301220970403

Introduction Life story books in dementia are used as a part of person-centred care. Whilst the current literature demonstrates associations between completing life story books and increased well-being, little is known about the process and how it i... Read More about Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse.

The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support (2020)
Journal Article
White, C., Wolverson, E., Dunn, R., & Zafeiridi, E. (2020). The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support. International Journal of Care and Caring, 4(4), 549-571. https://doi.org/10.1332/239788220X15934528490504

© Policy Press 2020. This article reports on research into the development of a website (Caregiverspro-MMD) intended for carers and people living with dementia. Carers, people living with dementia and healthcare practitioners were invited to explore... Read More about The views of carers, people living with dementia and healthcare practitioners about the value of online information and peer support.

The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data (2020)
Journal Article
Laura, S., Clarke, C., & Wolverson, E. (in press). The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data. Dementia, 20(4), 1470–1495. https://doi.org/10.1177/1471301220929534

Background Everyday technologies, such as laptops and tablets, are often used for enjoyment, pleasure, leisure and social participation. Despite this, whilst considerable research has investigated exploring people’s experiences of using assistive te... Read More about The use of everyday technologies to enhance wellbeing and enjoyment for people living with dementia: A systematic literature review and narrative synthesis grounded in qualitative data.

Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study (2020)
Journal Article
Conway, L., Wolverson, E. L., & Clarke, C. (2020). Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study. Frontiers in Medicine, 7, Article 219. https://doi.org/10.3389/fmed.2020.00219

Resilience is a concept which may help explain how older people are able to live well with dementia. Existing resilience research in dementia focuses on the caregiver and relatively little is known about how dyads (person with dementia and care partn... Read More about Shared experiences of resilience amongst couples where one partner is living with dementia - a grounded theory study.

Resilience in older people living with dementia – A narrative analysis (2020)
Journal Article
Buggins, S., Clarke, C., & Wolverson, E. (2021). Resilience in older people living with dementia – A narrative analysis. Dementia, 20(4), 1234-1249. https://doi.org/10.1177/1471301220927614

Dominant discourses surrounding dementia tend to focus on narratives of loss and decline. Simultaneously, individuals living with dementia are vulnerable to being dispossessed of personal narratives supportive of identity and well-being. How older pe... Read More about Resilience in older people living with dementia – A narrative analysis.

Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice) (2019)
Journal Article
Cunnah, K., Howe, D., Thorpe, J., Dunn, R., Platt, R., White, C., …Wolverson, E. (2021). Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice). Dementia, 20(2), 796–806. https://doi.org/10.1177/1471301219887592

Little is known about the training and support people with dementia and their carers need to use digital solutions. This paper shares learning from a bespoke programme that successfully trained people with dementia or mild cognitive impairment and th... Read More about Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice).

The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness (2019)
Journal Article
Howe, D., Thorpe, J., Dunn, R., White, C., Cunnah, K., Platt, R., …Wolverson, E. (2019). The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of applied gerontology, 39(12), 1303-1312. https://doi.org/10.1177/0733464819885326

People living with dementia or cognitive impairment (PwD) and their carers often have unmet needs for informational and social support postdiagnosis. Web-based platforms have the potential to address these needs, although few have been developed for... Read More about The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness.

Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives (2019)
Journal Article
Wolverson, E., Birtles, H., Moniz-Cook, E., James, I., Brooker, D., & Duffy, F. (2019). Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives. OBM geriatrics, 3(4), 1-19. https://doi.org/10.21926/obm.geriatr.1904080

Background: Behavioural and Psychological Symptoms of Dementia and Challenging Behaviour in dementia are just two of a variety of terms for a complex paradigm that covers the most distressing and costly aspects of the condition. The terminology used... Read More about Naming and Framing the Behavioural and Psychological Symptoms of Dementia (BPSD) Paradigm: Professional Stakeholder Perspectives.