All Outputs (88)

Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations (2017)
Journal Article
Webster, L., Groskreutz, D., Grinbergs-Saull, A., Howard, R., O’Brien, J. T., Mountain, G., …Livingston, G. (2017). Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations. Health Technology Assessment, 21(26), 1-192. https://doi.org/10.3310/hta21260

© Queen’s Printer and Controller of HMSO 2017. Background: There is currently no disease-modifying treatment available to halt or delay the progression of the disease pathology in dementia. An agreed core set of the best-available and most appropriat... Read More about Development of a core outcome set for disease modification trials in mild to moderate dementia: A systematic review, patient and public consultation and consensus recommendations.

How many people will need palliative care in 2040? Past trends, future projections and implications for services (2017)
Journal Article
Etkind, S. N., Bone, A. E., Gomes, B., Lovell, N., Evans, C. J., Higginson, I. J., & Murtagh, F. E. M. (2017). How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC medicine, 15(1), https://doi.org/10.1186/s12916-017-0860-2

Background: Current estimates suggest that approximately 75% of people approaching the end-of-life may benefit from palliative care. The growing numbers of older people and increasing prevalence of chronic illness in many countries mean that more peo... Read More about How many people will need palliative care in 2040? Past trends, future projections and implications for services.

Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study (2017)
Journal Article
Kane, P. M., Murtagh, F. E., Ryan, K. R., Brice, M., Mahon, N. G., McAdam, B., …on behalf of BuildCARE. (2018). Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study. Palliative medicine, 32(2), 517-524. https://doi.org/10.1177/0269216317706426

Background: Recruitment challenges contribute to the paucity of palliative care research with advanced chronic heart failure patients. Aim: To describe the challenges and outline strategies of recruiting advanced chronic heart failure patients. Des... Read More about Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study.

Development of a patient-reported palliative care-specific health classification system: the POS-E (2017)
Journal Article
Murtagh, F. E. M., Murtagh, F. E., Dzingina, M., Higginson, I. J., McCrone, P., & Murtagh, F. (2017). Development of a patient-reported palliative care-specific health classification system: the POS-E. Patient, 10(3), 353-365. https://doi.org/10.1007/s40271-017-0224-1

Background Generic preference-based measures are commonly used to estimate quality-adjusted life-years (QALYs) to inform resource-allocation decisions. However, concerns have been raised that generic measures may be inappropriate in palliative care.... Read More about Development of a patient-reported palliative care-specific health classification system: the POS-E.

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia (2016)
Journal Article
Ellis-Smith, C., Evans, C. J., Murtagh, F. E., Henson, L. A., Firth, A. M., Higginson, I. J., …BuildCARE, O. B. O. (2017). Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliative medicine, 31(7), 651-660. https://doi.org/10.1177/0269216316675096

Background: Symptom burden is common for long-term care residents with dementia which if untreated compromises quality of life. Measurement tools can support assessment of symptoms and problems but are not widely used in long-term care settings. We d... Read More about Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.

Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36 (2016)
Journal Article
Erez, G., Selman, L., & Murtagh, F. E. (2016). Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(11), 2799-2809. https://doi.org/10.1007/s11136-016-1313-7

© 2016, The Author(s). Purpose: Chronic kidney disease (CKD) negatively affects health-related quality of life (HRQoL), which is often measured using the Medical Outcomes Study Short Form 36 (SF-36) questionnaire. However, the adequacy of SF-36 in th... Read More about Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36.

Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland (2015)
Journal Article
Lowney, A. C., Myles, H. T., Bristowe, K., Lowney, E. L., Shepherd, K., Murphy, M., …Murtagh, F. E. (2015). Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland. Journal of pain and symptom management, 50(6), 778-785. https://doi.org/10.1016/j.jpainsymman.2015.07.010

Context: The international cohort of hemodialysis patients is aging and increasing in number. Nephrologists have a therapeutic relationship with their patients that may span decades. Often overlooked components of chronic disease management include s... Read More about Understanding What Influences the Health-Related Quality of Life of Hemodialysis Patients: A Collaborative Study in England and Ireland.

Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research (2015)
Journal Article
Hussain, J. A., Flemming, K., Murtagh, F. E., & Johnson, M. J. (2015). Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research. Clinical journal of the American Society of Nephrology, 10(7), 1201-1215. https://doi.org/10.2215/cjn.11091114

Background and objectives. To ensure decisions to start and stop dialysis in end stage kidney disease are shared, the factors that affect patients and healthcare professionals in making such decisions need to be understood. This systematic review aim... Read More about Patient and health care professional decision-making to commence and withdraw from renal dialysis: A systematic review of qualitative research.