All Outputs (440)

Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache (2018)
Journal Article
Buture, A., Ahmed, F., Dikomitis, L., & Boland, J. W. (2018). Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache. Neurological Sciences, 40(1), 25–39. https://doi.org/10.1007/s10072-018-3598-5

Introduction Patients with cluster headache (CH), the most common trigeminal autonomic cephalalgia, often face delayed diagnosis, misdiagnosis and mismanagement. Objectives To identify, appraise and synthesise clinical studies on the delays in diagn... Read More about Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache.

Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial (2018)
Journal Article
Brand, S. L., Quinn, C., Pearson, M., Lennox, C., Owens, C., Kirkpatrick, T., …Byng, R. (2019). Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial. Evaluation, 25(2), 149-170. https://doi.org/10.1177/1356389018802134

Medical Research Council guidelines recognise the need to optimise complex interventions prior to full trial through greater understanding of underlying theory and formative process evaluation, yet there are few examples. A realist approach to format... Read More about Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial.

Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study (2018)
Journal Article
Pinto, C., Bristowe, K., Witt, J., Davies, J. M., de Wolf-Linder, S., Dawkins, M., …Murtagh, F. E. (2018). Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study. Annals of palliative medicine, 7(s3), S137-S150. https://doi.org/10.21037/apm.2018.09.02

Background: Routine use of outcome measures in palliative care is recommended to demonstrate and improve quality of care. The use of outcome measures is relatively recent in UK specialist palliative care services and understanding their use in practi... Read More about Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.

The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain (2018)
Journal Article
Habberstad, R., Frøseth, T. C. S., Aass, N., Abramova, T., Baas, T., Mørkeset, S. T., …Klepstad, P. (2018). The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain. BMC Palliative Care, 17(1), Article 110. https://doi.org/10.1186/s12904-018-0362-9

Background Radiation therapy (RT) results in pain relief for about 6 of 10 patients with cancer induced bone pain (CIBP) caused by bone metastases. The high number of non-responders, the long median time from RT to pain response and the risk of adver... Read More about The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain.

National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice (2018)
Journal Article
Neoh, K., Gray, R., Grant-Casey, J., Estcourt, L., Malia, C., Boland, J. W., & Bennett, M. I. (2019). National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice. Palliative medicine, 33(1), 102-108. https://doi.org/10.1177/0269216318801755

Background: Red blood cell transfusions are commonly used in palliative care to treat anaemia or symptoms caused by anaemia. In patients with advanced disease, there is little evidence of benefit to guide treatment decisions in the face of increased... Read More about National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice.

Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis (2018)
Journal Article
Kernick, L., Hogg, K., Millerick, Y., Murtagh, F., Djahit, A., & Johnson, M. (2018). Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis. Palliative medicine, 32(10), 1539-1551. https://doi.org/10.1177/0269216318801162

BACKGROUND: People with advanced heart failure have repeated hospital admissions. Advance care planning can support patient preferences, but studies in people with heart failure have not been assessed. AIM: To evaluate the literature regarding advan... Read More about Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis.

What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review (2018)
Journal Article
Credland, N., Dyson, J., & Johnson, M. J. (2018). What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review. Applied nursing research : ANR, 44, 39-47. https://doi.org/10.1016/j.apnr.2018.09.002

© 2018 Elsevier Inc. Background: Early Warning Scores were introduced into acute hospitals in 2000. 99% of acute hospitals employ a EWS to monitor deteriorating patients with 97.9% of these linked to a referral protocol. Despite this high level of ad... Read More about What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review.

Breathlessness in the emergency care setting (2018)
Journal Article
Johnson, M. J., & Hutchinson, A. (2018). Breathlessness in the emergency care setting. Current opinion in supportive and palliative care, 12(3), 232-236. https://doi.org/10.1097/SPC.0000000000000374

Abstract Purpose of review Breathlessness is one of the most common reasons for presentation at the emergency department (ED). The present review summarizes work published from 2017, which focuses on the symptom of breathlessness in its own right rat... Read More about Breathlessness in the emergency care setting.

Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care (2018)
Journal Article
Allgar, V. L., Chen, H., Richfield, E., Currow, D., Macleod, U., & Johnson, M. J. (2018). Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care. Journal of pain and symptom management, 56(4), 602-612. https://doi.org/10.1016/j.jpainsymman.2018.07.002

Background. The assessment of patients' needs for care is a critical step in achieving patient-centered cancer care. Tools can be used to assess needs and inform care planning. The Needs Assessment Tool:Progressive DiseaseeCancer (NAT:PD-C) is an Aus... Read More about Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care.

Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study (2018)
Journal Article
Raj, R., Ahuja, K., Frandsen, M., Murtagh, F. E., & Jose, M. (2018). Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study. Journal of pain and symptom management, 56(2), 281-287. https://doi.org/10.1016/j.jpainsymman.2018.04.006

Context: The significant symptom burden in advanced renal disease is often poorly recognized by clinicians. Recently, the Integrated Palliative Outcome Score (IPOS) – Renal survey was developed from pre-existing tools to capture these symptoms and o... Read More about Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study.

Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study (2018)
Journal Article
Currow, D. C., Smith, J. M., Chansriwong, P., Noble, S. I., Nikolaidou, T., Ferreira, D., …Ekström, M. (2018). Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study. European respiratory journal, 52(3), Article 1800684. https://doi.org/10.1183/13993003.00684-2018

Introduction: To explore trajectories of breathlessness intensity by function and life-limiting illness diagnosis in the last 3 weeks of life in palliative care patients. Methods: Prospective, consecutive cohort with point-of-care data of patients o... Read More about Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study.

CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study (2018)
Journal Article
Jackson, G., Gabe, R., Johnson, M., Date, K., Harman, D., Maraveyas, A., …Lind, M. J. (2019). CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study. Journal of Geriatric Oncology, 10(1), 175-177. https://doi.org/10.1016/j.jgo.2018.07.005

One of the primary risk factors in the development of cancer is older age. The demographic shift to an ageing population has given rise to an increased number of older patients with cancer. The extreme heterogeneity within this population renders app... Read More about CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study.

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis (2018)
Journal Article
Cooper, E., Hutchinson, A., Sheikh, Z., Taylor, P., Townend, W., & Johnson, M. J. (2018). Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Palliative medicine, 32(9), 1443-1454. https://doi.org/10.1177/0269216318783920

Background: Despite a fast-paced environment, the emergency clinician has a duty to meet the palliative patient's needs. Despite suggested models and interventions, this remains challenging in practice. Aim: To increase understanding of these challen... Read More about Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis.

What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data (2018)
Journal Article
Nicholson, C., Davies, J. M., George, R., Smith, B., Pace, V., Harris, L., …Murtagh, F. E. (2018). What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data. Annals of palliative medicine, 7(Supplement 3), S164-S175. https://doi.org/10.21037/apm.2018.06.07

BACKGROUND: Older people with multimorbidities are projected to be the main recipients of palliative care in the coming decades. However, because their specific palliative care needs are poorly understood and service response is underdeveloped, older... Read More about What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data.

Advance care planning with patients who have end-stage kidney disease: A systematic realist review (2018)
Journal Article
O'Halloran, P., Noble, H., Norwood, K., Maxwell, P., Shields, J., Fogarty, D., …Brazil, K. (2018). Advance care planning with patients who have end-stage kidney disease: A systematic realist review. Journal of pain and symptom management, 56(5), 795-807.e18. https://doi.org/10.1016/j.jpainsymman.2018.07.008

Context Patients with end-stage kidney disease have a high mortality rate and disease burden. Despite this, many do not speak with health care professionals about end-of-life issues. Advance care planning is recommended in this context but is complex... Read More about Advance care planning with patients who have end-stage kidney disease: A systematic realist review.

Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views (2018)
Journal Article
Chen, H., Johnson, M., Boland, E., Seymour, J., & Macleod, U. (2019). Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 27(2), 451–460. https://doi.org/10.1007/s00520-018-4328-5

Purpose Avoiding unnecessary emergency admissions and managing those that are admitted more effectively is a major concern for both patients and health services. To generate evidence useful for improving services for direct patient benefit, this stu... Read More about Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views.

Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis (2018)
Journal Article
Wakefield, D., Bayly, J., Selman, L. E., Firth, A. M., Higginson, I. J., & Murtagh, F. E. M. (2018). Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis. Palliative medicine, 32(8), 1288-1304. https://doi.org/10.1177/0269216318783919

© The Author(s) 2018. Background: Patient empowerment, defined as ‘a process through which people gain greater control over decisions and actions affecting their health’ (World Health Organization) is a key theme within global health and social care... Read More about Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis.

Which patients with heart failure should receive specialist palliative care? (2018)
Journal Article
Campbell, R. T., Petrie, M. C., Jackson, C. E., Jhund, P. S., Wright, A., Gardner, R. S., …McMurray, J. J. (2018). Which patients with heart failure should receive specialist palliative care?. European journal of heart failure, 20(9), 1338-1347. https://doi.org/10.1002/ejhf.1240

Aims We investigated which patients with heart failure (HF) should receive specialist palliative care (SPC) by first creating a definition of need for SPC in patients hospitalised with HF using patient‐reported outcome measures (PROMs) and then testi... Read More about Which patients with heart failure should receive specialist palliative care?.

Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts (2018)
Journal Article
Clark, J., Barnes, A., & Gardiner, C. (2018). Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts. Journal of pain and symptom management, 56(3), 363-370. https://doi.org/10.1016/j.jpainsymman.2018.06.009

Context The World Health Assembly Palliative Care Resolution in 2014 and the inclusion of palliative care within the sustainable development goals raised optimism that palliative care would no longer be a peripheral aspect of global health. However,... Read More about Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts.

Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing (2018)
Journal Article
Ekström, M., Johnson, M. J., Taylor, B., Luszcz, M., Wohland, P., Ferreira, D. H., & Currow, D. C. (2018). Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing. NPJ Primary Care Respiratory Medicine, 28(1), Article 20 (2018). https://doi.org/10.1038/s41533-018-0090-x

© 2018 The Author(s). Sexual activity is important to older adults (65 +). Breathlessness affects about 25% of older adults but impact on sexual activity is unknown. We evaluated the relationships between breathlessness and sexual inactivity and self... Read More about Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing.