Skip to main content

Research Repository

Advanced Search

All Outputs (19)

On the appearance and reality of mind (2016)
Journal Article
Whiting, D. (2016). On the appearance and reality of mind. Journal of Mind and Behavior, 37(1), 47-70

According to what I will call the “appearance-is-reality doctrine of mind,” conscious mental states are identical to how they subjectively appear or present themselves to us in our experience of them. The doctrine has had a number of supporters but t... Read More about On the appearance and reality of mind.

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia (2016)
Journal Article
Ellis-Smith, C., Evans, C. J., Murtagh, F. E., Henson, L. A., Firth, A. M., Higginson, I. J., Daveson, B. A., & BuildCARE, O. B. O. (2017). Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia. Palliative medicine, 31(7), 651-660. https://doi.org/10.1177/0269216316675096

Background:
Symptom burden is common for long-term care residents with dementia which if untreated compromises quality of life. Measurement tools can support assessment of symptoms and problems but are not widely used in long-term care settings. We d... Read More about Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia.

Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review (2016)
Journal Article
Obita, G. P., Boland, E. G., Currow, D. C., Johnson, M. J., & Boland, J. W. (2016). Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review. Journal of pain and symptom management, 52(6), 901-919. https://doi.org/10.1016/j.jpainsymman.2016.05.032

Context Somatostatin analogues are commonly used to relieve symptoms in malignant bowel obstruction (MBO) but are more expensive than other antisecretory agents. Objectives To evaluate the evidence of effectiveness of somatostatin analogues compared... Read More about Somatostatin analogues compared to placebo and other pharmacological agents in the management of symptoms of inoperable malignant bowel obstruction: a systematic review.

Patient and carer experience of breathlessness (2016)
Book Chapter
Hutchinson, A. (2016). Patient and carer experience of breathlessness. In C. Bausewein, D. C. Currow, & M. J. Johnson (Eds.), Palliative Care in Respiratory Disease (102-110). European Respiratory Society. https://doi.org/10.1183/2312508X.10011615

© ERS 2016. Chronic breathlessness has wide-ranging, interrelated, physical, psychological, social and existential consequences for those living with it, and for family and friends who care for them. Despite this, the symptom often remains invisible... Read More about Patient and carer experience of breathlessness.

Clinically relevant concentrations of opioids for in vitro studies (2016)
Journal Article
Boland, J. W., & Pockley, A. G. (2016). Clinically relevant concentrations of opioids for in vitro studies. Journal of Opioid Management, 12(5), 313-321. https://doi.org/10.5055/jom.2016.0348

© 2016 Journal of Opioid Management, All Rights Reserved. Objectives: Numerous in vitro studies have evaluated the influence of opioids on many biological and immunological processes. The concentrations that have been used in these studies span a lar... Read More about Clinically relevant concentrations of opioids for in vitro studies.

Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36 (2016)
Journal Article
Erez, G., Selman, L., & Murtagh, F. E. (2016). Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 25(11), 2799-2809. https://doi.org/10.1007/s11136-016-1313-7

© 2016, The Author(s). Purpose: Chronic kidney disease (CKD) negatively affects health-related quality of life (HRQoL), which is often measured using the Medical Outcomes Study Short Form 36 (SF-36) questionnaire. However, the adequacy of SF-36 in th... Read More about Measuring health-related quality of life in patients with conservatively managed stage 5 chronic kidney disease: limitations of the Medical Outcomes Study Short Form 36: SF-36.

Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays (2016)
Journal Article
Boland, J. W., Dikomitis, L., & Gadoud, A. (2016). Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays. BMJ supportive & palliative care, 6(4), 486-492. https://doi.org/10.1136/bmjspcare-2016-001110

Background: Medical students and doctors are becoming better prepared to care for patients with palliative care needs and support patients at the end of life. This preparation needs to start at medical school. Objective: To assess how medical student... Read More about Medical students writing on death, dying and palliative care : a qualitative analysis of reflective essays.

Can "realist" randomised controlled trials be genuinely realist? (2016)
Journal Article
Van Belle, S., Wong, G., Westhorp, G., Pearson, M., Emmel, N., Manzano, A., & Marchal, B. (2016). Can "realist" randomised controlled trials be genuinely realist?. Trials, 17(1), Article 313. https://doi.org/10.1186/s13063-016-1407-0

In this paper, we respond to a paper by Jamal and colleagues published in Trials in October 2015 and take an opportunity to continue the much-needed debate about what applied scientific realism is. The paper by Jamal et al. is useful because it expos... Read More about Can "realist" randomised controlled trials be genuinely realist?.

Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review (2016)
Journal Article
Fearnley, R., & Boland, J. W. (2017). Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review. Palliative medicine, 31(3), 212-222. https://doi.org/10.1177/0269216316655736

Background: Communication between parents and their children about parental life-limiting illness is stressful. Parents want support from health-care professionals; however, the extent of this support is not known. Awareness of family’s needs would h... Read More about Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness : a systematic review.

Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses (2016)
Journal Article
Hussain, J. A., White, I. R., Langan, D., Johnson, M. J., Currow, D. C., Torgerson, D. J., & Bland, M. (2016). Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses. Journal of clinical epidemiology, 74, 57-65. https://doi.org/10.1016/j.jclinepi.2015.12.003

Objectives To assess the risk posed by missing data (MD) to the power and validity of trials evaluating palliative interventions. Study Design and Setting A systematic review of MD in published randomized controlled trials (RCTs) of palliative interv... Read More about Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses.

What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review (2016)
Journal Article
Husk, K., Blockley, K., Lovell, R., Bethel, A., Bloomfield, D., Warber, S., Pearson, M., Lang, I., Byng, R., & Garside, R. (2016). What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review. Systematic reviews, 5(1), Article 93. https://doi.org/10.1186/s13643-016-0269-6

© 2016 The Author(s). Background: The use of non-drug, non-health-service interventions has been proposed as a cost-effective alternative to help those with long-term conditions manage their illness and improve their health and well-being. Interventi... Read More about What approaches to social prescribing work, for whom, and in what circumstances? A protocol for a realist review.

Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review (2016)
Journal Article
Luckett, T., Disler, R., Hosie, A., Johnson, M., Davidson, P., Currow, D., Sumah, A., & Phillips, J. (2016). Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review. NPJ Primary Care Respiratory Medicine, 26(1), Article ARTN 16025. https://doi.org/10.1038/npjpcrm.2016.25

Chronic breathlessness is a common, burdensome and distressing symptom in many advanced chronic illnesses. Self-management strategies are essential to optimise treatment, daily functioning and emotional coping. People with chronic illness commonly se... Read More about Content and quality of websites supporting self-management of chronic breathlessness in advanced illness: a systematic review.

Improving the Reporting of Health and Psychological Research (2016)
Journal Article
Fuller, T. E., Pearson, M., & Peters, J. (2016). Improving the Reporting of Health and Psychological Research. Australian Psychologist, 51(3), 182-187. https://doi.org/10.1111/ap.12135

A growing body of empirical evidence has consistently demonstrated that much publically and privately funded research is reported in a way that makes it difficult for the findings to be included in evidence syntheses or used by researchers, clinician... Read More about Improving the Reporting of Health and Psychological Research.

A mixed-methods, randomized controlled, feasibility trial to inform the design of a phase 3 trial to test the effect of the hand-held fan on physical activity and carer anxiety in patients with refractory breathlessness (2016)
Journal Article
Johnson, M. J., Booth, S., Currow, D. C., Lam, L. T., & Phillips, J. L. (2016). A mixed-methods, randomized controlled, feasibility trial to inform the design of a phase 3 trial to test the effect of the hand-held fan on physical activity and carer anxiety in patients with refractory breathlessness. Journal of pain and symptom management, 51(5), 807-815. https://doi.org/10.1016/j.jpainsymman.2015.11.026

Context The handheld fan is an inexpensive and safe way to provide facial airflow, which may reduce the sensation of chronic refractory breathlessness, a frequently encountered symptom. Objectives To test the feasibility of developing an adequately p... Read More about A mixed-methods, randomized controlled, feasibility trial to inform the design of a phase 3 trial to test the effect of the hand-held fan on physical activity and carer anxiety in patients with refractory breathlessness.

The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease (2016)
Journal Article
Boland, J. W., Reigada, C., Yorke, J., Hart, S. P., Bajwah, S., Ross, J., Wells, A., Papadopoulos, A., Currow, D. C., Grande, G., Macleod, U., & Johnson, M. J. (2016). The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease. Journal of palliative medicine, 19(5), 549-555. https://doi.org/10.1089/jpm.2015.0355

Background: Irrreversible interstitial lung disease (ILD) is associated with high morbidity and mortality. Palliative care needs of patients and caregivers are not routinely assessed; there is no tool to identify needs and triage support in clinical... Read More about The adaptation, face, and content validation of a needs assessment tool: progressive disease for people with interstitial lung disease.

Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey (2016)
Journal Article
Johnson, M. J., Allgar, V., Macleod, U., Jones, A., Oliver, S., & Currow, D. (2016). Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey. PLoS ONE, 11(1), e0146960. https://doi.org/10.1371/journal.pone.0146960

Background Family caregivers provide significant care at the end of life. We aimed to describe caregiver characteristics, and of those unwilling to repeat this role under the same circumstances. Methods Observational study of adults in private househ... Read More about Family caregivers who would be unwilling to provide care at the end of life again: findings from the Health Survey for England population survey.

Breathlessness in the elderly during the last year of life sufficient to restrict activity (2016)
Journal Article
Johnson, M. J., Bland, J. M., Gahbauer, E. A., Ekström, M., Sinnarajah, A., Gill, T. M., & Currow, D. (2016). Breathlessness in the elderly during the last year of life sufficient to restrict activity. Journal of the American Geriatrics Society, 64(1), 73-80. https://doi.org/10.1111/jgs.13865

OBJECTIVES: Breathlessness is prevalent in older people. Symptom control at the end of life is important. This study investigated relationships between age, clinical characteristics and breathlessness sufficient to have people spend at least one half... Read More about Breathlessness in the elderly during the last year of life sufficient to restrict activity.

How can frontline expertise and new models of care best contribute to safely reducing avoidable acute admissions? A mixed-methods study of four acute hospitals (2016)
Report
Pinkney, J., Rance, S., Benger, J., Brant, H., Joel-Edgar, S., Swancutt, D., Westlake, D., Pearson, M., Thomas, D., Holme, I., Endacott, R., Anderson, R., Allen, M., Purdy, S., Campbell, J., Sheaff, R., & Byng, R. (2016). How can frontline expertise and new models of care best contribute to safely reducing avoidable acute admissions? A mixed-methods study of four acute hospitals. Southampton: NIHR HSDR

Background
Hospital emergency admissions have risen annually, exacerbating pressures on emergency departments (EDs) and acute medical units. These pressures have an adverse impact on patient experience and potentially lead to suboptimal clinical dec... Read More about How can frontline expertise and new models of care best contribute to safely reducing avoidable acute admissions? A mixed-methods study of four acute hospitals.