All Outputs (455)

Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study (2018)
Journal Article
Boland, J. W., Allgar, V., Boland, E. G., Kaasa, S., Hjermstad, M. J., & Johnson, M. J. (2019). Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study. Palliative medicine, 33(2), 206-212. https://doi.org/10.1177/0269216318811011

Background: Performance status, a predictor of cancer survival, and ability to maintain independent living deteriorate in advanced disease. Understanding predictors of performance status trajectory could help identify those at risk of functional dete... Read More about Predictors and trajectory of performance status in patients with advanced cancer: A secondary data analysis of the international European Palliative Care Cancer Symptom study.

The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials (2018)
Journal Article
Lin, C.-P., Evans, C. J., Koffman, J., Armes, J., Murtagh, F. E., & Harding, R. (2019). The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials. Palliative medicine, 33(1), 5-23. https://doi.org/10.1177/0269216318809582

Background: No systematic review has focused on conceptual models underpinning advance care planning for patients with advanced cancer, and the mechanisms of action in relation to the intended outcomes. Aim: To appraise conceptual models and develop... Read More about The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials.

Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: A systematic review highlighting meaningful health outcomes (2018)
Journal Article
Namisango, E., Bristowe, K., Allsop, M. J., Murtagh, F. E., Abas, M., Higginson, I. J., Downing, J., & Harding, R. (2019). Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: A systematic review highlighting meaningful health outcomes. Patient, 12(1), 15-55. https://doi.org/10.1007/s40271-018-0333-5

Background The design and provision of quality pediatric palliative care should prioritize issues that matter to children and their families for optimal outcomes. Objective This review aims to identify symptoms, concerns and outcomes that matter to... Read More about Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: A systematic review highlighting meaningful health outcomes.

Taking forward the study of evidence use: Valuing and integrating different forms of evidence (2018)
Journal Article
Pearson, M., & Smith, K. E. (2018). Taking forward the study of evidence use: Valuing and integrating different forms of evidence. Evidence and Policy, 14(4), 567-569. https://doi.org/10.1332/174426418X15378674250492

Clinical decision-making at the end of life: A mixed-methods study (2018)
Journal Article
Taylor, P., Johnson, M. J., & Dowding, D. W. (in press). Clinical decision-making at the end of life: A mixed-methods study. BMJ supportive & palliative care, https://doi.org/10.1136/bmjspcare-2018-001535

Objectives To improve the ability of clinical staff to recognise end of life in hospital inpatients dying as a result of cancer and heart failure, and to generate new hypotheses for further research. Methods This mixed-methods study used decision th... Read More about Clinical decision-making at the end of life: A mixed-methods study.

Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache (2018)
Journal Article
Buture, A., Ahmed, F., Dikomitis, L., & Boland, J. W. (2018). Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache. Neurological Sciences, 40(1), 25–39. https://doi.org/10.1007/s10072-018-3598-5

Introduction Patients with cluster headache (CH), the most common trigeminal autonomic cephalalgia, often face delayed diagnosis, misdiagnosis and mismanagement. Objectives To identify, appraise and synthesise clinical studies on the delays in diagn... Read More about Systematic literature review on the delays in the diagnosis and misdiagnosis of cluster headache.

Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial (2018)
Journal Article
Brand, S. L., Quinn, C., Pearson, M., Lennox, C., Owens, C., Kirkpatrick, T., Callaghan, L., Stirzaker, A., Michie, S., Maguire, M., Shaw, J., & Byng, R. (2019). Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial. Evaluation, 25(2), 149-170. https://doi.org/10.1177/1356389018802134

Medical Research Council guidelines recognise the need to optimise complex interventions prior to full trial through greater understanding of underlying theory and formative process evaluation, yet there are few examples. A realist approach to format... Read More about Building programme theory to develop more adaptable and scalable complex interventions: Realist formative process evaluation prior to full trial.

Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study (2018)
Journal Article
Pinto, C., Bristowe, K., Witt, J., Davies, J. M., de Wolf-Linder, S., Dawkins, M., Guo, P., Higginson, I. J., Daveson, B., & Murtagh, F. E. (2018). Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study. Annals of palliative medicine, 7(s3), S137-S150. https://doi.org/10.21037/apm.2018.09.02

Background: Routine use of outcome measures in palliative care is recommended to demonstrate and improve quality of care. The use of outcome measures is relatively recent in UK specialist palliative care services and understanding their use in practi... Read More about Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.

The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain (2018)
Journal Article
Habberstad, R., Frøseth, T. C. S., Aass, N., Abramova, T., Baas, T., Mørkeset, S. T., Caraceni, A., Laird, B., Boland, J. W., Rossi, R., Garcia-Alonso, E., Stensheim, H., Loge, J. H., Hjermstad, M. J., Bjerkeset, E., Bye, A., Lund, J.-Å., Solheim, T. S., Vagnildhaug, O. M., Brunelli, C., …Klepstad, P. (2018). The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain. BMC Palliative Care, 17(1), Article 110. https://doi.org/10.1186/s12904-018-0362-9

Background Radiation therapy (RT) results in pain relief for about 6 of 10 patients with cancer induced bone pain (CIBP) caused by bone metastases. The high number of non-responders, the long median time from RT to pain response and the risk of adver... Read More about The Palliative Radiotherapy and Inflammation Study (PRAIS) - protocol for a longitudinal observational multicenter study on patients with cancer induced bone pain.

National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice (2018)
Journal Article
Neoh, K., Gray, R., Grant-Casey, J., Estcourt, L., Malia, C., Boland, J. W., & Bennett, M. I. (2019). National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice. Palliative medicine, 33(1), 102-108. https://doi.org/10.1177/0269216318801755

Background: Red blood cell transfusions are commonly used in palliative care to treat anaemia or symptoms caused by anaemia. In patients with advanced disease, there is little evidence of benefit to guide treatment decisions in the face of increased... Read More about National comparative audit of red blood cell transfusion practice in hospices: Recommendations for palliative care practice.

Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis (2018)
Journal Article
Kernick, L., Hogg, K., Millerick, Y., Murtagh, F., Djahit, A., & Johnson, M. (2018). Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis. Palliative medicine, 32(10), 1539-1551. https://doi.org/10.1177/0269216318801162

BACKGROUND: People with advanced heart failure have repeated hospital admissions. Advance care planning can support patient preferences, but studies in people with heart failure have not been assessed. AIM: To evaluate the literature regarding advan... Read More about Does advance care planning in addition to usual care reduce hospitalisation for patients with advanced heart failure: A systematic review and narrative synthesis.

What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review (2018)
Journal Article
Credland, N., Dyson, J., & Johnson, M. J. (2018). What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review. Applied nursing research : ANR, 44, 39-47. https://doi.org/10.1016/j.apnr.2018.09.002

© 2018 Elsevier Inc. Background: Early Warning Scores were introduced into acute hospitals in 2000. 99% of acute hospitals employ a EWS to monitor deteriorating patients with 97.9% of these linked to a referral protocol. Despite this high level of ad... Read More about What are the patterns of compliance with Early Warning Track and Trigger Tools: A narrative review.

Using realist approaches to explain the costs and cost-effectiveness of programmes (2018)
Book Chapter
Anderson, R., Hardwick, R., Pearson, M., & Byng, R. (2018). Using realist approaches to explain the costs and cost-effectiveness of programmes. In N. Emmel, J. Greenhalgh, A. Manzano, M. Monaghan, & S. Dalkin (Eds.), Doing Realist Research (107-130). SAGE Publications

Breathlessness in the emergency care setting (2018)
Journal Article
Johnson, M. J., & Hutchinson, A. (2018). Breathlessness in the emergency care setting. Current opinion in supportive and palliative care, 12(3), 232-236. https://doi.org/10.1097/SPC.0000000000000374

Abstract Purpose of review Breathlessness is one of the most common reasons for presentation at the emergency department (ED). The present review summarizes work published from 2017, which focuses on the symptom of breathlessness in its own right rat... Read More about Breathlessness in the emergency care setting.

Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care (2018)
Journal Article
Allgar, V. L., Chen, H., Richfield, E., Currow, D., Macleod, U., & Johnson, M. J. (2018). Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care. Journal of pain and symptom management, 56(4), 602-612. https://doi.org/10.1016/j.jpainsymman.2018.07.002

Background. The assessment of patients' needs for care is a critical step in achieving patient-centered cancer care. Tools can be used to assess needs and inform care planning. The Needs Assessment Tool:Progressive DiseaseeCancer (NAT:PD-C) is an Aus... Read More about Psychometric Properties of the Needs Assessment Tool—Progressive Disease Cancer in U.K. Primary Care.

Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study (2018)
Journal Article
Raj, R., Ahuja, K., Frandsen, M., Murtagh, F. E., & Jose, M. (2018). Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study. Journal of pain and symptom management, 56(2), 281-287. https://doi.org/10.1016/j.jpainsymman.2018.04.006

Context: The significant symptom burden in advanced renal disease is often poorly recognized by clinicians. Recently, the Integrated Palliative Outcome Score (IPOS) – Renal survey was developed from pre-existing tools to capture these symptoms and o... Read More about Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study.

Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study (2018)
Journal Article
Currow, D. C., Smith, J. M., Chansriwong, P., Noble, S. I., Nikolaidou, T., Ferreira, D., Johnson, M. J., & Ekström, M. (2018). Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study. European respiratory journal, 52(3), Article 1800684. https://doi.org/10.1183/13993003.00684-2018

Introduction: To explore trajectories of breathlessness intensity by function and life-limiting illness diagnosis in the last 3 weeks of life in palliative care patients. Methods: Prospective, consecutive cohort with point-of-care data of patients o... Read More about Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study.

CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study (2018)
Journal Article
Jackson, G., Gabe, R., Johnson, M., Date, K., Harman, D., Maraveyas, A., Roy, R., & Lind, M. J. (2019). CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study. Journal of Geriatric Oncology, 10(1), 175-177. https://doi.org/10.1016/j.jgo.2018.07.005

One of the primary risk factors in the development of cancer is older age. The demographic shift to an ageing population has given rise to an increased number of older patients with cancer. The extreme heterogeneity within this population renders app... Read More about CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study.

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis (2018)
Journal Article
Cooper, E., Hutchinson, A., Sheikh, Z., Taylor, P., Townend, W., & Johnson, M. J. (2018). Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Palliative medicine, 32(9), 1443-1454. https://doi.org/10.1177/0269216318783920

Background: Despite a fast-paced environment, the emergency clinician has a duty to meet the palliative patient's needs. Despite suggested models and interventions, this remains challenging in practice. Aim: To increase understanding of these challen... Read More about Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis.

What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data (2018)
Journal Article
Nicholson, C., Davies, J. M., George, R., Smith, B., Pace, V., Harris, L., Ross, J., Noble, J., Hansford, P., & Murtagh, F. E. (2018). What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data. Annals of palliative medicine, 7(Supplement 3), S164-S175. https://doi.org/10.21037/apm.2018.06.07

BACKGROUND: Older people with multimorbidities are projected to be the main recipients of palliative care in the coming decades. However, because their specific palliative care needs are poorly understood and service response is underdeveloped, older... Read More about What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data.