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All Outputs (461)

Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study (2018)
Journal Article
Raj, R., Ahuja, K., Frandsen, M., Murtagh, F. E., & Jose, M. (2018). Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study. Journal of pain and symptom management, 56(2), 281-287. https://doi.org/10.1016/j.jpainsymman.2018.04.006

Context:
The significant symptom burden in advanced renal disease is often poorly recognized by clinicians. Recently, the Integrated Palliative Outcome Score (IPOS) – Renal survey was developed from pre-existing tools to capture these symptoms and o... Read More about Validation of the IPOS-Renal Symptom Survey in advanced kidney disease; a cross-sectional study.

Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study (2018)
Journal Article
Currow, D. C., Smith, J. M., Chansriwong, P., Noble, S. I., Nikolaidou, T., Ferreira, D., Johnson, M. J., & Ekström, M. (2018). Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study. European respiratory journal, 52(3), Article 1800684. https://doi.org/10.1183/13993003.00684-2018

Introduction: To explore trajectories of breathlessness intensity by function and life-limiting illness diagnosis in the last 3 weeks of life in palliative care patients.

Methods: Prospective, consecutive cohort with point-of-care data of patients o... Read More about Missed opportunity? Worsening breathlessness as a harbinger of death: a cohort study.

CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study (2018)
Journal Article
Jackson, G., Gabe, R., Johnson, M., Date, K., Harman, D., Maraveyas, A., Roy, R., & Lind, M. J. (2019). CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study. Journal of Geriatric Oncology, 10(1), 175-177. https://doi.org/10.1016/j.jgo.2018.07.005

One of the primary risk factors in the development of cancer is older age. The demographic shift to an ageing population has given rise to an increased number of older patients with cancer. The extreme heterogeneity within this population renders app... Read More about CAMERA - complete assessment of elderly patients with cancer: A non-randomised feasibility study.

Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis (2018)
Journal Article
Cooper, E., Hutchinson, A., Sheikh, Z., Taylor, P., Townend, W., & Johnson, M. J. (2018). Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis. Palliative medicine, 32(9), 1443-1454. https://doi.org/10.1177/0269216318783920

Background: Despite a fast-paced environment, the emergency clinician has a duty to meet the
palliative patient's needs. Despite suggested models and interventions, this remains challenging in
practice.
Aim: To increase understanding of these challen... Read More about Palliative care in the emergency department: A systematic literature qualitative review and thematic synthesis.

What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data (2018)
Journal Article
Nicholson, C., Davies, J. M., George, R., Smith, B., Pace, V., Harris, L., Ross, J., Noble, J., Hansford, P., & Murtagh, F. E. (2018). What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data. Annals of palliative medicine, 7(Supplement 3), S164-S175. https://doi.org/10.21037/apm.2018.06.07

BACKGROUND: Older people with multimorbidities are projected to be the main recipients of palliative care in the coming decades. However, because their specific palliative care needs are poorly understood and service response is underdeveloped, older... Read More about What are the main palliative care symptoms and concerns of older people with multimorbidity?—a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data.

Advance care planning with patients who have end-stage kidney disease: A systematic realist review (2018)
Journal Article
O'Halloran, P., Noble, H., Norwood, K., Maxwell, P., Shields, J., Fogarty, D., Murtagh, F., Morton, R., & Brazil, K. (2018). Advance care planning with patients who have end-stage kidney disease: A systematic realist review. Journal of pain and symptom management, 56(5), 795-807.e18. https://doi.org/10.1016/j.jpainsymman.2018.07.008

Context
Patients with end-stage kidney disease have a high mortality rate and disease burden. Despite this, many do not speak with health care professionals about end-of-life issues. Advance care planning is recommended in this context but is complex... Read More about Advance care planning with patients who have end-stage kidney disease: A systematic realist review.

Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views (2018)
Journal Article
Chen, H., Johnson, M., Boland, E., Seymour, J., & Macleod, U. (2019). Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 27(2), 451–460. https://doi.org/10.1007/s00520-018-4328-5

Purpose Avoiding unnecessary emergency admissions and managing those that are admitted more effectively is a major concern for both patients and health services. To generate evidence useful for improving services for direct patient benefit, this stu... Read More about Emergency admissions and subsequent inpatient care through an emergency oncology service at a tertiary cancer centre: service users’ experiences and views.

Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis (2018)
Journal Article
Wakefield, D., Bayly, J., Selman, L. E., Firth, A. M., Higginson, I. J., & Murtagh, F. E. M. (2018). Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis. Palliative medicine, 32(8), 1288-1304. https://doi.org/10.1177/0269216318783919

© The Author(s) 2018. Background: Patient empowerment, defined as ‘a process through which people gain greater control over decisions and actions affecting their health’ (World Health Organization) is a key theme within global health and social care... Read More about Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis.

Which patients with heart failure should receive specialist palliative care? (2018)
Journal Article
Campbell, R. T., Petrie, M. C., Jackson, C. E., Jhund, P. S., Wright, A., Gardner, R. S., Sonecki, P., Pozzi, A., McSkimming, P., McConnachie, A., Finlay, F., Davidson, P., Denvir, M. A., Johnson, M. J., Hogg, K. J., & McMurray, J. J. (2018). Which patients with heart failure should receive specialist palliative care?. European journal of heart failure, 20(9), 1338-1347. https://doi.org/10.1002/ejhf.1240

Aims
We investigated which patients with heart failure (HF) should receive specialist palliative care (SPC) by first creating a definition of need for SPC in patients hospitalised with HF using patient‐reported outcome measures (PROMs) and then testi... Read More about Which patients with heart failure should receive specialist palliative care?.

Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts (2018)
Journal Article
Clark, J., Barnes, A., & Gardiner, C. (2018). Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts. Journal of pain and symptom management, 56(3), 363-370. https://doi.org/10.1016/j.jpainsymman.2018.06.009

Context
The World Health Assembly Palliative Care Resolution in 2014 and the inclusion of palliative care within the sustainable development goals raised optimism that palliative care would no longer be a peripheral aspect of global health. However,... Read More about Reframing global palliative care advocacy for the sustainable development goal era: A qualitative study of the views of international palliative care experts.

Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing (2018)
Journal Article
Ekström, M., Johnson, M. J., Taylor, B., Luszcz, M., Wohland, P., Ferreira, D. H., & Currow, D. C. (2018). Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing. NPJ Primary Care Respiratory Medicine, 28(1), Article 20 (2018). https://doi.org/10.1038/s41533-018-0090-x

© 2018 The Author(s). Sexual activity is important to older adults (65 +). Breathlessness affects about 25% of older adults but impact on sexual activity is unknown. We evaluated the relationships between breathlessness and sexual inactivity and self... Read More about Breathlessness and sexual activity in older adults: The Australian Longitudinal Study of Ageing.

Putting graphic elicitation into practice: tools and typologies for the use of participant-led diagrams in qualitative research interviews (2018)
Journal Article
Bravington, A., & King, N. (2019). Putting graphic elicitation into practice: tools and typologies for the use of participant-led diagrams in qualitative research interviews. Qualitative Research, 19(5), 506-523. https://doi.org/10.1177/1468794118781718

The use of diagrams to stimulate dialogue in research interviews, a technique known as graphic elicitation, has burgeoned since the year 2000. Reviews of the graphic elicitation literature have relied on the inconsistent terminology currently used to... Read More about Putting graphic elicitation into practice: tools and typologies for the use of participant-led diagrams in qualitative research interviews.

From programme theory to logic models for multispecialty community providers: a realist evidence synthesis (2018)
Journal Article
Sheaff, R., Brand, S. L., Lloyd, H., Wanner, A., Fornasiero, M., Briscoe, S., Valderas, J. M., Byng, R., & Pearson, M. (2018). From programme theory to logic models for multispecialty community providers: a realist evidence synthesis. Health Services and Delivery Research, 6(24), 1-210. https://doi.org/10.3310/hsdr06240

Background
The NHS policy of constructing multispecialty community providers (MCPs) rests on a complex set of assumptions about how health systems can replace hospital use with enhanced primary care for people with complex, chronic or multiple healt... Read More about From programme theory to logic models for multispecialty community providers: a realist evidence synthesis.

Survival among older adults with kidney failure is better in the first three years with chronic dialysis treatment than not (2018)
Journal Article
Tam-Tham, H., Quinn, R. R., Weaver, R. G., Zhang, J., Ravani, P., Liu, P., Thomas, C., King-Shier, K., Fruetel, K., James, M. T., Manns, B. J., Tonelli, M., Murtagh, F. E., & Hemmelgarn, B. R. (2018). Survival among older adults with kidney failure is better in the first three years with chronic dialysis treatment than not. Kidney International, 94(3), 582-588. https://doi.org/10.1016/j.kint.2018.03.007

Comparisons of survival between dialysis and nondialysis care for older adults with kidney failure have been limited to those managed by nephrologists, and are vulnerable to lead and immortal time biases. So we compared time to all-cause mortality am... Read More about Survival among older adults with kidney failure is better in the first three years with chronic dialysis treatment than not.

Symptom prevalence of patients with fibrotic interstitial lung disease: A systematic literature review (2018)
Journal Article
Carvajalino, S., Reigada, C., Johnson, M. J., Dzingina, M., & Bajwah, S. (2018). Symptom prevalence of patients with fibrotic interstitial lung disease: A systematic literature review. BMC Pulmonary Medicine, 18(1), Article 78. https://doi.org/10.1186/s12890-018-0651-3

© 2018 The Author(s). Background: Those affected by advanced fibrotic interstitial lung diseases have limited treatment options and in the terminal stages, the focus of care is on symptom management. However, quantitatively, little is known about sym... Read More about Symptom prevalence of patients with fibrotic interstitial lung disease: A systematic literature review.

Validation of the dyspnea exertion scale of breathlessness in people with life-limiting illness (2018)
Journal Article
Sandberg, J., Johnson, M. J., Currow, D. C., & Ekström, M. (2018). Validation of the dyspnea exertion scale of breathlessness in people with life-limiting illness. Journal of pain and symptom management, 56(3), 430-435.e2. https://doi.org/10.1016/j.jpainsymman.2018.05.002

Background
Although chronic breathlessness is common in life-limiting illnesses, validated feasible instruments to measure functional impact of the symptom in this population are scarce. We aimed to validate the Dyspnea Exertion Scale (DES) compared... Read More about Validation of the dyspnea exertion scale of breathlessness in people with life-limiting illness.

In silico (computed) modelling of doses and dosing regimens associated with morphine levels above international legal driving limits (2018)
Journal Article
Boland, J. W., Johnson, M., Ferreira, D., & Berry, D. J. (2018). In silico (computed) modelling of doses and dosing regimens associated with morphine levels above international legal driving limits. Palliative medicine, 32(7), 1222-1232. https://doi.org/10.1177/0269216318773956

Background:
Morphine can cause central nervous system side effects which impair driving skills. The legal blood morphine concentration limit for driving is 20 µg/L in France/Poland/Netherlands and 80 µg/L in England/Wales. There is no guidance as to... Read More about In silico (computed) modelling of doses and dosing regimens associated with morphine levels above international legal driving limits.

Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research (2018)
Journal Article
Brighton, L. J., Pask, S., Benalia, H., Bailey, S., Sumerfield, M., Witt, J., de Wolf-Linder, S., Etkind, S. N., Murtagh, F. E., Koffman, J., & Evans, C. J. (2018). Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research. Research Involvement and Engagement, 4(1), Article 14. https://doi.org/10.1186/s40900-018-0097-z

Background
Patient and public involvement (PPI) in research is increasingly recognised as important. Most PPI activities take place face-to-face, yet this can be difficult for people with ill health or caring responsibilities, and may exclude people... Read More about Taking patient and public involvement online: Qualitative evaluation of an online forum for palliative care and rehabilitation research.

The feasibility of a randomised controlled trial to compare the cost-effectiveness of palliative cardiology or usual care in people with advanced heart failure: Two exploratory prospective cohorts (2018)
Journal Article
Johnson, M. J., McSkimming, P., McConnachie, A., Geue, C., Millerick, Y., Briggs, A., & Hogg, K. (2018). The feasibility of a randomised controlled trial to compare the cost-effectiveness of palliative cardiology or usual care in people with advanced heart failure: Two exploratory prospective cohorts. Palliative medicine, 32(6), 1133-1141. https://doi.org/10.1177/0269216318763225

© 2018, © The Author(s) 2018. Background: The effectiveness of cardiology-led palliative care is unknown; we have insufficient information to conduct a full trial. Aim: To assess the feasibility (recruitment/retention, data quality, variability/sampl... Read More about The feasibility of a randomised controlled trial to compare the cost-effectiveness of palliative cardiology or usual care in people with advanced heart failure: Two exploratory prospective cohorts.